Ka taea e ēnei pukupuku te puta i roto i ō io? Me ako tātou mō 'Schwannoma'!

Kua rongo koe i te kupu 'Schwannoma'? He kupu hou pea tēnei māu. He momo pukupuku tēnei e puta mai ana i roto i tō tātou pūnaha io. Kaua e manukanuka, ehara i te mea he morearea i ngā wā katoa. Me kōrero noa iho, i roto i te huarahi e mārama ai koe.

He aha te 'Schwannoma'?

He whakarāpopototanga noa iho, ko tēnei 'Schwannoma' he pukupuku e puta mai ana i ngā 'pūtau Schwann' i roto i tō tātou tinana. Tērā pea kei te whakaaro koe he aha ēnei 'pūtau Schwann', tika? Koinei ngā pūtau o tō tātou 'pūnaha io taha' , arā, he momo pūtau e hanga ana i tētahi pūkahukahu huri noa i ngā muka io e toro atu ana i te roro me te taurakira. He rite ki te kirihou e hipoki ana i tētahi waea hiko. Ka tiakina e ēnei pūtau ō tātou io, ā, ka āwhina i ngā karere io kia tere te haere. Nō reira, ko ēnei 'pūtau Schwann' ngā mea e whakawhanake ana i ēnei pukupuku e kiia nei ko ngā 'Schwannomas'.

I te nuinga o te wā, tata ki te 90% o te wā, he pai ēnei 'Schwannomas' . Arā, kāore e horapa puta noa i te tinana, ka noho ki te wāhi kotahi. Heoi, he tino onge, ka taea e rātou te noho hei mate kino . Ki te tupu tēnā, me tino tupato koe. He puhoi te tipu o ēnei pukupuku.

Ka taea e ēnei pukupuku te whanake i ngā wāhi katoa o te tinana, i ngā wāhi katoa kei reira ngā io. Hei tauira, ko te nuinga o ēnei ka kitea i roto i ngā io e rere ana mai i tō tātou roro ki ō tātou taringa. Ka kiia hoki tēnei he 'vestibular schwannoma' he 'acoustic neuroma' rānei. Ko ngā schwannoma kino ka pā ki te 'io sciatic' i te waewae, te 'brachial plexus' i te ringa, me te 'sacral plexus' i te tuara o raro.

I ētahi wā ka kiia ngā Schwannoma he neurilemmoma, he neuroma rānei. Mena he mate pukupuku, ka kiia pea he sarcoma kiko ngohengohe .

Ko te mea pai rawa atu, 90% o te wā, kotahi anake te pukupuku e kitea ana i tēnei 'Schwannoma'.

He aha te 'Vestibular Schwannoma'?

Kua kōrerohia e tātou i mua te schwannoma vestibular. He momo schwannoma tēnei e tīmata ana i roto i ngā io o roto o te taringa e tiaki ana i te whakarongo me te taurite. Ehara hoki tēnei i te mate pukupuku, ā, ka puhoi te tipu.

Heoi, i te tipu haere o tēnei pukupuku, ka tīmata te pēhi i ngā io e pā ana ki te whakarongo me te taurite. Koinā te wā:

• Ka tīmata mārire te heke o te rongo o te taringa e pāngia ana .
• Ko te tinnitus he tangi (he tangi...he rite ki te tangi) i roto i ngā taringa.
• I ētahi wāHe rite ki te whanoke.

He puku roro te 'schwannoma'?

Tērā pea kei te whakaaro koe mēnā he pukupuku roro tonu tēnei 'schwannoma'. Ehara i te mea pērā. Ka taea te whanake i roto i te roro, i te mahunga rānei, engari ka taea hoki te whanake i roto i tētahi io i tētahi atu wāhi o te tinana. Nā te mea, e ai ki tā mātou kōrero, i hangaia ēnei mai i ngā 'pūtau Schwann', ā, kei roto aua pūtau i tō tātou 'pūnaha io taha', arā, i roto i ngā io e rere ana mai i te roro ki te toenga o te tinana.

Heoi, ko te momo tino noa i kōrerohia e mātou, ko te 'Vestibular Schwannoma' te ingoa, e kiia ana he pukupuku roro .

Ko wai ka whiwhi i te Schwannoma?

Ko te nuinga o te wā ka puta ēnei 'Schwannomas' i roto i te hunga i waenga i te 50 me te 60 tau te pakeke. He tino onge i roto i ngā tamariki nohinohi.

He maha ngā wā ka puta noa ngā schwannoma i roto i te hunga hauora. Heoi, i ētahi wā, ka puta anō hoki ngā schwannoma nā ngā āhuatanga ira pēnei i te neurofibromatosis momo 2 (NF2) , te schwannomatosis , te Carney complex rānei. Ko te hunga whai ira pēnei, he nui ake te tūponotanga kia neke atu i te kotahi te schwannoma.

He pēhea te noa o te Schwannoma?

He pukupuku tino onge te Schwannoma. Whakaarohia, ahakoa i roto i tētahi whenua pēnei i a Amerika, iti iho i te rua rau mano tāngata e pāngia ana e tēnei mate i ia tau. 60% noa iho o ngā Schwannoma kore-matepukupuku (pai) ko ngā 'Schwannoma vestibular' i kōrerotia i mua ake nei.

He aha ngā tohu o te Schwannoma?

Nā te mea he puhoi rawa te tipu o ēnei Schwannoma , kāore pea e kitea he tohu mō ngā tau. Waihoki, nā te mea ka taea e ēnei pukupuku te whanake i ngā wāhanga rerekē o te tinana, ka rerekē rawa ngā tohu i ia tangata, i ia tangata . Tērā pea he maha ngā tohu o ētahi tāngata, ā, he tino ngawari pea, ko ētahi he kino rawa.

Anei ētahi tohu noa:

• He puku, he pukupuku rānei e kitea ana . Tērā pea ka mamae te kiri ina pāngia, ina pēhia rānei.
• Te āhua ngoikore .
• Te ngoikore o te uaua .
• He rite ki te pōpokorua e ngokingoki ana, e rite ana ki te werowero me te ngira (e kīia ana tēnei e ngā tākuta ko te 'paresthesia').
• He mamae koi e rite ana ki te mamae e wera ana, e wero ana, e wero ana rānei .

He mea nui: Ka taea hoki ēnei tohu te puta mai i ētahi atu āhuatanga, nō reira, ki te pā mai tētahi mea pēnei ki a koe, he pai ake te toro atu ki tētahi tākuta mō ētahi tohutohu.

Te rerekētanga o ngā tohu i runga i te wāhi o te pukupuku

• Schwannoma VestibularE ai ki tā mātou i kōrero ai i mua ake nei, ko te hunga whai mate pēnei ka pāngia e ngā raruraru whakarongo me te taurite , ā, ka pāngia pea e te tangi o ngā taringa (tinnitus).
• Ki te puta ēnei pukupuku ki tō io kanohi , ka pā ki tō kaha ki te horomi, ki te neke i ō kanohi, me te reka . Tērā pea ka ngaro i a koe te kaha ki te whakamahi i te taha kotahi o tō kanohi (he pararutiki kanohi) .
• Ki te puta he schwannoma ki te io sciatic i te waewae, ka mamae te tuara, ka horapa ki raro i te waewae, he rite ki te kōpae herniated .

He aha te take o te Schwannoma?

Ina hoki, i te nuinga o te wā, kāore i te mōhiotia te tino pūtake o te Schwannoma . E 90% noa iho o ngā take ka puta i ētahi wā.

Heoi, e ai ki te kōrero i mua ake nei, ka taea hoki te whakawhanake i ngā Schwannomas nā ngā āhuatanga ira pēnei i te Carney complex, te Neurofibromatosis type 2 (NF2), me te Schwannomatosis. Kua whakaatuhia e ngā rangahau ira ko te ira NF2 i runga i tō tātou chromosome 22 te take matua e whai kawenga ana mō te whanaketanga o ngā Schwannomas.

Me pēhea te tautuhi i te mate Schwannoma?

Nā te puhoi o te tipu o ēnei pukupuku, ka roa pea te noho mō ngā tau i mua i te puta o ngā tohu. Nō reira , ka roa pea te wā ki te tautuhi i te mate . Mena he tohu kei a koe, tera pea ka tonoa e tō tākuta ētahi whakamātautau. I ētahi wā, ka kitea he pukupuku i te wā o te matawai mō tētahi atu take.

Ko ngā whakamātautau whakaahua hei āwhina i te kimi i te schwannoma ko:

• Matawai MRI (Atahanga Āhua-Mate) : He whakamātautau kore mamae tēnei. Ka whakamahia he aukume nui, he ngaru reo irirangi, me te rorohiko hei hanga pikitia mārama o ngā whekau me ngā hanganga i roto i te tinana. Koinei te whakamātautau pai rawa atu hei kimi me te tautuhi i te Schwannoma.
• Matawai CT (Tomography Rorohiko) : Ka whakamahia ngā hihi-X me te rorohiko hei tango pikitia o ngā hanganga i roto i te tinana.
• Matawai Ultrasound : Ka whakamahia e tēnei he ngaru oro auau teitei hei tango pikitia ora, hei ataata rānei o ngā whekau, o ngā kiko ngohengohe rānei i roto i te tinana. Ka whakamahia e ngā tākuta tēnei hei kimi i ngā schwannomas i raro i te kiri.

Tērā pea ka whakahaerehia e tō tākuta he koiora hei whakaū he schwannoma, he matepukupuku rānei. Ko te tikanga o tēnei ko te tango i tētahi tauira iti o te puku mā te whakamahi i tētahi ngira. He tohunga mate pukupuku, arā, he tākuta tohunga e tirotiro ana i ngā tauira kiko pēnei, e titiro ana ki ngā pūtau o tēnei tauira i raro i te karuārai, kātahi ka mahi i ētahi atu whakamātautau hei kimi i te momo pukupuku tēnei.

Me pēhea te rongoā mō ngā Schwannoma?

Ko te maimoatanga mō te schwannoma ka whakawhirinaki ki ngā āhuatanga pēnei i te wāhi kei reira te pukupuku, te tere o tōna tipu, me ngā tohu e pā ana ki a koe .

He maha ngā kōwhiringa maimoatanga:

• Mātakitaki/mātakitaki, tatari : Mena ehara te puku i te matepukupuku (pai), he puhoi rawa te tipu, ā, kāore he tohu, he iti noa iho rānei, ka tūtohu pea tō tākuta kia tirotirohia tata koe, kaua e rongoatia. Ko te tikanga o tēnei ka matawai pinepine rātou i a koe kia kite ai mena kei te nui haere te puku, mena rānei ka puta mai he tohu hou. Heoi, ki te nui haere, ki te puta rānei he tohu i muri mai, ka tūtohu pea rātou kia rongoatia.
• Pokanga : Mena kei te tere rawa te tipu o te pukupuku, mena kei te whakararuraru i a koe me ngā tohu, mena kei te puta mai ētahi atu raruraru, ka tūtohu pea tō tākuta kia pokangahia hei tango . I te nuinga o te wā, ka tangohia te pukupuku katoa, engari i ētahi wā, i runga i te wāhi o te pukupuku, ka taea e te taote pokanga te tango i tētahi wāhanga noa iho o te pukupuku. Ka puta ngā schwannoma i roto i te pūkahukahu huri noa i te io, nō reira ka taea te mahi pokanga me te kore e kino te io . Heoi, he nui ake te mōrearea o te ngaronga o te rongo i muri i te pokanga mō ngā schwannoma vestibular.
• Te rongoā irahiko : Ka whakamahia ngā tikanga motuhake, pērā i te pokanga irahiko stereotactic (SRS) , hei whakangaro i te pukupuku mā te tuku i ngā hihi irahiko tino arotahi. Mena kei te tata te pukupuku ki ngā oko toto nui, ki ngā io rānei , ka tūtohu pea tō tākuta i tēnei momo rongoā irahiko hei karo i ngā raruraru ka puta mai i te pokanga.

Haunga tēnei , ka whakamahia hoki ngā rongoā ārai mate me ngā rongoā chemotherapy mō te schwannoma kino.

Ka taea te ārai i te Schwannoma?

Engari, kāore anō kia kitea he huarahi hei ārai i ēnei 'schwannomas' i tēnei wā . I te nuinga o te wā, ka puta noa mai, kāore hoki e mōhiotia te take. Tata ki te 10% o ngā take e pā ana ki ētahi āhuatanga ira, ā, ka nui ake te tūponotanga ka pāngia te tangata e ēnei pukupuku.

Mena kua tāpaetia tētahi o tō whānau ki te mate neurofibromatosis momo 2 (NF2), schwannomatosis, Carney complex rānei, kōrero ki tō tākuta . Tērā pea ka tūtohu ia i te tohutohu ira kia kite ai mēnā kei a koe anō te mate.

He aha te tirohanga mō te mate Schwannoma?

Ko te mate Schwannoma tēnei.Ko te matapae, arā, te pānga o te mate ki a koe i te wā roa, e whakawhirinaki ana ki ētahi āhuatanga:

• Te wāhi kei reira te pukupuku i te tinana.
• Te rahi o te pukupuku.
• Mena i mahia te pokanga, e hia te nui o te pukupuku i tangohia ?
• Ahakoa he mate pukupuku (kino) te pukupuku, he pai rānei (pai) .

I te nuinga o te wā, he pai te āhua o te schwannoma. I te nuinga o te wā, ki te tangohia katoatia te pukupuku, e kore e tupu anō .

Ko te nuinga o ngā raruraru ka puta mai i tēnei 'Schwannoma' ka puta i muri i te pokanga hei tango i te pukupuku . Ko ēnei e whai ake nei ka tino pāngia e ngā raruraru i muri i te pokanga:

• Mena he nui rawa te pukupuku .
• Mena kei roto rawa i te tinana te pukupuku .
• Mena i tīmata te pukupuku i te io ulnar, tētahi o ngā io matua e toru o tō ringaringa.

Āhea koe me toro atu ki te tākuta mō te Schwannoma?

Mena kua tāpaetia koe he schwannoma, he mea nui kia kite tonu koe i tō tākuta mō ngā tohutohu me pēhea te whakahaere i tō schwannoma , ahakoa he tohu hou kei te puta, he tohu kino rānei kei te haere tonu .

Mena kua tūtohu tō tākuta kia tirohia e koe te pukupuku me te kore he maimoatanga, me toro atu koe ki a ia i te iti rawa kotahi i te tau mō ngā tirotiro . Kātahi ka taea e ia te mahi i ngā whakamātautau whakaahua (pēnei i te MRI) hei aroturuki i te tipu me te āhua o te pukupuku.

He mea noa te mataku ina kitea he pukupuku tōu. Engari ko te rongo pai ko te schwannoma he momo pukupuku kāore i te mate pukupuku, ā, ka puhoi te tipu . Mā tō rōpū hauora koe e āwhina ki te whakatau i te mahere maimoatanga pai mōu. He tirotiro noa iho pea i te pukupuku, he tango pokanga, he mea kē atu rānei. Kaua e wehi ki te pātai, ahakoa pēhea . Kei konei tonu tō tākuta hei āwhina i a koe.

Karere Tangohia ki te Kāinga

Āe, kua mārama kē koe ki tā tātou i kōrero ai, e Schwannoma. Anei ētahi mea nui hei maumahara māu:

• He pukupuku te schwannoma e puta mai ana i ngā pūtau Schwann e karapoti ana i ngā io. I te nuinga o te wā, ehara ēnei i te matepukupuku .
• He tino pōturi te tipu o ēnei, nō reira he maha ngā tau ka puta ai ngā tohu.
• He rerekē rawa ngā tohu i runga i te wāhi kei reira te pukupuku i roto i te tinana . Hei tauira, tera pea ka ngaro te rongo, ka tangi ngā taringa, ka ngoikore te ngākau, ka mamae, ka ngoikore hoki ngā uaua.
• Tukua ēnei kia tupu.Kāore i te tino mōhiotia te tino take, engari tera pea e hono ana ki ētahi āhuatanga ira .
• Ko te matawai MRI te huarahi matua me te huarahi pai rawa atu ki te kite i ēnei.
• Ko te maimoatanga ka uru atu ki te tirotiro i te pukupuku, te tango pokanga, te rongoā irahiko rānei . Ko te maimoatanga ka whakawhirinaki ki te momo me te wāhi o te pukupuku.
• Kaua e manukanuka , he mate ka taea te whakahaere pai i te Schwannoma, ā, ka taea te rongoā. Mena he āwangawanga, he pātai rānei āu, me kōrero ki tō tākuta.

` Schwannoma, neuromas, pūtau Schwann, schwannoma vestibular, pūnaha io, pukupuku kore-matepukupuku, matawai MRI