Ese wigeze ubona ko hari abantu bafite ibizinga bitukura, byazamutse gato mu maso, ku matama, cyangwa ku mutwe? Hari igihe ibi bitabarya cyangwa ngo bibabaze. Nubwo abantu benshi batekereza ko ibi ari indwara isanzwe y'uruhu, iyi ishobora kuba indwara isaba kwitabwaho cyane. Uyu munsi turimo kuvuga ku ndwara yitwa 'Discoid Lupus' itera ibi bimenyetso. Nubwo iri ari izina ritamenyerewe, ni ngombwa cyane kubimenya.
Mu magambo make, Discoid Lupus ni iki?
Discoid Lupus, izwi cyane nka 'Discoid Lupus Erythematosus (DLE),' ni indwara igira ingaruka ku ruhu rwacu. Iri mu cyiciro cya 'Cutaneous Lupus Erythematosus (CLE)' cya lupus. Ijambo 'Cutaneous' risobanura 'bifitanye isano n'uruhu.' Ibi bivuze ko ubwo bwoko bwa lupus bugira ingaruka cyane cyane ku ruhu rwacu.
Umuntu urwaye discoid lupus arwara ibisebe byizengurutse, bitukura, bizamuka gato, kandi bibyimbye ku ruhu, cyane cyane mu maso, ku matama, ku mazuru no ku mutwe. Ibi bishobora guhinduka ibibyimba uko igihe kigenda gihita. Ibi kandi byitwa chronic cutaneous lupus. Chronic bivuze ko bimara igihe kirekire.
None se 'Lupus' ni iki?
Iyo tuvuze kuri 'lupus', akenshi tuvuga indwara yitwa 'Systemic Lupus Erythematosus (SLE).' Iyi ni yo ndwara ikunze kugaragara cyane. Abarwayi bagera kuri 70 mu 100 ba lupus bafite iyi ndwara.
Noneho, reba, nubwo discoid lupus (DLE) yibasira cyane uruhu, ubwoko bwitwa SLE bugira ingaruka ku mubiri wose. Ni cyo 'systemic' bivuze. Ni indwara iterwa n'ubwirinzi bw'umubiri . Mu magambo make, ubwirinzi bw'umubiri wacu, ubudahangarwa bw'umubiri, bugenda butangira kwibasira uturemangingo n'ingingo zacu. Ibi bitera ububyimbirwe, cyangwa ububyimbirwe, mu mubiri wose.
Umuntu urwaye SLE ashobora kugira ibimenyetso nk'ibi bikurikira:
- Umuriro uza nta mpamvu
- Kubabara ingingo no kubyimba
- Umunaniro uhoraho
- Kubabara mu gatuza
- Kugaragara kw'utudomo n'ibisebe bitandukanye ku ruhu
- Guhangana n'izuba (photosensitivity)
Igikuru ni uko atari buri wese urwaye discoid lupus uzarwara lupus erythematosus (SLE), ikagira ingaruka ku mubiri wose. Tuzabivugaho nyuma gato.
Ni ubuhe bwoko bwa lupus (CLE) bugira ingaruka ku ruhu?
Nkuko twabivuze mbere, discoid lupus ni ubwoko bwa lupus bufata uruhu. Hari ubwoko butatu bw'ingenzi. Buri bwoko bufite imiterere itandukanye gato y'ibisebe by'uruhu.
| Ubwoko bwa lupus | Imiterere y'ibizinga by'uruhu |
|---|---|
| Discoid Lupus | Uduce tw’uruziga, twinshi, dutukura, dufite ibibyimba, nk’igiceri. Akenshi tugaragara ku maso, mu matwi no ku mutwe. |
| Subacute Cutaneous Lupus | Uduce duto dufite ishusho y'uruziga cyangwa ibibyimba. Akenshi tugaragara ku gituza, mu mugongo no mu ijosi. |
| Lupus yo mu gifu ikabije | Aha niho hagaragara "uduheri tw'ibinyugunyugu". Uduheri dutukura, dusa n'izuba tugaragara ku matama no mu mazuru. |
Ese umuntu ashobora kugira ubwoko burenze bumwe bwa lupus?
Yego, birashoboka. Hari abantu bafite ubwoko bumwe bwa lupus. Ibyo bivuze ko hari abantu bashobora kugira SLE gusa, abandi bakagira DLE gusa. Ariko hari igihe umuntu ashobora kugira ubwoko burenze bumwe bwa lupus icyarimwe.
Ariko ibuka ibi. Abantu benshi barwaye discoid lupus (DLE) ntibagira lupus erythematosus (SLE), ifata umubiri wose. Abantu bagera kuri 5% by'abafite DLE, cyangwa 5 kuri 100, bazarwara SLE nyuma. Nanone, hafi kimwe cya kane (25%) cy'abantu bafite SLE bazarwara ibisebe byo ku ruhu nk'ibigaragara kuri discoid lupus. Rero hari isano hagati y'izo ndwara zombi, ariko si buri wese ufite imwe uzarwara indi.
Ni iki gitera indwara ya discoid lupus? Ni nde uri mu kaga gakomeye?
Mu by’ukuri, abaganga ntibaramenya impamvu nyayo itera lupus, harimo na discoid lupus. Ariko biragaragara ko iterwa n’ikibazo cy’ubudahangarwa bw’umubiri wacu. Nanone, iyi ndwara ikunze kugaragara mu miryango . Ibi bivuze ko niba hari umuntu wo mu muryango wawe ufite indwara y’ubwiyongere bw’umubiri nka lupus, nawe ushobora kuba uri mu kaga.
Reka turebere hamwe abashobora kurwara indwara ya discoid lupus.
| Impamvu y'ibyago | Ibisobanuro |
|---|---|
| Igitsina | Abagore bafite ibyago byinshi byo kurwara iyi ndwara kurusha abagabo. |
| Imyaka | Akenshi ikunze kugaragara ku bantu bari hagati y'imyaka 15 na 44. Ikunze kugaragara cyane ku bagore bari mu kigero cy'imyaka 30 na 40. |
| Ibara ry'uruhu/ubwoko | Ubushakashatsi bwagaragaje ko abantu bafite uruhu rwijimye (urugero: abakomoka muri Afurika cyangwa muri Aziya) bafite ibyago byinshi byo kurwara iyi ndwara kurusha abafite uruhu rwerurutse . |
Ni ibihe bimenyetso n'ingorane bya discoid lupus?
Ikimenyetso nyamukuru ni ibisebe bya discoid twavuze mbere.
- Aho iherereye: Ikunze kugaragara ku mutwe no mu maso, ariko ishobora no ku bindi bice by'umubiri, cyane cyane ahantu hagaragara izuba.
- Ibiranga: Utu duheri akenshi ntabwo tubabara, kandi ntabwo turyana . Dutukura, tuzamutse gato, kandi rimwe na rimwe tukagira ibibyimba ku buso.
- Ingorane za nyuma: Iyo ibi byatsi bikize, bishobora guhinduka inkovu no guhinduka ibara . Hari igihe uruhu rushobora guhinduka umweru cyangwa umukara/umukara.
Ingorane zishoboka
- Gutakaza umusatsi: Iyo ibi byatsi bigaragaye ku mutwe, umusatsi wo muri ako gace ushobora gushonga. Ikintu kibi kurushaho ni uko iyo inkovu ivutse muri ako gace, gukura k'umusatsi gushobora guhagarara burundu .
- Ingaruka za kanseri y'uruhu:Iyo umaze igihe kirekire ufite uduce twa discoid lupus, hari ibyago bike cyane byo kurwara kanseri y'uruhu muri utwo duce. Cyane cyane iyo utwo duce tugaragara mu kanwa, hashobora kubaho ibyago byinshi byo kurwara kanseri y'uruhu yitwa squamous cell carcinoma.
- Chilblain Lupus: Iyi ni indwara idasanzwe. Muri iyi ndwara, utudomo cyangwa uduce tw'umuhengeri tugaragara ku ruhu iyo umuntu ahuye n'ubukonje. Ibi bishobora kubabaza cyane.
Ni gute wasuzuma iyi ndwara?
Niba ufite ibi bimenyetso, icyiza wakora ni ukujya kwa muganga w’uruhu . Azagusuzuma kandi agukorere ibizamini kugira ngo yemeze ko wanduye.
Ibi byitwa biopsy y'uruhu . Ibi bikubiyemo gufata agace gato cyane k'uruhu aho hantu hakorerwa anesthesia. Hanyuma koherezwa muri laboratwari hanyuma kagasuzumwa hifashishijwe mikorosikopi. Mu kureba impinduka ziri muri utwo turemangingo, dushobora kumenya neza niba ari discoid lupus cyangwa indi ndwara y'uruhu.
Ni ubuhe buryo bwo kuvura?
Indwara ya Discoid lupus ntishobora gukira burundu. Ariko, kuyivura bishobora gufasha mu kugenzura ibimenyetso, gukumira indwara nshya, no kugufasha kubaho ubuzima busanzwe. Muganga wawe azaguha uburyo bwo kuvura bukwiye bitewe n'uburemere bw'ibimenyetso byawe.
Bumwe mu buryo bw'ingenzi bwo kuvura bukoreshwa buri hano hepfo.
| Ubwoko bw'ubuvuzi | Imikorere n'ingero |
|---|---|
| Amavuta yo mu bwoko bwa Steroid | Izi ni amavuta akoreshwa ku ruhu. Agabanya ubushyuhe n'ibibyimba mu mubiri. Urugero: `fluocinolone acetonide`, `hydrocortisone butyrate`. |
| Imiti yo kurwanya malariya | Ibi ni ibinini ufata. Ntugatangare, imiti ikoreshwa muri malariya nayo ni ingirakamaro cyane ku ndwara ya lupus. Ifasha kugabanya uduheri ku ruhu no kugabanya umunaniro. Urugero: `hydroxychloroquine (Plaquenil®)`. |
| Imiti igabanya ubudahangarwa bw'umubiri (Calcineurin Inhibitors) | Izi nazo ni ubwoko bw'amavuta yo kwisiga. Agenzura imikorere y'ubudahangarwa bw'umubiri ku rugero runaka kandi akagabanya ububyimbirwe. Urugero: `tacrolimus`, `pimecrolimus`. |
| Indi miti igabanya ububyimbirwe | Mu gihe indwara ikomeye cyane, abaganga bashobora no gutanga imiti yo kunywa nka dapsone na methotrexate. |
Icy'ingenzi: Uburyo ubwo aribwo bwose bwo kuvura bugomba gutangizwa gusa ku nama za muganga . Ntugakoreshe imiti wenyine.
Ni gute wakwirinda gushyuha kw'ibicurane?
Dore icyo umuntu wese urwaye discoid lupus agomba kumenya. Ku barwayi ba lupus bagera kuri 70%, ibimenyetso birarushaho kwiyongera iyo bahuye n'urumuri rwa ultraviolet (UV) ruturutse ku zuba. Ibi bivuze ko utudomo dushya dushobora kugaragara, utudomo dusanzwe dushobora gutukura, cyangwa tukarushaho kwiyongera. Ibi ni ingenzi cyane ku muntu utuye mu gihugu nk'icyacu gifite izuba ryinshi umwaka wose.
Kugira ngo wirinde izuba kandi wirinde ko indwara ikomeza kwiyongera, kora ibi bikurikira:
- Siga amavuta yo kwisiga ku zuba buri munsi mbere yo kujya ku zuba. Hitamo amavuta yo kwisiga ku zuba afite imiterere migari (arinda UVA na UVB) afite nibura SPF 30 .
- Ni byiza gukoresha amavuta akingira izuba atari iyo usohotse gusa, ahubwo no iyo ucumbitse mu nzu, cyane cyane iyo uri hafi y'idirishya.
- Ongera ushyireho amavuta akingira izuba buri masaha 4. Ongera ushyireho mbere yo kubira ibyuya cyangwa kujya mu mazi.
- Irinde imirasire y'izuba ikomeye cyane hagati ya saa yine za mu gitondo na saa yine z'umugoroba uko bishoboka kose.
- Mu gihe ugiye hanze, koresha ibintu nk'imyenda y'amaboko maremare, ingofero nini, n'amasafuriya .
- Ndetse n'amatara ashyushye yo mu nzu ashobora gusohora imirasire ya UV, bityo irinde kuguma munsi y'amatara nk'ayo igihe kirekire.
- Ntukigere ukoresha ibitanda byo gusiga ibara ry'uruhu .
Nukurikiza izi ntambwe neza, uzabasha kugenzura ibimenyetso byawe ku rugero runini.
Ubutumwa bwo kujyana mu rugo
- Discoid lupus ni ubwoko bw'indwara ya lupus ifata uruhu cyane cyane.
- Ibi bituma ku maso no ku mutwe hagaragara utudomo twizengurutse, dutukura, dufite ishusho nk'iy'igiceri. Akenshi ntabwo tubabara cyangwa ngo turyane.
- Nubwo idashobora gukira burundu, ibimenyetso bishobora kugenzurwa neza cyane n'ubuvuzi.
- Kwirinda izuba ni ngombwa! Gukoresha imiti irinda izuba buri munsi no kwirinda izuba ryinshi ni ingenzi cyane kugira ngo hirindwe ko indwara ikomeza kwiyongera.
- Niba ufite uduheri nk'utwo ku ruhu rwawe, jya kwa muganga w'uruhu kugira ngo akugire inama.
- Ntugakubite cyangwa ngo uhitemo udusebe ku ruhu. Ibi bishobora gutera inkovu no kwandura indwara.
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