Ndikudziwa kuti kukhala ndi ankylosing spondylitis, kapena AS mwachidule, nthawi zina kumakhala kovuta. Aliyense amene wadwalapo matendawa amadziwa momwe zimakhalira zovuta kupirira tsiku lonse ndi ululu wa msana ndi mafupa komanso kuuma kwa m'mawa. Koma simuli nokha. Pali njira zambiri ndi zinthu zomwe zingakuthandizeni, kukupatsani mphamvu, komanso kukupatsani chidziwitso chatsopano paulendowu. Ndicho chimene tikukamba lero.
N’chifukwa chiyani thandizo la mtundu uwu ndi lofunika kwa inu?
Mwachidule, AS ndi matenda osowa omwe angakhudze mbali zambiri za moyo wanu. Chifukwa ndi matenda osatha, ndikofunikira kumwa mankhwala pa nthawi yake ndikuphunzira kukhala nawo. Apa ndi pomwe magulu othandizira ndi magwero odalirika a chidziwitso angathandize.
Tangoganizirani momwe zingakhalire zotonthoza kulankhula ndi munthu amene akumvetsa ululu womwe mukumva komanso mavuto omwe mukukumana nawo. Ndipo moyo wanu ungakhale wosavuta bwanji mutaphunzira za mankhwala aposachedwa komanso njira zosavuta zothanirana ndi zizindikiro zanu. Ichi ndichifukwa chake ndikofunikira kudziwa zinthu ngati izi.
Kodi ndingapeze kuti thandizo ndi chidziwitso?
Pali malo angapo omwe angakuthandizeni ndikukutsogolerani njira yoyenera. Ena mwa maguluwa angakumane maso ndi maso. Ena angagwire ntchito pa intaneti yokha. Muyenera kusankha njira yomwe ili yoyenera kwa inu.
| Komwe mungapeze thandizo | Thandizo lomwe mumalandira |
|---|---|
| Dokotala wanu. | Munthu wabwino kwambiri woti mufunse za magulu othandizira odalirika kapena zinthu zomwe zikugwirizana ndi vuto lanu. |
| Chipatala kapena chipatala komwe mukulandira chithandizo | Zipatala zambiri zili ndi mapulogalamu apadera othandizira kapena mapulogalamu odziwitsa odwala. Yang'anani. |
| Malo Othandizira Zaumoyo a Anthu Ammudzi | Mukhozanso kupeza zambiri zokhudza mapulogalamu osiyanasiyana azaumoyo kudzera m'malo ngati awa omwe ali m'dera lanu. |
| Masukulu azachipatala a mayunivesite | Nthawi zina timaphunzira za mapulogalamu oganizira odwala kudzera m'mayunivesite ofufuza. |
Musanasankhe gulu, fufuzani zomwe gululo likuyang'ana, momwe amakumana (pa intaneti kapena pamasom'pamaso), komanso amene akutsogolera gululo.
Samalani ndi zinthu izi mukapita pa intaneti!
Masiku ano, mutha kupeza zambiri pa malo ochezera a pa Intaneti monga Facebook ndi YouTube. Mutha kuwerenga ndikuwona zomwe anthu omwe ali ndi AS akumana nazo, zomwe amachita. Izi zitha kukhala zolimbikitsa. Komabe, apa ndi malo omwe muyenera kusamala kwambiri .
Kumbukirani, musatenge chilichonse chomwe mwapeza pa intaneti, makamaka zomwe munthu wina wakumana nazo, ngati upangiri wachipatala. Ndikofunikira kulankhula ndi dokotala musanayese chilichonse.
Mukayang'ana zambiri pa intaneti, dzifunseni mafunso awa:
- Ndani amayendetsa tsamba lawebusayiti kapena tsamba la Facebook? Kodi limayendetsedwa ndi bungwe lodziwika bwino la zamankhwala, kapena ndi munthu wosadziwika?
- Kodi akufuna kugulitsa china chake? Nthawi zina amayesa kugulitsa zinthu zawo ponena zinthu monga "Mankhwala awa adzakupangitsani kumva bwino." Musanyengedwe ndi zimenezo.
- Kodi zikumveka ngati zabwino kwambiri kuti zikhale zoona? Ngati mukuona chinthu chonga "Chinsinsi chochiritsa AS m'masiku 7," mwina ndi bodza.
- Kodi izi ndi zatsopano? Kodi pali maziko asayansi? Yang'anani ngati zomwe zafalitsidwazo zikuchokera ku kafukufuku komanso zatsopano.
Mabungwe ndi mawebusayiti odalirika apadziko lonse lapansi
Pali mabungwe ochepa a AS omwe ali ku Sri Lanka. Komabe, pali mabungwe akuluakulu apadziko lonse omwe amafufuza matendawa ndikuthandizira odwala padziko lonse lapansi. Ngakhale mawebusayiti awa ali mu Chingerezi, amafalitsa zambiri zamtengo wapatali komanso zolondola zokhudza matendawa, mankhwala atsopano, masewera olimbitsa thupi, komanso momwe mungakhalire ndi matendawa. Ngati mukudziwa Chingerezi pang'ono, izi zidzakuthandizani kwambiri.
- Mgwirizano wa Spondylitis wa ku America (SAA):Ili ndi limodzi mwa mabungwe akuluakulu ku United States omwe adzipereka ku matenda a spondylitis, kuphatikizapo AS. Webusaiti yawo (spondylitis.org) ili ndi misonkhano yambiri ya odwala, magulu othandizira, ndi zambiri zatsopano.
- Bungwe la Arthritis Foundation: Ili ndi bungwe lalikulu lomwe limapereka chidziwitso chokhudza mitundu yonse ya matenda a nyamakazi. Webusaiti yawo (arthritis.org) ili ndi gawo lodzipereka pa AS.
- Bungwe Lofufuza za Matenda a Nyamakazi ku Dziko Lonse: Amathandizira kafukufuku kuti apeze mankhwala a nyamakazi. Mutha kudziwa zambiri za kafukufuku waposachedwa patsamba lawo (curearthritis.org).
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS): Iyi ndi bungwe la boma la US. Chidziwitso chomwe chafalitsidwa patsamba lawo lawebusayiti (niams.nih.gov) ndi chodalirika kwambiri komanso chotsimikiziridwa mwasayansi.
Madera apa intaneti komwe mungawerenge zomwe anthu ena akumana nazo
Malo ochezera a pa Intaneti amakulolani kuti mulumikizane ndi anthu padziko lonse lapansi omwe akukhala ndi AS ngati inu. Thandizo lomwe mumalandira lingakhale gwero labwino la chilimbikitso. Koma, monga ndanenera kale, musayese chilichonse popanda kulankhula ndi dokotala wanu.
| Nsanja | Kufotokozera |
|---|---|
| Ngati mukufuna Ankylosing Spondylitis, mupeza magulu ambiri. Ena ndi magulu achinsinsi, ndipo muyenera kupempha kuti mulowe nawo. Mu magulu awa, anthu ena amafunsa mafunso ndikugawana zomwe akumana nazo. | |
| Apa ndi malo ena otchuka ogawana zambiri ndi malingaliro. Khalani membala wa gulu lotchedwa `r/ankylosingspondylitis` komwe mungathe kufunsa mafunso ndikuwerenga za zomwe anthu ena akumana nazo. | |
| Instagram / Twitter | Mungapeze zolemba zoyenera pogwiritsa ntchito ma hashtag monga `#ankylosingspondylitis`, `#arthritis`, `#chronicpain`. Komabe, muyenera kusamala kwambiri za kulondola kwa chidziwitso chomwe chili mu izi. |
Kodi mumadziwa bwanji ngati akaunti yanu ya pa intaneti ndi yodalirika?
- Mvetserani m'mimba mwanu: Ngati chinachake chikuoneka ngati cholakwika kapena chabodza mukayang'ana akauntiyo, mwina ndi cholakwika.
- Yang'anani Maakaunti Otsimikizika: Maakaunti ochokera m'mabungwe akuluakulu komanso odziwika bwino ali ndi chizindikiro cha buluu pafupi nawo, zomwe zikutanthauza kuti akauntiyo ndi yeniyeni osati yabodza.
- Funso la ubwino wa chidziwitso: Monga tanenera kale, nthawi zonse ganizirani za amene akuchita izi, kodi zikugulitsidwa, ndipo kodi ndi zasayansi.
Ulendo wokhudzana ndi matendawa nthawi zina ungakhale wosungulumwa komanso wovuta. Koma ndi chidziwitso choyenera komanso chithandizo choyenera, mutha kuthana ndi vutoli bwino ndikukhala ndi moyo wosangalala.
Uthenga Wopita Nawo Kunyumba
- Simuli nokha paulendo wanu wokhala ndi Ankylosing Spondylitis (AS). Anthu ena ambirimbiri, monga inu, akukhala ndi vutoli.
- Dokotala wanu amene akukuthandizani ndiye amene angakupatseni chidziwitso chabwino kwambiri. Choyamba lankhulani naye za chilichonse.
- Ngakhale intaneti, makamaka malo ochezera a pa Intaneti, ndi malo abwino opezera chidziwitso, musakhulupirire chilichonse chomwe mukuwerenga. Musaganize kuti zomwe wina wakumana nazo zidzakugwirani ntchito.
- Musanayese kuchita masewera olimbitsa thupi atsopano, zakudya zinazake, kapena china chilichonse, onetsetsani kuti mwafunsa dokotala wanu ngati ndi koyenera kwa inu.
- Ngakhale mawebusayiti a mabungwe apadziko lonse lapansi ali mu Chingerezi, chidziwitso cholondola komanso chasayansi chomwe amapereka chidzakuthandizani kwambiri pakuwonjezera chidziwitso chanu.
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