Ngaba umntwana wakho omncinci uhlala efumana impumlo egobhozayo? Akakwazi ukubona umzimba wakhe emva kokutya? Ngaba wenza isandi sokukhala xa ephefumla? Ezi zinokuba ziimpawu zomkhuhlane oqhelekileyo, kodwa ngamanye amaxesha kunokubakho into enzulu ngakumbi emva kwawo. Njengomama, kuyinto eqhelekileyo ukuba ukhathazeke ngezi zinto. Namhlanje, siza kuthetha ngemeko engaqhelekanga kodwa ebalulekileyo kunye novavanyo olukhethekileyo olunokusetyenziswa ukuyixilonga.
Okokuqala, masibone, yintoni i-cystic fibrosis?
Ngamafutshane, i-Cystic Fibrosis (CF) yimeko yemfuza edluliselwa kwiijini zethu, oko kuthetha ukuba ifunyanwa njengelifa ukususela ekuzalweni. Ayisosifo esosulelayo. I-mucus kunye nezinye izinto ezikhutshwa ngumntu onesi sifo zijiyile kwaye zinamathela kakhulu kunezo zenziwa ngumntu oqhelekileyo.
Cinga nje, iindonga zeetyhubhu (ezifana neepayipi) emizimbeni yethu zihlala zine-mucus ebhityileyo netyibilikayo. Yiyo le nto igcina amalungu ethu efumile, ecocekile, kwaye ekhuselekile. Kodwa kumntu one-CF, le mucus iba nkulu, inamathele, kwaye ibe yi-gummy. Le mucus ityebileyo iqala ukuvala iityhubhu kunye neendlela zokuhamba, ingakumbi emiphungeni nakwinkqubo yokugaya ukutya (ingakumbi i-pancreas).
Oku kunokukhokelela kwiingxaki zokuphefumla, usulelo oluqhelekileyo lwemiphunga, kunye nezinye iingxaki zesondlo kuba umzimba awufunxi ukutya okutyayo ngokufanelekileyo. Ukongeza kwimiphunga kunye nepancreas, le meko inokuchaphazela nesibindi, ii-sinuses, amathumbu, kunye nezitho zokuzala.
I-CF sisifo esingapheliyo. Oku kuthetha ukuba ayinakunyangwa ngokupheleleyo, kodwa ngonyango olufanelekileyo nolawulo, iimpawu zinokulawulwa kwaye abantu banokuphila ubomi obuqhelekileyo. Kwakhona yimeko eqhubekayo apho iimpawu ziba mandundu ngokuhamba kwexesha.
Zithini iimpawu zomntwana omncinci one-CF?
Umntwana one-CF angabonakalisa enye okanye ezingaphezulu kwezi mpawu ngaxeshanye. Qaphela ezi mpawu kumntwana wakho. Kodwa khumbula, ayinguye wonke umntwana onezi mpawu one-CF. Kodwa kubalulekile ukuba uzazi.
| Uphawu | Ingcaciso Elula |
|---|---|
| Ukungaphumeleli ukukhula | Nangona umntwana esela ubisi oluninzi kwaye etya kakuhle, ubhityile kwaye akatyebi ngendlela efanelekileyo ngokweminyaka yakhe. Isizathu soku kukuba imibhobho yepancreatic ivalwe yi-mucus, nto leyo ethintela ii-enzymes ezifunekayo ekugayeni ukutya ukuba zingafikeleli emathunjini. |
| Isihlalo esikhululekileyo okanye esinamafutha | Indle inokuba nombala okhanyayo, ibe nevumba elibi, kwaye ibonakale inamafutha. Oku kungenxa yokuba amafutha aphuma ekutyeni aphuma engagaywanga. |
| Ubunzima bokuphefumla kunye nokuphefumla rhoqo | I-mucus engqindilili inamathela emiphungeni, nto leyo eyenza kube nzima ukuphefumla. Xa uphefumla, ingakumbi xa ukhupha umoya, uva isandi somlozi siphuma esifubeni sakho. |
| Usulelo oluqhelekileyo lwemiphunga | Ngenxa yokuba iintsholongwane zikhula lula kwi-mucus etyebileyo, izifo ezifana ne-pneumonia okanye i-bronchitis zihlala zikhula. |
| Ukukhwehlela okungapheliyo | Kunokubakho ukukhwehlela okungapheliyo nokurhawuzelela njengoko umzimba uzama ukususa umhluzi obambeke emiphungeni. |
| Ukuva incasa yetyuwa eluswini lomntwana | Olu luphawu olukhethekileyo kakhulu. Abazali bathi xa beqabula umntwana wabo, uziva incasa enetyuwa eluswini lwakhe. Siza kuthetha ngesizathu sale nto ngokulandelayo. |
Oogqirha bayixilonga njani le sifo? - Uvavanyo lokubila
Xa umntwana enezi mpawu zingasentla, ugqirha unokukukrokrela oku aze acebise uvavanyo oluninzi. Olu vavanyo luquka uvavanyo lwemfuza kunye ne-X-ray yesifuba. Nangona kunjalo, uvavanyo olubalulekileyo lokuqinisekisa ukufunyaniswa kwe-CF luvavanyo lokubila.
Le yinto elula kakhulu ukuyenza. Ngamafutshane, ukubila kwethu kunetyuwa. Le tyuwa yenziwe nge-chloride.kunye nesodium. Ngenxa yokuba i-chloride ayingeni kwaye ayiphumi kwiiseli zomntu one-CF ngokufanelekileyo, ukubila kwabo kune -chloride eninzi kakhulu kunomntu oqhelekileyo. Uvavanyo lokubila lulinganisa ubungakanani be-chloride.
Uvavanyo lokubila lwenziwa njani? Ngaba luza kumlimaza umntwana?
Njengomama, kuyinto eqhelekileyo ukuba ube nalo mbuzo. Kodwa akukho sizathu sokoyika. Olu ayilovavanyo lubuhlungu konke konke.
Olu vavanyo lunokwenziwa nakubani na oneminyaka. Nangona kunjalo, iintsana ezisandul’ ukuzalwa zisenokungakwazi ukuvelisa ukubila okwaneleyo kolu vavanyo kwiintsuku zokuqala zobomi. Ngoko ke, olu vavanyo ludla ngokwenziwa xa umntwana eneeveki ezimbini ukuya kwezine ubudala.
Nantsi indlela olu vavanyo olwenziwa ngayo:
1. Okokuqala, ilungu labasebenzi bezonyango liza kucoca kakuhle indawo encinci engalweni okanye emlenzeni womntwana (ngokuqhelekileyo ebunzini).
2. Emva koko, ijeli equlethe ikhemikhali ebizwa ngokuba yi-pilocarpine ifakwa kuloo ndawo, kwaye kubekwa i-electrode encinci phezu kwayo.
3. Ngoku kunikwa ukuvuselelwa kombane okuncinci kakhulu, okungabonakaliyo kangako ngale electrode. Ungakhathazeki, oku akusebenzisi iinaliti, kwaye akuyi kumenzakalisa umntwana nangayiphi na indlela. Usenokuziva unomsindo omncinci. Oku kuvuselela amadlala okubila kwaye kukhawulezise ukuveliswa kokubila.
4. Emva kwemizuzu embalwa, indawo iyacocwa kwaye kufakwa isixhobo esikhethekileyo (njenge-coil yeplastiki) esiqokelela umbilo phezu kwayo size sibotshwe.
5. Xa umntwana edlala malunga nemizuzu engama-30, kongezwa umlinganiselo ofunekayo wokubila.
6. Isampulu yokubila eqokelelweyo emva koko ithunyelwa kwilebhu ukuze kulinganiswe ubungakanani bekloride.
Ingxelo yovavanyo ithini?
Nje ukuba ingxelo yovavanyo ifunyenwe, ugqirha unokugqiba ukuba umntwana une-CF okanye akanayo ngokusekelwe kumaxabiso. Amaxabiso alinganiswa ngeeyunithi ezibizwa ngokuba yi-`mmol/L` (ii-millimoles ngelitha).
Khumbula, ngugqirha wakho kuphela onokutolika ezi ziphumo aze akucebise ngento omawuyenze ngokulandelayo. Ngoko ke musa ukoyika uze wenze izigqibo ngokusekelwe kumanani akwingxelo.
| Inqanaba leChloride | Kuthetha ukuthini oko? (Kuthetha ukuthini oko) |
|---|---|
| Ukuba ingaphezulu kwe-60 mmol/L | Kusenokwenzeka ukuba umntwana une-CF. Ugqirha angayalela ezinye iimvavanyo ukuqinisekisa oku. |
| Ukuba ingaphantsi kwama-40 mmol/L | Umntwana akanayo i-CF. Ugqirha uza kukhangela ezinye izizathu zeempawu. |
| Phakathi kwama-40 nama-60 mmol/L | Esi sisiphumo esiphakathi. Kusenokufuneka uphinde uvavanyo. Ugqirha wakho unokucebisa uvavanyo olongezelelweyo ukuze ajonge iintlobo ze-CF ezingaqhelekanga. |
Ungayilungiselela njani umntwana uvavanyo?
Le yeyona nxalenye ilula. Olu vavanyo aludingi lungiselelo likhethekileyo.
- Akukho mfuneko yokutshintsha ukutya komntwana wakho, amayeza akhe, okanye imisebenzi yakhe ngaphambi kovavanyo. Ungaqhubeka nosuku lwakho njengesiqhelo.
- Eyona nto ibalulekileyo kukungafaki naziphi na iikhrimu okanye iiloshini emzimbeni womntwana wakho ngosuku olungaphambi kovavanyo. Ingakumbi ingalo okanye umlenze ovavanywayo. Ezi zinto zinokuchaphazela iziphumo zovavanyo.
Ukuba umntwana wakho unezi mpawu, musa ukoyika okanye ukoyika, kodwa bonana nogqirha ofanelekileyo ngokukhawuleza ukuze akunike ingcebiso. Okukhona isifo sifunyanwa ngokukhawuleza, kokukhona amathuba okuqala unyango nokunika umntwana ubomi obusempilweni aba maninzi.
Umyalezo Wokuya Ekhaya
- I-Cystic fibrosis sisifo semfuza esifunyanwa sizalwa kwaye sibangela ukujiya kwee-mucus membranes zomzimba, nto leyo echaphazela amalungu anjengemiphunga kunye nepancreas.
- Kubaluleke kakhulu ukubona ugqirha ukuba umntwana wakho uneempawu ezifana nokungatyebi, ukuxinana kwesifuba rhoqo, ubunzima bokuphefumla, kunye nendle enamafutha.
- Uvavanyo lokubila lolona vavanyo lubalulekileyo, olungenantlungu, nolukhuselekileyo lokufumanisa esi sifo.
- Olu vavanyo lulinganisa ubungakanani be-chloride (ityuwa) ekubileni. Abantwana abane-CF banezinga eliphezulu kakhulu kuneliqhelekileyo le-chloride ekubileni kwabo.
- Musa ukoyika ngeziphumo zovavanyo, soloko uthetha nogqirha wakho ukuze ufumane ukuqonda okucacileyo.
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