Khawucinge ukuba awukwazi nokuphuma elangeni. Kuthekani ukuba uziva iintlungu ezinganyamezelekiyo xa uphuma phandle, ngokungathi ulusu lwakho luyatsha kwaye luyahlaba? Kwabanye abantu, oku kwahlukile ngokwenene. Oku kubizwa ngokuba yi-Erythropoietic Protoporphyria (EPP). Ngoko ke namhlanje sithetha ngonyango olukhethekileyo olunokunceda abantu abanjalo. Elo liyeza elibizwa ngokuba yi-Afamelanotide.
Yintoni i-Afamelanotide?
Ngamafutshane, i-Afamelanotide liyeza elisetyenziselwa ukunyanga imeko ebizwa ngokuba yi -Erythropoietic Protoporphyria (EPP) . Ayisiyonto oyithathayo njengepilisi okanye oyifumana njengenaliti . Sisixhobo esincinci kakhulu, esinobukhulu obungangeqhekeza lerayisi. Siyibiza ngokuba yi-implant . Ifakwa phantsi kwesikhumba ngugqirha wakho.
Ngoku masibone ukuba kwenzeka ntoni. Ulusu lwethu lunombala obizwa ngokuba yi-melanin olwenza lube nombala. Usenokuba uqaphele ukuba abanye abantu bamhlophe kakhulu, abanye bamhlophe, abanye bamnyama. Isizathu sale mibala sibizwa ngokuba yi-melanin. I-Melanin ikhusela ulusu lwethu elangeni ngokwemvelo. Ifana ne- sunscreen yendalo.
Ngoko ke, abantu abanale meko ye-EPP bafumana iintlungu eluswini xa bechatshazelwa lilanga. I-Afamelanotide inyusa ukuveliswa kwe-melanin emizimbeni yethu. Oku ke kunika ulusu ukhuseleko lwendalo, kunciphisa ukuva ukukhanya kwelanga kwaye kuthintele iimeko ezibuhlungu. Eli yeza lidla ngokuba phantsi kwegama le-SCENESSE.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba ufumane olu nyango
Ngaphambi kokuba akunike olu nyango, ugqirha wakho uza kukubuza imibuzo embalwa. Kufuneka ucacelwe zezi zinto.
- Ukuba une -allergy kule mithi ye-Afamelanotide okanye naliphi na elinye iyeza, ukutya, okanye idayi, nceda usixelele ngayo.
- Qiniseka ukuba usazisa ukuba ukhulelwe okanye uzama ukukhulelwa .
- Ukuba ungumama oncancisayo, kufuneka ukhankanye loo nto.
Olu lwazi lubaluleke kakhulu kugqirha ukuze akunike unyango olufanelekileyo nolukhuselekileyo.
Ulisebenzisa njani eli yeza?
Oku akuyonto onokuyenza ekhaya. Kufuneka kwenziwe esibhedlele okanye ekliniki ngugqirha wakho okanye iqela lezonyango eliqeqeshiweyo.
Esi sifakelo sidla ngokubekwa phantsi kwesikhumba esiswini sakho . Emva kokuba sigqityiwe, gcina indawo icocekile kwaye yomile iiyure ezingama-24.Ufanele uyigcine. Ugqirha uza kukunika imiyalelo efunekayo.
Esi sifakelo sisuswa ngugqirha ngokwakhe emva kweenyanga ezimbini. Emva koko, singafakwa esitsha ukuba kuyimfuneko.
Eyona nto ibalulekileyo kukuba eli liyeza elimiselwe wena kuphela. Ungaze ulinike omnye umntu.
Ingaba oku kufanelekile kubantwana abancinci?
Kufuneka kuthathwe ingqwalasela ekhethekileyo xa kunikwa abantwana olu nyango. Ngoko ke, ukuba ucinga ngolu nyango lomntwana wakho, kungcono ukuthetha nogqirha wabantwana ngalo.
Ungenza ntoni ukuba uthatha amayeza amaninzi kakhulu?
Oku kulawulwa liqela lezonyango, ngoko ke amathuba okuba oku kwenzeke mancinci kakhulu. Nangona kunjalo, ukuba ukrokrela ukuba kukho into efana nale eyenzekileyo, yiya kwiYunithi yoNyango oluNgxamisekileyo (i-ETU) ngoko nangoko. Okanye utsalele umnxeba iZiko loLwazi lweePoisons kwiSibhedlele sikaZwelonke saseColombo ukuze ufumane ingcebiso.
Izinto ekufuneka ziqwalaselwe xa usenza unyango
Kukho izinto ezininzi ekufuneka uzilumkele emva kokufakwa kwesi sithako.
- Bona ugqirha wakho ngexesha: Hlala unxibelelana nogqirha wakho rhoqo ukuze ubone ukuba unjani. Mxelele ukuba iimpawu zakho ziya zisiba mandundu okanye akunjalo.
- Jonga ulusu lwakho: Kubalulekile ukujonga ulusu lwakho ubuncinane kabini ngonyaka. Eli yeza linokubangela ukuba ulusu lwakho, amabala, kunye neempawu zokuzalwa zibe mnyama kancinci. Nangona oku kuqhelekile, licebo elihle ukubona ugqirha ukuze ahlole naluphi na olunye utshintsho olungaqhelekanga.
- Ukuba i-implant iphuma: Kunqabile kakhulu ukuba i-implant efakwe phantsi kwesikhumba iphume yodwa emzimbeni. Ukuba ukrokrela ukuba oku kwenzekile, fowunela ugqirha wakho ngokukhawuleza.
Zithini iziphumo ebezingalindelekanga ezinokubakho zale yeza?
Njengalo naliphi na iyeza, eli linokubangela iziphumo ebezingalindelekanga kwabanye abantu. Kodwa ayingabo bonke abantu abazenzayo. Masibone ukuba zithini.
| Uhlobo lwesiphumo esibi | Inkcazo |
|---|---|
| Izinto ekufuneka uzixelele ugqirha wakho ngoko nangoko | |
| Iimpendulo ze-allergy | Izinto ezifana nokurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe, ulwimi, okanye umqala. |
| Izinto ezingaqhelekanga ukuba zimbi, kodwa kufuneka zixelwe kugqirha ukuba ziyaqhubeka | |
| Iimpawu ezahlukeneyo |
|
Olu luhlu alubandakanyi zonke iziphumo ebezingalindelekanga. Ukuba ubona into engaqhelekanga, nceda unxibelelane nogqirha wakho ukuze akunike ingcebiso.
Ngaba kukho iingxaki ngamanye amayeza?
Ngokweemvavanyo ezenziweyo ukuza kuthi ga ngoku, i-Afamelanotide ayikafunyaniswa ukuba ibangela iingxaki ngamanye amayeza.
Nangona kunjalo, kubaluleke kakhulu ukuxelela ugqirha wakho ngamanye amayeza, iivithamini, amayeza esintu, okanye izongezo ozithathayo. Kwakhona, xelela ugqirha wakho ukuba uyatshaya okanye usela utywala, kuba ezinye zezi zinto zinokuchaphazela unyango lwakho.
Umyalezo Wokuya Ekhaya
- I-Afamelanotide lunyango oluthile lwesifo esibizwa ngokuba yi-Erythropoietic Protoporphyria (EPP), esenza ulusu lube buthathaka kwilanga.
- Le yi-implant encinci efakwa phantsi kwesikhumba. Isebenza ngokwandisa imveliso ye-melanin, umbala okhusela ulusu.
- Olu nyango lunikwa kwaye lususwe liqela lezonyango esibhedlele okanye ekliniki.
- Ngaphambi kokuba ufumane unyango, xelela ugqirha wakho ngazo zonke iimeko zakho zempilo, ii-allergies, kunye namayeza owasebenzisayo.
- Ukuba ufumana iimpawu zokunganyamezelani komzimba ezifana nokudumba kolusu, funa ingcebiso kagqirha ngoko nangoko.
- Kubalulekile ukubona ugqirha wakho rhoqo kwaye uhlolwe imeko yakho.
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