Kei te pāngia koe e ngā ira whero, porowhita rānei i tō kaki, i tō uma, i tō tuara, i ō ringaringa rānei? He unahi, he unahi, he maroke rānei? He maha ngā tāngata e āwangawanga ana mō tēnei mate. He mea noa te whakaaro mēnā he mate kiri noa iho, he mate kino ake rānei. I tēnei rā, ka kōrero tātou mō te Subacute Cutaneous Lupus Erythematosus, te SCLE rānei, he momo lupus e pā ana ki te kiri anake. Kia mōhio pai koe ki tēnei, ka māmā ake te whakahaere i tēnei mate.
He aha te SCLE?
Āe, me whakamāmā noa iho tēnei. Ko te SCLE he mate nō roto i tētahi rōpū mate e kiia nei ko te lupus, ā, ko te kiri te nuinga e pāngia ai. Ko te Lupus he mate e puta mai ana i tētahi raruraru o te pūnaha ārai mate o tō tātou tinana. I te nuinga o te wā, ka whawhai tō tātou pūnaha ārai mate ki ngā iroriki e puta ai te mate. Engari i roto i tētahi mate pēnei i te lupus, ka tīmata te pūnaha nei ki te whakaeke i ō tātou ake pūtau hauora.
Ko te SCLE he momo lupus e pā ana ki te kiri. Ka kiia e ngā tākuta ko te Cutaneous Lupus Erythematosus (CLE). Ko te kupu "Subacute" e pā ana ki te momo mumura e kitea ana i roto i te koiora kiri, arā, he wahi iti o te kiri ka tangohia, ka tirotirohia.
He mea nui, tata ki te haurua o te hunga whai SCLE he mate lupus noa iho, arā, ko te Systemic Lupus Erythematosus, ko te SLE rānei. Ko te SLE he mate ka pā ki te kiri, tae atu ki ngā whekau o roto pērā i ngā whatukuhu, te ngākau, me te roro. Nō reira, he mea nui kia kōrero ki te tākuta mēnā kei a koe ngā tohu o te SCLE.
He rerekē te pānga o tēnei mate ki te katoa, nō reira he uaua ki te tautuhi i te mate. Ko te mea nui ko te kimi i tētahi tākuta e whakarongo ana ki a koe, e kimi ana hoki i te rongoā tika māu.
He aha ngā momo matua o te SCLE?
E rua ngā huarahi matua e kitea ai te SCLE. He rerekē te āhua o ēnei e rua. Kia kite tātou he aha rāua.
| Momo SCLE | Āhua me ngā āhuatanga |
|---|---|
| SCLE Porowhita | Mā tēnei momo mate kiri ka puta ake ngā papa whero, unahi, porowhita, porowhita rānei (ngā papaki) ki te kiri. Ko te nuinga o te wā ka puta ēnei papaki ki ngā wāhi e pāngia ana e te rā. I muri i te ora o ēnei papaki, ka paku mā te kiri o aua wāhi. Ka kiia tēnei e ngā tākuta he hypopigmentation . |
| SCLE Papulosquamous | Ko te āhua o tēnei momo ponana kiri he huinga o ngā papule iti me te āhua unahi. I te tirohanga tuatahi, tera pea he rite ki te ekisema, ki te psoriasis rānei. Ka nui ake hoki te pānga o te rā ki tēnei momo. |
He aha ngā tohu o te SCLE?
Ko te tohu matua o te SCLE he ponana kiri. Ka kitea whānuitia ēnei i ngā wāhanga o tō tinana e whiti ana ki te rā, pērā i te kaki, te uma, te tuara, me ngā ringa.
Ka penei pea tēnei kino:
- He whero, he porowhita te āhua, he ira porowhita. I ētahi wā ka honoa ēnei mowhiti tetahi ki tetahi, ā, ka rite ki tētahi tauira nui.
- He kiri whero, he unahi, he maroke, he unahi. He rite tonu te āhua ki te psoriasis.
Ko te mea pai rawa atu, kāore ēnei ira e mākūkū, e waiho rānei he koha . Heoi anō, tera pea ka noho tonu te rerekētanga o te kiri i muri i te ora o ngā ira.
He aha ngā āhuatanga e whai wāhi ana ki te whanaketanga o te SCLE?
He uaua ki te tohu i tētahi take kotahi mō te SCLE. He take uaua. E whakapono ana ngā kairangahau he maha ngā āhuatanga e hono tahi ana hei take.
- Ngā āhuatanga ira: Ko te tikanga tēnei he hononga ira pea. Mena he mate lupus tō tētahi o tō whānau, tera pea ka tūpono koe ki te mate.
- Ngā āhuatanga taiao: Ko te mea nui o ēnei ko te hihi ultraviolet , arā, ko te rā. Hei tāpiri, e whakaponohia ana ka pāngia anō hoki ngā āhuatanga pēnei i te whakamahi tupeka me ngā patu pepeke.
- Ētahi rongoā: Tata ki te hautoru o te hunga whai SCLE ka pāngia e te mate i muri i te tango i ētahi rongoā. Ka kiia tēnei ko te "Drug-induced SCLE".
| Ko ētahi rongoā ka pāngia e te SCLE |
|---|
| Ngā rongoā ārai-harore |
| Ko ētahi rongoā ārai-hopu |
| Ko ētahi rongoā toto toto tiketike, hei tauira ko ngā aukati ACE |
| Ngā rongoā chemotherapy |
| Ko ētahi rongoā e whakamahia ana hei rongoā i te gastritis (ngā aukati papu proton - PPI) |
| Ko ētahi rongoā e whakamahia ana hei rongoā i ngā mate pēnei i te rumatiki (ngā aukati i te mate pukupuku necrosis) |
Ko wai kei te nui ake te mōrearea ki te whakawhanake i te SCLE?
- He nui ake te kitea o tēnei i roto i ngā wāhine i ngā tāne.
- Ka kitea nuitia i roto i te hunga i waenga i te 40 me te 60 tau te pakeke.
- Ahakoa he nui ake te kitea i roto i te hunga mā, ka taea tonu tēnei āhuatanga te pā ki te hunga o ngā iwi katoa.
Te tātaritanga me te maimoatanga o te mate
Mena kei a koe ēnei tohu, ko te mea tuatahi me mahi e koe ko te toro atu ki te tākuta. Tērā pea ka tukuna koe ki te tākuta kiri, ki te tākuta rumatiki rānei.
Me pēhea te tautuhi i te mate?
Ka tirohia tō kiri e te tākuta, ka pātai atu hoki mō ō tohumate. Kātahi ka whakahaerehia pea e rātou ēnei whakamātautau hei whakaū i te mate:
- Ko te koiora kiri: Ko te tango i tētahi tauira iti rawa o te kiri mai i tētahi mole i runga i tō kiri i raro i te rongoā whakamoe, ka tirotirohia i raro i te karuārai. Ka āwhina tēnei ki te whakatau mēnā nā te SCLE, nā tētahi atu mate kiri rānei i puta ai te mole.
- Ngā whakamātautau toto: He maha ngā whakamātautau toto ka taea te mahi.
- Te tatau toto katoa (CBC)
- Te auau whakapūmau (ESR) me te pūmua C-reactive (CRP) - Ka tirohia e ēnei te mumura i roto i te tinana.
- Whakamātautau paturopi anti-nuclear (ANA): He whakamātautau tino nui tēnei hei tātaritanga i te lupus.
- Ngā whakamātautau mahi a te whatukuhu me te ate
- Te tātaritanga mimi
Me pēhea te rongoā mō te SCLE?
Ko te mea tino nui, ko te mea tuatahi hoki mō te rongoā i te SCLE ko te tiaki i te rā , nā te mea ko te hihi o te rā te mea matua e whakararuraru ana i tēnei mate.
Hei tāpiritanga, ka tūtohu pea tō tākuta i ngā rongoā ā-waha, ā-waha rānei, i runga i te kaha o ō tohumate.
| Momo maimoatanga | Ngā tauira (mēnā he whakahaunga hauora anake) |
|---|---|
| Ngā steroids ā-papa | Hydrocortisone, Triamcinolone, Clobetasol |
| Ētahi atu kirimi kiri ā-papa (Ngā aukati calcineurin ā-papa) | Takrolimus, Pimecrolimus |
| Ngā rongoā ā-waha mō te mate pāwera | Hydroxychloroquine, Korokuini |
| Ngā rongoā ārai mate ā-waha | Methotrexate, Azathioprine |
| Ētahi atu momo rongoā | Dapsone, Retinoids, Monoclonal antibodies (IVIG, Rituximab) |
Whakatūpato: Kaua e whakamahia tētahi o ēnei rongoā me te kore he tohutohu hauora. Ko tō tākuta anake ka taea te whakatau i te maimoatanga pai rawa atu māu.
Me pēhea te noho tahi me te SCLE?
He mate pumau (mau tonu) te SCLE mō te wā roa. Ko te tikanga ka piki ake ngā tohu i ētahi wā, ka heke iho hoki i ētahi wā. Heoi, ka taea te whakahaere pai, ā, ka taea e koe te noho noa i te ao.
Ko te tiaki i te rā te mea tuatahi!
Koinei te mea tino nui ka taea e koe te mahi.
- Whakamahia he paninga rā whānui-whānui me te SPF 50, neke atu rānei, i ia rā ina haere koe ki waho i te rā . He mea nui tēnei, ahakoa i ngā rā kapua.
- Āta karohia te rā kaha i waenga i te 10 i te ata me te 4 i te ahiahi.
- Ina haere koe ki waho i te rā, mauria he kākahu tiaki rā, pērā i te pōtae whānui me ngā kākahu ringaringa roa.
- Kati rawa te whakamahi i ngā moenga tanning.
He rongoā anō hoki te tiaki pai i a koe anō!
- Kia mārama ki te mate: Pānuihia ngā kōrero mō tēnei mate mai i ngā puna pono, ā, kia mōhio ai koe ki ngā āhuatanga o roto i tō tinana.
- Kimihia he tākuta e whakawhirinaki ana koe: Me toro atu pea koe ki te tākuta i ia wā, nō reira me rapu tonu i te maimoatanga mai i tētahi tākuta e whakarongo ana ki a koe, e mārama ana hoki ki a koe.
- Hangaia he pūnaha tautoko: Mā te kōrero ki te hunga kei roto i te āhuatanga ōrite, me te whakapuaki i ō wheako, ka tino kaha tō hinengaro.
- Tiaki i a koe anō: Kai hauora, whakakorikori tinana, moe pai, me te whakahaere i te ahotea. Ka āwhina nui ēnei i a koe ki te whakahaere i te mate.
I te mea kei a koe te SCLE, ā, me tiaki tonu koe i a koe mai i te rā, tera pea ka pāngia koe e te ngoikore o te huaora D. He mea pai kia kōrero koe ki tō tākuta mō tēnei, me te tango i tētahi tāpiringa huaora D mēnā e tika ana.
Karere Tangohia ki te Kāinga
- He mate mō te wā roa te SCLE e pāngia ai te kiri e te lupus.
- Ko te tohu matua ko te putanga mai o ngā ira whero, porowhita, unahi rānei i runga i te kiri e pāngia ana e te rā.
- Ko te tiaki i te rā te taahiraa tino nui, te taahiraa tuatahi hoki, hei whakahaere i tēnei mate.
- Kāore ēnei ira e mākūkū, e whakararu rānei i te kiri, engari ka waiho pea he rerekētanga o te tae o te kiri.
- Ki te pā mai ēnei tohu ki a koe, kaua e mataku, me toro atu ki te tākuta i te wā e taea ai. Mā te maimoatanga me te whakahaere tika, ka taea e koe te noho i te oranga noa.
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