Kodi ndinu munthu amene ali ndi Hemophilia A? Kapena pali wina m'banja mwanu amene ali ndi vutoli? Ngati ndi choncho, mwina mukudziwa kufunika koletsa kutuluka magazi akayamba. Lero tikambirana za katemera wofunika kwambiri womwe umagwiritsidwa ntchito pa izi, katemera wa Antihemophilic Factor (AHF) kapena Factor VIII. Tiyeni tikambirane mwachidule za katemerayu, momwe amagwiritsidwira ntchito, komanso zinthu zomwe muyenera kusamala nazo.
Kodi mankhwala awa otchedwa Factor VIII ndi ati?
Mwachidule, anthu omwe ali ndi hemophilia A ali ndi Factor VIII yochepa kapena alibe, puloteni yofunikira kuti magazi aziundana. Choncho ngakhale kuvulala pang'ono kungayambitse kutuluka magazi kwambiri. Katemerayu amagwira ntchito popatsa thupi Factor VIII yosowayo.
Izi zimagwiritsidwa ntchito makamaka pa:
- Kuletsa kapena kuletsa kutuluka magazi mwa odwala omwe ali ndi hemophilia A.
- Ngati mukuchitidwa opaleshoni, yang'anirani kutuluka magazi kulikonse komwe kungachitike panthawiyo.
- Nthawi zina, mitundu ina ya mankhwalawa imagwiritsidwanso ntchito pochiza matenda ena otuluka magazi otchedwa von Willebrand's disease.
Mankhwalawa akhoza kukhala ndi mayina osiyanasiyana monga Advate, Kogenate, Humate-P, XYNTHA, ndi zina zotero. Kaya dzina lanu ndi liti, lili ndi Factor VIII yomweyi.
Zinthu zomwe muyenera kuuza dokotala wanu musanamwe mankhwala
Musanayambe chithandizochi, ndikofunikira kwambiri kukambirana nkhaniyi momveka bwino ndi dokotala wanu.
- Matenda a ziwengo: Onetsetsani kuti mwatiuza ngati mudayamba mwakhalapo ndi vuto la ziwengo chifukwa cha mapuloteni a anthu kapena nyama (monga ng'ombe, hamster, makoswe, nkhumba), mankhwala ena, zakudya, zotetezera, kapena utoto.
- Mimba: Ngati muli ndi pakati kapena mukufuna kutenga pakati, dziwitsani dokotala wanu.
- Ngati ndinu mayi woyamwitsa: Ngati ndinu mayi woyamwitsa, muyeneranso kutchula zimenezo.
Kutengera ndi izi, dokotala adzasankha chithandizo choyenera komanso chotetezeka kwambiri kwa inu. Choncho musabise chilichonse.
Kodi ndiyenera kugwiritsa ntchito bwanji mankhwalawa?
Iyi ndi jakisoni mumtsempha . Nthawi zambiri imaperekedwa ndi katswiri wazachipatala wodziwa bwino ntchito kuchipatala kapena kuchipatala. Komabe, odwala ena amaphunzitsidwa momwe angapatsire jakisoniyu kunyumba. Ngati mupatsidwa jakisoniyu kunyumba, muyenera kutsatira malangizowo ndendende . Ngati simukudziwa momwe mungasakanizire mankhwala kapena jakisoni, funsani dokotala wanu kachiwiri.
Kodi ana aang'ono amapatsidwa liti?
Mankhwalawa angaperekedwe kwa ana a msinkhu uliwonse, ngati pakufunika kutero. Komabe, amafunika chisamaliro chapadera. Chifukwa chake, ngati mukupereka mankhwalawa kwa mwana wanu, lankhulani ndi dokotala wa ana za mankhwalawa ndipo funsani upangiri.
Kodi mungachite chiyani ngati mwamwa mankhwala ochulukirapo?
Ngati mukuganiza kuti mwamwa mankhwala ochulukirapo molakwika, funsani nthawi yomweyo ku National Poisons Information Centre ku National Hospital ku Colombo . Kapena pitani ku Emergency Department (ETU) ya chipatala chapafupi. Musataye nthawi.
Mfundo zapadera zoti muziganizire
- Yendani ndi khadi la ID: Ngati muli ndi vuto la hemophilia, ndikofunikira kwambiri kunyamula khadi la ID nthawi zonse. Lingapulumutse moyo wanu pakagwa ngozi. Khadilo liyenera kukhala ndi dzina lanu, dzina ndi mlingo wa mankhwala omwe mukumwa, dzina ndi nambala ya foni ya dokotala wanu, komanso zambiri za munthu amene mungamulankhule naye pakagwa ngozi.
- Magwero a mankhwala: Mankhwala ena amapangidwa kuchokera ku plasma ya magazi a anthu. Pali chiopsezo chochepa kwambiri chofalitsa mavairasi kapena mabakiteriya kuchokera ku mankhwalawa. Komabe, mankhwala onsewa amakonzedwa bwino kuti aphe mavairasi ndi mabakiteriya ambiri. Ngati muli ndi mafunso okhudza izi, musazengereze kulankhula ndi dokotala wanu.
- Musagawire mankhwala: Mankhwalawa ndi a inu nokha. Musagawire ndi wina aliyense.
Zotsatirapo zomwe zingakhalepo chifukwa cha mankhwalawa
Monga mankhwala ena aliwonse, mankhwalawa akhoza kukhala ndi zotsatirapo zina. Ndikofunikira kudziwa zomwe zili ndi zomwe mungachite ngati zitachitika.
| Zotsatira Zam'mbali | Kufotokozera ndi choti muchite |
|---|---|
| Ngati zizindikirozi zichitika, dziwitsani dokotala wanu nthawi yomweyo. | |
| Matenda a ziwengo | Kutupa pakhungu, kuyabwa, kutupa kwa nkhope, milomo kapena lilime, komanso kuvutika kupuma. |
| Kupweteka pachifuwa | Kupweteka pachifuwa komwe kumabwera chifukwa cha kugunda kwa mtima mofulumira kapena kosasinthasintha. |
| Chizungulire ndi kukomoka | Chizungulire mwadzidzidzi, kusawona bwino, kapena kumva ngati wakomoka. |
| Malungo ndi zizindikiro zonga chimfine | Zizindikiro monga malungo, kuzizira komanso kunjenjemera. |
| Kusanza m'miyendo | Kusamva bwino kapena kutaya kumva m'manja kapena m'mapazi. |
| Maso kapena khungu kukhala lachikasu | Kuoneka kwachikasu kwa maso kapena khungu. |
| Ngati izi zikupitirira kapena zikukuvutitsani, uzani dokotala wanu. | |
| Mutu, nseru, kusanza | Mutu wochepa, nseru, kapena kusanza. |
| Maso osawoneka bwino | Kusawona bwino pang'ono. |
Kodi mankhwalawo angasungidwe bwanji?
Ngati mugwiritsa ntchito kunyumba, ndikofunikira kwambiri kusunga mankhwalawo moyenera.
- Sungani kutali ndi ana.
- Zinthu zambiri ziyenera kusungidwa mufiriji kutentha kwa madigiri 2 mpaka 8 Celsius (2-8 °C). Musasunge mufiriji.
- Tayani mankhwala aliwonse omwe atha ntchito popanda kuwagwiritsa ntchito.
- Madzi a katemera akasakanizidwa, ayenera kugwiritsidwa ntchito mkati mwa ola limodzi kapena atatu. Tayani madzi otsala.
Ngati pali malangizo apadera okhudza zomwe mwalandira, atsatireni bwino.
Uthenga Wopita Nawo Kunyumba
- Factor VIII ndi mankhwala ofunikira kwambiri omwe amabwezeretsa mphamvu ya magazi yofooketsa yomwe ikusowa m'thupi la odwala hemophilia A ndipo amawongolera kutuluka magazi.
- Uzani dokotala wanu za ziwengo zanu zonse ndi zambiri zokhudza thanzi lanu musanayambe kulandira chithandizo.
- Tsatirani malangizo ogwiritsira ntchito ndi kusunga mankhwalawo molondola. Ngati mukukayika, funsaninso.
- Nthawi zonse nyamulani chiphaso chosonyeza kuti muli ndi vuto la magazi m'thupi.
- Ngati mukukumana ndi zotsatirapo zoyipa monga kusagwirizana kwambiri ndi thupi, kupweteka pachifuwa, kapena kupuma movutikira, funsani upangiri wa dokotala nthawi yomweyo.
- Mankhwalawa ndi a inu nokha. Musagawane ndi ena.
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