Kuqhelekile ukuba sonke sizive sidiniwe kwaye silele ngamanye amaxesha. Kodwa, ngaba uziva ulele kwaye udinwe kakhulu imini yonke, nokuba ulele iiyure ezininzi ebusuku? Ngaba ukufumanisa kunzima ukuvuka kusasa? Ngaba uziva ngathi awulali ngokwaneleyo nokuba sele usete ii-alamu ezininzi? Oku kunokuba yinto ebalulekileyo kuwe. Namhlanje, siza kuthetha ngale meko ibizwa ngokuba yi-"idiopathic hypersomnia," okanye njengoko oogqirha beyibiza njalo.
Yintoni i-Idiopathic Hypersomnia?
Ngamafutshane, `(Idiopathic Hypersomnia)` sisifo sokulala apho uziva ufuna ukulala kakhulu. Okwenzekayo kukuba, nokuba ulala kangangoko ufuna ebusuku, oko kukuthi, iiyure ezingaphezu kwesithoba, awuziva uphumle okanye uhlaziyekile xa uvuka kusasa. Igama elithi "idiopathic" lithetha ukuba unobangela ochanekileyo wale meko ayaziwa .
Ukuba unale meko, ungavuka kusasa uzive ungaphumli kwaye ungaphumli. Kusenokufuneka usete ii-alamu ezininzi kwaye uzabalaze ukuvuka ebhedini. Usenokuziva udiniwe nasemva kokulala. Ukuziva udiniwe imini yonke kunokuba ngumqobo omkhulu kwimisebenzi yakho yemihla ngemihla.
Kodwa ungakhathazeki, ungacela uncedo kugqirha ukuze ukwazi ukulawula ezi mpawu.
Ingaba le meko inqabile kangakanani?
Ngokwezifundo ezenziwe eMelika, esi sifo (Idiopathic Hypersomnia) sichaphazela abantu abamalunga neshumi kwikhulu lamawaka. Oko kuthetha ukuba sisifo esingaqhelekanga.
Zithini iimpawu zoku?
Iimpawu eziphambili zesifo esithi ``Idiopathic Hypersomnia`` zezi:
- Ukulala kakhulu emini: Ungalala nangaliphi na ixesha losuku.
- Ukulala iiyure ezingaphezu kwe-11 kwixesha leeyure ezingama-24: Oku kuquka ukulala emini. Okanye ukulala iiyure ezingaphezu kwe-9 ebusuku.
- Ubunzima bokuvuka: Nokuba ulele kamnandi ebusuku, kunzima ukuvuka kusasa. Uziva ungaphefumlelwanga kwaye unesiyezi xa uvuka ('sleep inertia').
Ezi mpawu zinokwenza kube nzima kakhulu ukwenza imisebenzi yemihla ngemihla. Ngokwesiqhelo, ugqirha uya kuqinisekisa ukuba esi sifo siyenzeka ukuba ezi mpawu zikhona iintsuku ezininzi ngeveki, okanye phantse yonke imihla, ubuncinane iinyanga ezintathu. Ngamanye amaxesha, ezi mpawu zinokubakho iminyaka, kwaye ukuxilongwa okuqinisekileyo kungenziwa.
Nokuba uvukile, ukongeza ekuziveni udiniwe, usenokuziva izinto ezifana nezi:
- Inkungu yobuchopho: Ubunzima bokucinga ngokucacileyo.
- Ukudideka: Kufana nokuba awukwazi ukuqonda ukuba kwenzeka ntoni.
- Uxinzelelo: Ukuziva ungonwabanga, ngokungathi ukruqukile yinto yonke.
- Isiyezi.
- Intloko ebuhlungu.
- Ukucaphuka.
Yintoni isizathu soku?
Isizathu esichanekileyo se-Idiopathic Hypersomnia asikaziwa . Uphando luyaqhubeka, kodwa ezinye izifundo zibonisa ukuba ezi zinto zilandelayo zinokudlala indima:
- Iinguqu/iinguqu zemfuza: Utshintsho kwezinye iimfuza lunokuphazamisa indlela iiseli zakho zengqondo ezinxibelelana ngayo kwaye lulawule umjikelo wakho wokulala nokuvuka.
- Impendulo engaqhelekanga yenkqubo yomzimba yokuzikhusela: Inkqubo yakho yomzimba yokuzikhusela inokuhlasela iiseli ezisempilweni kwinkqubo yemithambo-luvo ngempazamo, izibona njengeziyingozi.
Zithini izinto ezibangela le meko?
Izinto ezibangela ukuba umntu azive ebuhlungu zizinto ezinokubangela okanye zibenze babe mandundu iimpawu. Idiopathic Hypersomnia inokubangelwa zezi zinto zilandelayo:
- Utshintsho olukhawulezileyo kumjikelo wakho wokulala nokuvuka.
- Ukuzibhokoxa kakhulu.
- I-anesthesia eqhelekileyo kwinto efana notyando.
- Usulelo lwentsholongwane.
- Ukulimala entloko.
Ngubani osengozini enkulu yoku?
Usenokuba unesifo se-Idiopathic Hypersomnia. Oku kuthetha ukuba ukuba umntu kusapho lwakho unesi sifo okanye esinye isifo esinxulumene nokulala, unethuba elincinci lokuba naso.
Zeziphi iingxaki ezinokubangela oku?
Ukuba uhlala udiniwe, kuqhelekile ukuziva ngathi awukwazi ukwenza konke okusemandleni akho. Izinto ezinje ngezi zinokuba ngumceli mngeni kuwe:
- Ukwenza imisebenzi njengoko kulindelekile emini (njengemisebenzi yemihla ngemihla, ukuhlala ugxile kwinto enye).
- Ukugcina ubudlelwane nabantu obathandayo.
- Ukuzalisekisa uxanduva emsebenzini, esikolweni, nakubomi bomntu.
- Ukugcina impilo yakho yengqondo kunye nokulinganisela ngokweemvakalelo.
Cinga ngako oku, ukuqhuba imoto okanye ukusebenzisa oomatshini abanzima kufuna ingqalelo yakho epheleleyo. Ukuba ulala ngexesha elinje, kunokuba yingozi kuwe nakwabanye.
Ifunyaniswa njani le nto?
Ugqirha uza kukuxilonga aze enze uvavanyo olufunekayo ukuze aqinisekise ukuba unayo na i-Idiopathic Hypersomnia. Ngexesha lovavanyo, ugqirha uza kumamela ngononophelo iimpawu zakho aze akucele ukuba uphendule uxwebhu olubizwa ngokuba yi-Epworth Sleepiness Scale, olulinganisa ukuba uziva ulele kangakanani.
Ungacelwa ukuba ugcine ijenali yokulala kangangeeveki ezimbalwa. Oku kuya kukunceda ukuba ulandele amaxesha oya kulala nokuvuka. Ugqirha wakho angakunika isixhobo esincinci esibizwa ngokuba yi-actigraph ukuze usinxibe engalweni yakho. Oku kuya kukunceda ulandelele iindlela zakho zokulala.
Ukongeza, izifundo ezithile zokulalaUmzekelo, uvavanyo lwe-polysomnography okanye uvavanyo lwe-multiple sleep latency (MSLT) lunokwenziwa. Ugqirha uza kuhlola iziphumo zezi mvavanyo aze enze ezinye iimvavanyo ukuze aqinisekise ukuba azikho ezinye iimeko ezinokubangela iimpawu ezifanayo.
Ngaba ikho indlela epheleleyo yokunyanga oku?
Okwangoku akukho nyango lwesifo esithi ``Idiopathic Hypersomnia``. Nangona kunjalo, kukho unyango olunokunceda ukulawula iimpawu.
Iphathwa njani le nto?
Amayeza adla ngokusetyenziswa ngempumelelo ukulawula iimpawu ze-"Idiopathic Hypersomnia."
Ukongeza, kukho unyango oluthile lwengqondo olubizwa ngokuba yi-"Cognitive Behavioral Therapy for Hypersomnia (CBT-H)". Olu nyango lwenzelwe ukunceda kwisifo esithi "Idiopathic Hypersomnia". Xa lusetyenziswa kunye namayeza, olu nyango lunokuphucula umgangatho wokulala kunye nokusebenza kwemihla ngemihla.
Amayeza e-idiopathic hypersomnia
Kukho iintlobo ezahlukeneyo zamayeza angasetyenziswa ukunyanga esi sifo:
- Iziyobisi ezivuselela inkqubo ye-nervous central (`izivuseleli zenkqubo ye-nervous central`) - umzekelo, iziyobisi zohlobo lwe-`(amphetamines)`.
- Iziyobisi ezivuselela inkqubo yemithambo-luvo ephakathi ezingezizo ezeqela le-amphetamine - umzekelo, `(modafinil)`.
- Izinto ezidambisa uxinzelelo lwe-nervous system - umzekelo, i-sodium oxybate (eli liyeza elivunyiweyo yi-FDA).
- Ii-GABA receptor antagonists - umzekelo, i-flumazenil.
Iziphumo ebezingalindelekanga zala mayeza ziyahluka. Ukuba okwangoku usebenzisa amanye amayeza, kubalulekile ukuthetha nogqirha wakho ukuze ubone ukuba angasebenzisana na namayeza amatsha. Musa ukutshintsha indlela yakho yokusebenzisa amayeza ngaphandle kwemvume kagqirha wakho.
Ugqirha angakucela ukuba uthathe i-Epworth Sleepiness Scale ngaphambi kokuba uqale unyango kwaye ngexesha lonyango ukuze abone ukuba unyango lusebenza kangakanani.
Yintoni onokuyilindela xa uphila nale meko?
Kuqhelekile ukuziva ukhathazekile xa uphila ne-Idiopathic Hypersomnia. Nangona ulala iiyure ezininzi ubusuku ngabunye, usadiniwe emini. Oku kunokwenza kube nzima ukwenza imisebenzi yemihla ngemihla, njengokufika esikolweni okanye ukusebenza ngexesha.
Ugqirha wakho angakunika amayeza okukunceda uhlale uphaphile emini. Kungathatha ixesha ukufumana amayeza afanelekileyo kunye nomlinganiselo ofanelekileyo kuwe, kwaye kunokufuneka uzame amayeza ahlukeneyo. Ugqirha wakho uza kukujonga rhoqo ukuze abone ukuba unyango lusebenza njani kuwe.
Ndifanele ndimbone nini ugqirha?
Ukuba ulala kakuhle ebusuku kodwa uzive udiniwe kakhulu okanye ulele emini, kubalulekile ukubona ugqirha . Umzekelo, ukuba uzifumana ulele eklasini, emsebenzini, okanye xa uthetha nabahlobo, musa ukuyityeshela loo nto. Ugqirha angakunceda ulawule iimpawu zakho ngeendlela eziya kukunceda uhlale uphaphile.
Ndingayibuza yiphi imibuzo ugqirha?
Xa ubona ugqirha wakho, ungambuza imibuzo efana nale:
- Kutheni ndiziva ndidiniwe kangaka emini?
- Ngaba ndifanele nditshintshe ishedyuli yam yokulala?
- Luhlobo luni lonyango olucetyiswayo?
- Ngaba kukho naziphi na iziphumo ebezingalindelekanga zale ndlela yonyango?
- Ndifanele ndiwathathe nini amayeza owandinike wona?
Nokuba ulala kamnandi ebusuku, kunokuba nzima ukonwabela ubomi xa umzimba wakho ungafumani ukuphumla okufunekayo. I-Idiopathic Hypersomnia inokukwenza uphoswe ziintlanganiso, uhlale kade, ulahlekelwe yingqwalasela, kwaye ngamanye amaxesha ude uzive ngathi uyaphuma ebhedini. Usenokuziva ngathi uyakuphepha ukunxibelelana nabantu ngenxa yokoyika ukulala ngelixa uthetha nabahlobo. Konke oku kunokuba nefuthe elikhulu kwimpilo yakho yengqondo.
Ngethamsanqa, akufuneki uphile nezi mpawu. Ugqirha angakunceda uqonde ukuba kutheni ungaphumli kwaye akunike unyango olunokukunceda uhlale uphaphile.
Okokugqibela, umyalezo oya ekhaya:
Ukuba uziva ulele kwaye udiniwe ngendlela engaqhelekanga imini yonke, musa ukuyithatha njengento "yokudinwa." Isenokuba luphawu lwesifo esithile esingabonakaliyo. Idiopathic Hypersomnia yenye yezo meko.
Khumbula, kukho unyango loku. Ukuthetha nogqirha malunga neempawu zakho linyathelo lokuqala. Ngokuchongwa ngokufanelekileyo kunye nonyango olufanelekileyo, umgangatho wobomi bakho ngokuqinisekileyo unokuphucula (ngokuqinisekileyo). Awuwedwa, kwaye ungoyiki ukucela uncedo!
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Ukulala , ukozela, ukozela kakhulu, ukozela okungachazwanga, idiopathic hypersomnia, ukungakwazi ukulala, iimpawu
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