Kodi mudamvapo za matenda otchedwa hemophilia ? Uwu ndi matenda osowa koma owopsa kwambiri. Mwachidule, ndi matenda omwe magazi sagwira bwino m'thupi lathu. Izi zikutanthauza kuti ngakhale kuvulala pang'ono, kugwa, kapena kudulidwa nthawi zina kungayambitse kutuluka magazi kwambiri. Nthawi zina, kutuluka magazi mwadzidzidzi kungachitike popanda chifukwa chomveka.
Kodi hemophilia kwenikweni ndi chiyani?
Tangoganizani kuti tikatuluka magazi, matupi athu ali ndi gulu laling'ono la ogwira ntchito lomwe likugwira ntchito kuti liletse kutuluka magazi. Timatcha antchito awa kuti 'zinthu'. Izi ndi mitundu yapadera ya mapuloteni. Zinthuzi zimasonkhana pamodzi kuti zipange magazi kuundana ndikuletsa kutuluka magazi.
Pali mitundu iwiri ikuluikulu ya hemophilia:
- Hemophilia A: Anthuwa alibe mapuloteni okwanira otchedwa factor VIII , omwe amafunikira kuti magazi aziundana.
- Hemophilia B : Anthu awa alibe puloteni yotchedwa factor IX .
Kawirikawiri dokotala wanu amachizira vutoli pokupatsani chithandizo cha deficiency factor kudzera m'mitsempha. Chithandizo choletsa kutuluka magazi chimatchedwa "prophylaxis," ndipo chithandizo chikayamba kutuluka magazi chimatchedwa "on-demand."
Koma, pali vuto laling'ono apa...
Kwa odwala ena, thupi limayamba kugwira ntchito motsutsana ndi zinthu izi zomwe timapereka kudzera mu katemera. Ngati kuti likuganiza kuti ndi mdani ndipo limawaukira. Timatcha izi kupanga "zoletsa" . Izi zikachitika, mphamvu ya chithandizo cha zinthu zomwe timapereka imachepa. Chifukwa chake, kuchiza anthu omwe ali ndi 'zoletsa' zamtunduwu kumakhala kovuta pang'ono.
Kodi chimachitika ndi chiyani ndi mankhwala atsopano otchedwa Alhemo?
Alhemo(concizumab-mtci) ndi mankhwala atsopano ovomerezeka kuti achepetse kapena kuletsa kutuluka magazi, makamaka kwa odwala omwe ali ndi hemophilia A kapena hemophilia B omwe ali ndi 'zoletsa' zomwe zatchulidwa kale.
Mwachidule, matupi athu mwachibadwa ali ndi mapuloteni omwe amaletsa magazi kuundana. Amatchedwa TFPI (Tissue Factor Pathway Inhibitor) . Taganizirani ngati 'traffic cop' m'matupi athu; imalamulira njira yolumikizira magazi. Zimene Alhemo amachita zimasokoneza pang'ono ntchito ya 'cop' uyu wotchedwa TFPI. Kenako, thupi limawonjezera kupanga chinthu china chomwe chimathandiza kuundana kwa magazi (factor Xa), ndipo kuthekera kopanga kuundana kwa magazi kumakula. Izi zimachepetsa kwambiri chiopsezo cha kutuluka magazi.
Kodi Alhemo ingagwiritsidwe ntchito bwanji?
Alhemo ndi jakisoni wopangidwa tsiku ndi tsiku pansi pa khungu . Imabwera mu cholembera chodzazidwa kale, kotero ndi yosavuta kugwiritsa ntchito. Ngati dokotala wanu asankha kuti mudzipatse jakisoni uyu kunyumba, adzakuwonetsani momwe mungachitire.
- Mlingo: Mlingo wokwera pang'ono (mulingo wokweza) umaperekedwa tsiku loyamba la chithandizo. Pambuyo pake, muyenera kumwa mlingo wokonzedweratu wosamalira tsiku lililonse. Mlingo umatsimikiziridwa kutengera kulemera kwanu, choncho muyenera kuuza dokotala wanu ngati kulemera kwanu kwasintha.
- Mayeso: Patatha milungu inayi mutayamba kulandira chithandizo, mudzayesedwa magazi kuti muwone ngati mankhwala ali m'thupi lanu ndi olondola. Kutengera ndi zotsatira zake, dokotala wanu angasinthe mlingo wanu.
- Malo operekera katemera: Katemera amaperekedwa m'mimba (mainchesi awiri kuzungulira mchombo) kapena ntchafu. Musabayire pamalo omwewo tsiku lililonse, koma sinthani malowo. Musabayire m'malo omwe ali ndi zilonda, mabala, ofiira, okhala ndi eczema, kapena omwe ali ndi zipsera .
Chofunika kwambiri ndichakuti, musasiye kumwa mankhwalawa popanda kulankhula ndi dokotala wanu. Kuti mupewe kutuluka magazi, ndikofunikira kwambiri kumwa mankhwalawo panthawi yoyenera tsiku lililonse.
| Ngati mkati mwa masabata anayi oyambirira | Imbani dokotala wanu nthawi yomweyo ndipo funsani upangiri. |
| Ngati mwaphonya mlingo mutayamba kumwa mankhwala osamalira | Imwani nthawi yomweyo mukakumbukira. Imwani nthawi yanu yanthawi zonse tsiku lotsatira. |
| Ngati mwaphonya mapemphero awiri mpaka asanu ndi limodzi (2-6) | Mukangokumbukira, idyani kawiri nthawi imodzi. Kuyambira tsiku lotsatira, idyani kamodzi monga mwachizolowezi. |
| Ngati mapemphero asanu ndi awiri (7) kapena kuposerapo alephera | Imbani dokotala wanu nthawi yomweyo. Muyenera kumwanso 'dose yowonjezera' yatsopano. |
Kodi zotsatira zake ndi ziti? Kodi mungathane nazo bwanji?
Monga mankhwala ena aliwonse, Alhemo ikhoza kukhala ndi zotsatirapo zake.
Zotsatira zoyipa zofala
Popeza katemera uyu ndi woperekedwa, zotsatira zazing'ono zomwe zimachitika pamalo omwe jakisoni amaperekedwa zimatha kuchitika. Mwachitsanzo:
- Kutupa, kufiira, kuyabwa, kapena kutuluka magazi pang'ono pamalo omwe jakisoniyo adayikidwa.
- Kuti muthandize pa izi, mutha kuyika compress yozizira pamalopo.
- Izi zitha kuchepetsedwanso posintha malo obayira jakisoni tsiku lililonse.
- Musamwe mankhwala ochepetsa ululu kapena mankhwala ena aliwonse popanda kufunsa dokotala wanu.
Zotsatirapo zoyipa kwambiri - samalani kwambiri ndi izi!
Komabe, pali chinthu chimodzi chofunikira kwambiri chomwe muyenera kudziwa: pali chiopsezo chosowa kwambiri cha magazi kuundana (thrombosis) m'mitsempha yamagazi .
Manja, miyendo, mapapo, ndi mtima zomwe zadzaza ndi magaziKapena ikhoza kupangika m'mitsempha m'malo monga muubongo. Ngati mukukonzekera opaleshoni iliyonse, muyeneranso kuuza dokotala wanu za vutoli.
Ngati mukukumana ndi zizindikiro zotsatirazi, funsani upangiri wa dokotala nthawi yomweyo:
- Kugunda kwa mtima
- Kupweteka pachifuwa kapena kulimba
- Kuvuta kupuma
- Kuvuta kulankhula, kusintha kwa masomphenya
- Ululu kapena kutupa m'miyendo
Ngati mukukumana ndi zizindikiro izi, funsani dokotala wanu nthawi yomweyo, kapena pitani ku chipinda chapafupi chadzidzidzi cha chipatala (ETU). Izi ndizofunikira kwambiri.
Kodi mumapeza bwanji mankhwala apadera ngati awa?
Alhemo si mankhwala omwe mungagule ku pharmacy wamba. Awa ndi mtundu wa 'mankhwala apadera'. Pali njira yapadera yopezera mankhwalawa.
Dokotala wanu akakupatsani mankhwala, mudzakumana ndi kampani yapadera ya mankhwala. Iwo ndi omwe adzakupatseni tsatanetsatane wa momwe mungatumizire mankhwalawo kunyumba kwanu. Mungafunikenso kupeza chilolezo kuchokera ku kampani yanu ya inshuwaransi. Woimira kampani yomwe imapanga mankhwalawo angathandizenso pankhaniyi. Dokotala wanu adzakutsogolerani pa zonsezi.
Uthenga Wopita Nawo Kunyumba
- Hemophilia ndi kusowa kwa njira yopangira magazi kuundana.
- Alhemo ndi jakisoni woperekedwa tsiku lililonse kuti achepetse kutuluka kwa magazi, makamaka kwa odwala omwe ali ndi 'zoletsa' zochizira matenda.
- Musasiye kumwa mankhwalawa popanda upangiri wa dokotala. Nthawi zonse imwani mlingo womwe walembedwa.
- Dziwani zoopsa zomwe zingachitike chifukwa cha magazi kuundana. Ngati mukumva zizindikiro monga kupweteka pachifuwa kapena kuvutika kupuma, pitani kwa dokotala kapena ETU nthawi yomweyo.
- Popeza iyi ndi mankhwala apadera, lankhulani ndi dokotala wanu za njira yopezera mankhwalawa ndipo onetsetsani kuti mwamvetsa bwino.
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