Sonke siyazi ukuba ezinye izifo zinokunyangwa kwikhemesti. Kodwa kukho ezinye izifo ezingaqhelekanga nezikhethekileyo ezinyangwa esibhedlele, phantsi kweliso elithe ngqo loogqirha. IHemin yenye yezo ziyobisi, ezisetyenziswa kwiimeko ezikhethekileyo kakhulu, kwaye zinikwa ngemithambo yegazi. Ke namhlanje, masithethe ngokufutshane ngale nto yokugonya yeHemin, into eyenzayo, inikwa bani, kunye nezinto ekufuneka uzazi ngayo.
Luhlobo luni lonyango uHemin?
Eli yeza libizwa ngokuba yiHemin lisetyenziselwa ukunyanga isifo esingaqhelekanga esibizwa ngokuba yi-'Acute Intermittent Porphyria.' Eli ligama elintsonkothileyo, ngoko masilichaze ngokulula.
Le yimeko yemfuza. Ngokuchanekileyo, ibangelwa sisiphene kwinkqubo yokuvelisa inxalenye yegazi lethu ebizwa ngokuba yi-'Heme'. Le 'Heme' ibalulekile kwi-hemoglobin kwiiseli zethu ezibomvu zegazi. Xa le nkqubo iphazamisekile, iikhemikhali eziyingozi ziyaqokelelana emzimbeni, zibangele iimpawu ezahlukeneyo ezifana nentlungu enzima yesisu kunye neengxaki zenkqubo yemithambo-luvo.
Ngoko ke, eli yeza libizwa ngokuba yiHemin (igama lophawu lweyeza lisenokuba yi-'Panhematin') lilawula ukunqongophala kwemveliso ye-'Heme' kwaye linciphisa iimpawu. Ngamanye amazwi, eli liyeza elichaphazela inkqubo esisiseko ebangela isifo.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokusebenzisa eli yeza
Ngenxa yokuba eli liyeza elithile, kubaluleke kakhulu ukwazisa ugqirha wakho ngembali yakho epheleleyo yempilo ngaphambi kokuba uqale unyango. Qiniseka ukuba ubaxelela oku kulandelayo ngokukodwa:
- Iingxaki zokujiya kwegazi: Ukuba uneengxaki zokujiya kwegazi (umzekelo, ukopha okungapheli ngokukhawuleza), sixelele ngayo.
- Ii-Allergies: Ukuba une-allergy, kungekuphela nje kweli yeza libizwa ngokuba yiHemin, kodwa nakwi-latex, amanye amayeza, ukutya, kwaneedayi ezithile, qiniseka ukuba usixelele ngalo.
- Ukukhulelwa: Ukuba ukhulelwe okanye uzama ukukhulelwa, kubalulekile ukuxelela ugqirha wakho.
- Ukuba ungumama oncancisayo: Ukuba ungumama oncancisayo, kufuneka uxelele ugqirha wakho ngaphambi kokuba uqale unyango.
Igonyo leHemin linikezelwa njani?
Eli asiloyeza onokulithatha uye nalo ekhaya. Liyeza elinikwa njengesisombululo setyuwa emthanjeni (i-infusion) yingcali yezonyango eqeqeshwe esibhedlele okanye eklinikhi. Abasebenzi bezonyango baya kuhlala bejonga imeko yakho ngelixa ufumana olu nyango.
Ngaba uyabanika abantwana eli yeza?
Eli yeza lidla ngokunikwa abantwana abancinci abaneminyaka engaphezulu kwe-16 ubudala kwiimeko ezithile ezikhethekileyo. Kodwa lenziwa ngononophelo olukhulu nangezizathu ezikhethekileyo. Ke ngoko, ukuba unika umntwana wakho eli yeza, kubalulekile ukuba nengxoxo entle nogqirha wezingane zakho kwaye uqonde yonke into ngokucacileyo.
Kuza kwenzeka ntoni ukuba uthatha amayeza amaninzi kakhulu?
Njengoko eli yeza linikwa phantsi kweliso likagqirha, amathuba okuba kubekho 'i-overdose' aphantsi kakhulu. Nangona kunjalo, ukuba ukrokrela ukuba uyisebenzise kakhulu, qhagamshelana neZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke saseColombo okanye iYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele.
Eli yeza limiselwe wena wedwa. Musa ukwabelana ngalo nabanye abantu nangasiphi na isizathu.
Ngaba kukho iingxaki ngamanye amayeza? (Iindlela esetyenziswa ngayo)
Ewe, oku kunokubangela iingxaki ngamayeza athile. Oku kubaluleke kakhulu ukuba usebenzisa amayeza athintela ukujiya kwegazi, njenge-warfarin.
Olu luhlu aluphelelanga. Ngoko ke, qiniseka ukuba uxelela ugqirha wakho ngayo yonke imithi oyithathayo (kuquka amayeza kagqirha namayeza athengiswa ngaphandle kwemvume kagqirha, iivithamini, amayeza esintu, kunye nezongezo), kunye nokuba uyatshaya, uyasela utywala, okanye usebenzisa ezinye iziyobisi. Kuphela emva koko unokunyangelwa ngokukhuselekileyo.
Iziphumo ebezingalindelekanga ezinokwenzeka ngexesha lonyango
Njengayo nayiphi na iyeza, ugonyo lweHemin lunokubangela ezinye iziphumo ebezingalindelekanga. Ezinye zezi zifuna ingqalelo ekhawulezileyo, ngelixa ezinye zihlala zingekho mbi kakhulu. Masijonge ezi kwitheyibhile.
| Iziphumo ebezingalindelekanga ze-Hemin vaccine | |
|---|---|
| Izinto onokuzixelela ugqirha wakho okanye abasebenzi bezonyango ngoko nangoko | |
| Iimpendulo ze-Allergic | Ukurhawuzelelwa lusu, ukurhawuzelelwa okanye ukurhawuzelelwa, ukudumba kobuso, imilebe okanye ulwimi. |
| Utshintsho ekuchameni | Ukuncipha okanye utshintsho oluthile kubungakanani bomchamo ophumayo. |
| Ukopha okungaqhelekanga | Ukukruquka okulula okanye ukopha okungapheliyo. |
| Ukudinwa okungaqhelekanga | Ukuziva udiniwe kakhulu okanye ubuthathaka. |
| Izinto ezingaqhelekanga ukuba zinzulu, kodwa kufuneka zixelwe ukuba ziyaqhubeka | |
| Umkhuhlane ophantsi | Ukuziva ushushu kancinci emzimbeni. |
| Intlungu kwindawo yokutofa | Intlungu okanye ukudumba okujikeleze indawo yokutofa. |
Olu luhlu lusenokungabandakanyi zonke iziphumo ebezingalindelekanga, ngoko ke ukuba ufumana into engaqhelekanga, ungoyiki ukuthetha nogqirha wakho ngayo.
Umyalezo Wokuya Ekhaya
- IHemin liyeza elikhethekileyo elinikwa esibhedlele ukunyanga isifo esingaqhelekanga, esidluliselwa kwilifa esibizwa ngokuba yi-'Acute Intermittent Porphyria'.
- Ngaphambi kokuba uqale unyango, kubalulekile ukuba uxelele ugqirha wakho ngazo zonke iimeko zakho zempilo, ii-allergies, kunye nawo onke amayeza owasebenzisayo.
- Eli yeza linikwa ngemithambo yegazi (IV infusion) yingcali yezonyango eqeqeshiweyo. Eli ayiloyeza lokuya nalo ekhaya.
- Lumka ngemiphumo emibi efana nokunganyamezelani komzimba kunye nokopha okungaqhelekanga. Ukuba ubona into efana nale, yazisa abasebenzi bezonyango ngoko nangoko.
- Ukuba unemibuzo malunga nale yeza, nokuba incinci kangakanani na, nceda ubuze ugqirha wakho.
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