He aha ngā tohu o te Lupus?
Ka rerekē ngā tohu o te lupus i ia tangata, i ia tangata. Ko te tikanga, ehara i te mea ka pāngia te katoa e ngā tohu ōrite. Engari he tohu noa iho ētahi. Me titiro tātou ki ērā.- He whero te kiri i te mata, i ētahi atu wāhanga rānei o te tinana . I ētahi wā ka puta tēnei i ngā taha e rua o te mata, he rite ki te pūrerehua (he whero te kiri).
- Ka tino pāngia te kiri e te hihi o te rā . Ahakoa he wā poto noa iho ka puta te whero me te mākūkū .
- Te tino ngenge . Ahakoa te roa o te moe, tera pea ka whakaaro koe kāore e memeha haere tēnei ngenge.
- He kirika e puta mai ana, kāore he take .
- Te mamae o ngā hononga me te pupuhi . Tērā pea ka kino ake tēnei mamae i te ata.
- Te mate a Raynaud . Koinei te wā ka huri whakarere ngā maihao me ngā matimati ki te mā, ki te kikorangi, ki te ngenge, ki te mamae hoki ina pāngia e te makariri. Kātahi ka huri whero anō.
- Ngā mamae o ngā uaua .
- Te whakaheke taumaha .
- Ngā mate pāwera i roto i te ihu, te waha, te korokoro rānei .
- Ngā repe pupuhi .
- Ngā wāhi pakira me te ngaro o te makawe .
- He hekenga o te maha o ngā toto toto whero, arā, te anemia .
- Te pāngia e ngā mate pāwera pinepine .
- Te mumura o ngā kiriuhi e karapoti ana i te ngākau, te puku, ngā pukahukahu rānei . Ka mamae pea te uma, ka uaua hoki te manawa.
- Ngā mate hopuhopu, ētahi atu raruraru pūnaha io rānei.
- Ngā raruraru tākihi : Ko ngā tohu pea ko te pūmua i roto i te mimi me te pupuhi i ngā waewae.
Kia maumahara, ahakoa kotahi, e rua rānei o ēnei tohu kei a koe, ehara i te mea kei a koe te lupus. Engari, ki te mea he maha ō tohu e pā ana ki a koe, he pai ake te toro atu ki te tākuta mō ētahi tohutohu.Ko te Lupus te mea tino kitea i roto i ngā wāhine taitamariki, inā koa ko te hunga i waenga i te 15 me te 45 tau te pakeke.
He aha ngā momo matua o te lupus?
Ahakoa e kiia ana ko te lupus, he maha ngā momo matua. Me titiro tātou he aha ēnei.Lupus Erythematosus Pūnaha (SLE)
Koinei te momo lupus tino noa. Ko te kupu 'pūnaha' e tohu ana ka pā ki ngā pūnaha maha o te tinana. Ko te tikanga ka pā te SLE ki ngā whekau maha, tae atu ki te kiri, ngā hononga, ngā whatukuhu, te roro, te ngākau, me ngā pukahukahu. Koia te take he rerekē ngā tohu.Lupus kiri
Ko te kiri te nuinga o te pānga o tēnei momo. Tērā atu anō ētahi momo o tēnei momo, hei tauira:- Discoid Lupus Erythematosus (DLE) : Ka puta ake ngā wāhi porowhita, he āhua moni, he whero, he unahi ki te kiri. Ko te nuinga o ēnei ka puta ki ngā wāhi e whiti ana te rā pērā i te mata, ngā taringa, me te tumuaki. Mena ka puta te ponana ki te tumuaki, ka ngaro pea te makawe, ā, i ētahi wā ka puta he koha.
- Lupus Erythematosus Kiri Āhua-whakamataku (SCLE) : Ka puta pea he whero, he porowhita, he papulosquamous rānei i tēnei. He maha ake ngā wā ka puta ēnei i ngā wāhi e whiti ana te rā. Heoi, he iti ake te tūponotanga ka puta he mātā i tērā i te DLE.
Lupus Erythematosus i puta mai i te rongoā (DILE)
He kōrero rerekē tēnei. Ka taea e ētahi rongoā (hei tauira, ētahi rongoā mō te toto toto tiketike, te mate ngakau, me te mate haurangi) te whakaputa i ngā tohumate lupus hei tauhohenga ki te whakamahinga roa. Engari ko te mea nui ko te ngaro haere o ēnei tohumate i roto i ētahi marama i muri i te whakamutu i te rongoā. Ā, he iti ake te tūponotanga ka puta he kino nui, pērā i te kino o te whatukuhu.He aha ngā take o te lupus?
He uaua ki te tohu i te take kotahi anake o te lupus. He maha ngā āhuatanga e pā mai ana i te nuinga o te wā. Me titiro tātou ki ngā āhuatanga matua ka whai wāhi ki tēnei:- Te āhua o te ira : Mena he mate lupus, he mate pūnaha ārai mate rānei kei roto i ētahi tāngata i roto i ō rātou whānau, tera pea he āhua o te hiahia ki te whakawhanake i tēnei mate. Ko te tikanga he pānga o ngā ira ki tēnei mate. Heoi, kāore te ira anake e puta ai te mate, me whai wāhi anō hoki ētahi atu āhuatanga.
- Ngā mea whakaoho taiaoI ētahi wā ka pā mai tēnei mate i ngā mea o te taiao o waho.
- Ngā Mate Pukupuku : Kua kitea ka puta ngā tohu o te lupus i muri i ētahi mea, pērā i ngā mate huaketo.
- Ngā rongoā motuhake : E ai ki tā tātou i kōrero ai i mua ake nei, ka puta te lupus hei tauhohenga ki ētahi rongoā.
- Te hihi o te rā (ira UV) : Ka taea hoki e te hihi ultraviolet te whakaputa i te lupus i roto i ētahi tāngata.
- Te ahotea tino nui, te ahotea ā-tinana, ā-hinengaro rānei : Ka puta pea ngā tohu i ētahi wā i muri i ngā huihuinga tino ahotea, pērā i te aituā nui, te pokanga, te matenga rānei o tētahi e arohaina ana.
- Ngā homoni : Nā te mea he nui ake te kitea o te lupus i roto i ngā wāhine, e whakapono ana ngā kaipūtaiao he pānga pea te homoni wahine estrogen ki te mate. Hei tauira, ka rerekē pea ngā tohu i te wā e hapu ana, i ētahi wā rānei o te huringa paheketanga.
Ko te tikanga o tēnei, kia pāngia ai te tangata e te lupus, me whai ira tūturu rātou ki tēnei mate, ā, me whai āhuatanga taiao, me tētahi atu take rānei e whakahohe ana i aua ira. He rite tēnei ki te kukume i te pū ki te pupuhi.
Me pēhea te tātaritanga o te Lupus?
He uaua pea te mōhio ki te lupus i ētahi wā nā te mea he rerekē ngā tohu o ia tangata, ā, ka rite ki ngā tohu o ētahi atu mate. Mēnā ka whakapae te tākuta he lupus tōu, ka mahi rātou i ēnei e whai ake nei:- Ka pātai atu rātou ki a koe he maha ngā pātai mō ō tohumate : he aha ō tohumate, nōnahea i tīmata ai, me pēhea te kino haere, te pai haere rānei, me ētahi atu. Tērā pea ka pātai atu rātou mēnā kua pāngia tētahi o tō whānau e ēnei mate.
- Whakamātautau tinana : Ka tirohia mēnā he whara kiri, he hononga pupuhi, he pukahukahu, me te ngākau.
- Ngā whakamātautau toto : He mea tino nui tēnei. Ka rapua e ngā whakamātautau toto ngā mea pēnei i:
- Tatau Toto Katoa (CBC) : Mā tēnei ka tirohia te maha o ngā toto whero, ngā toto mā, me ngā pereti toto. Tērā pea he anemia, he iti ngā toto mā, me ngā pereti toto iti o te hunga whai lupus.
- Whakamātautau Paturopi Ārai-Nuclear (ANA) : Koinei te whakamātautau matua e mahia ana ina whakapaehia he lupus. Ko te ANA he momo paturopi e hangaia ana hei ārai i te pūtake o ngā pūtau o tō tātou tinana. Ko te nuinga o te hunga he lupus he pai ā rātou whakamātautau ANA. Heoi, ehara i te mea ko te hunga katoa he ANA pai he lupus. Ka taea hoki te pai te ANA i roto i ētahi atu āhuatanga hauora me ētahi tāngata hauora.
- Ētahi atu autoantibodies motuhake: Mena he pai te ANA, ka rapua hoki e mātou ngā antibody e motuhake ake ana ki te lupus, pērā i te anti-dsDNA me te anti-Sm. Mena he pai ēnei, he āwhina nui ēnei ki te whakaū i te lupus.
- ESR (Te Auau Whakatakotoranga Erythrocyte) me te CRP (Pūmua C-Reactive) : Ka taea e ēnei whakamātautau te tirotiro mō te mumura i roto i te tinana. Ka taea te piki ake i te wā e kaha haere ana te lupus.
- Ngā whakamātautau mimi : Ka mahia ngā whakamātautau mimi hei tirotiro mēnā kua pāngia ngā whatukuhu. Ka tirohia e rātou mēnā kei roto i te mimi te pūmua me te toto.
- I ētahi wā ka taea te tango i tētahi tauira kiko (koiora kiri) : Mena he whara kiri, ka tangohia he wāhanga iti o taua mea (koiora kiri) ka tirotirohia i raro i te karuārai hei tirotiro mena he huringa e pā ana ki te lupus. Waihoki, ki te whakapaetia kei te pāngia ngā whatukuhu, ka tangohia he wāhanga iti o te whatukuhu ka tirotirohia (koiora whatukuhu).
He rite te tātaritanga o te lupus ki te whakaoti rapanga. Ka whakakotahi tō tākuta i ō tohumate, ngā hua o te whakamātautau, me ētahi atu mōhiohio kia tika ai te tātaritanga. Nō reira, he uaua ki te whakatau i te tātaritanga tuturu i runga i te whakamātautau kotahi.
He aha ngā maimoatanga mō te Lupus?
Kāore anō kia kitea he rongoā mō te lupus i tēnei wā. Kaua e manukanuka, he maha ngā maimoatanga whai hua e wātea ana hei āwhina i te whakahaere i ngā tohu, te whakaiti i ngā putanga mai o te mate, me te whakaiti i te kino o ngā okana. Ko te maimoatanga e hangai ana ki ngā okana e pāngia ana me te kaha o ō tohu . Ko te tangata e pāngia ana e te lupus me āwhina e tētahi rōpū tākuta.Āwhina mai i ngā tākuta tohunga
Nā te mea ka pāngia e te lupus ngā wāhanga rerekē o te tinana, me rapu āwhina pea ngā tohunga maha. Hei tauira:- Rheumatologist : He tākuta e tohunga ana ki ngā mate o ngā hononga, ngā uaua, me ngā kiko honohono. He mahi nui tā te rheumatologist i roto i te rongoā i te lupus.
- Tohunga Niho : He tākuta e tohunga ana ki ngā mate tākihi. Mena kua pāngia ngā tākihi e te lupus, he mea nui te āwhina a tēnei tākuta.
- Tākuta kiri : Ka rongoā i ngā mate kiri pēnei i ngā ira me ngā patunga.
- Tākuta ngakau : Mena he pānga ki te ngakau.
- Tākuta Pūkahukahu : Mena he pānga ki ngā pūkahukahu.
- Tohunga io : Mena he pānga ki te roro, ki te pūnaha io rānei.
- Tākuta Hinengaro, Tākuta Hinengaro rānei : Hei āwhina i a koe ki te whakatau i te ahotea me te pōuri e pā mai ana me te noho tahi me te mate roa pēnei i te lupus.
Ngā momo rongoā e whakamahia ana
He maha ngā rongoā e whakamahia ana hei whakahaere i ngā tohu o te lupus me te ārai i te kino haere o te mate.- Ngā rongoā ārai-mumura :
- Ngā Rongoā Ārai-Mumura Kore-steroidal (NSAID) : Hei tauira, ngā rongoā pēnei i te ibuprofen me te naproxen. Ka hoatu ēnei mō ngā mea pēnei i te mamae o ngā hononga, te mamae o ngā uaua, me te kirika. Heoi, me tango ēnei i raro i te tohutohu a te taote, nā te mea ka pāngia ētahi tāngata e ngā raruraru puku me ngā raruraru tākihi.
- Ngā rongoā ārai mate pāwera : Ko te Hydroxychloroquine te rongoā e whakamahia whānuitia ana. Ahakoa he rongoā mō te mate pāwera, he tino āwhina ki te whakaiti i ngā ponana kiri, te mamae o ngā hononga, me te ngenge i roto i te lupus. Ka whakaitihia hoki te kaha o te mate.
- Corticosteroids : Ngā rongoā pēnei i te prednisolone. Ka āwhina ēnei ki te whakaiti i te mumura me te mahi a te pūnaha ārai mate i te wā tere. Ka whakamahia ēnei rongoā ina tino kino te mate, ā, ina tino morearea te mate mō te kino o ngā okana. Heoi, nā te mea ka pā mai ngā pānga taha (te taumaha, te mate huka, te angiangi o ngā wheua, me te ngāwari ake ki te pangia e ngā mate) ina whakamahia mō te wā roa, ka ngana ngā tākuta ki te hoatu i te horopeta iti rawa mō te wā poto rawa.
- Ngā rongoā ārai mate : Ngā rongoā pēnei i te Azathioprine, Mycophenolate, Cyclophosphamide, me te Methotrexate. Ka mahi ēnei mā te whakaiti i te mahi a te pūnaha ārai mate me te aukati i te whakaeke i tōna ake tinana. Ka whakamahia ēnei rongoā ina he kino nui ngā okana, inā koa ngā whatukuhu. Me noho tonu koe i raro i te tirotiro a te rata i a koe e tango ana i ēnei rongoā, nā te mea ka piki ake te tūponotanga o te pangia e ngā mate.
- Ngā rongoā koiora : Kei te wātea inaianei ngā rongoā hou, pērā i a Belimumab me Rituximab. Ka aro atu ēnei ki ngā wāhanga motuhake o te pūnaha ārai mate, ā, tera pea ka whai hua ake mō ētahi tāngata.
Ko te mea nui ko te tango i te rongoā i tohua e tō tākuta kia rite ki te whakahaunga, i te wā kua whakaritea, me te roa o te wā kua whakaritea. Mā tō tākuta e whakatau ko tēhea rongoā te mea tika māu me te roa o te wā e hiahiatia ana kia tangohia e koe. Kaua rawa e mutu te tango i tō rongoā, kaua hoki e whakarerekē i te horopeta māu ake.
He aha atu ngā mea me mōhio koe mō te noho me te lupus?
I te mea he mate roa te lupus, he mea nui kia ako koe ki te noho tahi me ia. Haunga te rongoā, tera ano etahi huringa ngawari ka taea e koe te mahi ki to momo noho hei awhina i te whakahaere i nga tohu me te aukati i nga putanga mai o te mate.- Tiakina koe i te rā.He maha ngā tāngata whai lupus e pāngia ana e te rā. Nō reira, kaua e haere ki waho i te rā i waenga i te 10 i te ata me te 4 i te ahiahi. Ki te haere koe ki waho, whakamahia he hinu ārai rā me te SPF o te 30, neke atu rānei. Mauria he kākahu ringaringa roa, he pōtae, me he mōhiti kanohi.
- Kia nui te okiokinga : Ko te ngenge tetahi o ngā tohu matua o te lupus. Nō reira, ngana kia moe mō te 8 hāora i te rā. He pai hoki te okioki i te awatea. Kaua e whakararuraru rawa i tō tinana.
- Kai i tētahi kai hauora : He mea tino nui te kai taurite. Whakaurua ngā huawhenua, ngā hua rākau, ngā pīni, ngā kai momona i te muka, me ngā pūmua kikokore (ika, heihei) ki roto i tō kai. Whakaitihia ngā kai tukatuka, ngā kai huka nui, me ngā kai ngako nui.
- Korikori Tinana : Kaua e noho noa i te wāhi kotahi nā te mea kua ngenge koe. Mā ngā korikori tinana ngāwari pēnei i te hikoi, te kaukau, me te yoga ka āwhina i te whakaiti i te pakari o ngā hononga, te whakapakari i ngā uaua, te whakaiti i te ngenge, me te whakapai ake i te hauora hinengaro. Engari he pai ake te pātai atu ki tō tākuta mō ngā korikori tinana e tika ana māu.
- Te whakahaere i te ahotea : Ka taea e te ahotea te whakararu i ngā tohu o te lupus. Nō reira, ngana ki te whakaiti i te ahotea mā te whakaaroaro, te yoga, ngā mahi manawa hōhonu, me te whai wāhi atu ki tētahi mahi whakangahau e pai ana ki a koe.
- Kaua e kai paipa : Ka taea e te kai paipa te whakararu i te lupus me te whakanui ake i te mōrearea o te mate ngakau. Nō reira, ki te kai paipa koe, rapua he awhina hei whakamutu.
- Haere ki ngā tirotiro hauora auau : Haere ki ngā wā whakarite a tō tākuta kia rite ki te wā kua whakaritea. He mea tino nui tēnei kia kite ai mēnā kei te pai te mahi a te rongoā, mēnā he pānga taha, ā, mēnā kei te whakahaeretia te mate.
- Kia mōhio ki ngā tohu whakatūpato o te mura : Ngāna kia mārama ki ngā tohu kei a koe i mua i te mura (hei tauira, te ngenge nui, te mamae hononga hou, te ponana kiri). Ki te kōrero koe ki tō tākuta ina kite koe i ēnei tohu, ka taea e koe te tīmata wawe i te maimoatanga me te ārai i te kino haere o te mate.
- Whakamōhiotia tō wāhi mahi, tō wāhi ako rānei : Mena he tauira koe, kōrerotia tō āhua ki ō kaiako me ō kaimahi kura. Kātahi ka taea e koe te whiwhi i te tautoko e hiahiatia ana e koe. Mena kei te mahi koe, whakamōhiotia tō wāhi mahi mēnā e tika ana.
He uaua te noho me te lupus, engari ehara i te mea ko koe anake. Rapua he tautoko mai i tō tīma hauora, i tō whānau, me ō hoa. Kia mōhio koe ki te mate.
Karere Tangohia ki te Kāinga
Āe, ko tāku tumanako kei a koe ētahi whakaaro pai mō te Lupus mai i ngā mea kua kōrerohia e tātou. Hei whakamutunga, anei ētahi mea nui hei maumahara:- He mate roa te Lupus e whakaekea ai e tō tātou ake pūnaha ārai mate tō tātou tinana. Ka pā pea ki ngā whekau maha.
- He rerekē ngā tohu i ia tangata, i ia tangata. Ko te kiri mākūkū, te mamae o ngā hononga, te ngenge nui, me te kirika ētahi o ngā tohu noa.
- He mea nui ngā tohutohu hauora me ngā whakamātautau hei whakatau tika i te mate. Kaua e ngana ki te tautuhi i te mate māu ake.
- Ahakoa kāore e taea te whakaora katoa i te lupus, he tino whai hua ngā maimoatanga ināianei hei whakahaere i ngā tohu me te whakapai ake i te kounga o te oranga.
- He mea tino nui kia whakamahia tika te rongoā i tohua e te tākuta, me te whai i ngā whakamātautau kua tohua.
- Mā ngā whakarerekētanga ngāwari o te āhua noho (te tiaki i te rā, te kai hauora, te whakakori tinana, te whakahaere i te ahotea) ka āwhina nui ki te whakahaere i te mate.
- Kāore koe i te mokemoke. Kei reira ngā tākuta, ngā nēhi, ngā kaiwhakatakoto whakaaro, me ō whanaunga hei āwhina i a koe ki te whakatau i te mate lupus.
Ko te huarahi pai ki te noho angitu me te lupus ko te mōhio ki tēnei mea, te kōrero māhorahora mōna, me te tiki i te tautoko e hiahiatia ana e koe. Mena he āwangawanga āu, kaua e wehi ki te kōrero ki te tākuta.
Lupus, SLE, mate ārai mate ā-tinana, ngā tohu, te maimoatanga, Sri Lanka, mate ārai mate ā-tinana, mamae hononga, ngā mate kiri
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