Wakamboona here kuti chitarisiko chechiso chemwana wako, kunyanya maziso netsiye, hachina kujairika? Kana kuti wakamboona here kuti mwana wako ane zvimwe zvinomunetsa pakukura kana kusasimba kwetsandanyama? Zvakajairika kuti vabereki vatye kana vakaona zvinhu zvakaita seizvi. Nhasi tichataura nezveKabuki Syndrome, chirwere chisingawanzoonekwi chinoratidza zviratidzo izvi.
Sei ichinzi 'Kabuki'? Izvi zvakawanikwa sei?
Nyaya iyi inotangira kuJapan kuma1960. Mapoka maviri evanachiremba ikoko akaona boka revana vane zviratidzo zvisinganzwisisike, zvisina hukama. Vana ava vaive nechitarisiko chakasiyana pazviso zvavo. Tsiye dzavo dzaive dzakakombama mudenga, tsiye dzavo dzaive dzakakora, uye maziso avo aive marefu .
Fungidzira, vatambi mumitambo yechiJapan inonzi "kabuki" vanopfeka makeup yakakosha kuti vawedzere kunaka kwavo. Saka, nekuda kwekufanana kwakaita chitarisiko chechiso chevana ava ne makeup yevatambi vekabuki, mumwe chiremba akatumidza chirwere ichi kuti "kabuki makeup syndrome." Gare gare, chakapfupikiswa kunzi "Kabuki Syndrome (KS).
Pakutanga, zvaifungidzirwa kuti chirwere ichi chaingoitika kuJapan chete. Asi gare gare, vana vane chirwere ichi vakazowanikwa pasi rese, pakati pemapoka akasiyana-siyana emadzinza. Ichi chirwere chisingawanzoitiki. Anenge mwana mumwe chete pavana 32,000 vanoberekwa vane chirwere ichi anobatwa nacho.
Chii chaizvo chinonzi Kabuki Syndrome?
Zvichitaurwa zviri nyore, chirwere cheKabuki chirwere chemajini . Kureva kuti, chinokonzerwa nekuchinja kwemajini mumuviri wedu. Chirwere chinoitika pakuzvarwa. Zvimwe zviratidzo zvinogona kuonekwa pakarepo mushure mekuzvarwa. Zvimwe zvinoonekwa mwana paanokura.
Chinhu chakakosha ndechekuti havasi vana vese vane chirwere ichi vane zviratidzo zvakafanana. Munhu wega wega anogona kunge aine zviratidzo zvakasiyana.
Dzimwe nguva zvinogona kuoma kunyatsoongorora chirwere chisingawanzoitiki chakadai, sezvo vanachiremba vazhinji vangave vasina kumboona murwere akadai mubasa ravo. Uyewo, zvimwe zvezviratidzo zvakafanana nezvezvimwe zvirwere, zvichiita kuti kuongororwa kwechirwere kuve kwakaoma.
Ndezvipi zviratidzo zvikuru zvechirwere ichi?
Pamusoro pezvimiro zvechiso zvatakambotaura nezvazvo, kune zvimwe zvinhu zvakawanda zvinogona kuonekwa. Ngatizvinzwisisei zvakajeka mutafura.
| Rudzi rwehunhu | Zvinhu zvekuona |
|---|---|
| Zvine chekuita nechiso nemusoro |
|
| Mapfupa netsandanyama | |
| Kukura uye masisitimu emuviri |
Pane musiyano here muhungwaru nemaitiro?
Ehe, vazhinji vevana ava vanogona kunge vaine matambudziko epfungwa ari pakati nepakati . Vanogonawo kunge vaine kunonoka kukura kwepfungwa kwakadai sekutaura nekufamba.
Mamwe maitiro ehunhu anogona kufanana nemamiriro ezvinhu akadai se autism kana OCD (Obsessive-Compulsive Disorder). Semuenzaniso:
- Kugara uchiedza kuisa zvinhu mumuromo mako wozvitsenga.
- Kubatwa zvakanyanya nemanzwi kana zvimwe zvinokurudzira.
- Kurambwa kwezvikafu zvine manakiro kana magadzirirwo akasiyana.
Mwana paanokura, anogona kuratidza zviratidzo zvezvirwere zvakaita sekuzvidya mwoyo kana kuora mwoyo.
Asi vana ava vane hunyanzvi hwakasiyana. Vabereki vanowanzo taura kuti vana ava vanoda mimhanzi.Vane kugona kukuru kwekurangarira dzimwe nziyo. Uyewo, vamwe vane kugona kukuru kwekurangarira zviso nemazuva ekuzvarwa.
Chii chinokonzera izvi? Majini...
Kusvika pari zvino masayendisiti awana kushanduka kwemajini maviri makuru kunokonzera chirwere ichi.
1. Kuchinja kwejini reKMT2D: Ichi ndicho chikonzero chevanhu vanosvika 75% vane chirwere cheKabuki.
2. Kuchinja kwejini reKDM6A: Vanhu vanosvika 9% vasina KMT2D mutation vane kuchinja uku.
Kazhinji, kuchinja kwemajini uku kunoitika mumuviri wemwana. Kureva kuti, hakugarwi kubva kuna amai kana baba. Zvisinei, kashoma, mwana anogona kugara nhaka chirwere ichi kubva kune mumwe wevabereki.
Inorapwa sei?
Chekutanga, hapana mushonga weKabuki syndrome . Haisi chirwere chinopera mwana achikura. Zvisinei, kuongororwa kwechirwere ichi nekukurumidza uye kurapwa kwakakodzera uye rutsigiro zvinogona kubatsira mwana kurarama hupenyu huri nani.
Nzira dzekurapa dzinoenderana nezviratidzo nematambudziko aripo nemwana, uye dzinogona kuda rubatsiro rwevanachiremba vakasiyana-siyana.
| Rubatsiro rwezvekurapa rungangodiwa | Masevhisi ekurapa angangodiwa |
|---|---|
|
Kana zvasvika pakurarama kwevana ava, chirwere cheKabuki hachipfupisi makore avo ekurarama. Zvisinei, kana paine zvirwere zvakakomba, zvakaita sechirwere chemwoyo kana matambudziko eitsvo, zvinogona kukanganisa hupenyu hwavo. Ndosaka kugara uchitarisa vanachiremba kwakakosha zvikuru.
Upenyu hwechikoro nekukura
Vana ava vanogona kuenda kuchikoro. Zvisinei, vanoda chirongwa chedzidzo chakagadzirirwa zvavanoda. Vangangoda rutsigiro rwemudzidzisi wedzidzo yakasarudzika. Vamwe vana vanokwanisawo kutora chikamu mumitambo.
Zvakaoma kutaura kuti hupenyu hwavo huchava hwakaita sei kana vakura, sezvo kuoma kwezviratidzo kuchisiyana kubva pamunhu kusvika pamunhu. Vamwe vanhu vane hutano hwakanaka vanokwanisa kurarama vakazvimiririra uye kutoroora kana kuroorwa.
Mharidzo Yekuenda Nayo Kumba
- Kabuki syndrome chirwere chisingawanzoitiki, chinokonzerwa nemajini. Hapana chikonzero chekuchitya, asi zvakakosha kuti uzive.
- Zviratidzo zvikuru zvechiso, kushaya simba kwetsandanyama, uye kunonoka kukura kwemuviri.
- Kunyangwe chirwere ichi chisingarapiki zvachose, kuonekwa nekukurumidza uye kupa kurapwa kwakakodzera uye masevhisi ekurapa zvinogona kuvandudza hupenyu hwemwana zvakanyanya.
- Mwana wese akasiyana, saka shanda pamwe chete nachiremba wako nevamwe vanachipangamazano kuti munzwisise rutsigiro rwaunoda.
- Kunyangwe vana ava vaine matambudziko, vanogona kunzwa rudo, mimhanzi, nezvimwe zvakawanda muhupenyu. Chinhu chakakosha ndechekuvapa rudo nerutsigiro.
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