Kwenzeka ntoni ukuba umzimba uyeka okanye uyeka ukuvelisa i-enzyme ekhethekileyo enceda ukugcina amathambo namazinyo ethu eqinile? Enyanisweni akulula njengoko unokucinga. I-Hypophosphatasia (HPP) yimeko engaqhelekanga yemfuza . Ngoko ke, isitofu esikhethekileyo esinikwa ukunyanga le meko sibizwa ngokuba yi-Asfotase Alfa. Namhlanje, siza kuthetha ngale mayeza, indlela yokuwasebenzisa, into ekufuneka uyilumkele, nayo yonke enye into ngendlela elula kakhulu.
Kwenzeka ntoni ngokwenene ngale mithi?
Ngamafutshane, olu lunyango lokutshintshwa kwee-enzyme . Cinga ngako, ukuze into ethile emzimbeni wethu isebenze kakuhle, kufuneka ibe ne-enzyme eyidingayo. Umntu one-HPP unesiphene sale enzyme enceda ekwakheni amathambo namazinyo aqinileyo. Ngoko ke, into eyenziwa yi-Asfotase Alfa injection kukunika umzimba i-enzyme engekhoyo ngaphandle. Oku kufana nokufaka ioyile emotweni xa iphelelwa yigesi. I-enzyme evela kule injection inceda umzimba ukuba wakhe amathambo namazinyo aqinileyo kwakhona. Eli yeza likwafumaneka kwimarike phantsi kwegama lebrendi iStrensiq.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba uthathe amayeza
Ngaphambi kokuba uqale olu nyango, ngenxa yokhuseleko lwakho, kukho izinto ezimbalwa ekufuneka uzazise ugqirha wakho ngokucacileyo. Qiniseka ukuba uyazikhankanya ezi zinto.
- Ii-Allergies : Ukuba une-allergies kule mithi ye-Asfotase Alfa, naliphi na elinye iyeza, ukutya, izithinteli, okanye iidayi, nceda usixelele kuqala.
- Ukukhulelwa : Ukuba ukhulelwe, okanye uceba ukuba nomntwana kungekudala, xelela ugqirha wakho ngaloo nto.
- Ukuba ungumama oncancisayo: Ukuba ungumama oncancisayo, kufuneka wazise ugqirha.
Ukunika ugqirha wakho olu lwazi kuya kumnceda kakhulu ukuba akuphathe ngendlela ekhuselekileyo nechanekileyo.
Isetyenziswa njani le gonyo?
Olu gonyo lunikwa ngenaliti engaphantsi kwesikhumba .). Kodwa akukho sizathu sokoyika oku. Uza kufundiswa indlela yokulungiselela olu gonyo kunye nendlela yokuzitofa ngokuchanekileyo. Ugqirha okanye abasebenzi bomongikazi baza kukunika imiyalelo ecacileyo ngalo mba.
- Sela amayeza owafumanayo kanye njengoko kuyalelwe kwileyibhile, kwidosi echanekileyo, nangexesha elifanelekileyo.
- Qhubeka usebenzisa eli yeza de ugqirha wakho akuxelele ukuba uyeke.
- Funda imiyalelo eza namayeza ngononophelo. Ukuba unemibuzo, ungathandabuzi ukubuza ugqirha wakho.
Uzilahla njani iinaliti kunye neesirinji ezisetyenzisiweyo?
Oku kubaluleke kakhulu. Ungaze ulahle iinaliti neesirinji ezisetyenzisiweyo enkunkuma. Ukwenza njalo kunokuba yingozi kwabanye. Kufuneka usebenzise isitya esikhethekileyo kwezi, esibizwa ngokuba 'sisitya esibukhali.' Ukuba awunaso, buza ugqirha wakho malunga nendlela yokusifumana.
Yintoni omawuyenze ukuba idosi yeyeza iyanda?
Ukuba ucinga ukuba uthathe i-overdose, yiya kwiSebe lezeMpilo eziNgxamisekileyo (ETU) lesibhedlele esikufutshane ngaphandle kokulibazisa . Okanye, fowunela iZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke saseColombo. Le yimeko engxamisekileyo kwaye kubalulekile ukuba uthathe amanyathelo ngokukhawuleza.
Kuthekani ukuba ndiphoswa lidosi leyeza?
Ungakhathazeki. Ukuba uphoswe yidosi, yithathe ngokukhawuleza xa ukhumbula. Nangona kunjalo, ukuba sele kusondele ixesha lomthamo wakho olandelayo, yeka umthamo ophoswe ngawo uze uthathe umthamo wakho olandelayo ngexesha eliqhelekileyo. Ungaze uthathe idosi ephindwe kabini ukuze ubuyisele umthamo ophoswe ngawo.
Izinto ekufuneka uzilumkele xa usebenzisa amayeza
Kubaluleke kakhulu ukugcina ubudlelwane obusondeleyo nogqirha wakho kulo lonke olu nyango.
- Ukuhlolwa rhoqo: Thetha nogqirha wakho rhoqo ukuze ubone ukuba iimpawu zakho ziyaphucuka okanye ziyancipha na, kunye nendlela umzimba wakho osabela ngayo kunyango. Yiya kwiikliniki ngemihla ayimiseleyo.
- Uvavanyo lwezonyango : Ngelixa usela eli yeza, ugqirha wakho unokufuna ukwenza uvavanyo lwegazi nomchamo ukujonga ukuba izintso zakho zisebenza kakuhle kangakanani na kunye nokujonga ezinye izinto. Musa ukulibazisa olu vavanyo.
- Ukuhlolwa Kokubona : Umbono wakho ungahlolwa ngaphambi nangexesha lonyango. Ukuba ubona naluphi na utshintsho ekuboneni kwakho (njengokubona okufipheleyo okanye okunciphileyo), xelela ugqirha wakho ngoko nangoko.
- Ubhaliso Lwezigulane: Ungamenywa ukuba ujoyine ubhaliso lwezigulane ezine-HPP lwexesha elide. Oku kuya kunceda ukuqokelela idatha ukuze uqonde ngcono isifo kunye nonyango lwaso. Ungacela ugqirha wakho ukuba akunike ulwazi oluthe kratya.
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengalo naliphi na iyeza, eli yeza linokubangela ezinye iziphumo ebezingalindelekanga. Kodwa ayinguye wonke umntu ozifumanayo. Masizihlukanise zibe ziindidi ezimbini.
| Imiphumela | Inkcazo kunye nento omawuyenze |
|---|---|
| Iziphumo ebezingalindelekanga ezinzulu ekufuneka zixelwe kugqirha ngoko nangoko | |
| Iimpendulo ze-allergy | Funa uncedo lwezonyango ngokukhawuleza ukuba ufumana iimpawu ezifana nokurhawuzelela eluswini, ukurhawuzelela, ukudumba kobuso, imilebe, ulwimi, okanye umqala, okanye ubunzima bokuphefumla. |
| Amatye ezintso | Igazi kumchamo, intlungu okanye ubunzima bokuchama, intlungu emqolo ongezantsi okanye emqolo. Xelela ugqirha wakho ukuba unayo nayiphi na kwezi zinto. |
| Ukulahleka kombono okanye utshintsho | Ukuba ubona naluphi na utshintsho olukhawulezileyo embonweni wakho, yazisa ugqirha wakho ngoko nangoko. |
| Izinto eziqhele ukungabi yingozi, kodwa kufuneka zixelwe kugqirha ukuba ziyaqhubeka | |
| Utshintsho kwindawo yokutofa | Intlungu, ukubomvu, ukurhawuzelela, okanye ukutshintsha kombala wolusu kunokwenzeka kwindawo efakwe kuyo inaliti. |
| I-Lipodystrophy | Ukujiya, ukuqina, okanye ukuqhekeka kwezicubu ezingaphantsi kolusu kwindawo yokuhlatywa inaliti. Ukuba oku kuyaqhubeka, yazisa ugqirha wakho. |
Ndingaligcina njani iyeza?
Kubaluleke kakhulu ukugcina eli yeza ngokuchanekileyo.
- Gcina kude nabantwana kunye nezilwanyana zasekhaya.
- Gcina efrijini. Kodwa ungayifaki efrijini. Musa ukuyivumela iyeza liqine.
- Zikhusele ekukhanyeni. Ngoko ke, zigcine kwiphakheji yazo yokuqala de zisetyenziswe.
- Emva kokukhupha efrijini, nika isitofu zingadlulanga iiyure ezi-3 .
- Lahla amayeza aphelelwe lixesha. Cela ugqirha wakho akunike icebiso malunga nendlela yokulahla ngokukhuselekileyo amayeza aphelelwe lixesha okanye angasafunekiyo.
Umyalezo Wokuya Ekhaya
- I-Asfotase Alfa sisitofu sokufaka endaweni yee-enzyme esinyanga imeko yemfuza i-Hypophosphatasia (HPP).
- Xelela ugqirha wakho ngazo zonke iingxaki zakho zokunganyamezelani kunye neemeko zempilo ngaphambi kokuba uqale unyango.
- Funda indlela yokufaka isitofu ngokuchanekileyo kunye nokulahla iinaliti ezisetyenzisiweyo ngokukhuselekileyo.
- Funa uncedo lwezonyango ngokukhawuleza ukuba ufumana naziphi na iziphumo ebezingalindelekanga ezinje ngokudumba kobuso, ubunzima bokuphefumla, okanye utshintsho embonweni.
- Musa ukutsiba iimvavanyo kunye nemihla yeklinikhi echazwe ngugqirha.
- Gcina amayeza efrijini rhoqo, ukhuselekile ekukhanyeni, nakwiphakheji yokuqala.
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