Xa ugqirha wakho ekuxelela wena okanye umntwana wakho ukuba unesifo esibizwa ngokuba yiHypophosphatasia (HPP), ungaxelelwa ukuba usebenzise isitofu esibizwa ngokuba yiAsfotase alfa (Strensiq) njengonyango. Kuqhelekile ukuba uzive usoyika kwaye uxinezelekile xa usiva ngesitofu nendlela yokusithatha yonke imihla. Kodwa ungakhathazeki. Kweli nqaku, siza kuthetha ngale mithi, indlela yokuyisebenzisa, kunye nento ekufuneka uyilumkele.
Yintoni kanye kanye i-Asfotase alfa (Strensiq)?
Ngamafutshane, oku akufani namayeza esiwasebenzisa rhoqo. Kwimeko ebizwa ngokuba yiHypophosphatasia (HPP), kukho ukuncipha okanye ukulahleka kwe-enzyme ebalulekileyo ekuphuhlisweni okunempilo kwamathambo namazinyo emzimbeni wethu. Ngoko ke, i-Asfotase alfa lunyango olunika umzimba loo enzyme inciphileyo evela ngaphandle. Olu lunyango olulawula iimpawu kwaye lukunceda uphile ubomi obusempilweni, endaweni yokunyanga isifo ngokupheleleyo. Ngamanye amazwi, olu lunyango olulawula isifo, hayi unyango.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba usebenzise eli yeza
Ngaphambi kokuba uqale olu nyango, ngokuqinisekileyo kufuneka uxoxe ngale micimbi nogqirha wakho.
- Ukuba unamatshe ezintso okanye ezinye izifo ezinxulumene nezintso.
- Ukuba une-allergies kwi-Asfotase alfa okanye naliphi na elinye iyeza, ukutya, okanye idayi.
- Ukuba ukhulelwe okanye ulindele umntwana .
- Ukuba ungumama oncancisayo .
Olu lwazi lubaluleke kakhulu kugqirha ukuze akunike unyango olufanelekileyo nolukhuselekileyo.
Ungayisebenzisa njani i-vaccine ngokuchanekileyo?
Olu gonyo lunikwa njengenaliti engaphantsi kwesikhumba. Musa ukoyika oku. Ugqirha okanye umongikazi oqeqeshiweyo uza kuchaza ngokucacileyo indlela echanekileyo yokukunika oku. Ngoko ke uya kufumana uqeqesho olufunekayo de ukwazi ukukwenza ngokwakho.
- Thatha idosi echanekileyo, ngexesha elifanelekileyo: Thatha idosi echanekileyo, ngexesha elifanelekileyo, njengoko ugqirha wakho ekuyalele. Ungaze wandise idosi okanye uyisebenzise rhoqo kunokuba kumiselwe.
- Iinaliti neesirinji ezisetyenzisiweyo: Ezi zibaluleke kakhulu. Ungaze ulahle iinaliti neesirinji ezisetyenzisiweyo enkunkuma. Kukho isitya esikhethekileyo sazo, esibizwa ngokuba 'sisitya esibukhali.' Ukuba awunaso, cela ugqirha okanye umongikazi akunike sona.
- Ukusetyenziswa kwabantwana:Eli yeza lisetyenziselwa abantwana abancinci neentsana ngokwengcebiso kagqirha. Nangona kunjalo, kukho amanyathelo akhethekileyo okuzikhusela. Thetha nogqirha wakho wezingane ngalo mba.
- Kuthekani ukuba usela amayeza amaninzi ngaphezu kokuba ucinga ukuba ufanele ukuwasela ngengozi, fowunela iZiko loLwazi lweeTyhefu zeSizwe kwiSibhedlele sikaZwelonke saseColombo ngoko nangoko. Okanye yiya kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele esikufutshane.
- Kuthekani ukuba uphoswe yidosi? Ukuba uphoswe yidosi, yithathe ngokukhawuleza xa ukhumbula. Nangona kunjalo, ukuba sele kusondele ixesha lomthamo wakho olandelayo, yeka umthamo ophoswe yidosi uze uthathe umthamo wakho olandelayo ngexesha elicwangcisiweyo. Ungaze uthathe iidosi ezimbini ngexesha elinye.
Eli yeza limiselwe wena wedwa. Ungaze ulinike omnye umntu.
Zithini iziphumo ebezingalindelekanga ezinokubakho xa usebenzisa amayeza?
Njengayo nayiphi na iyeza, i-Asfotase alfa inokubangela ezinye iziphumo ebezingalindelekanga. Ezinye zezi ziyingozi, ngelixa ezinye zixhaphakile. Kubalulekile ukuzazi ezi.
| Imiphumela | Inkcazo |
|---|---|
| Iziphumo ebezingalindelekanga ezinzulu ekufuneka zixelwe kugqirha wakho ngoko nangoko | |
| Iimpendulo ze-allergy | Iimpawu ezinje ngokurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe, okanye ulwimi. |
| Igazi kumchamo | Intlungu yesisu esisezantsi okanye emqolo, intlungu xa uchama, kunye negazi kumchamo. |
| Utshintsho lombono | Umbono ofipheleyo okanye naluphi na olunye utshintsho. |
| Umkhuhlane okanye ukubanda | Umkhuhlane okanye ukubanda ngaphandle kwesizathu. |
| Ukuhlanza | Ukuhlanza okungapheliyo. |
| Iziphumo ebezingalindelekanga ezingaqhelekanga (kodwa kufuneka zixelwe kugqirha ukuba ziyaqhubeka) | |
| Intloko ebuhlungu, isicaphucaphu, ukungazinzi | Ezi zihlala zifika zidlule. |
| Intlungu/ububomvu kwindawo yokutofa | Intlungu, ukukrweleka, ukuba bomvu, okanye ukudumba kwindawo efakwe kuyo inaliti. |
| Ukujiya okanye ukuqhekeka kwesikhumba | Ukujova rhoqo kwindawo enye yokujova kunokubangela ukuba ulusu lube lukhuni okanye lube nemingxunya. Ngoko ke, jikisa indawo yokujova. |
Indlela yokugcina iyeza ngokuchanekileyo?
Kubaluleke kakhulu ukugcina eli yeza ngokuchanekileyo.
- Gcina efrijini: Gcina rhoqo iibhotile zamayeza ezingavulwanga kubushushu obuphakathi kwe-2 kunye ne-8 degrees Celsius, oko kukuthi, kwicandelo eliqhelekileyo lefriji.
- Musa ukuyiqandisa: Musa ukuyigcina efrijini. Musa ukuyivumela iyeza ukuba liqandise.
- Musa ukushukumisa: Musa ukushukumisa ibhotile ngaphambi kokuba uyisebenzise.
- Khusela ekukhanyeni: Gcina ibhotile yeyeza ebhokisini layo ide ifike ixesha lokuyisebenzisa kwaye uyikhusele ekukhanyeni.
- Emva kokusetyenziswa: Kufuneka isetyenziswe ingadlulanga iyure emva kokuyikhupha efrijini.
- Ukuba kukho amayeza aseleyo: Ukuba kukho amayeza aseleyo kwibhotile evuliweyo, yilahle. Kwakhona, lahla iibhotile zamayeza eziphelelwe lixesha ngaphandle kokuzisebenzisa.
Umyalezo Wokuya Ekhaya
- I-Asfotase alfa lunyango olukhethekileyo lwe-enzyme ye-Hypophosphatasia (HPP). Ilawula esi sifo, kodwa ayisiphili ngokupheleleyo.
- Landela imiyalelo kagqirha wakho ngokuchanekileyo. Thatha idosi echanekileyo ngexesha elifanelekileyo.
- Musa ukulibazisa ixesha lokubonana nogqirha nezinto ezifana novavanyo lwegazi, uvavanyo lwezintso, kunye novavanyo lwamehlo.
- Lumka ngemiphumo emibi kakhulu (ukunganyamezelani komzimba, utshintsho embonweni, igazi kumchamo). Ukuba ubona naziphi na kwezi mpawu, xelela ugqirha wakho ngoko nangoko.
- Gcina amayeza efrijini ngokufanelekileyo, ngalo lonke ixesha. Ungaze wabelane ngawo nomnye umntu.
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