Ese wumva ufite intege nke? Ese amaguru yawe arimo kubabara? Reka twige ibyerekeye CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)!

Ese hari igihe wumva unaniwe cyane, amaboko n'amaguru byawe bikaba byacitse intege, cyangwa ukumva urimo gushyuha? Hari igihe ushobora kutita cyane kuri ibi bintu. Ariko, mu bihe bidasanzwe, ibi bimenyetso bishobora kuba ikimenyetso cy'ikintu gikomeye kurushaho. Kimwe mu bintu bidakunze kugaragara ariko by'ingenzi ugomba kumenya ni CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) . Nubwo izina rishobora gusa nkaho ari rirerure, reka tubikomeze.

CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) ni iki?

Nubwo iri zina rishobora gusa n'aho rigoye gato, turamutse dusobanuye neza icyo risobanura, dushobora gusobanukirwa neza iyi ndwara.

• Indwara idakira: Ibi bivuze "igihe kirekire." Ibi bivuze ko CIDP idahita igaragara kandi igakira vuba. Ikura buhoro buhoro, nibura mu gihe cy'ibyumweru umunani. Hari igihe ibimenyetso bigabanuka hanyuma bikagaragara nyuma y'amezi cyangwa imyaka myinshi. Ni nk'ikibazo gikomeje kugaruka.

• Kubyimba: Ibi bivuze "kubyimba" . Iyo tugize igikomere ahantu runaka ku mubiri wacu, kirabyimba kigahinduka umutuku, si byo se? Nibyo. Ariko muri CIDP, uku kubyimba guterwa n'ikibazo runaka mu budahangarwa bw'umubiri wacu. Muri make, abasirikare bagomba kurinda umubiri wacu batangira kwibasira imitsi yacu ku buryo butari bwo. Ibi byitwa "Autoimmune Attack" . Kubyimba gukabije guterwa n'ibi byangiza imitsi yacu yo mu mpande . Iyi mitsi yo mu mpande ni imitsi iva mu bwonko no mu ruti rw'umugongo.

• Gukuraho myelin: Iri ni ijambo rirambuye. Utunyangingo tw’imitsi yacu dufite igipfundikizo kiyikikije. Ni nk’igipfundikizo cya pulasitiki gikikije insinga y’amashanyarazi. Iki gipfundikizo cyitwa ` (Myelin Sheath)` . Iki gipfundikizo cya myelin ni cyo gituma ubutumwa bw’imitsi bugenda vuba kandi neza. `(Gukuraho myelin)` bivuze ko agapfundikizo ka myelin kangirika cyangwa kangirika. Hanyuma, nk’uko iyo pulasitiki iri ku nsinga ikuweho, amazi asohoka, n’ubutumwa bw’imitsi ntibigenda neza.

• Polyneuropathy: "Poly" bivuga "nyinshi." "Neuropathy" bivuga kwangiza imitsi. Polyneuropathy bivuga kwangiza imitsi myinshi yo mu mubiri icyarimwe. Ibi bishobora gutera ibibazo bitandukanye nko kunanirwa kw'imitsi, gucika intege, no kudakora neza kw'imitsi.

Mu magambo make rero, CIDP ni indwara y'igihe kirekire aho sheath ya myelin ikikije imitsi yo mu mpande ingirika bitewe n'imikorere mibi y'ubudahangarwa bw'umubiri wacu, bigatuma imitsi myinshi idakora neza. Urabyumva?

Ni irihe tandukaniro riri hagati ya Guillain-Barré Syndrome (GBS) na CIDP?

Birashoboka koUshobora kuba warumvise `(Guillain-Barré Syndrome)` cyangwa ` (GBS) .` Indwara ya CIDP isa cyane na GBS. Abaganga bafata CIDP nk'ubwoko bwa GBS bw'igihe kirekire. GBS ni indwara idakunze kugaragara aho ubudahangarwa bw'umubiri bwacu bwibasira imitsi yo mu mpande.

Ariko itandukaniro rikomeye ni igihe. Ikibi cya GBS gikunze kubaho nyuma y'ibyumweru bibiri cyangwa bitatu ibimenyetso bitangiye. Ariko abantu benshi bagenda bakira buhoro buhoro nyuma y'ibyo. Ariko CIDP imara igihe kirekire. Ibimenyetso bigenda byiyongera mu gihe cy'ibyumweru umunani nibura .

CIDP ikunze kugaragara gute?

Mu by’ukuri CIDP ni indwara idakunze kugaragara cyane . Nk’uko abashakashatsi babivuga, umubare w’abandura CIDP muri Leta Zunze Ubumwe za Amerika uri hagati ya 0.8 na 8.9 ku bantu 100.000 ku mwaka. Uru rugero ni runini gato, kuko CIDP ishobora kwibasira abantu batandukanye mu buryo butandukanye, kandi kubera ko iyo ndwara igoye kuyisuzuma.

CIDP ishobora kugaragara mu myaka iyo ari yo yose.

Ni ibihe bimenyetso bya CIDP?

Ibimenyetso bya CIDP bishobora gutandukana bitewe n'ubwoko bwabyo. Ariko, ikimenyetso gikunze kugaragara ni intege nke z'imitsi zimara nibura ibyumweru umunani. Ibi akenshi bigira ingaruka ku mpande zombi z'umubiri kimwe. By'umwihariko:

• Imitsi yo mu kibuno n'ikibero
• Imitsi yo ku rutugu no ku kuboko ko hejuru
• Ikiganza n'intoki
• Ibirenge n'amano

Tekereza, uhita ubona bigoye guhaguruka ku ntebe, wumva udashobora kuzamuka ingazi, cyangwa se ugasanga bigoye gusokoza umusatsi wawe cyangwa gufata igikombe. Ibintu nk'ibi birashobora kubaho.

Izindi bimenyetso zishobora kugaragara harimo:

• Kugabanuka kw'imitsi yafashwe
• Kubura ibyiyumvo, gucika intege, cyangwa kubura ibyiyumvo mu ntoki n'amano (Paresthesia)
• Kugorwa no kugumana uburinganire bw'umubiri no kudahuza neza kw'umubiri (nk'ukugwa mu mutego)
• Kugorwa no kugenda cyangwa kubura burundu kugenda
• Gutakaza cyangwa intege nke za deep tendon reflexes (ibi ni byo muganga azapima akoze ku ivi akoresheje inyundo nto)
• Ububabare bwo mu bwonko. Ubu bubabare bumeze nk'ubushyuhe cyangwa gukubitwa n'amashanyarazi.

Ni gake cyane, ushobora no kubona ibimenyetso nk'ibi:

• Kugorwa no kumira (Dysphagia) no kunanirwa kw'ijosi ryo hejuru
• Iyerekwa Ribiri

Ibi bimenyetso bishobora guhinduka uko igihe kigenda. Bishobora gutangira buhoro buhoro, cyangwa bigakura vuba. Hari igihe bishobora kuza bigashira, bigashira nyuma y'iminsi mike, hanyuma bikagaruka. Niba ufite ibi bimenyetso, ni ngombwa kujya kwa muganga vuba bishoboka.Gusuzuma indwara hakiri kare no kuyivura bigira uruhare runini mu gukira.

Ese hari ubwoko butandukanye bwa CIDP?

Yego, hari ubwoko butandukanye bwa CIDP, kandi ibimenyetso byayo biratandukanye gato.

Ubwoko bukunze kugaragara cyane ni CIDP isanzwe , itera intege nke z'imitsi n'ibimenyetso by'ibyumviro (nk'ibihumyo) ku mpande zombi z'umubiri.

Amwe mu moko adasanzwe ni:

• ` (Multifocal Motor Neuropathy)`: Ibi bikubiyemo intege nke z'imitsi gusa. Ubu ntege nke nabwo ntibungana, bivuze ko bushobora kugira ingaruka ku gace kamwe gusa ku ruhande rumwe rw'umubiri, cyangwa ahantu henshi mu buryo butandukanye.
• (Lewis-Sumner Syndrome): Ibi bikubiyemo intege nke z'imitsi zitangana ndetse n'ibimenyetso by'ibyumviro.
• ` (Pure Sensory CIDP)`: Ibi bishobora gutera ibinya, ububabare, ibibazo byo kuringaniza imiterere, no kugenda nabi ku buryo budasanzwe. Ariko nta ntege nke z'imitsi.
• `(Pure Motor CIDP):`: Muri ibi, intege nke z'imitsi no kubura ubushobozi bwo gukora ibintu ku mpande zombi z'umubiri bishobora kugaragara, ariko nta bimenyetso by'ibyumviro bihari.

Abashakashatsi baracyari kwiga izindi mvugo za CIDP.

Ni iki gitera CIDP?

Nkuko twabiganiriyeho mbere, abashakashatsi bemeza ko CIDP iterwa n'imikorere mibi mu budahangarwa bw'umubiri wacu. Nubwo impamvu nyayo itaramenyekana, ubudahangarwa bwacu bubona sheath ya myelin nk'umwanzi hanyuma bugatangira kuyitera (reaction y'ubwikorezi bw'umubiri).

Agati ka myelin ni urwego rukingira uturemangingo tw’imitsi. Kazunguruka igice kirekire cy’umuyoboro w’imitsi (axon). Myelin ni yo ituma impulses z’amashanyarazi zigenda neza mu mitsi. Iyo myelin yangiritse, izi mpulses z’amashanyarazi zigenda buhoro cyane, cyangwa zikazimira burundu. Hanyuma "ubutumwa" ntibugera aho bugomba kujya. Ibyo nibyo bitera ibimenyetso bya CIDP.

Tekereza insinga y'amashanyarazi ifite ubwiherero bwiza. Itwara umuriro neza. Ariko se bigenda bite iyo icyuma cya pulasitiki kiri kuri uwo mugozi kivuye ahantu runaka? Umuyoboro w'amashanyarazi uva, cyangwa ntutembe neza, sibyo? Ibyo ni byo bibaho iyo icyuma cya myelin cyangiritse.

CIDP ipimwa ite?

Gusuzuma CIDP bishobora kugorana kuko ubwoko butandukanye bufite ibimenyetso bitandukanye. Kugira ngo umuganga amenye CIDP, azakora ibi bikurikira:

• Bazatega amatwi witonze ibimenyetso byawe banakubaze amateka y'ubuzima bwawe.
• Hakorwa isuzuma ry'umubiri n'isuzuma ry'imitsi .
• Ibipimo byihariye byinshi bishobora gutangwa kugira ngo byemezwe ko indwara yanduye cyangwa se ngo hamenyekane ko nta zindi ndwara zihari.

Ni ibihe bipimo bikoreshwa mu gusuzuma CIDP?

Ibi ni ibizamini bishobora gufasha kwemeza CIDP no gukuraho izindi mpamvu:

• Ibipimo bya Electromyography (EMG) n'Ibizamini byo Gutwara Imitsi: Ibi bizamini bireba ubuzima n'imikorere y'imitsi yawe n'imitsi iyiyobora. Ibi bizamini ni ingirakamaro cyane cyane mu gushaka impinduka zituma imitsi idakora neza (gutuma ibimenyetso by'imitsi bitihuta, kuziba kw'imitsi, nibindi) nka CIDP. Ibi bishobora gufasha gutandukanya CIDP n'izindi ndwara zisanzwe za polyneuropathy.

• Gutera Umwobo mu Mugongo / Gutera Ikibyimba mu Rugongo: Muri iki kizamini, umuganga ashyira urushinge ruto mu mugongo wawe wo hasi maze agafata icyitegererezo cy'amazi yo mu bwonko (CSF) . Iki cyitegererezo cyoherezwa muri laboratwari kugira ngo gipimwe. Ku bantu 85% kugeza 90% bafite CIDP, umubare w'uturemangingo tw'amaraso twera uba usanzwe, ariko urugero rwa poroteyine ruri hejuru. Ibindi bintu bidasanzwe muri CSF bishobora kugaragaza indi ndwara.

• Isuzuma rya Magnetic Resonance Imaging (MRI) ry'umugongo wo hasi: Niba imizi y'imitsi yo mu mugongo wawe wo hasi yinjiza irangi ritandukanye mu gihe cyo gupima MRI, bishobora gufasha gusuzuma CIDP.

• Gupima Amaraso: Muganga wawe ashobora gutegeka ko hakorwa ibizamini by'amaraso kugira ngo hamenyekane izindi ndwara zishobora gutera indwara z'imitsi, nka diyabete, kubura vitamine, indwara ya tiroyide, indwara ya Lyme, VIH/SIDA, na lymphoma. Bashobora kandi gusuzuma uturemangingo tumwe na tumwe twagaragaye ko dufitanye isano na CIDP.

• Uburyo bwo gusuzuma imitsi: Ni gake cyane, muganga ashobora gusaba ko habaho isuzuma ry’imitsi, aho igice cy’imitsi gikurwaho kigasuzumwa kugira ngo barebe niba sheath ya myelin yarangiritse.

Ni ubuhe buryo bwo kuvura CIDP?

Hari uburyo butatu bw'ingenzi (bwa mbere) bwo kuvura CIDP:

• Corticosteroids: Imiti ya steroid, nka prednisolone, ifasha kugabanya ububyimbirwe. Ku bantu benshi, iyi miti yonyine ishobora gufasha kugabanya ibimenyetso. Ariko, steroid ishobora kugira ingaruka mbi zikomeye, bityo gukoresha iyi miti igihe kirekire ni bike. Muganga wawe ashobora kandi kukwandikira indi miti (imiti igabanya uburibwe) hamwe na steroid.

• Guhinduranya Amaraso / Plasmapheresis: Muri ubu buvuzi, imashini itandukanya plasma n'amaraso yawe, ikayivura, hanyuma ikagarura plasma n'amaraso mu mubiri wawe. Muri make, iyungurura uturemangingo twangiza mu maraso turimo kwibasira imitsi yawe. Guhinduranya plasma akenshi bikora mu byumweru bike gusa. Ushobora gukenera kugira ubu buvuzi mu mezi menshi cyangwa imyaka myinshi.

• Ubuvuzi bw'imyobo yo mu mitsi (IVIG): Muri ubu buvuzi, poroteyine zitwa immunoglobulins (poroteyine ubudahangarwa bwacu bukora mu buryo busanzwe kugira ngo zirwanye ababutera) zitangwa mu mitsi (IV). Iyi immunoglobulins iboneka mu maraso y'abantu ibihumbi bazima. IVIG ishobora kugabanya ingaruka ubudahangarwa bw'umubiri wawe bugira ku mitsi yawe. IVIG ishobora gutangwa ku rugero rwo hejuru cyane mu ntangiriro, kandi ushobora gukenera guhabwa ubu buvuzi buri gihe mu mezi cyangwa imyaka.

Abashakashatsi barimo kwiga ubundi buryo bwo kuvura CIDP. Ushobora kandi kugira amahirwe yo kwitabira igerageza rya CIDP. Vugana na muganga wawe kuri ibi.

Ubuzima bwa CIDP bumeze bute? (Ibisobanuro ku ndwara)

Isura y'igihe kirekire y'iyi ndwara iterwa n'ibintu byinshi:

• Imyaka yawe igihe CIDP yatangiraga.
• Uko indwara ikura n'ubwoko bw'indwara .
• Uburyo iyi ndwara yagaragaye vuba kandi uburyo yavuwe bwatangiye kuvurwa .
• Uko umubiri wawe wakira mu ntangiriro iyo uvuwe.

Abantu bagera kuri 90% barwaye CIDP bashobora gukira bakoresheje imiti. Ariko abantu bagera kuri 50% basubira kurwara. Muri rusange, abantu basanzwe barwaye CIDP bakiri bato ni beza igihe kirekire. Iyo utabonye ubuvuzi bwa CIDP, imitsi ishobora kwangirika burundu, ibyo bikaba byatera ubumuga.

Muganga wawe azashobora kuguha igitekerezo cyiza cy'ibyo ugomba kwitega mu gihe kiri imbere bitewe n'uburwayi bwawe.

Ese CIDP igabanya igihe cyo kubaho?

CIDP si indwara yica. Abantu barwaye iyi ndwara akenshi baba bafite igihe cyo kubaho kingana n'icy'umuntu utayirwaye. Rero nta kintu cyo guhangayikishwa nacyo.

Ese CIDP ishobora kwirindwa?

Kubera ko abashakashatsi batarabona impamvu yihariye ya CIDP, nta buryo buzwi bwo gukumira iyi ndwara buhari.

Ni ryari nkwiye kujya kwa muganga? / Ni ryari nkwiye kujya mu cyumba cy’ubutabazi bw’ibanze?

Niba waranduye CIDP, ugomba kujya kwa muganga wawe buri gihe kugira ngo akurikirane ibimenyetso byawe kandi ahabwe ubuvuzi. Ibimenyetso bya CIDP bishobora kuza bikamara amezi cyangwa imyaka, bityo ubuvuzi bukomeza bushobora kuba ngombwa.

Ni gake cyane, CIDP ishobora kugira ingaruka ku mitsi ikenewe kugira ngo umuntu ahumeke . Niba ufite ikibazo cyo guhumeka , hamagara 911 (cyangwa nimero y'ubutabazi yo mu gace utuyemo) ako kanya, cyangwa ujye mu cyumba cy'ubutabazi kiri hafi yawe. Iki ni ikibazo cyihutirwa.

Amaherezo, ibintu byo kwibuka

Bishobora gutera ubwoba kumva udashobora kugenzura umubiri wawe. Ariko inkuru nziza ni uko ibimenyetso bya CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) bishobora kuvurwa, cyane cyane iyo utangiye kuvurwa hakiri kare. Wibuke ko itsinda ry'abaganga riri kumwe nawe mu ntambwe zose zo guhangana n'iki kibazo. Humura rero kandi ukurikize inama za muganga wawe.

` CIDP, Udukoko tw'imitsi, Intege nke z'imitsi, Kubura ibinure, Ubudahangarwa bw'umubiri, Myeline, Udukoko tw'imitsi, Ubuvuzi bwa CIDP, Ubudahangarwa bw'indwara zifata imitsi mu buryo buhoraho