He mea noa te mamae o te tuara mō te tini o te tangata. Engari kei te mārō, kei te mamae hoki koe ina ara ake koe i te ata? Ka memeha haere te mamae i a koe e mahi ana i te rā, kātahi ka hoki mai anō ina noho roa koe? Ehara pea tēnei i te mamae tuara noa iho. I tēnei rā kei te kōrero tātou mō tētahi mate onge engari he pai te whakahaere e puta ai ngā tohu rite. Ko te Ankylosing Spondylitis tēnā.
He aha rawa te Ankylosing Spondylitis (AS)?
Ki te kī māmā noa, he momo mate rumatiki onge te Ankylosing Spondylitis (AS) e pā ana ki tō tuaiwi. He mate pūnaha ārai mate tēnei. Ko te tikanga ka tīmata te pūnaha parepare o tō tātou tinana ki te whakaeke i ō tātou ake pūtau, kāore he take. Ka roa tēnei mate mō te wā katoa. I te nuinga o te wā ka tīmata i te tuara o raro. Mai i reira, ka horapa ki te kaki, ka pā ki ētahi atu hononga o te tinana.
E ai ki te ingoa, ko te tikanga o "Ankylosis" ko te hononga o ngā wheua. Ko te tikanga o "Spondylitis" ko te mumura o ngā tuaiwi o te tuaiwi. Mena he kino te mate, ka piko pea te tuaiwi ki mua, ka rite ki te porowhita.
Kaua e manukanuka. Ahakoa kāore e taea te whakaora katoa i te AS, mā ngā rongoā me ngā mahi whakakori tinana tika ka āwhina i te whakahaere i te mamae me te pupuri i te kaha o tō tuaiwi.
He aha ngā tohu o tēnei mate?
He rerekē ngā tohu o te AS i ia tangata, i ia tangata. Ko te tikanga ka tīmata mā te mumura o ngā hononga sacroiliac, te wāhi e hono ai tō tuaiwi ki ngā wheua o tō hope. I te tīmatanga, ka mamae pea koe, ka pakari hoki tō tuara o raro me ō hope. I te haere whakamua o te mate, ka pā hoki ki ngā uaua me ngā hononga e hono ana i ō wheua ki tō tuaiwi. I ngā wā tino kino, ka honoa ngā wheua o tō tuaiwi.
Kia tirohia tātou he aha atu ngā tohumate e kitea whānuitia ana i te ripanga i raro nei.
| Tohu | Whakaahuatanga |
|---|---|
| Mamae tuara me te hope | Ka piki ake te pakari me te mamae, inā koa i te ata me muri i te noho roa. |
| Te mamae i te kaki, i ngā pakihiwi, me te pūwero rara | Ka puta pea tēnei mamae ina horapa te mate ki te tuaiwi. |
| Te mamae i roto i ētahi atu hononga | Te mamae me te pupuhi o ngā hononga i ngā wāhi pēnei i te waewae, te rekereke, me te ringa. |
| He uaua ki te pupuri i tō tuara kia tika | Ka haere te wā, ka piko whakamua te tuaiwi (pērā i te tuara piko). |
| Ngenge | Te ngenge tonu i te tinana nā te mumura o te tinana. |
| Ētahi atu āhuatanga | He ponana kiri, he raruraru tirohanga (uveitis), he uaua ki te manawa. |
Kāore ēnei tohu e rite mō te katoa. Tērā pea ka piki ake ngā tohu i ētahi wā (ka pā mai te mate) ā, ka heke iho i ētahi wā.
He aha tēnei ka tupu ai? Ko wai kei te mōrearea nui ake?
He mate "autoimmune" te AS, arā, ka whakaeke te pūnaha ārai mate o te tinana i ōna ake pūtau. Kāore anō kia tino mōhiotia e ngā tākuta te take o tēnei. Heoi, kua kitea he hononga ira kei roto i ngā whānau .
He tokomaha ngā tāngata whai AS he ira kei a rātou ko te `HLA-B27`. Ehara i te katoa e whai i tēnei ira ka pāngia e te AS, engari ko te hunga whai ira tēnei he nui ake te mōrearea ki te pāngia e te mate.
Ko wai kei te mōrearea nui ake?
- Mō ngā tāne: He nui ake te kitea o tēnei mate i roto i ngā tāne i ngā wāhine.
- Mō te hunga kei raro iho i te 40 tau te pakeke: Ka tīmata te mate i te 30 tau te pakeke.
- Hītori whānau : Mena he whanaunga tata tōu kua pāngia e te AS, he nui ake tō tūponotanga.
- Ko te hunga whai mate pūnaha ārai mate pērā i te mate a Crohn, te psoriasis, me te mate puku ulcerative kei te nui ake te mōrearea ki te whakawhanake i te AS.
Me pēhea te kitenga a te tākuta i tēnei?
He tohu noa te mamae o te tuara, nō reira he uaua ki te tautuhi i te AS i ngā wāhanga tōmua. Ka whakarongo pai tō tākuta ki ō tohu. Hei tāpiri, ka mahia pea e rātou ēnei whakamātautau e whai ake nei:
- Whakamātautau tinana : Ka tirohia tō tuara, ngā nekehanga o ngā hononga, me ngā wāhi e mamae ana.
- Ngā whakamātautau toto: Ka mahia ngā whakamātautau toto hei tirotiro i te aroaro o te ira 'HLA-B27' me te ine i te taumata o te mumura i roto i te tinana.
- Ngā whakamātautau whakaahua: Tērā pea ka mahia he matawai X-ray, MRI rānei hei rapu i ngā huringa o te tuaiwi me ngā hononga.
I te nuinga o te wā, ka tukuna koe e tō tākuta whānau ki tētahi tohunga mate rumatiki, he tākuta e tohunga ana ki ngā mate pēnei i te mate rumatiki.
He aha ngā maimoatanga mō tēnei?
He maha ngā kōwhiringa maimoatanga mō te AS. Ko ngā whāinga matua o ēnei maimoatanga he whakaiti i te mamae me te pakari o te tuaiwi, he tiaki i te nekenekehanga o te tuaiwi, me te whakahaere i te haere whakamua o te mate.
Te Whakakorikori Tinana me te Whakaora Tinana
Koinei te wāhanga tino nui o te whakahaere i te AS. Ka nui ake tō kaha ki te mahi, ka pai ake tō wairua.
- Korikori Tinana: Ka āwhina i te pupuri i te tuaiwi kia tika, kia ngāwari ngā hononga, ā, ka whakaiti i te mamae. He pai te korikori tinana i roto i te wai (te whakaora wai) mō te tini o te tangata.
- Whakaora tinana: Ka taea e te kaiwhakaora tinana te whakaako i a koe me pēhea te pupuri i te tū tika, te totoro i ngā uaua pakari, me te whakaiti i te mamae.
Ngā rongoā
Tērā pea ka tohua e tō tākuta ngā rongoā rerekē i runga i te āhua o tō mate.
| Momo rongoā | Whakaahuatanga me ngā tauira |
|---|---|
| Ngā NSAID (Nonsteroidal Anti-inflammatory Drugs) | Ngā rongoā ka hoatu tuatahitia hei whakaiti i te mumura me te mamae. Hei tauira: Ibuprofen, Naproxen. Heoi, ka pā mai pea ngā pānga taha pēnei i te toto o te puku ina tangohia mō te wā roa. |
| Ngā aukati TNF | Ka ārai ēnei i tētahi matū i roto i te tinana e puta ai te mumura. Ka hoatu ēnei hei werohanga. Hei tauira: Adalimumab (Humira), Etanercept (Enbrel). |
| Ngā aukati IL-17 | Ko tētahi atu momo kano ārai mate tēnei hei whakahaere i te mumura. Hei tauira: Secukinumab (Cosentyx), Ixekizumab (Taltz). |
| Ngā aukati JAK | He momo rongoā hou ēnei ka taea te tango hei pire. Hei tauira: Tofacitinib (Xeljanz), Upadacitinib (Rinvoq). |
Ngā pokanga
Ko te nuinga o te hunga whai AS kāore e hiahiatia he pokanga. Engari mō te hunga he tino kino te mate,
- Pokanga whakakapinga hononga: Whakakapia he hononga kua tino pakaru, pērā i te hononga hope.
- Te pokanga tuaiwi: Te whakatikatika i te tuaiwi tino piko .
Ngā mea hei whakaaroaro māu ina noho tahi me te AS
He uaua te noho me te AS i ētahi wā, engari mā te tiaki pai i tō hauora tinana me tō hauora hinengaro ka māmā ake te oranga o ia rā.
- Kai: Ahakoa kāore he kai motuhake mō te AS, he mea nui te pupuri i te taumaha hauora . Nā te mea ka nui ake te pēhanga o ngā hononga i te taumaha tāpiri. He pai ake te arotahi ki tētahi kai e whakaiti ana i te mumura, pērā i te ika, ngā hua, me ngā huawhenua he nui ngā waikawa ngako omega-3.
- Āta karohia te kai hikareti: Kua whakaatuhia ka kino haere ngā tohumate o te AS i roto i ngā kai hikareti i te roanga o te wā.
- Hauora hinengaro: He mea noa te pāngia e ngā kare ā-roto o te pouri, te pōuri, te manukanuka, me te pouri i te wā e noho ana me te mamae mau tonu. Mena kei te pāngia koe e ēnei kare ā-roto, he tino āwhina te rapu tohutohu, te whakauru atu rānei ki tētahi rōpū tautoko me ngā tāngata pēnei i a koe.
- Moe pai: Ka taea e te mamae te whakararuraru i te moe. Engari he mea nui te moe pai mō te tinana kia ora ai, kia mau tonu ai te kaha. Whakamahia he urunga hei whakaiti i te pēhanga ki tō tuara me tō kaki.
Karere Tangohia ki te Kāinga
- Ehara te Ankylosing Spondylitis (AS) i te mate tuara anake, engari he mate rumatiki mau tonu e pā ana ki te tuaiwi.
- Ki te mau tonu te mamae me te kaki o te ata, kaua e warewarehia , engari me toro atu ki tō tākuta. He mea nui te tautuhi wawe i te mate.
- He mea nui te whakakori tinana me te whakaora tinana hei whakahaere i tēnei mate. He rerekētanga nui te noho kaha.
- He tino whai hua ngā rongoā e wātea ana i ēnei rā hei whakahaere i te mamae me te mumura. Me whai i ngā tohutohu a tō tākuta.
- Ahakoa kāore he rongoā katoa mō tēnei, mā te whakahaere tika ka taea e koe te noho i tētahi oranga noa, oraora hoki. Nō reira kaua e mutu te tumanako.
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