Ese nawe uva amaraso menshi uvuye mu gikomere gito? Reka tuvuge ku ndwara ya von Willebrand

Ese wigeze ugira agasebe gato ku buryo udashobora guhagarika kuva amaraso igihe kirekire? Cyangwa ukagira ibikomere binini by'ubururu nubwo wagize ikibyimba gito? Hari igihe dutekereza ko ibi ari ibintu bisanzwe, ariko bishobora kuba ikimenyetso cy'ikibazo gito mu maraso yacu. Uyu munsi, tugiye kuvuga ku ndwara idakunze kuvugwaho cyane ariko ikunze kugira ingaruka ku kubumba amaraso. Iyo ni indwara ya von Willebrand.

Mu magambo make, indwara ya von Willebrand (VWD) ni iki?

Indwara ya von Willebrand (VWD) ni indwara ibaho iyo inzira yacu yo kuvura amaraso idakora neza. Ni intege nke dukura mu mubiri wacu kuruta indwara.

Tekereza, iyo twakomeretse mu mitsi imwe y'amaraso, ubwoko buto bw'uturemangingo (platelets) mu mubiri wacu buza guhagarika kuva amaraso no gufunga igikomere. Ni nko kuzuza umwobo mu rukuta n'amatafari. Utu turemangingo turafatana kandi dufite poroteyine yihariye isa n'iy'"ishinya" mu maraso yacu idufasha gukora agahu gakomeye. Ibyo ni byo twita von Willebrand factor (VWF) .

Umuntu urwaye VWD ashobora kuba adafite iyi poroteyine ya VWF ihagije mu mubiri we, cyangwa poroteyine afite ishobora kudakora neza. Hanyuma, kubera ko amaraso adakora neza, bifata igihe kirekire kugira ngo amaraso ahagarike kuva ndetse no mu gikomere gito.

Ni ubuhe bwoko bw'ingenzi bwa VWD?

Iyi ndwara igabanyijemo ubwoko butatu. Hari n'ubwoko butari ubwavukanye ariko bukivuka nyuma.

Ni ibihe bimenyetso by'iyi ndwara?

Ibimenyetso biratandukanye bitewe n'ubwoko bwa VWD ufite.

Ibimenyetso byoroheje kandi biringaniye by'ubwoko bwa 1 na 2

• Ndetse n'igikomere gito gishobora gutera igikomere kinini cy'ubururu: Ese ubona umubiri wawe urimo guhinduka ubururu ahantu runaka?
• Kuva amaraso mu mazuru kenshi: Hari abantu bagira kuva amaraso mu mazuru kenshi, kandi biragoye kubihagarika.
• Kuva amaraso menshi nyuma yo kubagwa cyangwa gukurwa iryinyo: Ese kuva amaraso ntibihagarara amasaha menshi nyuma yo gukurwa iryinyo?
• Abagore bagira amaraso menshi mu gihe cy'imihango yabo: Ese kuva amaraso ni byinshi ku buryo ugomba guhindura pad nibura rimwe mu isaha? Ese bizana n'udusimba? Uko igihe kigenda gihita, ibi bishobora gutera kubura amaraso mu mubiri.
• Amaraso mu muyoboro cyangwa mu nkari.

Ibimenyetso bikomeye by'ubwoko bwa 3

Muri ubu bwoko, ibimenyetso byose byavuzwe haruguru bishobora kuba bikomeye. Byongeye kandi,

• Kuva amaraso menshi mu buryo butunguranye nta mpamvu.
• Amaraso asohoka mu ngingo no mu ngingo zoroshye, bigatera kubyimba no kubabara cyane.

Ubimenya ute?

Muganga wawe azabanza kukubaza ibimenyetso byawe n'amateka y'ubuzima bw'umuryango wawe. Kubera ko iyi ari indwara uvukana, ni ngombwa kumenya niba hari undi muntu wo mu muryango wawe wigeze kugira ubwo bwoko bw'ikibazo cyo kuva amaraso.

Hanyuma, bazakora ibizamini byihariye kugira ngo barebe igihe bifata kugira ngo amaraso yawe agire ubwoya n'uko amera neza.

• Gupima ingano ya poroteyine ya VWF mu maraso (Ikizamini cya Antigen).
• Gupima imikorere y'iyo poroteyine.

Hari igihe ibintu nk'imihangayiko n'imyitozo ngororamubiri bishobora guhindura urugero rwa VWF, bityo ushobora gukenera gukora ibi bizamini inshuro zirenze imwe kugira ngo ubone ibisubizo nyabyo.

Uburyo bwo kuvura ni ubuhe? Wabukoresha ute?

Nubwo indwara ya VWD idashobora gukira, irashobora kugenzurwa no gucungwa kugira ngo ikomeze kubaho ubuzima busanzwe. Ikintu cy'ingenzi ni ukugabanya ibyago byo kuva amaraso.

1. Kwirinda imiti imwe n'imwe

Ugomba kwirinda gufata imiti imwe n'imwe igabanya amaraso. Muganga wawe akunze kukubwira kudafata aspirine na NSAIDs (nka ibuprofen na naproxen). Acetaminophen ni amahitamo yizewe yo kuvura ububabare cyangwa umuriro. Ariko banza ubaze muganga wawe mbere yo gufata umuti uwo ari wo wose.

2. Uburyo bwihariye bwo kuvura

Ubuvuzi buterwa n'uburemere n'ubwoko bw'ibimenyetso byawe.

• Desmopressin Acetate (DDAVP): Ubu ni bwo buryo bukunze gukoreshwa cyane. Bushobora gutangwa nk'umuti wo mu mazuru cyangwa nk'urushinge. Bukora mu gutuma poroteyine ya VWF ibikwa mu turemangingo twacu isohoka mu maraso. Uyu muti ushobora gutuma amazi aguma mu mubiri, bityo muganga wawe ashobora kukugira inama yo kugabanya amazi unywa.
• Ibice bigabanya amaraso: Ikiyiko kirimo poroteyine ya VWF itangwa mu mitsi (IV). Ibi bikunze gukoreshwa mu bihe bikomeye na mbere yo kubagwa.
• Indi miti: Mu gihe cyo gukura amenyo, ibinini cyangwa imiti y'amazi nka aside aminocaproic cyangwa aside tranexamic ishobora gutangwa kugira ngo amaraso adashonga.
• Uburyo bwihariye bwo kuvura abagore: Ku bagore bafite imihango myinshi, ibinini byo kuboneza urubyaro bishobora kongera urugero rwa VWF. Hariho kandi uburyo nko kwambara umugozi urimo imisemburo (levonorgestrel intrauterine device) cyangwa gukuraho igice cy'umura (endometrial ablation).

Hanyuma, niba ufite indwara ikomeye nka Type 3, niba uva amaraso, ni ikibazo cyihutirwa. Ugomba kujya kwa muganga wita ku barwayi ba ETU (ETU) ako kanya. Gutinda bishobora gushyira ubuzima mu kaga.