Ingaba izandla neenyawo zakho nazo ziyatsha kwaye zibomvu? Oku kusenokuba yi (Erythromelalgia)!

Ngaba wakha wabona, okanye waziva, ukutshisa okungapheliyo, okunganyamezelekiyo engalweni okanye emlenzeni wakho? Kunye noko, le ndawo iba bomvu kwaye ngamanye amaxesha iba buhlungu kakhulu. Oku kusenokungabi yinto elula. Namhlanje, siza kuthetha ngemeko engaqhelekanga enokwenzeka, kodwa abantu abaninzi abazi ngayo.

Yintoni le (i-Erythromelalgia)?

Ngamafutshane, (i-Erythromelalgia) yimeko engaqhelekanga kakhulu. Okwenzekayo koku kukuba kukho ukunyuka okukhawulezileyo kokuhamba kwegazi kwiindawo ezithile zomzimba wethu, ingakumbi amalungu omzimba. Yiyo loo nto iimpawu ezikhankanyiweyo ngaphambili zisenzeka. Le yimeko engapheliyo , oko kuthetha ukuba inokuhlala ubomi bonke. Ekuhambeni kwexesha, ezi mpawu, ingakumbi iintlungu ezivuthayo, zinokukhula kancinci kancinci. Ke ngoko, kubaluleke kakhulu ukuqaphela oku.

Oku kuchaphazela phi kakhulu?

Amaxesha amaninzi, le meko (i-Erythromelalgia) ichaphazela imilenze yakho, ingakumbi iinyawo zakho . Nangona kunjalo, akuphelelanga apho. Kukho ezinye iindawo ezinokuchaphazeleka:

• Izandla zakho
• Ubuso
• Iintende kunye neenyawo
• Amaxesha amaninzi, iindlebe zichaphazeleka.

Ngaba kukho iintlobo ezahlukeneyo ze-(Erythromelalgia)?

Ewe, kukho iintlobo ezahlukeneyo zale nto. Masibone ukuba zeziphi.

1. Isiseko (i-Erythromelalgia ePhambili)

Oku kwenzeka xa kungekho esinye isifo esisisiseko, kwaye le meko (i-Erythromelalgia) yenzeka yodwa. Oku kukwaneenxalenye ezimbini:

• Idiopathic Erythromelalgia: Olu lolona hlobo luxhaphakileyo. Akukho sizathu sicacileyo esifunyenweyo okwangoku.
• I-Erythromelalgia Ezuzwe Njengelifa: Oku kubangelwa kukuguquka kwezakhi zofuzo zethu . Ezi nguqu zinokuchaphazela indlela ezihamba ngayo iimpawu zethu zentlungu. Le meko inokuhamba nakwiintsapho, oko kuthetha ukuba inokudluliselwa kwizizukulwana ngezizukulwana.

2. Isibini (i-Erythromelalgia yesibini)

Olu hlobo lwe-erythromelalgia lubangelwa yenye imeko yezonyango . Oko kukuthi, lunokwenzeka njengesiphumo sesinye isifo sezonyango osele unaso. Nazi imizekelo embalwa:

• Izifo ezizikhusela ngokwazo emzimbeni: Imizekelo ibandakanya i-lupus kunye ne-multiple sclerosis.
• I-Essential thrombocythemia: Esi sisifo segazi. Ngamafutshane, umzimba uvelisa iiplatelets ezininzi kakhulu, uhlobo lweseli.
• `(I-Polycythemia vera)`: Esi sisifo apho inani leeseli ezibomvu zegazi linyuka khona.
• `(Isiganeko sikaRaynaud)`: Kule nto, iminwe neenzwane ziba novelwano kumkhuhlane kunye noxinzelelo lwengqondo kwaye zijika zibe mhlophe okanye zibe luhlaza okwesibhakabhaka.
• `(Thrombocytopenia)`: Oku kukuncipha kwenani leeplatelet egazini.
• I-Neuropathy: Iimeko ezibangelwa kukonakala kwemithambo-luvo.

Zithini iimpawu zoku? Masifumanise ngqo!

Kukho iimpawu ezintathu eziphambili ze-Erythromelalgia. Nazi:

1. Ubushushu obuphezulu besikhumba: Indawo echaphazelekayo ivakala ifudumele xa uyichukumisa kunezinye iindawo.

2. Intlungu: Le yeyona ngxaki iphambili kubantu abaninzi. Nangona abanye abantu benokuziva berhawuzelelwa kancinci, abanye banokufumana iintlungu eziqatha ezihamba nokutsha . Abanye bachaza iintlungu njengokutsha okanye ukuhlaba.

3. Ubomvu besikhumba: Indawo echaphazelekayo inokutshintsha umbala ukusuka kupinki ukuya kubomvu obumnyama.

Ukongeza kwezi mpawu ziphambili, ezinye iimpawu zinokubonwa:

• Ukurhawuzelela: Abanye abantu bafumana ukurhawuzelela kunye nokuva ukutsha.
• Ulusu olubandayo xa kungekho zimpawu: Xa ukudumba kunye nokubomvu kuphelile, indawo echaphazelekayo ingavakala ibanda kunezinye iindawo xa ichukunyiswa.
• Ukubila: Indawo echaphazelekayo inokubila ngaphezu kwesiqhelo.
• Ukudumba: Ngamanye amaxesha indawo ingadumba kancinci.
• Ubuthathaka besikhumba, amabala: Ulusu lusenokuvakala lubuhlungu xa luchukunyiswa, kwaye ngamanye amaxesha lunokuvela njengamabala.
• Ukuba ndindisholo: Izandla neenyawo zakho zisenokuvakala ngathi ndindisholo.

Ezi mpawu zinokwenzeka kwelinye icala lomzimba okanye kumacala omabini . Kwakhona, nangona zithambile kwabanye abantu, zisenokunganyamezeleki kwabanye. Kwabanye abantu, ezi mpawu ziqala ebuntwaneni , ngelixa kwabanye, zibachaphazela kuphela xa sele bekhulile .

Kutheni le nto ezi mpawu zikhula ngequbuliso (ukudumba)?

Abantu abane-Erythromelalgia baneempawu ezikhula ngequbuliso. Sizibiza ngokuba "ziiflares." Ezi zimpawu zihlala zenzeka xa ubushushu bomzimba wakho bunyuka ngequbuliso . Cinga ngala maxesha:

• Ukusela iziselo ezine-caffeine: Ukusela izinto ezifana neti nekofu.
• Ukuphelelwa ngamanzi emzimbeni: Xa umzimba ungafumani manzi aneleyo.
• Ukusela utywala: Ukusetyenziswa kotywala.
• Ukutya ukutya okuneziqholo: Ukutya itshili, ukutya okuneziqholo.
• Ukuzilolonga: Xa usenza umthambo onzima.
• Ukuziva uxinezelekile: Xa uziva uxinezelekile okanye uxhalabile.
• Ukuba kwindawo eshushu: kwigumbi elishushu, okanye kwindawo eshushu ngaphandle.

"Ndikhumbula ngenye imini ndaya epatini ndaza ndatya i-biryani ebabayo, ndaza ndadanisa nabahlobo bam, ndaza ndathi ndakubuya, imilenze yam yomibini yayingathi iyatsha. Yayibomvu. Ndacinga ukuba izihlangu zam zinamathele. Kusemva koko apho ugqirha wandixelela ukuba oku kungenzeka (i-Erythromelalgia)." - Kukho abantu abaye baba namava afanayo.

Oogqirha bayixilonga njani le nto?

Akukho vavanyo luthile lokuxilonga i-erythromelalgia. Ugqirha wakho uya kumamela iimpawu zakho, akuhlole xa uneempawu, aze ajonge iifoto ozithathileyo ngelo xesha. Ngamanye amaxesha , kufuneka uvavanyo ukuze kuthintelwe ezinye iimeko kunye nokuphanda ngakumbi iimpawu zakho. Ezinye zezi vavanyo ziquka:

• Uvavanyo lwegazi: Jonga ezinye izifo ezisisiseko.
• Uvavanyo lwemfuza: Ukuba kukho amathandabuzo malunga nohlobo lwemfuza, jonga utshintsho oluhambelanayo.
• I-Thermography: Olu luvavanyo olusebenzisa ikhamera ekhethekileyo ukulinganisa ngokuchanekileyo utshintsho lobushushu kwiindawo ezahlukeneyo zolusu.
• Ii-X-reyi okanye ezinye izifundo zokuthatha imifanekiso: Ezi zinokwenziwa ukuba kuyimfuneko.

Ingaba kulungile na ukufaka umkhenkce emanzini? Oku akulunganga!

Xa kuvela ukudumba, ungaziva ngathi ufaka ingalo okanye umlenze ochaphazelekayo kwisitya samanzi abandayo . Nangona oku kunokubonelela ngoncedo olukhawulezileyo, oku akuyongcinga ilungileyo konke konke . Enyanisweni, ukusebenzisa amanzi abandayo kunokwenza iimpawu ze-erythromelalgia zibe zimbi ngakumbi . Akupheleli apho, kukho umngcipheko omkhulu wokuba amanxeba esikhumba angapholi, kwaye ngamanye amaxesha neemeko zokufa kweeseli (necrosis) . Ezi zikwanzima kakhulu ukuzinyanga. Ke ngoko, nokuba kukho ukudumba okungakanani na, musa ukusebenzisa amanzi abandayo.

Ngoko ke, yintoni unyango lwale nto?

Unyango olukufaneleyo luya kuxhomekeka kwisizathu se-erythromelalgia yakho.

• Ukuba yi -secondary (i-erythromelalgia yesibini) , oko kuthetha ukuba ibangelwa sisifo esithile, iimpawu zakho zinokuphucula xa isifo esisisiseko sinyangwa .
• Kwimeko ye -erythromelalgia yokuqala , amayeza asetyenziswa kakhulu.

Luhlobo luni lwamayeza asetyenziswayo?

Amayeza omlomo lolona nyango luqhelekileyo lwe (Erythromelalgia). Uninzi lwala mayeza asetyenziswa kwezinye iimeko. Nangona kunjalo, asebenza kakhulu ekulawuleni iimpawu ze (Erythromelalgia).

Eminye imizekelo:

• Amayeza okulwa nokuxhuzula: afana negabapentin okanye icarbamazepine.
• Amayeza okudakumba: afana ne-amitriptyline okanye i-venlafaxine.
• Ii-antihistamines: ezifana ne-cetirizine okanye i-diphenhydramine.
• I-Aspirin: Yeyabantu abadala kuphelaOku kuyanikwa. Akulunganga ukukunika abantwana abancinci.
• Amayeza oxinzelelo lwegazi: Nokuba anyusa okanye anciphise ukuhamba kwegazi.
• Iipilisi zokunciphisa iintlungu ezibhalwe ngugqirha.

Zeziphi ezinye iindlela zonyango ezinokwenziwa?

Ukongeza kumayeza omlomo, kukho ezinye iindlela zonyango:

• Ii-infusions zeLidocaine: Le yi-painkiller. Ifakwa emthanjeni osengalweni.
• Izongezo zesondlo: Imizekelo ibandakanya i-magnesium kunye ne-alpha-lipoic acid.
• Iindlela zonyango zokulawula iintlungu: Oku kuquka izinto ezifana nokuthintela imithambo-luvo.
• Amayeza asetyenziswa eluswini: Iikhrimu ezisetyenziswa eluswini.

Ngaba zikho iindlela zokufumana isiqabu ngaphandle kwamayeza?

Ewe, ukongeza kumayeza, kukho izinto onokuzenza ngokwakho ukunciphisa oku kurhawuzelela nentlungu:

• Phakamisa indawo echaphazelekileyo: Ukuba ngumlenze, beka umqamelo phezu kwawo.
• Phumla kwindawo ebandayo: Umzekelo, ulele kwindawo ebandayo njengomgangatho wethayile.
• Sebenzisa ifeni.
• Beka iijeli zoncedo lokuqala ezipholileyo ezisongelwe ngetawuli ebhityileyo eluswini. (Musa ukufaka umkhenkce ngqo!)

Ngaba oku kungathintelwa ukuba kungenzeki? (Ukuthintela)

Akukho nto ingako sinokuyenza ukuthintela i-Erythromelalgia. Nangona kunjalo, ukuba kukho umntu kusapho lwakho onayo le meko, ungafumana uvavanyo lwemfuza ukuze ubone ukuba kunokwenzeka kangakanani ukuba nomntwana wakho abe nayo.

Liyintoni ikamva lomntu onesi sifo? (Ingqikelelo)

Ukuvutha kunokuchaphazela umgangatho wobomi bakho. Nangona kunjalo, akubi yingozi kangako . Uninzi lwabantu luphila ubomi obuqhelekileyo. Basebenza, bahambahamba, kwaye bayonwabela izinto abazithandayo. Nangona kunjalo, ngamanye amaxesha, ukuba unyango aluphumeleli, kunokuba nzima ukwenza imisebenzi yemihla ngemihla.

Ubomi bemihla ngemihla bunjani nge (Erythromelalgia)?

Ngokutsho kwabantu abanesi sifo, kukho iimvakalelo ezininzi ezihambisana nezi mpawu:

• Ulusu luvakala luqinile: ngokungathi iimpahla ozinxibileyo ziyakucinezela.
• Ngokungathi kusemlilweni, okanye ngathi kuwele amanzi ashushu phezu kwayo: imvakalelo yokutsha enganyamezelekiyo.
• Njengokunqunyulwa ngeencakuba: intlungu ebukhali.
• Njengokutsha kakhulu lilanga: Njengentlungu oyivayo xa ulusu lwakho lutshiswa kukutsha kakhulu lilanga.

Akulula ukuphila nezinto ezinje, kodwa kukho iindlela zokumelana nazo.

Yintoni onokuyenza ukuze uthintele ukugqabhuka kwaye uhlale ukhululekile?

Ungenza utshintsho oluncinci kwindlela ophila ngayo ukuze unciphise ukuphindaphindeka kwezi ngxolo kwaye uzive ukhululekile xa zisenzeka.

• Ziphephe ukutya neziselo ezibangela iimpawu: Lumka ngento oyityayo noyiselayo. Ziphephe izinto ezibangela ubushushu bomzimba, ezifana ne-caffeine nokutya okuneziqholo.
• Lumka xa ukhetha imithambo: Khetha imithambo ethambileyo enganyusi ubushushu bomzimba wakho kakhulu ngaxeshanye. Umzekelo, izinto ezifana nokudada, i-yoga, kunye ne-Tai Chi zilungile.
• Zama ukuhlala kwindawo epholileyo: Ukuba uyaphuma, hamba xa ubushushu buncinci, njengakusasa.
• Lumka xa uhlamba: Hlamba endaweni yokucwilisa ebhafini enamanzi. Sebenzisa amanzi afudumeleyo ukuze ungonakalisi ulusu lwakho. Kungcono nangakumbi ukuba ungagcina ifestile ivuliwe kwigumbi lokuhlambela.
• Cwangcisa kwangaphambili: Ekubeni iimpawu zivame ukuvela ebusuku, cwangcisa imisebenzi yakho ebalulekileyo emini.
• Lungisa ngaphambi kokuba ulale: Gcina ifeni okanye i-AC encinci (iyunithi yomoya opholileyo) kufutshane nebhedi yakho. Sebenzisa ishiti yebhedi encinci kangangoko kunokwenzeka, okanye ulale unganxibanga ngubo phezulu.

Ngaba nawe kufuneka ucinge ngempilo yengqondo?

Ewe, kunjalo. Ukuphila nesifo esingaqhelekanga esifana nesi kunokwenza abanye abantu bazive bebodwa kwaye bengenakuncedakala . Basenokuvakalelwa kukuba usapho, abahlobo, kwanoogqirha abasiqondi esi sifo. Ngamaxesha anje, kunokudimaza .

Kodwa, awuwedwa. Kukho amaqela enkxaso kwi-intanethi kubantu abane-Erythromelalgia. Ngokujoyina, ungathetha nabanye abadlula kumava afanayo nawe kwaye ufunde kumava abo. Oko kuya kukunika amandla amakhulu kunye nokukhululeka.

Ngoko ke, izinto zokugqibela ekufuneka uzikhumbule (Umyalezo Wokuya Ekhaya)

I-Erythromelalgia yimeko engaqhelekanga kodwa enokubangela uxinzelelo olukhulu ebonakaliswa kukutsha okunganyamezelekiyo kunye nokubomvu kwezandla neenyawo.

Ungakhathazeki! Zininzi iindlela zonyango zoku. Nangona ngamanye amaxesha kunzima ukulawula ngokupheleleyo iimpawu ngonyango, abantu abaninzi baphila ubomi obuphumelelayo nobonwabisayo xa benale meko.

Eyona nto ibalulekileyo kukuthetha nogqirha malunga neempawu zakho, ufumane ukuxilongwa ngokuchanekileyo, kwaye uqale unyango olulungele wena. Kubalulekile nokwenza utshintsho oluncinci kwindlela ophila ngayo ukuze uzame ukuthintela iimpawu ukuba zingabi mbi. Hlala uqinile!

I- Erythromelalgia, ukudumba kolusu, ukuba bomvu kolusu, izifo ezingapheliyo, ukwanda kweempawu, iintlungu emilenzeni, iintlungu ezandleni