Kodi mumapeza kuti ngakhale kudula pang'ono kumakupangitsani kutuluka magazi mosalamulirika? Mwina muli ndi vuto la magazi kuundana monga Hemophilia B. Lero tikambirana za mankhwala apadera omwe amathandiza thupi lathu pazochitika zotere. Ndi katemera wotchedwa Factor IX. Musachite mantha mukamva izi. Tiyeni timvetse zonse zokhudza izi mosavuta.
Kodi Factor IX ndi chiyani?
Mwachidule, Factor IX ndi puloteni yofunika kwambiri kuti magazi athu aundane. Nthawi zambiri, munthu akavulala, kutuluka magazi kumasiya chifukwa mapuloteni amenewa (ma clotting factors) amagwira ntchito limodzi. Komabe, mwa anthu omwe ali ndi vuto lotchedwa Hemophilia B, puloteni iyi yotchedwa Factor IX siipangidwa mwachibadwa kapena imapangidwa pang'ono kwambiri.
Choncho, mankhwalawa amagwira ntchito yokonza vuto limenelo. Factor IX, yomwe imaperekedwa ngati katemera, imathandiza magazi kuundana ndipo imaletsa kutuluka magazi akalowa m'thupi. Kuwonjezera pa hemophilia B, madokotala angaperekenso mankhwalawa pa matenda ena omwe amaletsa magazi kuundana.
Zinthu zomwe muyenera kuuza dokotala wanu musanamwe mankhwala
Chabwino, tsopano pali zinthu zingapo zomwe muyenera kuuza dokotala wanu musanamwe mankhwalawa. Musabise zinthuzi, chifukwa ndizofunikira kwambiri pa chitetezo chanu.
- Matenda ena omwe muli nawo:
- Matenda a chiwindi
- Mavuto ena okhudza magazi
- Matenda omwe magazi amaundana mkati mwa mtsempha wamagazi (thrombosis)
- Matenda a ziwengo: Kodi munayamba mwakhalapo ndi vuto la mankhwala, chakudya, utoto, kapena zinthu zotetezera? Onetsetsani kuti mwatchula izi, makamaka ngati muli ndi vuto la mapuloteni a anthu kapena nyama (monga mbewa, hamsters).
- Mimba ndi kuyamwitsa: Uzani dokotala wanu ngati muli ndi pakati, mukufuna kutenga pakati, kapena ngati mukuyamwitsa.
Mwa kupereka chidziwitsochi kwa dokotala wanu, akhoza kusankha chithandizo choyenera komanso chotetezeka kwambiri kwa inu.
Kodi mumagwiritsa ntchito bwanji mankhwalawa?
Iyi ndi jakisoni mu mtsempha (`(jakisoni mu mtsempha)`). Nthawi zambiri imaperekedwa ndi katswiri wa zaumoyo kuchipatala kapena kuchipatala.
Koma nthawi zina, mungafunike kugwiritsa ntchito mankhwalawa kunyumba. Zikatero, mudzapatsidwa maphunziro ofunikira kuchipatala. Ndikofunikira kwambiri kutsatira malangizo amenewo molondola.
Ngati mukugwiritsa ntchito kunyumba, kumbukirani izi:
- Kukonzekera: Lolani ufa wa mankhwala ndi yankho lake zifike kutentha kwa chipinda kwa kanthawi.
- Kusakaniza: Sakanizani mosamala monga mwalangizidwira. Musagwedeze mwamphamvu kuti mupange thovu. Pukutani botolo kuti lisungunuke.
- Kagwiritsidwe Ntchito: Imwani mlingo wolembedwa, panthawi yolembedwa, monga momwe dokotala wanu wanenera. Tayani zotsala zilizonse.
- Kutaya singano: Izi ndizofunikira kwambiri. Musataye singano kapena ma syringe ogwiritsidwa ntchito kale m'zinyalala. Ziyenera kuyikidwa mu chidebe chapadera cha sharping. Ngati mulibe, funsani dokotala wanu.
Kodi mankhwala awa angaperekedwe kwa ana?
Inde, nthawi zina, mankhwalawa amaperekedwanso kwa ana. Koma amafunika njira zapadera zodzitetezera. Chifukwa chake, ngati mukupereka mankhwalawa kwa mwana wanu, lankhulani ndi dokotala wanu wa ana mosamala za izi.
Kodi mungachite chiyani ngati mwamwa mankhwala ochulukirapo?
Ngati mukuganiza kuti mwamwa mankhwala ochulukirapo kuposa mlingo womwe mwapatsidwa, imbani nthawi yomweyo ku National Poisons Information Centre ku Colombo National Hospital . Kapena pitani ku Emergency Department (ETU) ya chipatala chapafupi. Musazengereze.
Zinthu zina zomwe zingagwirizane ndi mankhwala
Mankhwala ena amatha kusokonezana ndi Factor IX. Mwachitsanzo:
- Aminocaproic acid
- Factor VIIa (factor VIIa)
- Tranexamic acid
Mndandandawu sunathe. Choncho, uzani dokotala wanu za mankhwala onse omwe mumamwa (kaya olembedwa ndi madokotala ena kapena ogulidwa ku pharmacy), mavitamini, mankhwala azitsamba omwe mumagwiritsa ntchito, komanso ngati mumasuta fodya, mumamwa mowa, kapena mumagwiritsa ntchito mankhwala ena .
Zinthu zoyenera kusamala nazo mukamagwiritsa ntchito mankhwalawa
- Kuopsa kwa mavairasi: Zinthu zina za Factor IX zimapangidwa kuchokera ku plasma ya magazi a anthu. Chifukwa chake, pali chiopsezo chochepa kwambiri chofalitsa zinthu monga mavairasi. Koma musadandaule, njira zapamwamba kwambiri zimagwiritsidwa ntchito kupha mavairasi ndi mabakiteriya ambiri awa akapangidwa mankhwalawa. Ngati muli ndi mafunso okhudza izi, lankhulani ndi dokotala wanu. Ngati mwangopezeka ndi matenda a hemophilia, ndikofunikira kwambiri kulandira katemera wa Hepatitis A ndi B.
- ID: Ngati muli ndi hemophilia, nthawi zonse nyamulani khadi lokhala ndi tsatanetsatane wanu. Liyenera kukhala ndi dzina lanu, dzina ndi mlingo wa mankhwala omwe mukumwa, dzina ndi nambala ya foni ya dokotala wanu, komanso tsatanetsatane wa munthu woti mulankhule naye pakagwa ngozi. Izi zitha kupulumutsa moyo wanu.
Zotsatirapo zomwe zingakhalepo chifukwa cha mankhwalawa
Monga mankhwala ena aliwonse, mankhwalawa angayambitse zotsatirapo zina mwa anthu ena. Tiyeni tiwone zomwe zili.
| Kugawa zotsatira zoyipa | |
|---|---|
| Zinthu zoti muuze dokotala wanu kapena Dipatimenti Yodzidzimutsa (ETU) nthawi yomweyo: | |
| Matenda a ziwengo | Kutupa pakhungu, kuyabwa, kutupa kwa nkhope, milomo kapena lilime. |
| Mavuto a mtima | Kupweteka pachifuwa, kugunda kwa mtima mofulumira kapena kosasinthasintha. |
| Kuvuta kupuma | Kuvuta kupuma, phokoso lochokera pachifuwa. |
| Malungo kapena kuzizira | Malungo kapena kuzizira popanda chifukwa. |
| Mavuto pamalo obayira jakisoni | Ululu, kufiira, kapena kutupa pamalopo. |
| Zinthu zomwe nthawi zambiri sizili zazikulu, koma ziyenera kufotokozedwa kwa dokotala ngati zikupitirira: | |
| Kutsuka | Kumva kufiira ndi kutentha pankhope kapena m'thupi. |
| Mutu | Mutu waukulu. |
| Kusanza ndi kusanza | Kusamva bwino m'mimba ndi kusanza. |
| Kutopa | Kumva kutopa. |
Uthenga Wopita Nawo Kunyumba
- Factor IX ndi jakisoni wapadera wa mapuloteni omwe amathandiza magazi kuundana mwa anthu omwe ali ndi matenda monga hemophilia B.
- Musanamwe mankhwalawa, uzani dokotala wanu za matenda anu onse, ziwengo, ndi mankhwala ena omwe mukumwa.
- Ngati mukumwa mankhwala kunyumba, tsatirani malangizowo bwino. Tayani singano zomwe mwagwiritsa ntchito mosamala.
- Ngati mukumva zizindikiro monga kupweteka pachifuwa, kuvutika kupuma, kapena kudwala kwambiri, funsani upangiri wa dokotala nthawi yomweyo.
- Ngati muli ndi vuto la hemophilia, nthawi zonse nyamulani chiphaso chokhala ndi tsatanetsatane wanu.
- Mankhwalawa ndi a inu nokha. Musagawane ndi wina aliyense.
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