Vamwe vevana vedu, pamwe chete nevakuru, vanofanirwa kuwedzerwa ropa nguva nenguva nekuda kwezvirwere zvakaita seThalassemia. Kana tikaramba tichipa ropa nenzira iyi, miviri yedu inogona kuunganidza huwandu hwesimbi hwaisingagoni kubata. Tinodana izvi kuti 'Iron Overload'. Saka, mushonga unokosha unonyorerwa navanachiremba kubvisa simbi yakawandisa inoungana mumuviri nenzira iyi unonzi Deferasirox. Ungangoziva mushonga uyu nezita rekuti Jadenu. Saka, ngatitaurei nezvemushonga uyu nhasi.
Chii chinonzi Deferasirox?
Muchidimbu, Deferasirox mushonga wemhando ye'iron chelator'. Izvi zvinoreva kuti mushonga uyu unoshanda nekubata zvidimbu zvesimbi zvakawandisa muropa rako, wozvisunga, wozvibvisa mumuviri wako mutsvina yako. Funga nezvazvo semagineti, uchibvisa simbi isingadiwe. Kubvisa simbi yakawandisa nenzira iyi kwakakosha zvikuru. Nekuti kana simbi yakawandisa ikaungana mumuviri, inogona kukuvadza nhengo dzakakosha dzakadai sechiropa nemoyo.
Zvinhu zvaunofanira kuudza chiremba wako usati watora mushonga
Usati watanga kutora mushonga uyu, zvakakosha kupa chiremba wako tsananguro yakazara yehutano hwako. Nekuti mushonga uyu unofanirwa kupihwa kune vanhu vane mamwe matambudziko ehutano, zvakakosha kuvaudza kana uine chimwe chezvinotevera:
- Kana uine kenza kana kuti uri kurapwa kenza.
- Kana uine chirwere chechiropa kana cheitsvo .
- Kana usina kuona zvakanaka kana kuti uine chirwere chemaziso (semuenzaniso cataracts).
- Kana uine dambudziko rekunzwa .
- Kana uine nhoroondo yezvirwere zveropa . Semuenzaniso, mamiriro ezvinhu apo huwandu hwemasero machena eropa, masero matsvuku eropa, kana maplatelet muropa huri pasi.
- Kana uine allergy yemushonga uyu weDeferasirox kana chero mumwe mushonga, chikafu, kana dhayi.
- Kana uine pamuviri, uchiedza kubata pamuviri, kana kuti uchiyamwisa .
Kuudza chiremba wako nezvezvinhu izvi usingazvivanzi kwakakosha zvikuru kuti uchengetedzeke.
Ndinofanira kushandisa mushonga uyu sei?
Chiremba wako achakutsanangurira zvakajeka mashandisirwo emushonga uyu. Zvakakosha kutevedzera mirairo iyoyo nemazvo.
- Nguva: Mushonga uyu unofanira kutorwa nguva dzose usina chinhu mudumbu . Izvi zvinoreva kuti maminetsi makumi matatu usati wadya kana maawa maviri mushure mekudya . Kuutora pamwe chete nechikafu kunogona kuderedza kushanda kwemushonga. Zvakanaka kuti uve netsika yekuutora panguva imwe chete zuva nezuva.
- Nzira yekutora:Uyu mushonga unouya uri muchimiro chegranule. Unowanzo pihwa nekunyungudutsa mumvura, muto weapuro, kana muto weorenji wobva wanwa. Ita sezvaunoudzwa nachiremba wako.
- Kumira: Usamborega kutora mushonga uyu kamwe kamwe usina kurairwa nachiremba wako. Kuita izvi kunogona kukonzera kuti huwandu hwesimbi mumuviri wako hukwire zvakare nekukurumidza.
- Kana ikapihwa vana: Pane dzimwe nguva apo mushonga uyu unogona kupihwa kuvana vane makore anopfuura maviri ekuberekwa. Asi unofanira kuitwa uchitarisirwa nachiremba. Iva nechokwadi chekuti unonzwisisa mwero uye nzira yekupa mwana mushonga uyu.
- Kana ukarasikirwa nedosi: Kana ukakanganwa kutora dosi, itore nekukurumidza paunenge uchiyeuka. Zvisinei, kana yava nguva yekuti utore dosi rinotevera, svetuka dosi rausina kutora wotora dosi rinotevera panguva yakatarwa. Usambofa watora dosi mbiri.
Zvakakosha: Kana ukatora mushonga wakawandisa netsaona, usaregeredza. Fonera National Poisons Information Centre paColombo National Hospital nekukasika. Kana kuti enda kuEmergency Treatment Unit (ETU) yechipatara chiri pedyo.
Zvinhu zvekungwarira paunenge uchitora mushonga
Paunenge uchitora mushonga uyu, chiremba wako anogara achiongorora ropa rako, maziso ako, uye kunzwa kwako. Usarega bvunzo idzi. Pamusoro pezvo, ziva zviratidzo izvi.
- Kurwara kwakanyanya kweganda: Vamwe vanhu vanogona kutanga kurwara zvakanyanya kweganda mavhiki akati wandei mushure mekutanga mushonga uyu. Kana uine fivha, kurwadziwa kwemuviri, uye mavanga matsvuku kana epepuru paganda rako anozobuda mavanga uye obva abuda, unofanira kuudza chiremba wako nekukasika. Uyewo, kana uine mapundu matsvuku paganda rako uye ma lymph nodes akazvimba pachiso chako, pamiromo, kana pamutsipa/pahapwa, chiratidzo chakakombawo.
- Kubuda ropa mudumbu: Kana tsvina yako yakasviba kana kuti ukarutsa chinhu chinoita sechikafu chekofi , chinogona kunge chiri kubuda ropa kubva mudumbu kana mudumbu mako. Izvi zvinonetsa, saka enda kuna chiremba nekukasika.
- Dzungu: Mushonga uyu unogona kukonzera dzungu kune vamwe vanhu. Saka, dzivisa mabasa ane njodzi akadai sekutyaira kana kushandisa michina kusvika waziva kuti mushonga wacho unokukanganisa sei. Kunyanya kana wakwegura, usamuka kamwe kamwe kubva panzvimbo yawakagara.
- Kushaya mvura mumuviri wemwana: Kana mwana wako ari kuita manyoka akanyanya, kurutsa, kana kudikitira zvakanyanya, anogona kunge achirasikirwa nemvura yakawanda mumuviri wake. Izvi zvinogona kuva nengozi panguva yekutora mushonga uyu. Saka udza chiremba wako nezvazvo kana zvakadaro.
Ndezvipi migumisiro yakaipa?
Kufanana nemushonga upi zvawo, Deferasirox inogona kukonzera migumisiro yakaipa. Haasi munhu wese anowana, asi zvakakosha kuti uzive nezvayo.
| Mhedzisiro yedivi | Tsananguro |
|---|---|
| Migumisiro inofanira kuziviswa kuna chiremba wako nekukasika | |
| Kurwara Kwakanyanya | Mapundu paganda, kuvaviwa, kuzvimba kwechiso/miromo/rurimi, kuoma kufema. |
| Kuchinja kwekuona kana kunzwa | Kuona zvisina kujeka, kuchinja kwemavara, uye kusanzwa zvakanaka. |
| Zviratidzo zvekukuvara kwechiropa | Weti yero/tsvuku yakasviba, maziso kana ganda richitsvuka, kurwadziwa kumusoro kwedumbu, kuda kurutsa, kuneta kwakanyanya. |
| Mhedzisiro paitsvo | Kuderera kwehuwandu hweweti kana kuoma kuita weti. |
| Kubuda ropa | Tsvina nhema yakaita setara, kurutsa sekofi yakakuyiwa, uye mavanga anongoerekana aitika pamuviri. |
| Udza chiremba wako kana zvichiramba zvichiitika kana kuti zvichikunetsa. | |
| Matambudziko ekugaya chikafu | Kurwadziwa kwemudumbu, kuda kurutsa, kurutsa, manyoka. |
| Matambudziko ekurara | Kushaya hope kana matambudziko ekurara. |
Izvi zvinogona kudyidzana nemimwe mishonga here?
Ehe, izvi zvakakosha zvikuru. Deferasirox inogona kukonzera matambudziko kana ikatorwa nemimwe mishonga. Saka udza chiremba wako nezvemishonga yese, mavhitamini, mishonga yemiti, kana chimwe chinhu chinowedzera chauri kutora.
Unofanira kungwarira zvikuru kana uchitora Deferasirox pamwe chete nemishonga iyi:
- Mamwe mapiritsi kana zvimwe zvinovaka muviri zvine iron: Mushonga uyu unotorwa kubvisa iron yakawandisa, saka kutora mapiritsi esimbi hakubatsiri.
- Mishonga Inorwisa Asidhi: Mishonga inorwisa asidhi ine aruminiyamu inoshandiswa pakurapa gasi nechirungurira inogona kuderedza kunwa kweDeferasirox.
- Mimwe mishonga yecholesterol: Mishonga yakaita seCholestyramine neColestipol.
- Mimwe mishonga inoderedza marwadzo: Mishonga inoderedza marwadzo yerudzi rweNSAID (semuenzaniso Ibuprofen, Naproxen).
- Mapiritsi ekudzivirira pamuviri.
- Mishonga inodzivirira kuumbwa kweropa, yakaita seWarfarin .
- Mishonga yeSteroid yakaita sePrednisone .
Rondedzero iyi haina kukwana, saka zvakachengeteka kuudza chiremba wako nezvemishonga yese yaunotora .
Mharidzo Yekuenda Nayo Kumba
- Deferasirox mushonga unokosha zvikuru unopihwa kubvisa iron yakawandisa mumuviri nekuda kwezvirwere zvakaita sethalassemia.
- Gara uchinwa mushonga uyu mudumbu risina chinhu, panguva iyoyo uye muchiyero chawakarairwa nachiremba wako.
- Zvakakosha kuzivisa chiremba wako nezvemimwe mishonga yese, mavhitamini, uye zvimwe zvinovaka muviri zvauri kutora.
- Kana ukaona zviratidzo zvakakomba zvakaita semapundu eganda, kurutsa kunoratidzika sekunge kwakanyikwa nekofi, tsvina yekurara, kana kuchinja kwekuona, usazviregeredza uye tsvaga rubatsiro rwechiremba nekukasika.
- Usamborega kutora mishonga kana kuchinja mwero wemushonga usina kurairwa nachiremba wako.
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