Ngaba ukhe ube neminwe neenzwane eziluhlaza okwesibhakabhaka, ezibomvu nezibuhlungu ngexesha lokubanda, ingakumbi xa usiya kwindawo efana neNuwara Eliya? Ngaba ngamanye amaxesha uba nezilonda ezincinci? Nangona abantu abaninzi becinga ukuba oku ngumkhuhlane nje oqhelekileyo, ngamanye amaxesha oku kunokuba yimeko efuna ingqalelo engakumbi. Namhlanje sithetha nge-'Chilblain Lupus', uhlobo olungaqhelekanga kodwa olubaluleke kakhulu lwe-lupus.
Yintoni iChilblain Lupus?
Ngamafutshane, iChilblain Lupus luhlobo olungaqhelekanga lwe-lupus oluchaphazela ulusu lwethu. Ngokwezonyango, siyibiza ngokuba yi-"cutaneous lupus erythematosus okanye i-CLE." Umntu onesi sifo uba nezilonda ezibuhlungu ezibomvu okanye ezimfusa, iiplaque, eluswini xa evezwa ngumkhuhlane.
Igama elithi "chilblain" lithetha "isifo somkhuhlane." Yile nto kanye eyenzekayo kule meko. Imozulu ebandayo inokubangela ezi mpawu, okanye yenze imeko ekhoyo ibe mandundu.
Amaxesha amaninzi, abanye abantu banesifo iChilblain Lupus emva kokuba befunyaniswe ukuba bane-lupus, ``systemic lupus erythematosus''. Nangona kunjalo, abanye banokuba nale meko ngaphandle kokuxilongwa kwangaphambili. Nangona kunjalo, iintlungu kunye nokungonwabi okubangelwa yile meko zinzima kakhulu. Ukuba ubona amabala arhawuzelelayo, aphakanyisiweyo kwiminwe yakho, ingakumbi kwiminwe yakho nakwiinzwane, kungcono ukubona ugqirha ngoko nangoko uze ufumane unyango.
Zithini iimpawu zale meko?
I-Chilblain Lupus ibonakaliswa kakhulu ngamabala abomvu okanye amfusa okanye izilonda eluswini. Ezi zibonakala kakhulu kwi:
- Kwiminwe yesandla
- Ezithendeni
- Ezinyaweni zeenyawo
- Ezinzwaneni
Kodwa kunqabile kakhulu ukuba ezi zilonda zivele nasezintendeni zezandla, emadolweni, empumlweni, okanye ezindlebeni. Zonke ezi zilonda zinzima kakhulu xa kubanda okanye kumanzi.
Ukongeza kwezi mpawu ziphambili, kukho nezinye iimpawu ezininzi ezinokubonwa. Masibone ukuba zeziphi.
| Uphawu | Ingcaciso elula |
|---|---|
| Amadyungudyungu okanye izilonda | Amanxeba angapholiyo kumphezulu wesikhumba ngenxa yokungahambi kakuhle kwegazi. |
| Ukutshintsha kombala wolusu (Ukususwa kombala) | Ezinye iindawo zesikhumba ziyaphulukana nombala wazo kwaye zibe mhlophe. |
| Ukuqhekeka kwesithende | Ukuqhekeka okunzulu kulusu lwezithende. |
| Ukutyeba kolusu (i-Hyperkeratosis) | Ukujiya kolusu apho kuye kwenzeka khona izilonda zolusu. |
| Isiganeko sikaRaynaud | Xa ibekwe emakhazeni, ukuhamba kwegazi kwiminwe nakwiinzwane kuyathintelwa okwethutyana. Oku kunokubangela ukuba iminwe ibe mhlophe, luhlaza okwesibhakabhaka, okanye ibe bomvu. |
Kutheni iChilblain Lupus ikhula? Zithini izizathu?
Zimbini izizathu eziphambili zeChilblain Lupus: Esinye sibangelwa yimfuza , esinye asifumaneki rhoqo .
Izizathu ezibangelwa lilifa
Le meko inokubangelwa lutshintsho oluthile kwiijini zethu. Ngokukodwa, utshintsho kwiijini `(TREX1)` kunye `(SAMHD1)` lufunyenwe luchaphazela oku. Ngamazwi alula, ijini `TREX1` inceda ekulungiseni i-DNA yethu, kwaye ijini `SAMHD1` ibandakanyeka ekusebenzeni kwenkqubo yethu yokuzikhusela komzimba. Ukuba kukho isiphene kwezi jini, inokuba ngunobangela weChilblain Lupus kusapho nakubantwana abancinci.
Ukwenzeka ngaphandle kwesizathu
Kwabanye abantu, oku akuyonto yemfuza. Kunokuvela ngequbuliso xa umntu emdala. Isizathu esichanekileyo asikafumaneki.
Ngubani osengozini enkulu yokuphuhlisa oku?
Nangona le meko inokuchaphazela nabani na, ixhaphake kakhulu kubantu abadala . Abantu abahlala kwiindawo ezinemozulu ebanda rhoqo nefumileyo nabo basengozini enkulu.
Ukongeza, ezinye iimeko zonyango zinokunyusa umngcipheko wokufumana iChilblain Lupus.
- I-Anorexia nervosa: Le yingxaki yokutya enzulu nesongela ubomi.
- I-lymphoma yamathumbu: Olu luhlobo olungaqhelekanga lomhlaza oluvela kwinkqubo ye-lymphatic yamathumbu ethu amancinci.
- Ukukhulelwa: Abanye abafazi basengozini yokuhlaselwa yile meko kwanaxa bekhulelwe.
Zeziphi iingxaki ezinokwenzeka ukuba azinyangwa?
Ukuba le meko ayinyangwa kakuhle, amanxeba esikhumba anokosulelwa ziintsholongwane . Aba bantu basengozini enkulu yokufumana usulelo lwesikhumba olufana ne-"cellulitis".
Kwakhona, umntu oneChilblain Lupus ekugqibeleni unokufumana i-systemic lupus erythematosus, uhlobo olubi kakhulu lwe-lupus oluchaphazela iinkqubo ezininzi zomzimba.
Yiyo loo nto sisithi ukuba ubona into engaqhelekanga eluswini lwakho, ingakumbi inxeba elingapholiyo, akufanele ulityeshele uze ubonane nogqirha.
Ugqirha uyifumanisa njani le nto kanye kanye?
Ukuba unale mpawu, ungathunyelwa kwi -dermatologist okanye kwi-rheumatologist .
Uvavanyo oluphambili lokufumanisa esi sifo yi -skin biopsy . Oku kuquka ukuthatha iqhekeza elincinci kakhulu lesikhumba kwisilonda eluswini lwakho uze ulihlolisise phantsi kwe-microscope kwilebhu. Olu vavanyo lunokuqinisekisa ukuba une-Chilblain Lupus okanye esinye isifo sesikhumba.
Zithini iindlela zonyango zoku?
Ukuba iChilblain Lupus yakho ayinzima kakhulu, unokufuna nje ukuzikhusela kumkhuhlane. Kwakhona, ukuba uyatshaya, ugqirha wakho ngokuqinisekileyo uya kukucebisa ukuba uyeke. Ukutshaya kuyenza imithambo yegazi yethu ibe buthathaka, nto leyo enokwenza ezi mpawu zibe mandundu.
Ukuba iimpawu ziphakathi okanye zinzima, ugqirha angakunika amayeza ahlukeneyo.
| Uhlobo lweziyobisi | Umsebenzi ewenzayo |
|---|---|
| Ii-antibiotics | Ukunyanga izifo ezibangelwa ziintsholongwane zamanxeba eluswini. Umzekelo: `dicloxacillin`, `erythromycin`. |
| Izinto zokulwa nemalariya | Ukunciphisa ukudumba, ukudinwa, kunye nentlungu yamalungu emzimbeni. Umzekelo: `hydroxychloroquine`. |
| Amayeza okulawula amajoni omzimba (iCalcineurin inhibitors) | Ukunciphisa ukusebenza kwenkqubo yomzimba yokuzikhusela nokulawula ukudumba. Umzekelo: `tacrolimus`, `mycophenolate mofetil`. |
| Izithinteli zemijelo yecalcium | Ukuvula imithambo yegazi nokwenza kube lula ukuhamba kwegazi. Umzekelo: `nifedipine`. |
| Izithambiso zeSteroid | Ukunciphisa ukudumba kunye nokudumba kolusu. Umzekelo: `i-fluocinolone acetonide`. |
| Ii-steroids zenkqubo | Ukunciphisa ukudumba kunye nokuvuvukala emzimbeni wonke. Umzekelo: `prednisone`. |
Kunqabile kakhulu, ugqirha wakho unokucebisa utyando. Oku kuquka ukususa isilonda ngotyando nokusifaka ulusu oluvela kwenye indawo ephilileyo yomzimba.
Ndifanele ndimbone nini ugqirha?
Ukuba ubona izilonda ezibomvu okanye ezimfusa, ezirhawuzelelayo, okanye ezibuhlungu kwiminwe yakho okanye ezinzwaneni, ezithendeni, okanye ezinyaweni zeenyawo zakho, bona ugqirha ngokukhawuleza . Uya kukwazi ukufumanisa imeko yakho aze aqalise unyango olufunekayo.
Xa ubona ugqirha, ungabuza le mibuzo:
- "Gqirha, ingaba yintoni enokubangela ukuba ndiphuhlise oku?"
- "Ingaba kunokwenzeka ukuba ndibe ne-systemic lupus?"
- "Ndingenza ntoni ukuthintela ukuba ezi nzakala zingenzeki?"
- "Yintoni enokwenziwa ngokulimala okukhoyo ngoku?"
Ngaba iChilblain Lupus ingathintelwa?
Eyona nto ingcono onokuyenza ukunciphisa umngcipheko wakho wokuba nale meko kukuzikhusela kumkhuhlane . Ukuze wenze oku, ungalandela ezi zinto.
- Zilolonge rhoqo:Ukuzilolonga kuphucula ukujikeleza kwegazi kwaye kulawula ubushushu bomzimba.
- Gcina ikhaya lakho nendawo osebenza kuyo ifudumele: Lungisa indawo ohlala kuyo ukuze uzikhusele kwingqele.
- Nciphisa izandla neenyawo zakho emanzini afudumeleyo: Ukwenza oku izihlandlo ezininzi ngemini kuya kuphucula ukujikeleza kwegazi.
- Zifudumeze kancinci kancinci izitho ezibandayo: Musa ukwenza izinto ezifana nokuzichukumisa ngequbuliso emlilweni. Zifudumeze kancinci kancinci ukuze ubuyisele ukuhamba kwegazi.
- Nxiba iimpahla ezifudumeleyo: Nxiba iikawusi ezinkulu, iiglavu, kunye nezihlangu ezifudumeleyo xa ukwindawo ebandayo.
Njengezinye izifo zesikhumba, iChilblain Lupus inokubangela iimpawu ezinzima kwaye ngamanye amaxesha kuthatha ixesha ukufumana unyango olufanelekileyo. Kodwa ungalahli ithemba. Ukusebenza nogqirha omthembayo kunokukunceda ufumane isisombululo esikusebenzelayo. Okwangoku, ukujoyina iqela lenkxaso apho unokuthetha nabanye abanesimo esifanayo kunokuba luncedo olukhulu.
Umyalezo Wokuya Ekhaya
- I-Chilblain Lupus sisifo esingaqhelekanga solusu esibangela izilonda ezibuhlungu ezimfusa/ezibomvu eluswini ezibangelwa kukubanda.
- Ukuba ubona ezi mpawu kwimilenze yakho, musa ukuzityeshela njengesiqhelo kwaye funa ingcebiso kagqirha ngokukhawuleza.
- Eyona nto ibalulekileyo yokuthintela nokulawula le meko kukuzikhusela kwingqele.
- Kubaluleke kakhulu ukuba ungatshayi ngokupheleleyo, kuba ukutshaya kuyayinciphisa imithambo yegazi kwaye kwenza iimpawu zibe zimbi ngakumbi.
- Nangona le yimeko yobomi bonke, ngonyango olufanelekileyo nokhathalelo, iimpawu zinokulawulwa kakuhle kwaye ubomi obuqhelekileyo bunokuphilwa.
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