Kuqhelekile ukuziva usoyika kwaye wothukile xa ufumanisa ukuba umntwana wakho okanye ilungu losapho linesifo esingaqhelekanga nesinzima njenge-primary hemophagocytic lymphohistiocytosis (HLH). Ngexesha elinje, kubalulekile ukuba nolwazi olupheleleyo malunga nonyango olucetyiswa ngugqirha wakho. Namhlanje, sithetha ngesitofu esikhethekileyo esibizwa ngokuba yi-Emapalumab, esisetyenziselwa ukulawula iimpawu zesi sifo.
Ngamafutshane, yintoni i-Emapalumab?
I-Emapalumab luhlobo olukhethekileyo lweyeza elibizwa ngokuba yi-monoclonal antibody . Cinga ngayo njengeproteni eyenziwe ngokukodwa kwilebhu ukulawula umsebenzi wenxalenye ethile yenkqubo yomzimba wethu yokuzikhusela.
Ngoku masibone ukuba oku kunceda njani kwi-HLH. Kwi-HLH, inkqubo yomzimba wethu yokuzikhusela iba namandla kakhulu ize iqalise ukuhlasela iiseli ezisempilweni. I-Emapalumab isebenza ngokuthintela isignali yekhemikhali ebizwa ngokuba yi-interferon-gamma ebangela lo msebenzi ugqithisileyo, ithomalalise inkqubo yomzimba yokuzikhusela.
Eyona nto ibalulekileyo: Olu asilonyango lwe-HLH, kodwa lunceda ukulawula iimpawu ezinzima zesifo kwaye luxhase umzimba ekuchacheni.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba uqale eli yeza
Ngaphambi kokuba uqale olu nyango, kubalulekile ukunika ugqirha imbali epheleleyo yempilo yakho okanye yesigulana. Qiniseka ukuba ukhankanya la manqaku ngokukodwa.
- Usulelo lwangoku: Ukuba okwangoku unesosulelo esifana nomkhuhlane, ukukhwehlela, okanye umkhuhlane.
- Malunga nokugonywa: Ukuba usandul' ukufumana naluphi na ugonyo, okanye uceba ukulufumana kwixesha elizayo.
- Isifo Sephepha (TB): Ufanele uxelele ugqirha wakho ukuba ukhe waba nesifo sephepha ngaphambili, wakha wavavanywa ulusu ukuba unesifo sephepha, okanye kutshanje ukhe wadibana nomntu onesifo sephepha.
- Ii-Allergy: Ukuba une-allergy kule mithi ye-Emapalumab okanye naliphi na elinye iyeza, ukutya, okanye idayi.
- Ukukhulelwa nokuncancisa: Ukuba ukhulelwe, uzama ukukhulelwa, okanye uncancisa.
Ngokusekelwe kolu lwazi, ugqirha wakho uya kugqiba ukuba kufanelekile na ukukunika eli yeza kunye nokuba zeziphi izilumkiso ezikhethekileyo ekufuneka uzilandele.
Linikwa njani eli yeza?
I-Emapalumab yinaliti efakwa emthanjeni (i-infusion). Awunakuyisebenzisa ekhaya. Inikwa yingcali yezempilo eqeqeshiweyo esibhedlele okanye eklinikhi. Baza kukujonga ngokusondeleyo ngexesha lonyango lwakho nasemva kwalo.
Eli yeza linokunikwa abantwana bayo nayiphi na iminyaka, ukususela kwiintsana ezisandul’ ukuzalwa ukuya kubantwana, xa kuyimfuneko. Nangona kunjalo, kuthathwa amanyathelo akhethekileyo okhuseleko xa ulinika abantwana. Ungathetha nogqirha wezingane ukuze ufumane iinkcukacha ezithe vetshe.
Kuthekani ukuba ndiphoswa lidosi leyeza?
Olu nyango lunikezelwa ngokweshedyuli ecwangcisiweyo. Kungoko ke, kubaluleke kakhulu ukuba ungaphoswa yintlanganiso kagqirha wakho. Ukuba ngesizathu esithile awukwazi ukuya ngosuku olucwangcisiweyo, fowunela ugqirha wakho okanye isibhedlele ngoko nangoko umxelele.
Kuthekani ukuba ndithatha amayeza amaninzi kakhulu?
Oku kunikwa esibhedlele ngoko ke amathuba okuba oku kwenzeke aphantsi kakhulu. Nangona kunjalo, ukuba ucinga ukuba usenokuba uthathe amayeza amaninzi kakhulu, fowunela iZiko loLwazi lweeTyhefu zeSizwe kwiSibhedlele seSizwe saseColombo ngoko nangoko, okanye uye kwiYunithi yoNyango oluNgxamisekileyo (ETU) ekufutshane.
Izinto ekufuneka ziqwalaselwe ngexesha lonyango
- Uvavanyo lweSifo sePhepha (TB): Ngaphambi kokuba uqale eli yeza, uza kuvavanywa isifo sePhepha (TB). Ukuba ugqirha wakho ukunike amayeza esi sifo sePhepha, kufuneka uqale ukusela amayeza ngaphambi kokuba uqale i-Emapalumab uze uyigqibe yonke ixesha elimiselweyo.
- Umngcipheko wokosuleleka: Ekubeni eli yeza licinezela amajoni omzimba, umngcipheko wokosuleleka unokwanda kancinci. Ke ngoko, ukuba ubonakalisa iimpawu ezifana nomkhuhlane, ukugodola, umphimbo obuhlungu, okanye ukukhwehlela , musa ukuzenza unyango kwaye wazise ugqirha wakho ngoko nangoko. Zama ukuhlala kude nabantu abagulayo.
- Amanye amayeza: Xelela ugqirha wakho ngamanye amayeza, iivithamini, okanye amayeza esintu owasebenzisayo. Ngokukodwa, kufuneka uphephe ukufumana imijovo yentsholongwane ephilayo ngelixa usebenzisa olu nyango.
Zeziphi iziphumo ebezingalindelekanga endinokuzifumana?
Njengazo zonke iziyobisi, i-Emapalumab inokubangela iziphumo ebezingalindelekanga, nangona ingenguye wonke umntu ozifumanayo.
| Imiphumela | |
|---|---|
| Iziphumo ebezingalindelekanga ezinzulu ekufuneka uzixele kugqirha wakho ngoko nangoko | |
| Iimpendulo ze-allergy | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe okanye ulwimi. |
| Ubunzima bokuphefumla | Ukuphefumla nzima, isantya sokuphefumla esinyukayo. |
| Ukubetha kwentliziyo | Ukuziva ngathi intliziyo yakho ibetha ngokukhawuleza. |
| Igazi elonyukayo | Uxinzelelo lwegazi oluphezulu. |
| Iimpawu zosulelo | Umkhuhlane, ukubanda, ukukhohlela, umphimbo obuhlungu, iintlungu xa uchama. |
| Iziphumo ebezingalindelekanga ezingaqhelekanga, kodwa kufuneka zixelwe kugqirha ukuba ziyaqhubeka | |
| Iingxaki zenkqubo yokugaya ukutya | Intlungu yesisu, ukuqhina, urhudo, ukuhlanza. |
| Ezinye iimpawu | Ukukhwehlela, ukungazinzi (ingakumbi ebantwaneni), iintlungu, ukuba bomvu, okanye ukudumba kwindawo yokutofa. |
Olu luhlu alubandakanyi zonke iziphumo ebezingalindelekanga. Ukuba ufumana nantoni na eyahlukileyo, nceda ucele ingcebiso kugqirha.
Umyalezo Wokuya Ekhaya
- I-Emapalumab liyeza elikhethekileyo elifakwa emthanjeni ukulawula iimpawu ze-HLH enzima.
- Nangona oku kungayinyangi ngokupheleleyo le sifo, kubaluleke kakhulu ekulawuleni iimpawu.
- Ngaphambi kokuba uqale unyango, xelela ugqirha wakho lonke ulwazi lwakho lwempilo, ingakumbi malunga nosulelo, ii-allergies, kunye nesifo sephepha.
- Ngexesha lonyango, lumka kakhulu malunga neempawu zosulelo ezifana nomkhuhlane, ukukhwehlela, kunye neempendulo ze-allergy. Ukuba uneengxaki, yazisa ugqirha wakho ngoko nangoko.
- Ekubeni eli yeza linikwa esibhedlele, qiniseka ukuba uya kunyangwa ngemihla emiselweyo.
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