Xa ugqirha wakuxelela emva kovavanyo ukuba umntwana wakho une-Omphalocele, umele ukuba waziva uloyiko olukhulu kunye nokothuka. Okanye usenokuba umangalisiwe kukubona into efana nale emva kokuba umntwana ezelwe kwaye ungenakukwazi nokuyicinga into eyenzekileyo. Kuqhelekile kakhulu. Kodwa ungakhathazeki. Le yimeko enokulawulwa ngempumelelo kwisayensi yezonyango. Ngoko ke, masithethe ngayo yonke into ngokulula nangokucacileyo namhlanje.
Yintoni i-Omphalocele?
Ngamafutshane, i-Omphalocele yimeko ebakho ukususela ekuzalweni. Okwenzekayo kukuba amalungu esisu omntwana (njengamathumbu nesibindi) aphuma ngenkaba. Kodwa la malungu aphumayo awakho nje apho. Agqunywe kwaye akhuselwe yi-membrane encinci, ecacileyo . Ibonakala njengengxowa encinci, ecacileyo enezinye zezamalungu esisu aphumayo. Le membrane yenziwe nge-peritoneum, i-membrane ejikeleze ngaphakathi kwesisu.
Inokwenzeka njani into efana nale?
Ukuze uqonde oku, kufuneka wazi kancinci ngento eyenzekayo kumanqanaba okuqala okukhula komntwana esibelekweni.
Khawucinge nje, phakathi kweveki yesi-6 neye-10 yokukhulelwa, xa umzimba womntwana ukhula ngokukhawuleza, amathumbu omntwana amade kancinci, ngoko akukho ndawo yaneleyo esiswini kwaye aphuma okwethutyana aye kwi-umbilical cord. Oku kuqhelekile ngokupheleleyo .
Okuqhelekileyo kukuba malunga neeveki ezili-11 , isisu somntwana siya kuvuleka kwaye amathumbu aphumileyo abuyele esiswini.
Nangona kunjalo, ukuba ngesizathu esithile la mathumbu awabuyeli esiswini, imeko ebizwa ngokuba yi-Omphalocele iyenzeka.
Kubalulekile ukuqaphela ukuba oku akulona ityala lakho. Le yingxaki eyenzeka ngexesha lokukhula komntwana.
Ngaba kukho iintlobo ze-omphalocele?
Ewe, i-Omphalocele inokwahlulwa ibe ziintlobo ezimbini eziphambili ngokusekwe kubukhulu besitho esiphumileyo.
| Uhlobo lwe-Omphalocele | Inkcazo |
|---|---|
| I-Omphalocele encinci | Kuphuma inxalenye yamathumbu kuphela. Umnyango osesiswini uhlala ungaphantsi kweesentimitha ezi-5. |
| I-Omphalocele enkulu | Kwimeko enjalo, uninzi lwezitho zesisu (ezifana namathumbu, isibindi, kunye ne-spleen) zisenokuba ziphumile. Umnyango mkhulu kuneesentimitha ezi-5. |
Ngaba ezinye iingxaki zingavela ngale meko?
Ewe, malunga nesibini kwisithathu seentsana ezine-omphalocele zisenokuba nezinye iingxaki zempilo. Yiyo loo nto oogqirha benika ingqalelo ekhethekileyo koku.
- Ukungahambi kakuhle kwe-chromosome: Oku kunokunxulunyaniswa nezinye iimeko zemfuza.
- Ukukhubazeka kwentliziyo: Umntwana usenokuba neziphene ezithile zentliziyo.
- Ukukhula kakubi kwemiphunga: Ngenxa yezitho zesisu eziphumayo, kusenokubakho indawo eyaneleyo esifubeni kwaye imiphunga isenokungaphuhli kakuhle.
- Iingxaki zenkqubo yokugaya ukutya: Izinto ezifana nokungasebenzi kakuhle kwamathumbu zinokwenzeka.
- Isifo sikaBeckwith-Wiedemann: Esi sisifo esibonakaliswa ziimpawu ezifana nolwimi olukhulu kunye namanqanaba aphantsi eswekile egazini.
Oogqirha bahlola umntwana ngononophelo ngaphambi nasemva kokuzalwa ukuze babone ukuba akukho naziphi na ezinye iingxaki ezifana nale.
Ziziphi izinto ezibangela umngcipheko wokukhula kwe-omphalocele?
Nangona kungenakwenzeka ukutsho ngqo ukuba yintoni ebangela oku, uphando lufumanise ukuba izinto ezithile zinokunyusa kancinci umngcipheko wale meko.
| Into enobungozi | Ingcaciso elula |
|---|---|
| Ubudala bomama | Abantwana abazelwe ngoomama abangaphezu kweminyaka engama-35 ubudala banokuba sengozini engakumbi. |
| Utywala kunye nokutshaya | Ukusela utywala nokutshaya ngexesha lokukhulelwa kunokuba nemiphumo emibi kakhulu. |
| I-genetics | I-Omphalocele inokwenzeka xa kukho izinto ezithile ezingaqhelekanga kwi-chromosome, ezifana neTrisomy 13, 18, okanye 21. |
| Iimeko zempilo kamama | Iimeko ezinje ngokutyeba kakhulu komama, isifo seswekile, okanye uxinzelelo lwegazi oluphezulu zinokunyusa umngcipheko. |
| Amanye amayeza | Kukho ubungqina bokuba amanye amayeza athathwa ngaphandle kwengcebiso kagqirha, ingakumbi amanye amayeza okudakumba (ii-SSRI), anokunyusa umngcipheko. |
Oogqirha bayibona njani le nto?
Le meko idla ngokubonwa ngaphambi kokuba umntwana azalwe, ngexesha lokuhlolwa kwe-ultrasound ngaphambi kokukhulelwa kwakho. Ngokwesiqhelo, ukuvavanywa okwenziwe kwikota yesibini okanye yesithathu kunokubonisa ngokucacileyo amalungu omntwana akhula ngaphandle kwesibeleko.
Xa sele kufunyenwe i-omphalocele, ugqirha uhlala eyalela i-scan ekhethekileyo ebizwa ngokuba yi-fetal echocardiogram ukujonga naziphi na iingxaki ngentliziyo yomntwana.
Kwiimeko ezingaqhelekanga kakhulu, ukuba oku akubonwanga ngexesha lokuskena, imeko ibonakala kwangoko emva kokuba umntwana ezelwe. Ukuba oku kuyenzeka, iqela lezonyango liza kuthatha onke amanyathelo afunekayo ngoko nangoko.
Iphathwa njani?
Unyango lwe-omphalocele lutyando. Nangona kunjalo, indlela olu tyando olwenziwa ngayo ixhomekeke kwizinto ezininzi.
- Ubungakanani be-omphalocele (nokuba incinci okanye inkulu).
- Impilo yomntwana iyonke.
- Ingaba umntwana wazalwa ngexesha okanye ngaphambi kwexesha?
- Jonga ukuba i-membrane egqume ilungu eliphumayo ayiphukanga na kwaye ayiphukanga.
Ukunyanga i-Omphalocele encinci
Ukuba umntwana une-omphalocele encinci, oogqirha baya kwenza utyando kungekudala emva kokuba umntwana ezelwe. Oku kuquka ukubeka ngononophelo amalungu aphumayo esiswini nokuvala umngxuma oseludongeni lwesisu. Oku kunokunceda ukuthintela usulelo kunye nomonakalo kumalungu.
Unyango lwe-Omphalocele enkulu
Ukuba umntwana une-Omphalocele enkulu, oko kuthetha ukuba amalungu amaninzi aphumile, utyando alwenziwa ngaxeshanye. Lwenziwa ngamanqanaba aliqela .
Khawucinge ukuba ubunokuzama ukufaka izinto ezininzi ezinkulu kwingxowa encinci ngaxeshanye, bekungayi kubakho sithuba saneleyo, kwaye awunakukwazi ukufaka zonke ezi zitho ngaphakathi kwesisu esincinci somntwana ngaxeshanye. Ukwenza njalo kunokuthintela ukuhanjiswa kwegazi kwizitho, konyuse uxinzelelo ngaphakathi esiswini, kwaye kwenze kube nzima kumntwana ukuphefumla.
Ngoko ke, oogqirha bawatyhala kancinci amalungu omzimba abuyele esiswini kangangeentsuku okanye iiveki. Ngeli xesha, amalungu angaphandle agqunywe ngeshiti engenazintsholongwane ukuthintela usulelo. Emva kokuba isisu somntwana sikhule ngokwaneleyo ukuba singene kuzo zonke izitho, kwenziwa utyando lokugqibela ukuze kuvalwe umngxuma.
Iintsana ezine-Omphalocele enkulu kangaka ngamanye amaxesha zinokuba nobunzima bokuphefumla ngenxa yemiphunga engakhulanga kakuhle. Kwiimeko ezinjalo, umntwana unikwa inkxaso ye -ventilator de akwazi ukuphefumla ngokwakhe.
Liza kuba njani ikamva lomntwana?
Lo ngumbuzo omkhulu engqondweni yabo bonke abazali.
Ukuba umntwana une-omphalocele kuphela, oko kuthetha ukuba akukho ezinye iingxaki zempilo ezinkulu, emva kotyando oluphumeleleyo, umntwana angaphila ngokupheleleyo aze aphile ubomi obuqhelekileyo.
Nangona kunjalo, njengoko besitshilo ngaphambili, ukuba kukho ezinye iingxaki ezifana neziphene zentliziyo okanye iingxaki ze-chromosome, impilo yomntwana kwixesha elizayo nayo iya kuxhomekeka kwezo zinto.
Lilonke, izinga lokusinda kweentsana ezizalwa zine-omphalocele liphezulu ukuya kuthi ga kwi-95%. Nangona kunjalo, ezi zibalo zinokuchaphazeleka zezinye iingxaki zempilo. Ugqirha wakho unokuchaza ngcono imeko yomntwana wakho. Thetha naye ngokukhululekileyo ngale nto.
Ndifanele ndithethe nini nogqirha emva kotyando?
Xa uzisa umntwana wakho ekhaya emva kotyando, kukho izinto ezimbalwa ekufuneka uzazi. Ukuba ubona naziphi na iimpawu ezingezantsi, fowunela ugqirha wakho ngoko nangoko.
| Iimpawu ekufuneka uziqaphele | Inkcazo |
|---|---|
| Ifiva | Ukuba ubushushu bomzimba womntwana wakho buvakala buphezulu kunesiqhelo. |
| Ububomvu okanye ukudumba kwenxeba | Ukuba ulusu olujikeleze indawo yotyando lubomvu, ludumbile, kwaye luvakala lushushu xa luchukunyiswa. |
| Into ephuma enxebeni | Ukuba kukho into efana nobovu, ulwelo, okanye igazi eliphuma enxebeni. |
| Ukuhlanza | Ukuba umntwana wakho uyaqhubeka nokuhlanza, ingakumbi ukuba ukuhlanza kuluhlaza , oko kungaba luphawu lokuba amathumbu akhe avaliwe. |
Uloyiko, ixhala, kunye nokungaqiniseki okuzivayo xa ufumanisa ukuba umntwana wakho unesiphene sokuzalwa esifana nesi kuyandoyikisa. Kodwa awuwedwa. Ugqirha wakho kunye neqela lezonyango esibhedlele bahlala bekulungele ukunceda wena nomntwana wakho. Thetha nabo ngayo nayiphi na imibuzo okanye iinkxalabo onokuba nazo. Baza kukuchazela yonke into malunga nenkqubo yokuzalwa kunye nesicwangciso sonyango lomntwana wakho emva koko.
Umyalezo Wokuya Ekhaya
- I-Omphalocele yingxaki eyenzeka ngexesha lokukhula komntwana, kungekhona ityala labazali.
- Amaxesha amaninzi, le meko inokubonwa ngeskeni ngaphambi kokuba umntwana azalwe, nto leyo evumela ukuba umntwana alungiselele unyango olufunekayo kwangethuba.
- Unyango lutyando, kwaye indlela imiselwa ngobukhulu be-omphalocele kunye nempilo yomntwana.
- Ngaphandle kokuba kukho ezinye iingxaki ezinkulu zempilo, uninzi lweentsana luyaphila ngokupheleleyo kwaye luphila ubomi obuqhelekileyo emva kotyando.
- Thetha ngokukhululekileyo nogqirha wakho kunye neqela lezonyango malunga nemibuzo okanye iinkxalabo onokuba nazo. Bahlala bekulungele ukukuxhasa.
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