Ngaba umntwana wakho une-scoliosis? Masifunde nge-neuromuscular scoliosis!

Ngaba wakha waziva ngathi umqolo womntwana wakho ugobile kancinci, okanye unzima kwelinye icala? Ngaba kubonakala ngathi kunzima ukuhlala okanye ukuma ngokuthe nkqo? Ngamanye amaxesha sicinga ukuba umntwana ukwenza oku ngenxa yokukruquka. Nangona kunjalo, emva kwezi zinto kunokubakho imeko ebizwa ngokuba yiNeuromuscular Scoliosis . Ungakhathazeki, namhlanje siza kuthetha ngayo yonke into ngokulula.

Yintoni iNeuromuscular Scoliosis?

Ngamafutshane, oku kuxa umqolo womntwana wethu utsalwa ecaleni. Ngokwesiqhelo, umqolo kufuneka uthe tye embindini. Kodwa kule meko, amathambo omqolo (esiwabiza ngokuba yi-"Vertebrae") omqolo ajikeleziswa kancinci ecaleni, nto leyo ebangela ukuba umqolo ugobe ube yimo "C" okanye "S" . Oku akupheleli nje ekugobeni umva, kodwa kuyenzeka nakwezinye iimeko ezichaphazela inkqubo yemithambo-luvo yomntwana (oko kukuthi, ingqondo, intambo yomqolo, kunye nemithambo-luvo) kunye nemisipha.

Khawucinge nje ngoku, sixelela abantwana bethu ukuba “bagcine umqolo wabo uthe tye” etafileni yesidlo sangokuhlwa, akunjalo? Okanye sibalumkisa ukuba “bangahlali ngolo hlobo ebhedini.” Kodwa kumntwana onesi sifo, ukuhlala uthe tye ngumceli mngeni omkhulu. Nokuba bayazama, kunokuba nzima, kwaye ngamanye amaxesha kube buhlungu. Ngoko ke asikuko ukuba umntwana akakuthobeli, kodwa kukuba kunzima kakhulu ukukwenza.

Le scoliosis ayichaphazeli nje kuphela ukuma komntwana wakho. Ungaqaphela ukuba impahla yomntwana wakho ayimfanelanga kakuhle. Ingalo enye isenokubonakala inde kunenye, okanye amaqhosha ehempe asenokungafanelani kakuhle. Oku akubangelwa kukuba impahla inciphile xa ihlanjwa okanye kuba umthungi enze impazamo. Oku kungenxa yemeko ebizwa ngokuba yi-"Neuromuscular Scoliosis".

Ngokwesiqhelo, iimpawu ze-scoliosis zibonakala ngexesha lokufikisa, xa umntwana ekhula ngequbuliso. Nangona kunjalo, kule meko, iimpawu zinokubonakala kwangethuba .

Ekuhambeni kwexesha, olu goso lomqolo lunokwanda. Ukuba oku kuyenzeka, iintlungu kunye nezinye iingxaki zinokwenzeka. Nangona kunjalo, ezi meko zinokulawulwa ngonyango olufanelekileyo, kwaye ngamanye amaxesha utyando.

Ingaba le ntlungu yomqolo iyanda kancinci kancinci?

Ewe, `(Neuromuscular Scoliosis)` yimeko eqhubekayo . Oko kukuthi, ukugoba komqolo kuyawohloka ngokuhamba kwexesha. Ekubeni oku kugoba kwenzeka ebuntwaneni, kunokwanda ngokukhawuleza xa umntwana ekhula ngequbuliso (oko sikubiza ngokuba yi-`(growth spurt)`). Kusenokwenzeka ukuba oku kugoba kunokuqhubeka nokukhula de kube ngumntu omdala.

Ixhaphake kangakanani le meko?

I-neuromuscular scoliosis ixhaphakile kwezinye iimeko ezichaphazela inkqubo yemithambo-luvo kunye nemisipha. Umzekelo, ixhaphakile ukubonakala kwiimeko ezifana ne -muscular dystrophy, i-spinal muscular atrophy (SMA), kunye ne-cerebral palsy (CP) .

Ngokwezibalo, malunga nama-90% abantu abaneDuchenne Muscular Dystrophy kunye nama-80% abantu abaneSpinal Muscular Atrophy baba ne-scoliosis. Phakathi kwama-20% nama-70% abantu abaneCerebral Palsy baba ne-scoliosis.

Ziziphi iimpawu kunye neempawu zoku?

Kule meko, kukho iimpawu zangaphandle onokuzibona kumntwana wakho, kunye neempawu umntwana anokuziva.

Iimpawu zangaphandle ezibonakalayo:

• Amagxa awalingani. Kungabonakala ngathi elinye igxalaba linyukile kwaye elinye lihlile.
• Iimbambo zivele phambili kwelinye icala.
• Izinqe kunye nesinqe zityekile.

Ukuba unomntwana osebenzisa isitulo sabakhubazekileyo, unokubona izinto ezifana nezi:

• Ndihleli ndigobile, ndigobile ecaleni.
• Ukuthambekela kwe-pelvis kwicala elinye.
• Ubunzima bokuhlala phantsi (ukuhlala uxhase izandla okanye iingqiniba).
• Izilonda zoxinzelelo (umonakalo kulusu obangelwa kukuhlala kwindawo efanayo ixesha elide kakhulu).

Ukongeza ekutsalweni komqolo kwicala elinye, ezinye iindlela ezigobileyo zomqolo womntwana zinokubonakala, umzekelo , ukugoba phambili (kyphosis) (njengesinqe esifubeni) okanye ukugoba ngasemva (lordosis) (imeko apho isisu siphuma phambili kwaye umqolo ugoba ngasemva) .

Iimpawu ezibonakaliswa ngumntwana:

Njengoko ukugoba komqolo kusanda, umntwana unokufumana ezi ntlungu zilandelayo:

• Umqolo obuhlungu.
• Ukuziva ungakhululekanga xa uhleli.
• Ubuthathaka bemisipha.
• Ukuba ndindisholo ezandleni nasezinyaweni.
• Uluhlu olulinganiselweyo lwentshukumo.
• Ubunzima bokugcina intloko, umzimba, nentamo zilungelelene kwaye zilawule iintshukumo zazo.

Kutheni oku kusenzeka? Zithini izizathu?

Eyona nto ibangela i-"Neuromuscular Scoliosis" yimeko yezonyango echaphazela inkqubo yemithambo-luvo kunye/okanye izihlunu zomntwana . Xa umntwana enesifo se-neuromuscular, akakwazi ukulawula nokuhambisa ezinye zezihlunu emzimbeni wakhe ngokufanelekileyo. Oku kubangela ukuba izihlunu ezijikeleze umqolo zibe buthathaka kwaye umqolo uqale ukugoba.

Ezinye zeengxaki zempilo eziphambili ezinokunxulunyaniswa nolu hlobo loxinzelelo lomqolo zezi:

• Umvakalelo yokitazo
• I-Duchenne Muscular Dystrophy
• Ukukhubazeka komzimba
• I-Spine Bifida (imeko yomqolo eyenzeka xa umntu ezalwa)
• Ukuwohloka kweMisipha yoMgogodla

Zithini izinto ezibangela umngcipheko?

Ukuba umntwana wakho unesifo semithambo-luvo okanye usebenzisa isitulo esinamavili ukuhambahamba, kukho ithuba elikhulu lokufumana isifo seNeuromuscular Scoliosis.

Zeziphi iingxaki ezinokubangela oku?

Ukuba ukugoba komqolo kuba nzima ngenxa ye-Neuromuscular Scoliosis, iingxaki ezifana nezi:

• Uxinzelelo lokuphefumla:Iimeko ezifana ne-"Thoracic Insufficiency Syndrome", ezibangela ubunzima bokuphefumla kunye nokungabikho kwesithuba esifubeni.
• Ubunzima bokusebenza ngokuzimela: Umzekelo, ubunzima bokunxiba okanye ukutya wedwa.
• Ubunzima bokuhamba: Ubunzima bokuhamba.
• Umonakalo wemithambo-luvo.
• Iingxaki ngenkqubo yentliziyo.

Ukongeza kwezi ngxaki zomzimba, imeko ethi `(Neuromuscular Scoliosis)` kunye nemeko yezonyango ebangela oku kunokubangela ukuba umntwana angazithembi . Ukuphila neemeko ezininzi zezempilo ngaxeshanye akulula. Oku kwandisa umngcipheko wokuba umntwana adandatheke, ahlupheke zizifo ezifana `(Depression)` okanye `(Anxiety) . Ke ngoko, kubaluleke kakhulu ukunyamekela impilo yengqondo yomntwana, kwaye ukuba kuyimfuneko, funa ingcebiso yengcali yezempilo yengqondo.

Uyixilonga njani le nto?

Ukuze kufunyaniswe imeko ethi ``Neuromuscular Scoliosis``, ugqirha uza kuqala enze uvavanyo lomzimba aze abuze ngeempawu. Baza kujonga nembali yezonyango yomntwana kunye nokuba kukho nabani na kusapho lwakhe okhe waba neemeko ezifanayo.

Ngexesha lovavanyo, ugqirha uza kujonga ngononophelo umqolo womntwana, ukuma kwakhe, kunye nokulinganisela kwakhe. Ulusu luza kuhlolwa ukuba alunazo na izilonda zoxinzelelo. Isixhobo esibizwa ngokuba yi-scoliometer sinokusetyenziswa ukulinganisa ukugoba komqolo. Ukongeza, iimvavanyo zomfanekiso ezifana ne-X-ray okanye i-MRI scan zinokwenziwa ukuze kubonwe kakuhle imeko yomqolo.

Zithini iindlela zonyango?

Ugqirha uza kuqala azame ukulawula le meko ngonyango olungelulo utyando.

Unyango olungelulo utyando

• Utshintsho kwisihlalo sabakhubazekileyo: Ukuba umntwana wakho usebenzisa isitulo sabakhubazekileyo, ugqirha unokucebisa ukuba wongeze isihlalo esingasemva okanye izixhaso ezisecaleni kwisihlalo sabakhubazekileyo ukuze akwazi ukulinganisela ngokulula.
• Unyango lomzimba: Ingcali yonyango lomzimba iya kufundisa umntwana wakho imithambo yokuqinisa amaqela emisipha achaphazelekileyo. Oku kunokunceda ukujongana neengxaki zokulinganisela kunye nokwandisa amandla omntwana okusebenza ngokuzimeleyo.
• I-brace brace: Oku kusenokucetyiswa okanye kungacetyiswa kuxhomekeke kwimeko yomntwana. Umzekelo, i-brace brace enxitywa kwisiqu somntwana osebenzisa isitulo esinamavili inokumnceda ukuba agcine ibhalansi ngelixa ehleli. Nangona kunjalo, ayizukuthintela ukugoba komqolo ukuba kukhule. I-brace brace ayikhuselekanga kubantwana abahambahambayo. Inokunyusa umngcipheko wokuba bawe baze balahlekelwe yibhalansi yabo.

Kubalulekile:Unyango olungelulo utyando lunokucothisa okanye lumise ukugoba komqolo, kodwa alunakuwulungisa ngokupheleleyo umgobo womqolo.

Utyando

Utyando lwe-"Neuromuscular Scoliosis" lunokuthintela ukugoba ukuba kube kubi kwaye luzinzise umqolo. Ugqirha angacinga ngotyando kwezi meko zilandelayo:

• Ukuba ukugoba komqolo kungaphezulu kwama-40 degrees kwaye kuqhubeka nokuba mandundu.
• Ukuba umntwana unesihlungu okanye akakhululekanga.
• Ukuba kukho iingxaki ezichaphazela ukusebenza kwemiphunga okanye kwentliziyo.

Ngaphambi kokuba agqibe ngotyando, ugqirha uza kuqwalasela ngononophelo impilo yonke yomntwana, uhlobo lwesifo semithambo-luvo esikhoyo, kunye nobunzima bokuqaqamba komqolo. Kuza kukhethwa ukhetho olukhuselekileyo lonyango lwemeko yomntwana.

Iindidi zotyando ezenzelwe i-neuromuscular dystrophy:

Kukho iintlobo ezimbini eziphambili zotyando:

1. Ukuhlanganiswa Komqolo: Kolu tyando, ugqirha ulungisa umqolo womntwana aze adibanise amalungu omqolo achaphazelekileyo. Oku kubandakanya ukusebenzisa izihluzo zamathambo, iintonga zesinyithi, kunye nezikrufu . Ezi zisetyenziselwa ukubamba amathambo kunye de amathambo omabini aphile njengenye. Nangona kunjalo, emva kolu tyando lokuhlanganiswa komqolo, ukukhula kwethambo elidityanisiweyo kuyayeka. Oku kunokubangela ukuba umntwana abe mfutshane ngobude.

2. Iintonga Zokukhulisa: Olu tyando lulungele abantwana abasakhula. Ugqirha ufaka intonga ecaleni komqolo womntwana. Le ntonga izinzisa umqolo kwaye ilungise ukugoba. Njengoko umntwana ekhula, intonga inokwandiswa rhoqo emva kweenyanga ezi-6-8, nokuba ngotyando oluncinci okanye ngenkqubo yokwandisa i-magnetic eofisini. Xa umntwana efikelela ekuvuthweni kwamathambo, oko kuthetha ukuba akasakhuli, ugqirha uyayisusa intonga aze enze i-spinal fusion.

Umntwana one-"Neuromuscular Scoliosis " usengozini enkulu yokufumana iingxaki ngexesha lotyando, ezifana nosulelo okanye umonakalo wemithambo-luvo, kuba ulawula enye imeko yezonyango engaphantsi. Kwakhona, ugqirha kufuneka anyange iindawo ezininzi zomqolo ngaxeshanye, nto leyo eyonyusa umngcipheko weengxaki .

Iqela lezonyango lomntwana wakho liza kuhlola ngononophelo ukuba utyando lukhuselekile na kwaye liza kukufundisa ngemiphumo emibi enokubakho ngaphambi kwenkqubo, ukuze ukwazi ukwenza isigqibo esinolwazi malunga nokhathalelo lomntwana wakho.

Iyintoni ikamva lale meko? (Ingqikelelo)

Imbono yomntwana ixhomekeke kwizinto ezininzi:

• Impilo yomntwana iyonke.
• Uhlobo lwesifo esibangela iintlungu zomqolo.
• Ubunzima bokugoba komqolo kunye nesantya okunyuka ngaso.
• Iindlela zonyango ezifanelekileyo kwimeko yomntwana.

Nangona utyando lunokulungisa i-scoliosis, kukho iingozi ezibandakanyekileyo. Iqela lezonyango lomntwana wakho liya kusoloko lizama ukubonelela ngonyango olukhuselekileyo kwimpilo-ntle yomzimba nengqondo yomntwana wakho. Ukuba unemibuzo malunga nembono yomntwana wakho, thetha nogqirha wakho.

Kuthekani ngobomi bomntu?

I-Neuromuscular Scoliosis isenokuchaphazela okanye ingachaphazeli ubomi bomntwana wakho. Nangona kunjalo, kwiimeko ezinzima, iingxaki zinokwenzeka ezichaphazela intliziyo nemiphunga. Ezi zinokuba yingozi ebomini. Ukuba umntwana wakho usemngciphekweni weengxaki ezinkulu, iqela lezonyango lomntwana wakho liya kukucebisa ngento omawuyilindele.

Ngaba oku kungathintelwa?

Ngelishwa, akukho ndlela yokuthintela uphuhliso lwe-"Neuromuscular Scoliosis". Nangona kunjalo, ukuba esi sifo sifunyenwe kwangethuba kwaye unyango luqala kwangethuba , oogqirha banokukwazi ukucothisa ukuqhubela phambili kwe-curve okanye bade bayilungise ngotyando.

Ndifanele ndimbone nini ugqirha?

Ukuba ubona iimpawu ze-scoliosis kumntwana wakho, ezinje ngobunzima bokuhlala phantsi, ukungazinzi kwamagxa, okanye izilonda zoxinzelelo , bonana nogqirha ngokukhawuleza .

Ukuba umntwana wakho sele efunyenwe ene-Neuromuscular Scoliosis, thetha nogqirha ukuba ufumana iimpawu ezifana nentlungu, ukungonwabi, ubunzima bokuphefumla, okanye ezinye iingxaki.

Yeyiphi imibuzo omele uyibuze ugqirha?

Ungabuza ugqirha womntwana wakho imibuzo efana nale:

• Luhlobo luni lonyango olucetyiswayo?
• Ngaba umntwana wam udinga utyando?
• Zithini iziphumo ebezingalindelekanga zonyango?
• Ndingamgcina njani umntwana wam ekhuselekile kwaye ekhululekile?

Umyalezo obalulekileyo kuwe (Umyalezo oya ekhaya)

Njengomzali, kuyinto eqhelekileyo ukuziva uxinezelekile kwaye uxhalabile xa ufumanisa ukuba umntwana wakho akanayo enye imeko, kodwa zimbini (isifo se-neuromuscular kunye ne-neuromuscular scoliosis). Usenokuba neengcinga ezininzi malunga nekamva kunye nendlela yokugcina umntwana wakho ekhululekile. Oku kunokuba nzima kakhulu. Kodwa khumbula, akufuneki ujongane nezi zinto wedwa.

Ngenxa yokuba i-neuromuscular scoliosis yimeko eqhubekayo, kuya kufuneka ubone iqela lezonyango lomntwana wakho rhoqo. Ngexesha lotyelelo, ugqirha uya kulinganisa ukugoba komqolo womntwana wakho. Ukuba ukugoba kunzima, ugqirha unokuqwalasela utyando ukuba iingozi zotyando zingaphezulu kuneenzuzo zomntwana wakho.

Ukuba unemibuzo malunga nembono yomntwana wakho okanye indlela onokubanceda ngayo ekhaya, ungoyiki ukuthetha nogqirha wakho. Baza kukunika ulwalathiso olufunayo. Masisebenzisane sonke ukuze sinike umntwana wakho iziphumo ezilungileyo kangangoko.

"I-Neuromuscular Scoliosis, Iintlungu zomqolo, I-Scoliosis, Impilo yomntwana, Izifo ze-neurological, Izifo ze-Musculoskeletal, Umqolo