Kei te ngenge tonu koe i ngā wā katoa? Tērā pea nā te Chronic Fatigue Syndrome (CFS) tēnei!

Tērā ētahi rā, tika? Ina ara ake koe i te ata, ka tino ngenge koe. Ahakoa tāu mahi i te rā katoa, kāore taua ngenge e ngaro. Kei te pā tonu tēnei momo wheako ki a koe? I ētahi wā, kāore e roa mō te wiki, e rua rānei, engari mō ngā marama, tae atu ki ngā tau. Koinei te āhua ka kōrerohia e tātou i tēnei rā , ko te Chronic Fatigue Syndrome (CFS) . He ahua uaua tēnei, engari me kōrero māmā noa iho.

Nā, he aha te mate ngenge mau tonu (CFS)?

Ki te whakarapopoto, ko te Chronic Fatigue Syndrome (CFS) he mate roa, he mate mau tonu rānei , e tino ngenge ai koe, e ngoikore ai hoki. Whakaarohia, ko ētahi tāngata he tino ngenge, kāore e taea te ara ake i te moenga. Haunga tēnei ngenge, tera pea ka pāngia koe e ētahi atu tohu tinana, pērā i te ānini, te whanoke, me te mamae o te tinana. I ētahi wā, tera pea ka pāngia koe e ngā tohu hinengaro, pērā i te riri me te pouri.

Ehara i te mea he rite tonu ngā tohu o te katoa e pāngia ana e te CFS. He rerekē i ia tangata, i ia tangata. Waihoki, ahakoa te tangata kotahi, ka rerekē pea ngā tohu i ia wā, i ia wā. He mea whakamiharo? He rite ngā tohu o te CFS ki ētahi atu mate e mōhiotia ana e tātou. Hei tauira, tera pea he rite ngā tohu o ētahi tāngata ki ngā mate rewharewha e kiia nei ko te "Mononucleosis", he mate e kiia nei ko te "Lyme disease", te pouri rānei.

Koia te take he uaua te rongoā i tēnei mate. He uaua ki te whakahaere i ēnei tohu katoa mā te rongoā kotahi, mā te tikanga rongoā rānei.

Ko tētahi atu ingoa mō te CFS ko Myalgic Encephalomyelitis (ME) . Ko te tikanga o "Myalgic" he mamae uaua . Ko te tikanga o "Encephalomyelitis" he pupuhi, he mumura rānei o te roro, o te taurakira rānei . Mena he ahua pōhēhē ēnei kupu, me maumahara noa koe ki te ingoa CFS.

He aha ngā tohu matua o te CFS?

He whānuitia ngā tohu o te tangata whai CFS. Ko ngā tohu tino kitea ko:

• Ngenge e kore e taea te whakamanawanui: Ka tino kino rawa atu tēnei, ā, i ētahi wā ka tino ngenge koe, ka uaua ki te ara ake i te moenga, tae atu ki te mahi i ō mahi o ia rā.
• Ngā raruraru moe: Kei roto i tēnei ko te kore e moe tika, te oho ake i waenganui o te moe, te oho ake rānei me te ngenge me te kore hihiri ahakoa te nui o te moe e moe ana koe.
• Te kino haere o ngā tohu i muri i te whakapau kaha tinana, hinengaro rānei: Ka kiia tēnei ko te "mate pāwera i muri i te whakapau kaha." Ko te tikanga ka kino haere ngā tohu i muri i te mahi i tētahi mea, i te whakaaro rānei ki tētahi mea.
• Te pōuriuri i te tūnga, i te ara ake rānei i te takotoranga: He raruraru anō hoki tēnei e pāngia ana e te tini tāngata.
• Ngā uauatanga ki te arotahi me ngā raruraru mahara:He uaua ki te maumahara ki tetahi mea, he uaua ki te arotahi ki tetahi mea.
• Te mamae o te upoko me te mamae o te puku: He tohu noa anō hoki ēnei.

Mena kua roa koe e pāngia ana e tētahi, e ētahi rānei o ēnei tohu, he pai ake te toro atu ki tētahi tākuta me te kōrero ki a rātou.

He aha te take e puta ai te CFS? He aha ngā take?

Ina hoki, kua maha ngā tau e rangahau ana ngā kaipūtaiao i te CFS, engari kāore anō kia kitea e rātou te pūtake o taua mate.

Heoi, he tokomaha ngā tākuta e whakapono ana he nui ake te tūponotanga o ētahi tāngata ki te pāngia e te CFS nā te āhua o te taunekeneke a ētahi āhuatanga hauora ki a rātou anō i roto i te tinana me te hinengaro. Hei tauira, ki te pāngia tētahi e te mate huaketo, ā, kei raro hoki i te nui o te ahotea, mā te whakakotahitanga o ēnei āhuatanga e rua ka nui ake te tūponotanga ki te pāngia e te CFS.

He maha ngā āhuatanga e whakaarohia ana he hononga tetahi ki tetahi, ā, ka piki ake te mōrearea o te CFS:

• Ngā Mate Pukupuku: Kei te rangahauhia hoki e ngā tohunga mēnā ko ngā mate pēnei i te rewharewha, te huaketo Epstein-Barr rānei, e hua ai te mononucleosis, ka piki ake te mōrearea o te CFS. Heoi, kāore anō kia kitea he taunakitanga mārama mō te nui o te mahi a te huaketo Epstein-Barr.
• Ngā raruraru o te pūnaha ārai mate, o te pūnaha io rānei: Ka puta pea tēnei āhuatanga i te ngoikore o te pūnaha ārai mate, o te pūnaha io rānei o te tinana.
• Te kore taurite o ngā homoni: Ngā huringa o ngā homoni o te tinana.
• Te ahotea kare ā-roto: Ngā āhuatanga pēnei i te nui rawa o te pēhanga me te pouri.
• Te toto toto iti:

Ka pāngia te tangata o ngā iwi me ngā tau katoa e te CFS. Heoi, he mea tino noa i roto i te hunga 40, 50 rānei ō rātou tau . He onge i roto i ngā tamariki nohinohi. Heoi, ka pāngia hoki ētahi tamariki nohinohi (taiohi) e te CFS, ā, he nui ake te pānga ki ngā kōtiro i ngā tama.

I ētahi wā, ka pāngia ētahi mema o te whānau kotahi e te CFS. Kei reira anō te whakaaro he pānga ira pea tēnei, engari me nui ake ngā rangahau hei whakaū i tēnei.

Me pēhea koe e tino mōhio ai mēnā kei a koe te CFS? Me pēhea te tautuhi i te mate

I tēnei wā, kāore he whakamātautau motuhake hei whakaatu māu mēnā kei a koe te CFS. He maha ngā pātai ka pātaihia e ngā tākuta ki a koe. Kei roto i tēnei ko tō hītori hauora, te hauora o tō whānau, ngā rongoā e tangohia ana e koe, ngā mate pāwera katoa kei a koe, me te mea kei te momi hikareti koe, kei te inu waipiro rānei. Ka tirotirohia hoki e rātou tō tinana.

Waihoki, ka whakahaua e ngā tākuta he whakamātautau toto, he whakamātautau mimi, he whakamātautau rānei hei tirotiro i ētahi atu āhuatanga e puta ai ēnei tohu. I ētahi wā ka tukuna pea koe ki ētahi atu tohunga. Hei tauira, he tohunga moe, he tohunga roro rānei.

Ko te tautuhi i te CFS ka mahia i muri i te kitenga o ngā tohu mō te iti rawa o te 6 marama , nā te mea ka roa te wā ka puta mai ngā hua o te whakamātautau, ā, ka roa hoki te wā ka kite ngā tohunga i a koe.

Heoi, kāore koe e hiahia ki te tatari mō ngā marama e 6 ki te tīmata i te maimoatanga. Mena kei a koe ngā tohu, ka taea e koe te toro atu ki te tākuta tonu me te tīmata i te maimoatanga. I ētahi wā ka ngaro pea ngā tohu i roto i aua marama e 6. Mena ka tupu tēnā, ehara pea i te CFS, engari he mea kē atu.

He aha ngā maimoatanga mō te CFS? Me pēhea te whakahaere?

Kāore anō kia kitea he rongoā mō te CFS . Heoi, ka taea te whakahaere me te whakahaere i ngā tohu . E ai ki ngā tohunga he mea pai kia arotahi ki ngā tohu e tino whakararuraru ana i a koe, kātahi ka mahi tahi me te tākuta ki te rongoā i aua tohu.

• Te ngoikore i muri i te whakakori tinana: Mō te hunga e ngenge ana ahakoa te mahi iti, ā, he nui ngā tohu, ka tohutohu ngā tohunga kia tere ake ā rātou mahi . Ko te tikanga tēnei kia mārama ki ō rohe me te whakataurite i te mahi me te okioki. Ka rerekē pea tēnei i ia tangata, i ia tangata. Ehara i te mea pai kia akiakihia e te tangata whai CFS a rātou anō ki te mahi i ngā mea e kore e taea e rātou te whakahaere. Ki te tupu tēnā, ka kino haere ngā tohu (e kiia ana hoki he "crash").
• Pōuriuri: Ko te hunga e pōuriuri ana, e māuiui ana te mahunga, e pōuriuri ana rānei ina tū ake, me nui ake te inu wai, me tāpiri he tote ki ā rātou kai, me mau rānei i ngā tōkena tautoko.
• Ngā raruraru moe: Mā te ngana ki te moe pai i te pō ka āwhina i te ārai i ngā raruraru moe e pā ana ki te CFS. Kei roto i tēnei ko te mahi i tētahi mea whakangā i mua i te moe me te pupuri i tō rūma moe kia marino.
• Ngā raruraru aro me te mahara: Ka taea te āwhina i ēnei raruraru mā te hanga rārangi me te pupuri i ngā tuhipoka iti hei maumahara ki ngā mea nui.
• Te mamae o te upoko me te puku: Ka taea e ētahi tāngata te whakaiti i te mamae mā te mirimiri mārie me te whakamahana.

Mō ētahi o ēnei tohu, ka tohua pea e ngā tākuta ngā rongoā kore-whakahaunga (OTC) me ngā rongoā kua tohua.

He kaiwhakaora hinengaro, he kaiwhakatakoto whakaaro rāneiHe nui hoki te āwhina o te hui tahi i roto i te maimoatanga o te CFS. He pai hoki te whakauru atu ki ngā rōpū tautoko e huihui ai te hunga whai CFS. Ko te whāinga matua o tēnei tohutohu hinengaro he āwhina i a koe ki te ora me tēnei mate. Nā te mea he tino uaua, he taumaha hoki te noho me tēnei mate i ētahi wā. Heoi, kāore e taea te whakaora i te mate. I ētahi wā, ko ngā mahi pēnei i te manawa hōhonu, te mirimiri, me te yoga ka taea te whakaiti i te ahotea hinengaro me te whakarato i te whakamarie ki te tinana.

He aha atu ngā mea nui me mōhio koe?

He mea tino nui kia maumahara ki ētahi atu mea i a koe e noho tahi ana me tēnei mate.

• He mea noa te rongo i ngā kare ā-roto kaha, te mōhio me te whakapuaki i aua kare ā-roto: He mea tino noa te pouri, te riri, me te pōuri mō tēnei mate. Kia mārama koe nō roto i a koe ēnei kare ā-roto. Ehara i te mea nāu te he. Mā te whakaae kei te pēnei ō kare ā-roto, kaua e ngana ki te huna, ka taea e koe te āwhina i a koe anō ki te mārama ki ngā take kei muri i ō kare ā-roto me te whakahaere i aua kare ā-roto.
• Puritia he rātaka: He tino āwhina te pupuri i tētahi rātaka o ō kare ā-roto me ō taumata pūngao (ngā piki me ngā heke) puta noa i te rā. Ka āwhina hoki ēnei mōhiohio ki tō tākuta. Ka taea hoki e koe te tautuhi i ngā au, pērā i te wā e nui ana tō pūngao me te wā e iti ana tō pūngao. Mā tēnei koe e āwhina ki te whiriwhiri i ngā wā pai mō te whakakorikori tinana me te mahi i ētahi atu mahi.
• Whakaroahia te wā mō te mahi: Whakaroahia te wā mō ngā mahi e hiahia ana kia arotahi, inā koa ko ngā mea e hiahia ana kia kaha te mahi. Kaua e mataku.
• Rapua he tautoko mai i te whānau, i ngā kaiako, me ngā hoa: Kāore koe i te mokemoke. Kei te taha tonu koe ētahi tāngata e mārama ana ki ōu uauatanga, ā, ka taea e rātou te āwhina.

Ko te mea nui, kaua e ngenge! He uaua te noho me te mate ngenge mau tonu. Heoi, mō te tini o te tangata, ka tino kino ngā tohu i te tīmatanga. I muri mai, ka iti ake te kaha, ka ngaro atu rānei. Ina koa mō ngā tamariki nohinohi (taiohi), ki te pāngia rātou e te CFS, ka tere ake te ora me te tino ora i ngā pakeke. Ko te nuinga o ngā tamariki nohinohi ka ora katoa, ka ora wāhanga rānei i roto i te 5 tau i muri i te tīmatanga o ngā tohu.

Ngāna kia mau te whakaaro pai kei te ora ake koe. Kaua e rapu tonu i ngā take pēnei i te, "He aha i pā ai tēnei ki ahau?" Ko te hunga e kaha ana ki te mahi, e pai ana hoki, ka whiwhi hua pai ake.

Nā, he aha te karere e hiahia ana tātou ki te kawe mai i tēnei?

Āe, kua kōrerohia e tātou te maha o ngā mea mō te Chronic Fatigue Syndrome (CFS) i tēnei rā. Anei ētahi mea hei maumahara māu:

• He āhuatanga tūturu te CFS e hua ai te ngenge e kore e taea te whakamanawanui me te tini o ngā tohu kē atu .
• He uaua pea te tautuhi i tēnei, nā te mea he rite tonu ngā tohu o ētahi atu mate.
• Ahakoa kāore he rongoā, mā te whakahaere i ngā tohu ka māmā ake te oranga.
• He mea tino nui kia whai i ngā tohutohu a te rata, kia whakarongo ki tō tinana (kia tere ai te oma), me te rapu tautoko hinengaro .
• Kāore koe i te mokemoke. Kei reira te whānau, ngā hoa, me ngā rōpū tautoko hei tautoko i a koe.
• Kia mau ki te whakaaro pai, kaua e ngākau māhaki. Tērā pea ka pai ake ngā mea i roto i te wā.

Mena kei a koe, kei tētahi rānei e mōhio ana koe, ko te mea pai ko te toro atu ki te tākuta me te tiki tohutohu. Kaua e mataku, kōrerohia, me te tono āwhina.

Te Mate Ngenge Mau tonu, CFS, Myalgic Encephalomyelitis, ngenge mau tonu, ngenge nui, ngā tohu, te maimoatanga