Ngaba umntwana wakho unokuba nale ngxaki 'efihliweyo' ngomqolo wakhe? (I-Spina Bifida Occulta) Masifunde ngayo.

Hayi, kuqhelekile ukuba nexhala xa sicinga ngabantwana bethu abancinci, sizibuza ukuba yonke into ilungile na. Ngamanye amaxesha abazi nokuba ilungile na, kwaye asinakuyibona na ngaphandle. Enye yezo zinto yiSpine Bifida Occulta . Nangona igama livakala ngathi yinto enkulu, ungakhathazeki, uninzi lwexesha alibalulekanga kangako. Makhe sithethe ngale nto ngokweenkcukacha, akunjalo?

Yintoni i-Spina Bifida Occulta?

Ngamafutshane, i-Spine Bifida Occulta sisiphene sokuzalwa esenzeka xa umqolo ungakhuli kakuhle ngexesha lokukhulelwa, xa umntwana esesesibelekweni.

Igama elithi "occulta" lithetha "ifihliwe." Yingakho ikwabizwa ngokuba "yi-spina bifida efihliweyo." Oku kungenxa yokuba umngxuma osemqolo ugqunywe lulwelo oluncinci lwesikhumba, ngoko ke alubonakali kwihlabathi langaphandle. Oku kuthetha ukuba akukho mahluko ubonakala ngamehlo enyama. Olu lolona hlobo lulula noluqhelekileyo lwe-spina bifida.

Ngubani osengozini enkulu yokuhlaselwa yi-Spina Bifida Occulta?

Le meko inokuchaphazela nabani na. Nangona kunjalo, abanye abantu basengozini enkulu yokuba nomntwana one-Spina Bifida Occulta. Makhe sijonge ukuba yintoni na:

• Ukunqongophala kwe-folate kumama ngexesha lokukhulelwa: I-folate luhlobo lwe-vitamin B9. Ifumaneka ekutyeni okuninzi, okufana nemifuno eluhlaza, iimbotyi, amandongomane, kunye neenkozo ezipheleleyo. Ukuba umama okhulelweyo akafumani ngokwaneleyo le folate okanye i-folic acid, usemngciphekweni.
• Imbali yosapho ye-spina bifida (impembelelo yemfuza): Ukuba kukho umntu kusapho lwakho okhe waba nale meko ngaphambili, oko kuthetha ukuba kunokubakho unxibelelwano oluncinci lwemfuza .
• Isifo Seswekile okanye Ukutyeba Kakhulu Kumama Okhulelweyo: Ukuba umama unesifo seswekile esingalawulekiyo okanye utyebile kakhulu, sinokuchaphazela nomntwana ongekazalwa.
• Usana lunezinye iimeko zofuzo: Ngamanye amaxesha le ngozi inokwanda ukuba umntwana unezinye iimeko zofuzo, ezifana neDown syndrome, i-Edwards syndrome, okanye i-Patau's syndrome .
• Amanye amayeza umama awasebenzisayo xa eneengxaki ezifana nesifo sokuwa: Umzekelo, ukuba usebenzisa amayeza okulwa nesifo sokuwa anjenge -valproate okanye i-carbamazepine , oko kunokuba nefuthe.

Ukuba uceba ukukhulelwa, kubaluleke kakhulu ukuthetha nogqirha malunga namayeza owasebenzisayo ngoku kunye nembali yemfuza yosapho lwakho.

Ixhaphake kangakanani le meko?

I-Spina Bifida Occulta lolona hlobo luqhelekileyo lwe-spina bifida. Kuqikelelwa ukuba phakathi kwe-10% kunye ne-20% yabemi baseMelika banale meko. Oku kuthetha ukuba ayinqabile njengoko unokucinga.

I-Spina Bifida Occulta iyichaphazela njani umzimba wam?

Olu lolona hlobo lulula lwe-spina bifida, ngoko ke alunazo iziphumo ezininzi ezibi emzimbeni njengezinye iintlobo ezinzima. Iimpawu ezichaphazela izinto ezifana nokuhamba azixhaphakanga, ingakumbi ebuntwaneni. Malunga nomntu omnye kwabayi-1000 abane-spina bifida occulta bavelisa iimpawu . Oku kwenzeka ngexesha lokukhula ngokukhawuleza besebancinci xa umqolo utsalwa . Oku kunokuba nempembelelo encinci kwizinto ezinje ngamandla emisipha kunye nolawulo lwamathumbu kunye nesinyi. Nangona kunjalo, nangona kunjalo, iimpawu zinokuncitshiswa ngonyango olufanelekileyo.

Zithini iimpawu ze-Spina Bifida Occulta?

Njengoko bekutshiwo ngaphambili, olu luhlobo oluncinci kakhulu lwe-Spine Bifida, ngoko ke uninzi lwexesha akukho zimpawu . Nangona kunjalo, abanye abantwana abane-Spine Bifida Occulta banokuba ne -skin tag emqolo wabo ongezantsi xa bezalwa. Oku kungaba:

• Njengeqhubu elincinci.
• Ibala elibomvu okanye elimfusa (i-hemangioma) .
• Uphawu olumnyama lokuzalwa .
• I-dimple eluswini.

Kodwa ezi mpawu azibonakali kumntwana ngamnye.

Kunqabile kakhulu, ezinye iimpawu zinokwenzeka ngenxa yomonakalo wemithambo-luvo (ukungabikho kwe-neurologic deficit). Ezi ziquka:

• Iingxaki zamathumbu kunye/okanye zomchamo (umz. ukuqhina, ukungakwazi ukuzibamba).
• Umqolo obuhlungu .
• Ubuthathaka bemisipha yemilenze .
• I-Scoliosis .

Ngaba iimpawu zingabonakala xa umntu emdala?

Iimpawu zihlala zisenzeka kumntu omnye kwabaliwaka, rhoqo ngexesha lokufikisa, xa umqolo wolulwa ngexesha lokukhula ngequbuliso. Abantwana abaninzi abane-spina bifida occulta abanazo iimpawu. Nangona kunjalo, ezi mpawu zingaqhelekanga zinokukhula njengoko umqolo wolulwa uqhubeka ngexesha lokufikisa okanye lokuba ngumntu omdala.

Zithini izizathu ze-Spina Bifida Occulta?

Isizathu esichanekileyo se-Spina Bifida Occulta asikaziwa , kodwa uphando lubonisa ukuba isenokuba ibangelwa kukudibana kwezinto zemfuza, izondlo, kunye neemeko ezingqongileyo. Ezi ziquka:

• Ukunqongophala kwe-folate (i-vitamin B9) kumama ngexesha lokukhulelwa.
• Imbali yosapho yale meko (imfuza) .
• Umama okhulelweyo unesifo seswekile esingalawulekiyo .
• Ukutyeba kakhulu kumama okhulelweyo.
• Impendulo kumayeza anjenge -valproate okanye i-carbamazepine, asetyenziselwa ukunyanga izifo ezifana nokuxhuzula.

Ngoko ke, ukuba uceba ukukhulelwa, kubalulekile ukuthetha nogqirha wakho ukuze uqonde umngcipheko wokuba umntwana wakho abe nesifo esifana ne-Spine Bifida Occulta. Angakucebisa ukuba kufuneka wongeze i-folate okanye i-folic acid ekutyeni kwakho, okanye ukuba naliphi na iyeza olisebenzisayo ngoku linokuba yingozi kwimpilo yomntwana wakho.

Ifunyanwa njani i-Spina Bifida Occulta?

I-Spine Bifida idla ngokufunyaniswa ngexesha lokukhulelwa nge -ultrasound scan . Nangona kunjalo, ngenxa yokuba i-Spine Bifida Occulta yimeko ebuthathaka kakhulu, "efihlakeleyo", ihlala ingafunyaniswa okanye ifunyaniswa kuphela xa umntu emdala . Oku kungenxa yokuba le meko ayisoloko ibangela iimpawu.

I-Spine Bifida Occulta idla ngokuchongwa ngengozi xa kwenziwa i-X-ray yomqolo ngenxa yengozi okanye ukwenzakala .

I-Spine Bifida Occulta ifunyaniswa ngovavanyo lwemifanekiso olufana ne -X-ray, i-MRI scan, okanye i-CT scan . Olu vavanyo lunokubonelela ngomfanekiso ocacileyo wamathambo omqolo angazange akheke kakuhle ngexesha lesigaba somntwana ongekazalwa.

Iphathwa njani i-Spina Bifida Occulta?

Iindaba ezimnandi zezokuba uninzi lweemeko ze-Spina Bifida Occulta azidingi naluphi na unyango .

Nangona kunjalo, kwiimeko ezingaqhelekanga apho kuvela khona iimpawu, unyango lujolise ekunciphiseni uxinzelelo kumqolo. Unyango lungabandakanya:

• Utyando lokuvala umsantsa phakathi kwamathambo omqolo.
• Unyango lomzimba okanye unyango lomsebenzi ukuphucula amandla emisipha.
• Ukusebenzisa izixhobo zokuncedisa ezifana nesixhaso somqolo, isixhobo sokuhamba, okanye isitulo esinamavili.
• Ukunika amayeza kwiingxaki zamathumbu okanye zomchamo.

Ngawaphi amayeza anikwa i-Spina Bifida Occulta?

Ukuba kuvela iimpawu, amayeza anjengala anokufuneka ukunyanga:

• Iipilisi zokunciphisa iintlungu zomqolo.
• Kwiingxaki zamathumbu ezifana nokuqhinwaIilaxatives, iisuppositories, kunye/okanye ii-enemas.
• Ii-antibiotics zokuthintela usulelo emva kotyando.
• Amayeza athile okuthomalalisa isinyi nokunyanga iingxaki zomchamo.

Ungayinciphisa njani ingozi ye-Spina Bifida Occulta?

Ekubeni unobangela ochanekileyo ungaziwa, akukho ndlela yokuthintela ngokupheleleyo le meko. Nangona kunjalo, ukuba uceba ukukhulelwa, ungathatha la manyathelo ukunciphisa umngcipheko wokuba nomntwana one-Spina Bifida Occulta:

• Ukuthatha i-Folic Acid: I-US CDC (iZiko loLawulo lweZifo kunye nokuThintela) icebisa ukuthatha i-400 micrograms (400 mcg) ye-folic acid yonke imihla. Oku kunokunciphisa umngcipheko wokuba nomntwana one-Spina Bifida malunga ne-75%!
• Ukuthetha nogqirha wakho: Thetha nogqirha wakho malunga namayeza, iivithamini, kunye nezongezo ozisebenzisayo ngoku. Amanye amayeza, ingakumbi lawo esifo sokuwa, anokuba negalelo ekuphuhlisweni kwe-spina bifida occulta.
• Ukulawula iimeko ezikhoyo: Ukuba uneemeko ezikhoyo ngaphambili ezifana nesifo seswekile okanye ukutyeba kakhulu, sebenzisana nogqirha wakho ukuze ulawule ezo meko ngaphambi kokuba ukhulelwe.
• Uvavanyo lwemfuza: Ukuba kukho umntu kusapho lwakho oye waba neemeko zemfuza, thetha nogqirha wakho malunga novavanyo lwemfuza ukuze uqonde umngcipheko wokuba nomntwana onemeko yemfuza.

Kuza kwenzeka ntoni ukuba ndine-Spina Bifida Occulta?

Akukho nyango lwe-Spine Bifida Occulta. Nangona kunjalo, nokuba unayo le meko, usenokungazi nokuba iyenzeka kuba iimpawu aziqhelekanga kwaye zincinci. I-Spine Bifida Occulta ichaphazela wonke umntu ngokwahlukileyo. Ukuba uneengxaki okanye iimpawu ezibangelwa kukucinezelwa komqolo, unyango lunokunceda ukuzikhulula.

Ndingazinyamekela njani?

Zonke izifo ezibangelwa yi-Spine Bifida Occulta zahlukile. Kwiimeko ezininzi, azichaphazeli ubomi bakho bemihla ngemihla okanye umsebenzi wakho . Ukuba ubonakalisa iimpawu, landela isicwangciso sonyango esinikwa ngugqirha wakho.

Ndifanele ndimbone nini ugqirha?

Bona ugqirha ukuba uneempawu ze-spina bifida occulta, ingakumbi ezo zichaphazela intshukumo yakho . Ukuba iimpawu zakho zinzima kangangokuba awukwazi ukwenza imisebenzi yakho yemihla ngemihla, ukuya esikolweni, okanye ukusebenza ngenxa yentlungu okanye ukungakwazi ukuzibamba, bona ugqirha ukuze ufumane unyango.

Ndingayibuza yiphi imibuzo ugqirha wam?

• Ngaba ndisemngciphekweni wokuba nomnye umntwana one-Spina Bifida Occulta?
• Ndingazigcina njani ndisempilweni ngexesha lokukhulelwa kwam?
• Zithini iingozi zotyando lokunyanga i-Spina Bifida Occulta?
• Ngaba kukho naziphi na iziphumo ebezingalindelekanga kunyango olucetyisiweyo?

Yintoni umahluko phakathi kwe-Spina Bifida Occulta kunye ne-Spina Bifida Cystica?

Ngamafutshane, i-Spina Bifida Occulta lolona hlobo lulula noluqhelekileyo lwe-Spine Bifida. Uninzi lwabantu abanale meko abanazo naziphi na iimpawu ezibonakalayo okanye iimpawu ezichaphazela intshukumo.

I-Spine Bifida Cystica luhlobo olubi kakhulu. Ibonakala ngesingxobo esizaliswe lulwelo (i-cyst) esiphuma emqolo womntwana osezantsi. Esi ngxobo luphawu lweemeko ezibizwa ngokuba yi-spina bifida meningocele kunye ne-myelomeningocele.

Nangona abantwana abane-Spine Bifida Occulta benomsantsa phakathi kwamathambo omqolo, i-sac egcwele ulwelo (i-cyst) ayibonakali ngaphandle komqolo.

Iimeko ezininzi ze-Spina Bifida Occulta azifunyaniswa, kwaye nokuba zifunyaniswa, azidingi unyango kuba azinazo iimpawu.

Okokugqibela, kufuneka ndithi... (Umyalezo Wokuya Ekhaya)

Ngoko ke, mhlawumbi uyaqonda ngoku ukuba i-Spina Bifida Occulta ayiyonto yokoyika. Abantu abaninzi banayo, kodwa abazi nokuba injalo, kwaye ayibangeli ngxaki ebomini babo.

Eyona nto ibalulekileyo kukuba wonke umama okhulelweyo kufuneka athathe i-folic acid eyaneleyo ngaphambi nangexesha lokukhulelwa . Kubaluleke kakhulu ukuthetha ngokukhululekileyo nogqirha wakho malunga nempilo yakho, amayeza owasebenzisayo, kunye nembali yempilo yosapho lwakho. Emva koko uya kuba nethuba elingcono kakhulu lokuzala umntwana osempilweni.

Ukuba uneminye imibuzo malunga noku, ungathandabuzi ukubuza ugqirha wakho. Ngabo banokukunika icebiso elingcono.

I- spina bifida occulta, umqolo, iziphene zokuzalwa, i-folic acid, ukukhulelwa, iintlungu zomqolo, i-spina bifida efihliweyo