Kodi munayamba mwakhalapo ndi ululu waukulu m'mimba, nseru, ndi mkodzo wakuda? Nthawi zina chifukwa cha izi chingakhale vuto losowa lomwe palibe aliyense wa ife amene adamvapo. Popeza ndi losowa kwambiri, anthu ambiri sadziwa za matendawa. Lero tikulankhula za matenda ena otere, Acute Hepatic Porphyria (AHP). Musadandaule, tikambirana izi mosavuta, m'njira yomwe aliyense angamvetse.
Mwachidule, kodi Acute Hepatic Porphyria (AHP) ndi chiyani?
Acute Hepatic Porphyria, kapena AHP mwachidule, ndi vuto lomwe limayamba chifukwa cha kuchuluka kwa ma porphyrins, mtundu wa mankhwala omwe amapangidwa m'thupi lathu, m'chiwindi ndi ziwalo zina za thupi. Ili si matenda amodzi okha, koma gulu la matenda. Pamene ma porphyrins akusonkhana motere, amatha kukhudza dongosolo la mitsempha ndikuyambitsa zizindikiro zina zosasangalatsa.
Ngakhale kuti palibe mankhwala a matendawa, chithandizo choyenera chingathandize kuchepetsa zizindikiro zake ndikukuthandizani kukhala ndi moyo wabwino.
N’chifukwa chiyani matendawa amapezeka? Tiyeni tiwone bwinobwino.
Kuti timvetse bwino izi, choyamba tiyenera kudziwa za chinthu chofunikira kwambiri m'thupi lathu. Chimenecho chimatchedwa ' Heme ' .
Heme ndi gawo lofunika kwambiri la hemoglobin m'maselo ofiira a magazi athu. Monga mukudziwa, hemoglobin ndi yomwe imatenga mpweya kuchokera m'mapapo ndikuugawa m'thupi lonse. Chifukwa chake heme iyi ndi yofunikira pakugwira ntchito kwa malo monga chiwindi, minofu, ndi mafupa.
Tsopano onani, pamene thupi lathu limapanga 'heme' iyi, mitundu 8 ya ma enzyme imathandiza kuti njirayi ichitike bwino. Zili ngati mitundu 8 ya zonunkhira imafunika popanga mbale. Ngati pazifukwa zina pali kusowa kapena kufooka kwa ma enzyme aliwonse 8 awa, njira yopangira 'heme' imasiya pakati. Chomwe chimachitika ndichakuti 'porphyrins' zomwe tidakambirana kale, zomwe ndi zosakaniza zomwe zimagwiritsidwa ntchito popanga 'heme', zimayamba kusonkhana m'thupi .
Mu AHP, mankhwala otchedwa ' porphyrin ' amasonkhana makamaka m'chiwindi . Zotsatira za kuchulukana kumeneku ndi zomwe zimawonekera ngati zizindikiro.
| Zizindikiro zomwe zimawoneka kawirikawiri | Zambiri pang'ono za izi |
|---|---|
| Kupweteka kwambiri m'mimba | Ichi ndiye chizindikiro chachikulu komanso choopsa kwambiri. Mutha kumva kupweteka m'mimba kosamvetsetseka popanda chifukwa chomveka. |
| Kusanza ndi kusanza | Vutoli likhoza kuchitika ndi kupweteka kwambiri m'mimba. |
| Mkodzo wakuda | Mkodzo ukhoza kukhala wakuda bulauni kapena wofiira. |
| Kukhudzidwa ndi khungu | Mu mitundu ina ya porphyria, khungu limakhala lovuta kwambiri kukhudzidwa ndi dzuwa. |
| Mavuto a mitsempha | Matenda oopsa monga dzanzi, kupweteka, kufooka kwa minofu, ndi khunyu angachitike. |
"Kuukira" kwa AHP nthawi zambiri kumayamba ndi kupweteka kwambiri m'mimba. Izi zimatha kwa masiku angapo. Pazochitika zotere , kugonekedwa kuchipatala ndikofunikira . Izi zikutanthauza kupita ku Dipatimenti Yodzidzimutsa (ETU).
Ndani amatenga matendawa? Ndani ali pachiwopsezo?
Kawirikawiri, matendawa ndi obadwa nawo . Izi zikutanthauza kuti, mumalandira majini omwe amayambitsa matendawa kuchokera kwa makolo anu.
Koma chofunika apa ndichakuti si aliyense amene ali ndi jini yomwe imayambitsa matendawa amene adzakhale ndi zizindikiro . Anthu ambiri omwe ali ndi jini ya AHP akhoza kukhala ndi thanzi labwino kwa moyo wawo wonse popanda zizindikiro zilizonse.
Izi zili ngati mkango wogona. Ngakhale jiniyo itakhalapo, ngati palibe choyambitsa kuidzutsa, kapena "kuidzutsa", ikhoza kukhalabe popanda vuto lililonse.
Ndiye kodi ndi zinthu ziti zomwe zimayambitsa matendawa?
Izi ndi zofunika kwambiri. Ngati inu kapena munthu amene mumamudziwa ali ndi matenda a AHP, ndikofunikira kudziwa zinthu izi.
| Choyambitsa | Mfundo zofunika |
|---|---|
| Mankhwala ena | Mankhwala ena ochepetsa ululu, ochepetsa ululu, oletsa kupweteka, oletsa kutopa, ndi mapiritsi oletsa kubereka angayambitse mavuto aakulu. Ngati mukukayikira kapena mwapezeka ndi AHP, musamwe mankhwala aliwonse popanda kufunsa dokotala. |
| Kumwa mowa ndi kusuta fodya | Izi zingayambitse matendawa mosavuta chifukwa zimaika mphamvu zambiri pachiwindi. |
| Kusala kudya mopitirira muyeso kapena kudya mopanda mphamvu | Kuletsa kudya kapena kulumpha chakudya pofuna kuchepetsa thupi mwadzidzidzi n’koopsa kwambiri kwa odwalawa. Kusalandira ma calories omwe thupi limafunikira ndi chinthu choyambitsa matenda. |
| Kupsinjika maganizo ndi thupi | Zinthu monga kupsinjika maganizo kwambiri, opaleshoni, ndi matenda enaake zingayambitsenso matendawa. |
Kodi nditani?
Ngati mukukumana ndi zizindikiro zilizonse zomwe zatchulidwa m'nkhaniyi, makamaka kupweteka m'mimba koopsa komanso kosazolowereka, nthawi zonse , musaganize kuti ndi zachilendo. Pitani kwa dokotala wodziwa bwino ntchito nthawi yomweyo.
Dokotala adzakuyang'anirani ndipo, ngati kuli kofunikira, adzalamula kuti muyesedwe mkodzo, magazi, ndi majini kuti adziwe ngati muli ndi matendawa.
Zakudya zopatsa thanzi ndizofunikira kwambiri kwa munthu amene ali ndi matenda a AHP. Ngati pakufunika kutero, dokotala wanu angakutumizireni kwa katswiri wa zakudya.
Uthenga Wopita Nawo Kunyumba
- Matenda a Acute Hepatic Porphyria (AHP) ndi matenda osowa, obadwa nawo omwe amayamba chifukwa cha kuchuluka kwa mankhwala otchedwa porphyrin m'chiwindi.
- Chifukwa chachikulu cha izi ndi kusowa kwa enzyme yomwe imafunika popanga 'heme'.
- Chizindikiro chachikulu ndi kupweteka m'mimba kosapiririka. Kungayambitsenso mavuto a mitsempha.
- Ngakhale mutakhala ndi jini yomwe imayambitsa matendawa, ngati mutapewa zomwe zimayambitsa matendawa, simungaone zizindikiro.
- Mankhwala ena, mowa, kusuta fodya, kudya zakudya zopatsa thanzi, komanso kupsinjika maganizo ndi zinthu zomwe zimayambitsa vutoli.
- Ngati muli ndi zizindikiro izi kapena mukuganiza kuti muli ndi AHP, lankhulani ndi dokotala. Musapite kukatenga mankhwala nokha.
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