Uma une-hemophilia A, ungathanda ukwazi ngalo muthi okhethekile? (I-Antihemophilic Factor, i-Fc Fusion Protein, i-Recombinant)

Uma ungumuntu onesifo esibizwa ngokuthi i-Hemophilia A, cishe uyazi ngokuhlangenwe nakho kwakho ukuthi kungaba nzima kangakanani ukuyeka ukopha ngisho noma usika kancane. Kodwa ungakhathazeki, ngoba ngokuthuthuka kwesayensi yezokwelapha, manje kunezindlela eziningi zokwelapha ezinhle ezingasiza ezimweni ezinjalo. Namuhla sizokhuluma ngomuthi owodwa okhethekile, noma umuthi wokugomela, ongaba usizo olukhulu empilweni yakho. Okusho ukuthi, lo muthi wokugomela obizwa ngokuthi i-Antihemophilic Factor, i-Fc Fusion Protein, i-Recombinant . Kungenzeka ukuthi uke wezwa ngawo ngegama lomkhiqizo i-ELOCTATE.

Luhlobo luni lomuthi? Kungani lokhu kubalulekile kuwe?

Kalula nje, i-Hemophilia A yisimo esibangelwa ukuntuleka noma ukungasebenzi kahle kweprotheyini ekhethekile ebizwa ngokuthi i-Factor VIII, esiza ukujiya kwegazi lethu. Yingakho kuthatha isikhathi eside ukuthi ukopha kume ngisho noma kulimala okuncane.

Manje, esikhuluma ngakho ngalo muthi wokugomela (i-Antihemophilic Factor, i-Fc Fusion Protein, i-Recombinant) ukuthi ukukunikeza i-factor VIII oyintulayo emzimbeni wakho. Kufana nokugcwalisa ukuntuleka. Lokhu kubangela ukuthi igazi lakho lijiye ngokushesha, okuwusizo olukhulu ekulawuleni ukopha futhi ngezinye izikhathi kuvimbele ukuthi kwenzeke.

Igama elithi "recombinant" egameni lalo muthi lisho ukuthi awenziwanga ngegazi lomuntu, kodwa usebenzisa indlela ekhethekile yobunjiniyela bezakhi zofuzo elabhorethri. Enye yezinzuzo ezinkulu zalokhu ukuthi inezingozi eziphansi kakhulu zokutheleleka okuthile okwakutholakala emithini eyenziwe ngegazi ngaphambilini. Lokho kusho ukuthi kuphephile kakhulu .

Okulandelayo, ingxenye ebizwa ngokuthi "i-Fc Fusion Protein" isho ukuthi le molekyuli yesidakamizwa inengxenye encane enamathiselwe kuyo. Cabanga ngakho njengokufaka 'i-anchor' encane emuthini. Le 'anchor' ivumela umuthi ukuthi uhlale usebenza emzimbeni wakho isikhathi eside, ngisho nezinsuku ezimbalwa. Into enhle ngalokhu ukuthi inganciphisa inani lezikhathi okudingeka ujove ngazo. Akuyona yini into elula leyo?

Yiziphi izinto okudingeka uzitshele ithimba lakho lezokwelapha ngaphambi kokuthatha lo muthi?

Ngaphambi kokuthi uqale lolu hlobo lokwelashwa, kubalulekile ukutshela udokotela wakho, umhlengikazi noma omunye uchwepheshe wezempilo okwelapha ulwazi olubalulekile. Ungalufihli lolu lwazi, ngoba lwenzelwe ukuphepha kwakho.

• Ukungezwani komzimba: Ingabe une-allergy kulo muthi (i-Antihemophilic Factor, i-Fc Fusion Protein, i-Recombinant) noma ezinye izithako zawo? Noma eminye imithi, ukudla, udayi, noma izithasiselo? Lokhu kubaluleke kakhulu ngoba kungaba yinoma yini kusukela ekuqubukeni okuncane kuya ekusabeleni okukhulu kwe-allergy.
• Ingabe ukhulelwe noma uzama ukukhulelwa?: Uma ukhulelwe noma uhlela ukuba nomntwana maduze, kufanele utshele udokotela wakho.
• Ingabe ungumama oncelisayo?: Uma uncelisa, yazisa udokotela ngalokho futhi.

Ngokusekelwe kulolu lwazi, ithimba lezokwelapha lizonquma ukuthi lo muthi ukulungele yini nokuthi ungawunikeza kanjani.

Ngingawusebenzisa kanjani lo muthi?

Lomuthi unikezwa ngomjovo emthanjeni . Lokhu kuvame ukwenziwa esibhedlela noma emtholampilo ngudokotela noma umhlengikazi oqeqeshiwe.

Kodwa-ke, ngezinye izikhathi ithimba lakho lezokunakekelwa kwempilo lizokuqeqesha ukusebenzisa lo muthi ekhaya. Uma kunjalo, kufanele ulandele imiyalelo yabo njengoba nje bekutshela. Thatha umthamo ofanele, ngesikhathi esifanele. Ungawuthathi kaningi kunalokho udokotela wakho akutshele khona.

Okubaluleke kakhulu: Ungalokothi ulahle izinaliti zakho ezisetshenzisiwe kanye nesirinji kudoti. Kufanele zifakwe "esitsheni esibukhali" esikhethekile esinikeziwe. Uma ungenayo, ungacela ikhemisi lakho noma udokotela ukuthi akunike yona. Lokhu kubaluleke kakhulu ekuphepheni kwakho nasekuphepheni kwabanye.

Ingabe lo muthi kufanele unikezwe izingane ezincane?

Lo muthi unganikezwa izingane ezincane kwezinye izimo ezikhethiwe. Kodwa-ke, kunezinye izinto ezikhethekile okufanele zicatshangelwe. Ngakho-ke, uma unikeza ingane yakho lo muthi, khuluma nodokotela wezingane ngakho ngokucophelela bese uthola imininingwane.

Yini okufanele uyenze uma umthamo wemithi ukhuphuka?

Uma ucabanga ukuthi usuthathe lo muthi omningi kakhulu, ungesabi futhi ushayele isikhungo sokulawula ubuthi esiseduze noma igumbi lezimo eziphuthumayo ngokushesha.

Khumbula: Lo muthi ungowakho wedwa. Ungalokothi wabelane ngomuthi wakho nabanye.

Wenzani uma uphuthelwa isikhathi sokubonana nodokotela?

Kubaluleke kakhulu ukuthatha lo muthi ngesikhathi. Uma ungakwazi ukugcina isikhathi, shayela udokotela wakho noma umhlinzeki wezempilo ngokushesha okukhulu.

Uma uphuza umuthi wakho ekhaya, uma uphuthelwe umthamo, thatha ngokushesha nje lapho ukhumbula. Kodwa-ke, uma sekuyisikhathi somthamo wakho olandelayo, yeqa umthamo ophuthelwe bese uthatha umthamo wakho olandelayo ngesikhathi esihleliwe. Ungalokothi uthathe imithamo emibili ngesikhathi esisodwa noma uthathe imithamo eyengeziwe.

Ingabe ezinye izinto zingasebenzisana nalomuthi?

Yebo, eminye imithi ingasebenzisana nalokhu (i-Antihemophilic Factor, i-Fc Fusion Protein, i-Recombinant). Lokhu kusho ukuthi uma ithathwa kanye nalowo muthi, ingathinta ukusebenza kwawo noma yandise imiphumela emibi.

Ikakhulukazi, i-Factor VIIaKungenzeka ukuthi lokhu kungase kuhlangane nomuthi.

Lolu hlu alufaki konke ukuxhumana okungenzeka. Ngakho-ke, tshela udokotela wakho ngayo yonke imithi oyithathayo (eyalelwe udokotela, ethengiswa ngaphandle kwemithi kadokotela, ethengiswa ngamakhambi, amavithamini, izithasiselo zokudla) . Futhi, tshela udokotela wakho uma ubhema, uphuza utshwala, noma usebenzisa ezinye izidakamizwa. Ezinye zalezi zinto zingase zihlangane nomuthi wakho.

Yiziphi izinto ezikhethekile okufanele uziqaphele lapho uthatha lo muthi?

• Ngesikhathi uthatha lo muthi, udokotela wakho kungadingeka enze izinto ezifana nokusebenza kwegazi ukuze aqaphe isimo sakho.
• Ithimba lezokwelapha lizoqapha isimo sakho ngokucophelela uma unikezwa lo muthi.
• Uma une-hemophilia, gqoka isongo noma iketanga le-ID yezokwelapha elibonisa isimo sakho, imithi, imithamo, kanye nezikhathi, noma uhlale unekhadi nawe ngaso sonke isikhathi. Lokhu kuzobaluleka kakhulu kulabo abakusizayo esimweni esiphuthumayo.

Yimiphi imiphumela emibi engaba khona yalo muthi?

Njenganoma yimuphi umuthi, lo ungaba nemiphumela emibi. Akuwona wonke umuntu oyitholayo, kodwa kuhle ukuqaphela.

Imiphumela emibi okufanele ibikwe kudokotela noma kuchwepheshe wezempilo ngokushesha:

• Ukusabela kokungezwani komzimba: Lezi yizimpawu ezibonakalayo:
• Ukuqubuka kwesikhumba
• Ukulunywa noma ama-hives
• Ukuvuvukala kobuso, izindebe, noma ulimi
• Ubunzima bokuphefumula

Uma ubona noma yiziphi zalezi zimpawu, ungalibali , funa iseluleko sezokwelapha ngokushesha. Lokhu kungaba yinto engathi sína.

Imiphumela emibi evame ukungadingi iseluleko sezokwelapha (kodwa uma iqhubeka noma ikhathaza, kufanele utshele udokotela wakho):

• Ukuzizwa ugula okuvamile noma izimpawu ezifana nomkhuhlane
• Ubuhlungu bamalunga
• Ubuhlungu endaweni lapho kujovwe khona

Lolu hlu lungase lungahlanganisi yonke imiphumela emibi engaba khona. Uma ubona noma yini engavamile, khuluma nodokotela wakho ngakho. Ungabika futhi imiphumela emibi kwiziphathimandla zezempilo ezifanele (isib., i-FDA ku-1-800-FDA-1088), kodwa kungcono ukutshela udokotela wakho kuqala.

Ngingawugcina kanjani lo muthi?

• Gcina njalo kude nezingane ezincane.
• Lo muthi uvame ukunikezwa esibhedlela noma emtholampilo, ngakho ngeke kudingeke uwugcine ekhaya.
• Kodwa-ke, uma unikezwa lo muthi ukuze uwusebenzise ekhaya uma kunesimo esiphuthumayo, uzonikezwa imiyalelo yokuthi uwugcine kanjani ngendlela efanele. Landela leyo miyalelo ngokucophelela.
• Ungalokothi usebenzise umuthi ophelelwe yisikhathi. Hlola usuku lokuphelelwa yisikhathi kulebula bese ulahla noma yimuphi umuthi ongasetshenziswanga.

Izinto ezibaluleke kakhulu okudingeka uzikhumbule (Umyalezo Wokuya Ekhaya)

Kulungile, ngakho-ke, umuthi wokugomela i-(Antihemophilic Factor, Fc Fusion Protein, Recombinant) esikhulume ngawo, okungukuthi, umuthi ofana ne-ELOCTATE, uwumuthi obaluleke kakhulu osiza ukulawula nokuvimbela ukuphuma kwegazi kulabo kini abane-hemophilia A.

• Lokhu kusebenza ngokunikeza umzimba wakho iphrotheni ebizwa ngokuthi i-Factor VIII, esiza ukujiya kwegazi.
• Kuphephile ngoba "kuyi-recombinant" , futhi ngoba "kuyi-Fc Fusion" kuhlala emzimbeni isikhathi eside, ngakho-ke isidingo sokujova njalo singancishiswa.
• Qiniseka ukuthi utshela udokotela wakho ngezinkinga zakho zokungezwani komzimba, ukukhulelwa, kanye nokuncelisa .
• Thatha umuthi njengoba nje udokotela wakho ekuyalile . Lahla izinaliti ngendlela efanele.
• Uma ubona izimpawu zokusabela kokungezwani komzimba, funa iseluleko sezokwelapha ngokushesha.
• Tshela udokotela wakho ngayo yonke eminye imithi oyithathayo.
• Kubaluleke kakhulu ukugqoka ikhadi le-ID yezokwelapha .

Lokhu kumane nje kuyisifinyezo. Uma uneminye imibuzo mayelana nalo muthi, sicela ungangabazi ukubuza udokotela wakho, usokhemisi, noma uchwepheshe wezempilo okwelaphayo. Bazokwazi ukukunikeza ulwazi olwengeziwe. Lapho wenza izinqumo ngempilo yakho, kungcono ukwazi!

I- Hemophilia A, Isici Esilwa Nokusha Kwegazi, Isici VIII, I-ELOCTATE, Ukopha, Umjovo, Ukwelashwa