Tinoziva kuti chishuwo chikuru chenyu mese, saamai, ndechekubereka mwana ane hutano uye azere. Asi dzimwe nguva, matambudziko anogona kumuka atisina kumbofungidzira. Anencephaly inyaya inonetsa kunzwa nezvayo. Iyi inyaya yekuzvarwa nayo inoitika kana uropi hwemwana nedehenya rake zvikasakura zvakanaka. Marwadzo nekuvhunduka kwaunonzwa paunodzidza nezvechinhu chakadai hazvitsananguriki. Asi zvakakosha kuti unzwisise chirwere ichi nemazvo uye zviri nyore. Nhasi, tichataura nezvechirwere ichi chinonzi Anencephaly.
Zvichitaurwa zviri nyore, chii chinonzi Anencephaly?
Anencephaly chirwere chekuzvarwa nacho chinoitika pakuzvarwa. Muchirwere ichi, zvimwe zvikamu zvakakosha zveuropi hwemwana nedehenya hazvikure. Ichi chirwere chakakomba chinokanganisa tsinga dzemwana.
Fungidzira, mumwedzi wekutanga wepamuviri, uropi hwemwana, dehenya, musana, uye musana zvinotanga kuumbwa. Izvi zvinoumbwa nenzira yakakosha inonzi 'neural tube'. Dumbu iri rinofanira kuvharika, sezvinoita zipi. Kana paine anencephaly, chikamu chepamusoro chedumbu iri re neural, uko uropi nedehenya zvinoumbwa, hachivhariki zvakanaka. Ndosaka zvichinziwo neural tube defect .
Uropi hunodzora zvese muhupenyu hwedu, hunotichengetedza tiri vapenyu. Saka zvakaoma kuti mwana ararame asina zvikamu zvikuru zveuropi. Nokudaro, vana vanozvarwa vaine anencephaly vanowanzo rarama kwemaminitsi mashoma, maawa kana mazuva. Kazhinji, pamuviri wakadaro unoguma nekubviswa pamuviri kana kuberekwa kwemwana akafa.
Tinoziva kuti izvi zvakaoma zvikuru kuti uzive. Asi iyi haisi mhosva yako. Iyi idambudziko rinowanzoitika mumavhiki ekutanga epamuviri, apo ungasatomboziva kuti une pamuviri.
Kune mhando huru dzeanencephaly here?
Ehe, kune mhando nhatu huru dzeanencephaly. Mhando dzose nhatu dzine kukanganisa kukuru muhupenyu hwemwana.
| Rudzi rwe anencephaly | Tsananguro iri nyore |
|---|---|
| Meroanencephaly | Murudzi urwu, zvikamu zveuropi zvinokura zvishoma. Panogona kunge paine ganda nedehenya zvinofukidza uropi. |
| Holoanencephaly | Urwu ndirwo rudzi rwakajairika. Uropi hahuna kukura zvachose. |
| Craniorachischisis | Urwu ndirwo rudzi rwakanyanya kuoma. Pano, uropi, dehenya, nemusana hazvina kunyatsokura. |
Ndezvipi zviratidzo zvinogona kuratidza chirwere ichi?
Dambudziko iri rinogona kuonekwa nekukurumidza kuburikidza nekuongororwa panguva yekuzvitakura. Vanachiremba vari kutarisisa izvi.
- Kuongororwa kweropa: Huwandu hweprotein muropa raamai hunonzi alpha-fetoprotein (AFP) hwakakwira zvikuru. Iyi bvunzo inowanzoitwa mumwedzi mitatu yechipiri yekuzvitakura.
- Kuskena: Huwandu hwemvura yeamniotic yakakomberedza mwana hunogona kunge hwakanyanya. Izvi zvinonzi polyhydramnios . Zvakare, kuskena kwe ultrasound kunogona kuratidza zvakajeka kuti zvikamu zvedehenya remwana nehuropi hazvipo.
- Chitarisiko chemwana: Pakuzvarwa, unogona kuona kuti zvikamu zvedehenya remwana hazvipo, nyama dzeuropi dziri pachena, uye musoro mudiki pane zvaitarisirwa.
Mwana achangoberekwa anonzwa sei?
Ichi chinhu chinorwadza zvisingafungidzike kuna amai kana baba. Kune vacheche vanozvarwa vane chirwere ichi:
- Hapana kuziva.
- Hapana chiono.
- Hapana kunzwa.
- Handinzwi kurwadziwa.
Dzimwe nguva, vacheche vane brainstem yakakura vanogona kuratidza mamwe maitiro ekufunga kana vakabatwa. Zvinhu zvakaita sekufema, kufambisa makumbo avo. Uchiona zvinhu izvi, unogona kufunga kuti mwana ari kutinzwa. Asi hachisi chinhu chinoitwa nemaune. Chinhu chinongoerekana chaitika. Nekuti zvikamu zvikuru zveuropi hazvipo, mwana haanzwi kana kunzwisisa chero chinhu.
Ndezvipi zvikonzero uye zvinhu zvinokonzera anencephaly?
Hazvigoneki kutaura kuti chii chinokonzera anencephaly, asi zvinhu zvakawanda zvinogona kukonzera chirwere ichi zvakaonekwa kuti ndizvo zvinokonzera.
Chinhu chakakosha ndechekuti chirwere ichi hachiwanzo gara nhaka. Izvi zvinoreva kuti chinogona kuitika netsaona, kunyangwe pasina munhu mumhuri akambova nacho. Zvisinei, kana wakambova nemwana ane dambudziko retsinga dzemutsinga (senge spina bifida), njodzi yekuti mwana wako anotevera ave nedambudziko rakafanana yakakwira zvishoma. Zvakakosha kutaura nachiremba wako nezveizvi.
| Chinhu chine njodzi | Tsananguro uye zvekuita |
|---|---|
| Kushaikwa kweFolic Acid | Ichi ndicho chinhu chikuru uye chinonyanya kudzivirirwa panjodzi. Folic acid rudzi rwevhitamini B9. Zvakakosha kuti uwane folic acid yakakwana kubva panguva yauri kuedza kubata pamuviri uye mukati memwedzi mitatu yekutanga yekuzvitakura. Tora mushonga unokurudzirwa (kazhinji 400 mcg) zuva nezuva sezvakakurudzirwa nachiremba wako. |
| Chirwere cheshuga | Kana amai vaine chirwere cheshuga chisingadzoreki, izvozvo zvine njodziwo. Zvakakosha kudzora huwandu hweshuga muropa nguva isati yakwana vasati vabata pamuviri. |
| Mimwe mishonga | Mishonga yekurapa pfari, migraine, nezvimwe zvirwere zvepfungwa (zvakaita sevalproic acid) inogona kuwedzera njodzi iyi. Kana uri kutora chero mushonga, taura nachiremba wako nezvazvo nekukurumidza paunenge uchironga kubata pamuviri. Usarega kutora chero mushonga usina kurairwa nachiremba wako. |
| Kushandisa zvinodhaka | Kushandiswa kwemishonga yakaita seopioids mumwedzi miviri yekutanga yekuzvitakura kunogonawo kukonzera zvikanganiso zvetsinga dzemuuropi. |
Dambudziko iri rinonyatsoonekwa sei panguva yekuzvitakura?
Kana ukaenda kukiriniki panguva yekuzvitakura, vanachiremba vanokuitira bvunzo dzakasiyana-siyana kuti vaone kana wakambozvarwa usina kuberekwa. Miedzo iyi inonyanya kubatsira pakuona ane encephaly.
- Chinoongorora Quad Marker: Iyi iongororo inoitirwa paropa raamai. Inotarisa zvinhu zvakaita semazinga eAFP kuti ione kana paine zvikanganiso zvetsinga dzeropa pamwe nezvimwe zvirwere zvemajini.
- Kuongororwa kweUltrasound: Iyi ndiyo nzira inonyanya kushandiswa. Kuongororwa kwechirwere chisina kujairika, kunoitwa pakati pemavhiki 18-20, kunoongorora dehenya remwana, uropi, uye musana. Kana paine anencephaly, inogona kuonekwa zvakajeka nekuongorora uku. Dzimwe nguva inogona kuonekwa kare, mavhiki angangoita 8-12.
- MRI yemwana asati aberekwa (Magnetic Resonance Imaging): Kana scan ikaratidza matambudziko, chiremba wako anogona kukurudzira kuti MRI iongorore uropi nemusana zvakadzama.
- Amniocentesis: Muongororo iyi, sampuli diki kwazvo yemvura yeamniotic yakakomberedza mwana inotorwa yoongororwa. Kana huwandu hweAFP mumvura iyoyo hwakakwira, chingave chiratidzo chekusashanda zvakanaka kwetsinga dzeropa.
Pane mushonga weizvi here?
Ichi ndicho chokwadi chinorwadza panyaya iyi. Hapana mushonga we anencephaly. Idambudziko risingawirirane nehupenyu.
Kana wabatwa nechirwere chakadai, vanachiremba nevashandi vepachipatara vachakupa iwe nemhuri yako rutsigiro rwepfungwa rwaunoda. Vachakutsanangurira mamiriro acho ezvinhu, votaura nezvesarudzo dzako, uye vokubatsira munguva ino yakaoma.
Ungave uchitya kuti mwana wako achanzwa kurwadziwa. Asi sezvatakambotaura, vacheche vane chirwere chepfungwa havanzwi kurwadziwa nekuti nhengo huru dzeuropi hadzipo. Saka usazvidya mwoyo nazvo.
Pane chingaitwa here kudzivirira mamiriro ezvinhu akadai?
Kunyange zvazvo zvisingaite kudzivirira zvachose, pane zvimwe zvinhu zvaunogona kuita kuti uderedze njodzi yako. Izvi zvinonyanya kukosha kana uchironga kubata pamuviri zvakare.
- Tora folic acid: Ichi ndicho chinhu chakakosha. Tanga kutora 400 mcg (micrograms) ye folic acid zuva nezuva mwedzi mitatu usati wabata pamuviri. Sezvo neural tube defects ichiitika mumavhiki ekutanga epamuviri, zvakakosha kutora folic acid kubva panguva yauri kuedza kubata pamuviri. Kana wakambova nemwana ane neural tube defect kare, chiremba wako anogona kukurudzira kuti folic acid iwedzere.
- Tsvaga mazano ekurapa (Kupa Mazano Pamberi Pekunge Wabata Chibereko):Kana uchironga kubata pamuviri, ona chiremba usati wabata pamuviri. Taura nezvemishonga yauri kutora, chero zvimwe zvirwere zvaunazvo (sechirwere cheshuga), uye tsvaga mazano aunoda kuti uve nepamuviri pakanaka.
- Mararamiro ane hutano: Idya chikafu chakakwana, usanwa doro uye kusvuta. Kuchengetedza hutano hwako zvakanaka kunokanganisa hutano hwemwana wako zvakananga.
Kushungurudzika nekuvhunduka kwekufirwa nemwana akadai kunogona kukukurira. Zvakakosha kuva nemumwe munhu wekutaura naye uye kuudzawo manzwiro ako. Taura nemurume wako, mhuri yako, neshamwari. Kana uchida rubatsiro, usazeza kutsvaga rubatsiro rwenyanzvi yehutano hwepfungwa. Kubatana nemapoka ekutsigirana nevamwe vabereki vakambosangana nezviitiko zvakafanana kunogonawo kuva simba guru.
Mharidzo Yekuenda Nayo Kumba
- Anencephaly chirwere chakakomba chinokonzerwa nekusakura zvakanaka kweuropi hwemwana nedehenya rake.
- Hapana mushonga wechirwere ichi, uye hachienderane nehupenyu hwemwana.
- Iyi haisi mhosva yevabereki. Idambudziko rinowanzoitika panguva yekuzvitakura.
- Kutora folic acid usati wabata pamuviri kunogona kuderedza zvakanyanya njodzi yekukanganisika kwemasero aya etsinga dzemuuropi.
- Kana uchironga kubata pamuviri, kunyanya kana wakambova nemwana ane dambudziko retsinga dzemutsinga, zvakakosha kuti utaure nachiremba wako wowana mazano anodiwa.
- Kana zvichikuomera kutsungirira kushungurudzika kunotevera kufirwa kwakadai, usazeza kutsvaga rutsigiro kubva kumhuri, shamwari, kana nyanzvi yekupa mazano.
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