Khawuthelekelele ukuba ngequbuliso ufumana kunzima ukuphakama esitulweni, okanye xa uphakamisa isandla sakho ukuze ukama iinwele zakho, kuvakala ngathi isandla sakho asisasebenzi. Kwangaxeshanye, kuvela amabala amancinci amfusa ajikeleze amehlo akho, entanyeni yakho, nasesifubeni sakho. Ngaba oku kuye kwenzeka kuwe? Usenokucinga ukuba oku kukudinwa nje okuqhelekileyo. Kodwa ngamanye amaxesha kunokuba luphawu lwesifo esibi kakhulu nesingaqhelekanga esibizwa ngokuba yiDermatomyositis . Ungakhathazeki, siza kuthetha ngayo yonke into ngokulula.
Yintoni iDermatyositis?
Ngamafutshane, i-Dermatyositis yimeko engaqhelekanga ebangela ukuba izihlunu zomzimba wethu zibe buthathaka kwaye ibangele ukurhawuzelela kolusu. Yenye yeqela lezifo (i-myopathy) ezichaphazela izihlunu. Esi sifo ngamanye amaxesha sinokubangela iimeko ezinzima ezifana nobunzima bokuphefumla nokuginya.
Ezi mpawu zinokukhula kancinci kancinci ngokuhamba kweenyanga kwabanye abantu. Kodwa kwabanye, zinokuvela ngequbuliso. Ngoko ke ukuba unenye yezi mpawu, kubalulekile ukubona ugqirha wakho ngokukhawuleza. Okukhona siqala unyango ngokukhawuleza, kokukhona amathuba okuphepha iingxaki ezinzima esanda.
Kunqabile kakhulu, ingakumbi kunyaka wokuqala emva kokuba iimpawu ziqalile, esi sifo sinokubulala. Kwakhona kwandisa umngcipheko wokufumana iintlobo ezithile zomhlaza.
Yintoni umahluko phakathi kweDermatomyositis kunye neLupus?
Usenokuba ukhe weva ngesifo esibizwa ngokuba yi-lupus. I-Dermatyositis ifana ne-lupus kunye nezinye izifo ezichaphazela amasosha omzimba. Nangona kunjalo, kukho umahluko ocacileyo phakathi kwezi zimbini. Ekubeni unobangela ochanekileyo we-dermatomyositis ungekaziwa okwangoku, awuchazwa njengesifo esichaphazela amasosha omzimba.
Makhe sijonge le theyibhile ukuze sicacise ngakumbi umahluko.
| Uphawu | I-Lupus | I-Dermatyositis |
|---|---|---|
| Iimpawu eziphambili | Intlungu yamalungu, ukuva ulusu kunye nokurhawuzelelwa, iziphumo kwizitho zangaphakathi (ingqondo, imiphunga, izintso). Iimpawu ziyavela ziphele. | Ubuthathaka bemisipha kunye nokurhawuzelelwa kwesikhumba. Ukonakala kwemisipha. |
| Uxilongo | Ngokusekelwe kuvavanyo lwegazi oluthile kunye neempawu. | Uvavanyo lwegazi, ulusu kunye ne-biopsy yemisipha, kunye neeskeni. |
Kubalulekile ukuxilonga nokunyanga zombini ezi meko ngokukhawuleza. Ukuba ufumanisa naziphi na iimpawu ezintsha, bonana nogqirha ngoko nangoko.
Ngubani onokuthi afumane esi sifo?
Nabani na unokuba ne-dermatomyositis, kodwa amanye amaqela asengozini enkulu.
- Kubantwana abaphakathi kweminyaka emi-5 neli-15 ubudala.
- Kwabantu abadala abaneminyaka engama-40 ukuya kwengama-60 ubudala.
- Abafazi banamathuba amaninzi okubona esi sifo kunamadoda.
Kodwa khumbula, esi sisifo esingaqhelekanga . Ngokwesiqhelo, ngumntu omnye kuphela kwikhulu lamawaka abafumana esi sifo minyaka le.
Esi sifo siwuchaphazela njani umzimba kunye nomngcipheko womhlaza?
I-Dermatomyositis yimeko enokukuchaphazela ubomi bakho bonke. Ukuba umonakalo kwimisipha yakho unzima, usenokungakwazi ukusebenzisa inxalenye yomzimba wakho ngokufanelekileyo, nto leyo enokukhokelela kuhlobo oluthile lokukhubazeka. Oku kudla ngokuqhubeka kangangeminyaka, kodwa kwabanye abantu, obu buthathaka bemisipha buyakhawuleza.
Ukongeza , ingozi enkulu yingozi yomhlaza.
Izifundo zibonisa ukuba malunga ne-15% yabantu abane-dermatomyositis banomngcipheko wokufumana uhlobo oluthile lomhlaza kamva ebomini.
Iintlobo zomhlaza ezixhaphakileyo ezibonwa ngesi sifo zezi:
- Umhlaza wesibeleko
- Umhlaza wemiphunga
- I-Lymphoma
- Umhlaza webele
- Umhlaza wamathumbu amakhulu
Ngoko ke, ukuba ufunyaniswe unesi sifo, kubaluleke kakhulu ukuthetha ngokukhululekileyo nogqirha wakho malunga nomngcipheko wakho womhlaza kunye novavanyo olufanele lwenziwe ngenxa yaso.
Ziziphi iimpawu ze-dermatomyositis?
Iimpawu ezimbini eziphambili zesi sifo kubuthathaka bemisipha kunye nokudumba kwesikhumba.Kwabanye abantu, zombini ezi mpawu zibonakala ngaxeshanye. Kwabanye, olunye uphawu luvela kwiiveki, iinyanga, okanye kwaneminyaka emva kolunye.
Makhe sijonge ezi mpawu ngokweenkcukacha ezithe vetshe.
| Uhlobo oluneempawu | Inkcazo kunye nemizekelo |
|---|---|
| Ubuthathaka bemisipha | Olu buthathaka lunokwenza kube nzima ukwenza imisebenzi yemihla ngemihla. Umzekelo:
|
| Ukuqhambuka kwesikhumba | Ezi zilonda zibonakala ngakumbi kwiindawo ezichatshazelwe lilanga. Zinombala omfusa-opinki kwaye zinokudumba kancinci. Iindawo ezixhaphakileyo zezi:
|
| Ezinye iimpawu |
|
Abanye abantwana banesi sifo kwaye iimpawu ziyanyamalala ngokupheleleyo njengoko bekhula. Nangona kunjalo, kwi-80% yezigulane, yimeko ehlala ixesha elide (engapheliyo). Oku kuthetha ukuba iimpawu ziphinda zibuye ngamanye amaxesha.
Yintoni ebangela oku?
Enyanisweni, iingcali azikayazi eyona nto ibangela i-dermatomyositis, kodwa kukho izinto ezininzi ekucingelwa ukuba zinegalelo kuyo.
- Izinto ezibangela ufuzo: Ezinye izifundo zibonisa ukuba le isenokuba yimeko yemfuza edluliselwa kwizizukulwana ngezizukulwana.
- Iingxaki zokuzikhusela komzimba: Njengoko besitshilo ngaphambili, oku kufana nezifo zokuzikhusela komzimba. Oku kuthetha ukuba inkqubo yokuzikhusela yomzimba, ekhusela imizimba yethu, inokuhlasela ngempazamo iiseli zethu zemisipha kunye nolusu ezisempilweni.
- Usulelo lwentsholongwane: Ubungqina obuthile bubonisa ukuba usulelo lwentsholongwane, xa sele luphelile, lunokubangela uphuhliso lweDermatomyositis.
- Izinto ezichaphazela imeko-bume: Ezinye izifundo zifumanise ukuba ukuhlala kwiindawo ezinomgangatho ophantsi womoya nako kunokubangela ukuba esi sifo sikhule.
Indlela yokuxilonga esi sifo?
Emva kokuba ugqirha wakho ephulaphule iimpawu zakho, uya kuyalela iimvavanyo ezininzi ukuqinisekisa ukuba unesifo.
| Indlela yovavanyo | Ubona ntoni kuloo nto? |
|---|---|
| Uvavanyo lwegazi | Bakhangela amanqanaba aphezulu ee-enzymes eziqokelelana egazini xa izihlunu zonakele, kunye nee -autoantibodies ezibonisa umsebenzi wenkqubo yokuzikhusela komzimba. |
| I-Biopsy | Kuthathwa iqhekeza elincinci kakhulu lesicwili esikwinxeba lolusu nakwimisipha size sihlolwe ngemicroscope. Oku kunokuqinisekisa ukuba kukho ukudumba ngaphakathi kwimisipha. |
| Uvavanyo lokufota | Kunokwenziwa iskeni ye-MRI (Magnetic Resonance Imaging) okanye i-X-ray yesifuba ukujonga imeko yezihlunu, imithambo-luvo, imiphunga, kunye nezinye izitho zomzimba. |
| Uvavanyo lwe-EMG | I-Electromyography (EMG) luvavanyo olulinganisa umsebenzi wombane wezihlunu kunye nemithambo-luvo. Oku kunokunceda ekuqinisekiseni ukuba ubuthathaka bemisipha bubangelwa sisifo ngokwaso okanye sisizathu esinye. |
Ziziphi iindlela zonyango lwe-dermatomyositis?
Nangona i-dermatomyositis ingenakunyangwa, kukho unyango oluninzi olusebenzayo olunokunceda ukulawula iimpawu, ukunciphisa umonakalo wezihlunu, kunye nokukunceda uphile ubomi obuqhelekileyo. Ugqirha wakho uya kukhetha unyango olufanelekileyo ngokusekelwe kuhlobo kunye nobunzima beempawu zakho.
- IiCorticosteroids: La mayeza anciphisa ukudumba kwimisipha.
- Unyango lomzimba: Ukuba izihlunu zonakele, ukuzilolonga kunye nonyango lomzimba kubaluleke kakhulu ukuziqinisa kwakhona. Okukhona izihlunu ziqina, kokukhona zikwazi ukumelana nomonakalo obangelwa sisifo.
- Amayeza okunciphisa umzimba: La mayeza athintela inkqubo yomzimba yokuzikhusela ekuhlaseleni iiseli eziphilileyo.
- I-immunoglobulin efakwa kwimithambo yegazi (IVIg): Olu lunyango apho i-immunoglobulin, inxalenye yegazi lethu, ifakwa emzimbeni ngaphandle, njenge-saline. Oku kunceda ukulawula ukungasebenzi kakuhle kwenkqubo yomzimba yokuzikhusela.
- Unyango lokuthetha: Ukuba izihlunu zomqala zibuthathaka kwaye zenza kube nzima ukuziginya, unyango lokuthetha lunokunceda ekuqiniseni ezo zihlunu.
Ungazilawula njani iimpawu?
Ukuphila nesi sifo luhambo olude, ngoko ke ukulawula iimpawu kubaluleke kakhulu.
- Musa ukulibazisa: Yenza umthambo owunikwa ngugqirha okanye yingcali yezonyango njengoko bekuxelela. Oku kuya kukunceda ugcine izihlunu zakho zomelele.
- Sebenzisa amayeza ngokuchanekileyo: Thatha amayeza owanikwe ngugqirha wakho kanye ngexesha elimiselweyo.
- Zikhusele elangeni: Oku kubaluleke kakhulu. Imitha ye-ultraviolet (UV) elangeni inokubangela umonakalo kulusu. Ngoko ke, nciphisa ixesha lakho elangeni. Ukuba uyaphuma,Sebenzisa isithambisi selanga esilungileyo esine-SPF engaphezulu kwe-50. Phinda usifake rhoqo emva kweeyure ezimbini.
- Bona ugqirha wakho rhoqo: Ufanele ubonane nogqirha rhoqo ukuze ujonge iimpawu zakho kwaye ubone ukuba imeko yakho iyatshintsha na.
Izinto ezingakumbi ekufuneka uzazi ngesi sifo
Kuqhelekile ukuba noloyiko xa ufunyaniswa ukuba une-dermatomyositis. Kungothusa ukwazi ukuba sisifo esibulalayo ubomi bakho bonke. Kodwa khumbula, okukhona ufunyaniswa ngokukhawuleza kwaye uqala unyango, kokukhona amathuba akho okuphila ubomi obusempilweni aba maninzi.
Nangona kungekho nyango lwesi sifo, ama-80% abantu bahlala begula ixesha elide beneempawu. Nangona kunjalo, ngonyango, malunga nama-20% abantu banokufikelela kwixesha elide lokuphumla ngaphandle kweempawu.
Umngcipheko wokufa uphantsi njenge-5%. Nangona kunjalo, ezinye izinto zinokunyusa lo mngcipheko:
- Ukulibaziseka kokuqala unyango ngaphezu kweenyanga ezi-6.
- Ukuba uneminyaka engaphezu kwama-60 ubudala.
- Ukuba neempawu ezinzima.
- Isifo esichaphazela umqala, imiphunga, okanye intliziyo.
- Ukuba nomhlaza okanye ukuphuhlisa omtsha.
Ndifanele ndimbone nini ugqirha?
Ukuba ufumana ubuthathaka obutsha bemisipha, ingakumbi ukuba buhamba nokudumba kwesikhumba, bonana nogqirha wakho ngaphandle kokulibazisa. Njengoko besitshilo ngaphambili, okukhona ufumana unyango ngokukhawuleza, kokukhona ungaziphepha iingxaki ezinkulu ngokukhawuleza.
Ungalibali ukubuza le mibuzo xa ubona ugqirha wakho:
- Ngaba ndine-Dermatyositis okanye esinye isifo?
- Zeziphi iimvavanyo ekufuneka ndizenze?
- Zeziphi iindlela zonyango endizidingayo kwaye ndiza kuzidinga ixesha elingakanani?
- Ngaba kufuneka ndihlolwe umhlaza?
Yenza isicwangciso nogqirha wakho malunga nohambo lwakho lonyango. Oku kuya kukunika ukuqonda okungcono ngento omawuyilindele ngokulandelayo kunye nento omawuyenze ukuba iimpawu zakho ziya zisiba mandundu.
Umyalezo Wokuya Ekhaya
- I-Dermatyositis yimeko engaqhelekanga ebangela ubuthathaka bemisipha kunye nezilonda ezithile zesikhumba.
- Kubaluleke kakhulu ukubona ugqirha ngokukhawuleza ukuba ubona iimpawu. Unyango olukhawulezileyo lunokuthintela iingxaki ezinkulu.
- Ekubeni esi sifo sihlala sihlala ixesha elide, kufuneka unyango oluhlala ixesha elide.
- Kubalulekile ukusela amayeza njengoko uyalelwe ngugqirha wakho, wenze umthambo wonyango, kwaye ngakumbi uzikhusele elangeni.
- Esi sifo sinokunyusa umngcipheko wakho wokuba nomhlaza, ngoko ke thetha nogqirha wakho ngaso kunye nazo naziphi na iimvavanyo ezifunekayo.
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