Ngaba wakha waphawula indawo emzimbeni womntwana wakho, mhlawumbi emlenzeni okanye esiswini sakhe, eyatshintsha umbala ngequbuliso yaza yaziva inzima ukuyichukumisa? Njengomzali, usenokuba waziva usoyika kwaye ukhathazekile xa uyibona. "Yintoni le? Kutheni le nto yenzekile?" Usenokuba wacinga. Musa ukoyika. Kwiimeko ezininzi, le meko inokubangelwa sisifo esithetha ngaso namhlanje, `i-Juvenile Localized Scleroderma`. Nangona eli gama liyinkimbinkimbi kancinci, masithethe ngalo ngokulula, ngendlela onokuyiqonda.
Ngamafutshane, yintoni i-Juvenile Localized Scleroderma?
Masiqale ngegama. Igama elithi `Scleroderma` lenziwe ngamagama amabini esiGrike: elithi "sclera" lithetha 'ukuqina', kwaye elithi "derma" lithetha 'ulusu'. Lithetha nje "ulusu oluqinileyo" . Igama elithi "ulutsha" lithetha ukuba lenzeka ebantwaneni nakubantu abancinci. Igama elithi "localized" lithetha ukuba lihlala kwiindawo ezithile zomzimba, oko kukuthi ulusu, izicubu ezingaphantsi kolusu, kwaye ngamanye amaxesha izihlunu namathambo. Elinye igama lalo ngu 'Morphea'.
Le yimeko yokuzikhusela komzimba . Ngamafutshane, inkqubo yokuzikhusela yomzimba wethu, inkqubo yokuzikhusela yomzimba, iyaphambana kancinci ize iqalise ukuhlasela ulusu lwayo olusempilweni. Ukusabela kolu hlaselo, ulusu lomntwana luqala ukudumba, okanye luvuvuke.
Oku kudumba kubangela ukuba iiseli zezicubu ezidityanisiweyo eluswini zivelise iproteni eninzi ebizwa ngokuba yi -'collagen' . I-'Collagen' yinto enika amandla nokuqina kwiithishu ezininzi emzimbeni, kuquka nolusu lwethu. Kodwa xa isanda kakhulu, njengesilonda emva kokwenzakala, ulusu luyaqina luze lube lukhuni. Sikwabiza oku ngokuba yi-'fibrosis' . Ungakubona oku emzimbeni womntwana wakho njengendawo eqinileyo, enombala omdaka ngolu hlobo.
Ziziphi iintlobo eziphambili zale meko?
Kukho iintlobo ezininzi eziphambili zeLocalized Scleroderma. Uhlobo ngalunye luneempawu ezahluke kancinci. Makhe sijonge ukuba zeziphi.
| Uhlobo lweScleroderma | Kwenzeka ntoni kuloo nto? |
|---|---|
| I-Circumscribed okanye i-Plaque Morphea | Olu lolona hlobo luxhaphakileyo. Inxalenye enye okanye ezingaphezulu ezingqukuva okanye ezimile okweqanda, eziqinileyo (iiplaque) zivela kwinxalenye enye okanye ezimbini zomzimba. Ezi zichaphazela kakhulu ulusu kunye nezicubu ezingaphantsi. |
| I-Linear Morphea | Kubonakala ngathi kudwetshwe umgca ngentonga. Le migca idla ngokubonakala njengemigca ejikeleze iingalo zomntwana, imilenze, okanye umzimba wonke. Olu hlobo lunokungena nzulu kancinci luze luchaphazele izihlunu namathambo angaphantsi. Oku kunokubangela iingxaki ngokushukuma kwamalungu kunye nokukhula komntwana. |
| I-Morphea eqhelekileyo | Kuvela amabala aqinileyo amane okanye ngaphezulu kwiindawo ezahlukeneyo zomzimba (ixesha elininzi esiqwini nasemilenzeni). Ngamanye amaxesha la mabala anokudibana aze abe makhulu. |
| I-Morphea enzulu | Olu lolona hlobo lunzima nolunqabileyo. Luchaphazela ulusu, lungene nzulu kwimisipha nasemathanjeni. Lunokuba buhlungu. |
Uhlobo olukhethekileyo: "En coup de sabre"
Olu luhlobo oluthile lwe-'Linear Morphea'. Xa umntwana efumana la mabala afana nemicu ebusweni okanye entlokweni yakhe, siwabiza ngokuba yi-"en coup de sabre." Eli ligama lesiFrentshi elithetha "njengokungathi unqunyulwe ngekrele." Kuba libonakala ngathi ngumgca otshintshileyo, ngamanye amaxesha otshonileyo ebunzini.
Ziziphi iimpawu ezibonakaliswa ngumntwana?
Ezi mpawu zinokutshintsha ngokuhamba kwexesha. Zinokuqala ngebala elincinci elifana nenxeba.
- Inqanaba lokuqala: Kuvela ibala elibomvu okanye elimfusa okanye iplaque eluswini lomntwana. Kweli nqanaba, ulusu aluqinanga kwaye luvakala luqhelekile.
- Inqanaba eliphakathi: Ekuhambeni kwexesha, ibala liyaqina, lidumbe, kwaye libe likhulu kancinci. Umbindi webala uba mhlophe okanye umthubi, ube yincindi, kwaye ubengezela. Kusenokubakho umbala opinki okanye omfusa ojikelezileyo.
- Kamva: Ekuhambeni kwexesha, emva kokuba ukudumba kuphelile, ulusu oluchaphazelekayo lunokuba mdaka (olunombala ophezulu) okanye lube mhlophe (olunombala omncinci). Ngamanye amaxesha ulusu lunokuba luncinci.
Kwiimeko ezinzima, la mabala anokuchaphazela izicubu ezinzulu, nto leyo ebangela iimpawu ezifana nezi:
- Intlungu kunye nokungonwabi.
- Ukungakwazi ukushukumisa amalungu nemisipha kakuhle.
- Ukuba kwenzeka ebusweni, kunokubangela iingxaki ngamazinyo okanye ukubona.
Into ebalulekileyo kukuba la mabala anokuphela xa enyangwa. Nangona kunjalo, ngamanye amaxesha anokuphela aze aphinde avele ('aqhume').
Kutheni abantwana bekhula oku?
Inyaniso kukuba, unobangela ochanekileyo woku awukafunyanwa , kodwa oogqirha bakholelwa ukuba kusenokwenzeka ukuba ubangelwa zizinto ezahlukeneyo.
Eyona nto iphambili kukuba, njengoko besitshilo ngaphambili, kusebenze inkqubo yomzimba yokuzikhusela . Ukongeza, ezinye izinto ezingqongileyo, umzekelo, usulelo, ukwenzakala kolusu, njl.njl. kurhanelwa ukuba zingunobangela wale meko. Kodwa esi asisosifo sisulelayo.
Ugqirha uyixilonga njani le nto?
Xa usisa umntwana wakho kugqirha, into yokuqala aza kuyenza kukuhlolisisa umntwana ngononophelo aze akubuze ngeempawu zakhe. Usenokuqikelela ukuba ingaba le yi-'Localized Scleroderma' ngokujonga uhlobo lwamabala eluswini.
Ukuqinisekisa ukuxilongwa, kunokufuneka wenze iimvavanyo ezifana nezi:
- I-Skin Biopsy: Oku kuquka ukuthatha iqhekeza elincinci kakhulu lolusu oluchaphazelekileyo size silihlole nge-microscope. Oku kusenza sibone ukuba loluphi utshintsho oluye lwenzeka kwiiseli zolusu.
- I-MRI scan (Magnetic Resonance Imaging): Oku kungabona ukuba isilonda sesikhumba singene nzulu kangakanani kwaye nokuba izihlunu okanye amathambo angaphantsi achaphazelekile na.
Zithini iindlela zonyango zoku?
Iinjongo eziphambili zonyango kukulawula ukudumba (ukudumba) eluswini, ukuthintela isifo ukuba singasasazeki ngakumbi, kunye nokunciphisa amanxeba (i-fibrosis) eluswini. Unyango luxhomekeke kuhlobo kunye nobunzima besifo emntwaneni.
Kukho iindlela ezahlukeneyo zonyango:
- IiCorticosteroids: Ezi zinokunikwa njengeekhrimu ezifakwa emzimbeni, iipilisi zomlomo, okanye iinaliti ezifakwa emthanjeni.
- Ezinye iintlobo zeekhrimu zolusu: Iikhrimu eziqulethe amayeza afana ne-`Calcipotriene`, `tacrolimus`, `pimecrolimus`.
- Iiarhente zokulawula ukungasebenzi kakuhle komzimba: Ukuba isifo sibi kakhulu, amayeza anjenge-`Methotrexate` okanye i-`Mycophenolate Mofetil` anikwa ukulawula ukusebenza ngokugqithisileyo kwenkqubo yomzimba yokuzikhusela.
- Unyango lomzimba kunye nokuphulula: Oku kubaluleke kakhulu ekuqiniseni izihlunu kunye nokugcina amalungu eshukuma kakuhle, ingakumbi kwiimeko ezifana ne-'Linear Morphea'.
- Unyango olukhanyayo (iPhototherapy):Olu nyango lusebenzisa imisebe ye-ultraviolet ukuthambisa amabala amnyama eluswini. Nangona kunjalo, oku kunokubangela ukwaluphala kolusu okanye umhlaza wolusu, ngoko ugqirha uza kukuchazela oku ngononophelo.
- Utyando lweplastiki: Xa isifo singasasebenzi ngokupheleleyo, utyando lunokwenziwa ukuze kubuyiselwe inkangeleko yolusu.
Khumbula, okukhona isifo sifunyanwa ngokukhawuleza kwaye unyango luqala, kokukhona iziphumo ziba ngcono. Emva kokuba unyango luyekisiwe, umzimba unokuphinda ufunxe ezinye zezicubu eziqinileyo ze-fibrous kwaye uthambise ulusu.
Ungamnceda njani umntwana wakho njengomzali?
Ukongeza kunyango lwezonyango, kukho izinto ezininzi onokuzenza ekhaya ukukhusela ulusu lomntwana wakho.
- Kuphephe ukusebenzisa isepha kunye neesepha eziqinileyo: Iimveliso ezinevumba elinzima zinokwenza ulusu lomntwana wakho lome ngakumbi kwaye lurhawuzelele.
- Sebenzisa isithambisi esilungele ulusu: Faka isithambisi esifanelekileyo esifanelekileyo kulusu olubuthathaka izihlandlo ezininzi ngemini.
- Hlamba ngamanzi afudumeleyo: Kuphephe amanzi ashushu kakhulu okanye abandayo.
- Zikhusele elangeni: Qiniseka ukuba ufaka i-sunscreen efanelekileyo xa uphuma phandle.
- Gcina umswakama ekhayeni lakho: Ukuba umoya womile, ukusebenzisa i-humidifier kunokunceda ukuthintela ukoma kolusu.
Le meko ibuchaphazela njani ubomi bomntwana?
Nangona oku kunokukoyikisa, inyani yile yokuba abantwana abane-Juvenile Localized Scleroderma banokuphila ubomi obuqhelekileyo ngokupheleleyo .
Le meko ichaphazela kakhulu ulusu. Ayilimazi amalungu angaphakathi omzimba (njengentliziyo, imiphunga, kunye nezintso). Kwakhona, ayichaphazeli ubomi bomntwana.
Akukho mqobo kumntwana ukuya esikolweni, ukudlala nabahlobo, ukudlala imidlalo, nokuthatha inxaxheba kwimisebenzi yosapho njengesiqhelo. Enyanisweni, ukuzilolonga yinto elungileyo kuba kuyayomeleza imisipha. Akukho mfuneko yokutya okukhethekileyo neziselo, ukubonelela ngokutya okunempilo nokulinganayo kwanele.
Ngamanye amaxesha, amabala eluswini anokwenza umntwana azive engakhululekanga kwaye eneentloni eluntwini. Kwiimeko ezinjalo, umsebenzi wakho njengomzali kukuthetha nomntwana ngothando, umenze aqonde ukuba oku akulona ityala lakhe, kwaye wakhe ukuzithemba kwakhe.
Umyalezo Wokuya Ekhaya
- I-Juvenile Localized Scleroderma yingxaki yenkqubo yomzimba yokuzikhusela, ayisiyosifo esosulelayo okanye ityala lomntwana.
- Le meko ichaphazela kakhulu ulusu kunye nezicubu ezingaphantsi kwalo, kwaye umonakalo kwizitho zangaphakathi awuqhelekanga.
- Iziphumo ezilungileyo zinokufumaneka ngokubona ugqirha kwangoko nje ukuba uqaphela iimpawu uze uqale unyango ngokukhawuleza.
- Abantwana abanale meko banokuphila ubomi obuqhelekileyo nobusebenzayo. Akukho miqobo kuloo nto.
- Ukuba amabala esikhumba somntwana wakho ayakhula, ebangela iintlungu, okanye ephazamisana nokuhamba kwamalungu omzimba, thetha nogqirha wakho ngoko nangoko.
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