Njengomama oza kuzalwa, usenokuba ulindele ngolangazelelo ukuba umntwana wakho afike esempilweni. Nangona kunjalo, ngamanye amaxesha iingxaki zempilo ezingalindelekanga zinokuvela. Namhlanje, siza kuthetha ngesiphene esibi kakhulu sokuzalwa abantu abaninzi abangazange basive. Oku kubizwa ngokuba yi-Anencephaly. Kubaluleke kakhulu ukukwazi oku.
Yintoni kanye kanye iAnencephaly?
Ngamafutshane, i-anencephaly yimeko apho umntwana ezalwa engaphuhli kakuhle iindawo zengqondo kunye nentloko. Le yimeko engaqhelekanga kwaye imbi kakhulu.
Masiyiqonde ngakumbi le nto. Xa ukhulelwe, kwiiveki zokuqala ezimbalwa, ingqondo yomntwana wakho kunye nomqolo ziqala ukwakheka njengediski esicaba yeeseli. Cinga ngayo njengokuqengqeleka kwegqabi elisicaba kwityhubhu, kwaye le diski yeeseli igoba kancinci kancinci kwaye yenze isakhiwo esifana netyhubhu. Oku sikubiza ngokuba yityhubhu ye-neural . Le tyhubhu ye-neural kufuneka ivalwe ngokupheleleyo kwiintsuku ezingama-28-32 emva kokukhulelwa.
Nangona kunjalo, ukuba ngesizathu esithile le tyhubhu ye-neural ayivaleki ngokupheleleyo, kusala umngxuma omncinci. Oku sikubiza ngokuba zi -neural tube defects . I-Anencephaly yenye yezi ziphene zetyhubhu ye-neural. Kwimeko enjalo, ityhubhu ye-neural ihlala ivulekile ezantsi kwentloko. Ngenxa yoko, iindawo zangaphambili neziphezulu zobuchopho kunye neendawo ezinxulumene nayo zentloko aziphuhli.
Yintoni enokubangela i-anencephaly?
Kunzima ukuchonga unobangela omnye woku. Ukudibana kwezinto ezinokubangela oku kunokubangela oku. Izinto ezibangela ufuzo, ukungondleki kakuhle, kunye nezinto ezithile umama adibana nazo ngexesha lokukhulelwa zezinye zezona ziphambili.
Masicacise ngakumbi ezi zinto zinobungozi kwitheyibhile engezantsi.
| Into enobungozi | Inkcazo |
|---|---|
| Ukunqongophala kwe-Folic Acid | Eyona nto ibangela kukuba umntwana angafumani i-folic acid eyaneleyo ngaphambi nangexesha lokukhulelwa. Le vithamini ibalulekile ekuphuhlisweni kombhobho wemithambo-luvo yomntwana. |
| Amanye amayeza | Amanye amayeza asetyenziselwa ukunyanga isifo sokuwa, izifo zengqondo ezifana nesifo se-bipolar, kunye ne-migraines, njengePhenytoin , iCarbamazepine, kunye neValproic acid , anokunyusa umngcipheko. |
| Isifo seswekile esingalawulekiyo | Ukuba umama unesifo seswekile kwaye amanqanaba eswekile egazini lakhe akalawulwa ngokufanelekileyo ngexesha lokukhulelwa, oko kunokuchaphazela kakubi ukukhula komntwana. |
| Ubushushu bomzimba obuphezulu | Kwiiveki zokuqala zokukhulelwa (xa ityhubhu yemithambo-luvo isenziwa), kunokuba yingozi ukufumana umkhuhlane ophezulu okanye ukuba semanzini ashushu kakhulu, njengebhafu eshushu okanye i-sauna. |
| Ukutyeba kakhulu | Ukwanda kobunzima obugqithisileyo komama yinto enokuchaphazela ukukhula komntwana ngexesha lokukhulelwa kwakhe. |
| Iimeko zofuzo | I-Anencephaly inokubangelwa ziimeko ezithile zemfuza, ezifana neTrisomy 18. Nangona kunjalo, ezi azisoloko zizuzwa njengelifa, kodwa zitshintsha ngokungacwangciswanga zemfuza. |
| Ukusetyenziswa kweziyobisi ze-opioid | Ezinye izifundo zibonise ukuba abantwana boomama abasebenzisa amayeza okudambisa iintlungu e-opioid afana neCodeine, iTramadol, kunye neMorphine kwiinyanga ezimbini zokuqala zokukhulelwa banamathuba amaninzi okuba neziphene ze-neural tube. |
Ngaba le meko ingafunyanwa ngexesha lokukhulelwa?
Ewe, ngokuqinisekileyo. Njengenxalenye yokhathalelo lwakho lokukhulelwa, ugqirha wakho uza kwenza iimvavanyo ezininzi ukujonga olu hlobo lweziphene zetyhubhu yemithambo-luvo.
- Iskeni ye-Ultrasound:Le yindlela ephambili. Iskeni ivumela ugqirha ukuba abone ulwakhiwo lwentloko yomntwana, ubuchopho, kunye nomqolo. I-Anencephaly idla ngokubonakala ngokucacileyo kwiskeni.
- Uvavanyo lweGazi lweSikrini seQuad Marker: Olu luvavanyo olwenziwa egazini likamama. Lulinganisa inqanaba lekhemikhali ebizwa ngokuba yiAlpha-fetoprotein (AFP) egazini likamama. I-AFP iveliswa sisibindi somntwana. Ukuba inqanaba le-AFP egazini likamama liphezulu ngokungaqhelekanga, oko kunokubonisa ukuba umntwana unokuba nesiphene se-neural tube (njenge-anencephaly).
- I-MRI yosana olusandul’ ukuzalwa: Ukuba kukho into engacacanga kwi-ultrasound scan, i-MRI scan ingenziwa ukuze kufunyanwe imifanekiso ecacileyo neneenkcukacha ezithe vetshe yengqondo yomntwana kunye nomqolo .
- I-Amniocentesis: Kolu vavanyo, ugqirha usebenzisa inaliti ecolekileyo kakhulu ukuthatha isampuli encinci yolwelo lwe-amniotic olujikeleze usana. Olu lwelo luvavanywa amanqanaba aphezulu e-enzyme ebizwa ngokuba yi-AFP kunye ne-acetylcholinesterase. Amanqanaba aphezulu kwezi zinto akwaluphawu lwesiphene setyhubhu ye-neural.
Ngaba ikhona indlela yokunyanga oku?
Le yeyona nxalenye ibuhlungu kakhulu kwesi sihloko.
Ngelishwa, akukho nyango okanye unyango lwe-anencephaly.
Le yinto enzima kakhulu ukuyinyamezela. Ukukhulelwa okuninzi okuneengxaki ze-neural tube kuphelisa ukuphuphuma kwesisu. Abanye abantwana abane-anencephaly bazalwa bezelwe befile. Nokuba umntwana uzalwe ephila ngandlela ithile, ubomi bakhe bunqunyelwe kwiiyure okanye kwiintsuku ezimbalwa.
Ukuba le meko ifunyenwe, ugqirha wakho kunye nabasebenzi basesibhedlele baya kunika wena nosapho lwakho inkxaso efunekayo ngokweemvakalelo. Nje ukuba umntwana azalwe, baya kubonelela ngezibonelelo ezifunekayo zokuchitha ixesha elininzi kangangoko kunokwenzeka nomntwana ngelo xesha lifutshane.
Singenza ntoni ukunciphisa umngcipheko?
Nangona i-anencephaly ingenakuthintelwa i-100% yexesha, kukho izinto ezininzi esinokuzenza ukunciphisa kakhulu umngcipheko. Oku kubaluleke kakhulu kubasetyhini abaceba ukuqala usapho.
- I-Folic Acid: Le yeyona nto ibalulekileyo. Ukuba uceba ukuba nomntwana , qala ukuthatha i-400 micrograms (400 mcg) ye-folic acid imihla ngemihla ubuncinane iinyanga ezi-3 ngaphambi kokuba ukhulelwe.Ufanele uqhubeke nokusela oku kwiinyanga ezintathu zokuqala emva kokukhulelwa. Ugqirha wakho uya kucebisa idosi echanekileyo oyifunayo.
- Lumka ngamayeza: Ukuba uceba ukuba nomntwana, thetha nogqirha wakho malunga namayeza owasebenzisayo ngoku (ingakumbi kwiimeko ezifana nesifo sokuwa okanye isifo sengqondo). Angacebisa ezinye iindlela ezikhuselekileyo ukuba kuyimfuneko.
- Ziphephe iintlungu ze-opioid: Ukuba ucinga ukuba ukhulelwe okanye ukhulelwe, kuphephe ukuthatha iintlungu ze-opioid ngaphandle kwengcebiso kagqirha wakho.
- Lawula ubushushu bomzimba wakho: Kuphephe ukuya kwiibhafu ezishushu nakwiisauna xa ukhulelwe. Ukuba unesicaphucaphu, qhagamshelana nogqirha wakho malunga nendlela yokunciphisa isicaphucaphu ngokukhuselekileyo.
- Gcina ubunzima obusempilweni: Zama ukugcina ubunzima bomzimba busempilweni nangaphambi kokuba ube nomntwana.
- Lawula isifo seswekile: Ukuba unesifo seswekile, thetha nogqirha wakho malunga nendlela engcono yokusilawula ngaphambi kokuba ukhulelwe kwaye ngexesha lokukhulelwa kwakho.
Umyalezo Wokuya Ekhaya
- I-Anencephaly sisifo esibi kakhulu sokuzalwa apho ingqondo yomntwana kunye nentloko yakhe azikhuli kakuhle.
- Akukho nyango lwale meko.
- Ukuba uceba ukuba nomntwana, kubaluleke kakhulu ukusela i-folic acid kwiinyanga ezimbalwa ngaphambi kokuba ukhulelwe. Oku kunokunciphisa kakhulu umngcipheko weziphene ze-neural tube.
- Thetha nogqirha wakho malunga namayeza owasebenzisayo kunye neemeko zonyango ezifana nesifo seswekile ngaphambi kokuba ukhulelwe umntwana.
- Iiskeni ngexesha lokukhulelwa zinokuzibona ezi meko kwangethuba. Ngoko ke ungaze uye ekliniki.
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