Ngiyazi ukuthi ukuphila ne-ankylosing spondylitis, noma i-AS ngamafuphi, kungaba nzima ngezinye izikhathi. Noma ubani oke wahlushwa yiyo uyazi ukuthi kungaba nzima kangakanani ukubhekana nosuku nobuhlungu obungapheli bomhlane namalunga kanye nokuqina kwasekuseni. Kodwa awuwedwa. Kunezindlela eziningi nezinsiza ezingakusiza, zikunike amandla, futhi zikunikeze ulwazi olusha kulolu hambo. Yilokho esikhuluma ngakho namuhla.
Kungani lolu hlobo lokusekela lubalulekile kuwe?
Kalula nje, i-AS yisimo esingavamile esingathinta izici eziningi zempilo yakho. Ngenxa yokuthi yisimo esingamahlalakhona, kubalulekile ukuphuza imithi ngesikhathi nokufunda ukuphila naso. Yilapho amaqembu okusekela kanye nemithombo yolwazi ethembekile iwusizo khona.
Cabanga ukuthi kungaba induduzo kangakanani ukukwazi ukukhuluma nomuntu oqonda ubuhlungu obuzwayo nezinkinga obhekene nazo. Futhi ukuthi bekuyokwenza impilo yakho ibe lula kangakanani uma ufunda ngemithi yakamuva nezindlela ezilula zokuphatha izimpawu zakho. Yingakho kubaluleke kakhulu ukuqaphela izinsiza ezinjengalezi.
Ngingalutholaphi usizo nolwazi?
Kunezindawo eziningana ezingakusiza futhi zikuqondise endleleni efanele. Amanye ala maqembu angahlangana ubuso nobuso. Amanye angasebenza ku-inthanethi kuphela. Kufanele ukhethe indlela ekulungele kakhulu.
| Ungatholaphi usizo | Usekelo olutholayo |
|---|---|
| Udokotela wakho. | Umuntu ongcono kakhulu ongambuza ngamaqembu okusekela athembekile noma izinsiza ezifanele isimo sakho. |
| Isibhedlela noma ikliniki lapho uthola khona ukwelashwa | Izibhedlela eziningi zinezinhlelo ezikhethekile zokusekela noma izinhlelo zokuqwashisa iziguli. Zihlole. |
| Izikhungo Zezempilo Zomphakathi | Ungathola futhi ulwazi mayelana nezinhlelo ezahlukene zezempilo ngezikhungo ezinjengalezi endaweni yakini. |
| Amakhono ezokwelapha amanyuvesi | Ngezinye izikhathi sifunda ngezinhlelo ezigxile ezigulini ngamanyuvesi ocwaningo. |
Ngaphambi kokukhetha iqembu, yenza ucwaningo oluthile ngalokho iqembu eligxile kukho, ukuthi bahlangana kanjani (ku-inthanethi noma mathupha), nokuthi ubani ohola iqembu.
Qaphela lezi zinto uma usebenzisa i-inthanethi!
Kulezi zinsuku, ungathola ulwazi oluningi ezinkundleni zokuxhumana ezifana ne-Facebook ne-YouTube. Ungafunda futhi ubukele okuhlangenwe nakho kwabantu abaphila ne-AS, izinto abazenzayo. Lokhu kungaba yinto eduduzayo. Kodwa-ke, lena indawo lapho kudingeka uqaphele khona kakhulu .
Khumbula, ungathathi noma yini oyithola ku-inthanethi, ikakhulukazi okuhlangenwe nakho komuntu siqu, njengeseluleko sezokwelapha. Kubalulekile ukukhuluma nodokotela wakho ngaphambi kokuzama noma yini.
Uma ubheka ulwazi ku-inthanethi, zibuze le mibuzo:
- Ubani ophethe le webhusayithi noma ikhasi le-Facebook? Ingabe liphethwe yinhlangano yezokwelapha eyaziwayo, noma ngumuntu ongaziwa?
- Ingabe bazama ukuthengisa okuthile? Ngezinye izikhathi bazama ukuthengisa imikhiqizo yabo ngokuthi “Lo muthi uzokwenza uzizwe ungcono.” Ungakhohliswa yilokho.
- Ingabe kuzwakala kukuhle kakhulu ukuba kungaba yiqiniso? Uma ubona into efana nokuthi "Imfihlo yokwelapha i-AS ezinsukwini eziyi-7," kungenzeka ukuthi ingamanga.
- Ingabe lolu lwazi lusha? Ingabe lukhona isisekelo sesayensi? Hlola ukuze ubone ukuthi ulwazi olushicilelwe lusekelwe ocwaningweni futhi lusesikhathini.
Izinhlangano zomhlaba wonke ezithembekile namawebhusayithi
Kusenezinhlangano ezimbalwa ze-AS eziqondene ngqo neSri Lanka. Kodwa-ke, kunezinhlangano ezinkulu zomhlaba wonke ezicwaninga ngalesi sifo futhi zisize iziguli emhlabeni wonke. Nakuba lawa mawebhusayithi ebhalwe ngesiNgisi, ashicilela ulwazi oluwusizo kakhulu nolunembile mayelana nesifo, ukwelashwa okusha, ukuzivocavoca, kanye nendlela yokuphila nalesi sifo. Uma ujwayelene kancane nesiNgisi, lokhu kuzoba usizo kakhulu.
- I-Spondylitis Association of America (SAA):Lena ingenye yezinhlangano ezinkulu kakhulu e-United States ezizinikele ku-spondylitis, okuhlanganisa ne-AS. Iwebhusayithi yabo (spondylitis.org) inezingqungquthela eziningi zeziguli, amaqembu okusekela, kanye nolwazi lwakamuva.
- Isisekelo Se-Arthritis: Lena inhlangano enkulu enikeza ulwazi mayelana nazo zonke izinhlobo ze-arthritis. Iwebhusayithi yabo (arthritis.org) inesigaba esikhethekile ku-AS.
- I-Arthritis National Research Foundation: Baxhasa ucwaningo ukuze bathole ikhambi le-arthritis. Ungathola ngocwaningo lwakamuva kwiwebhusayithi yabo (curearthritis.org).
- I-National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS): Lena yinhlangano kahulumeni wase-US. Ulwazi olushicilelwe kwiwebhusayithi yabo (niams.nih.gov) luthembekile kakhulu futhi lufakazelwe ngokwesayensi.
Imiphakathi eku-inthanethi lapho ungafunda khona okuhlangenwe nakho kwabanye abantu
Amapulatifomu ezokuxhumana akuvumela ukuthi uxhumane nabantu emhlabeni wonke abaphila ne-AS njengawe. Ukusekelwa okutholayo kungaba umthombo omkhulu wesikhuthazo. Kodwa, njengoba ngishilo ngaphambili, ungazami lutho ngaphandle kokukhuluma nodokotela wakho.
| Ipulatifomu | Incazelo |
|---|---|
| I-Facebook | Uma usesha i-Ankylosing Spondylitis, uzothola amaqembu amaningi. Amanye amaqembu azimele, futhi kufanele ucele ukujoyina. Kulawa, abanye abantu babuza imibuzo futhi babelane ngolwazi. |
| I-Reddit | Lena enye indawo ethandwayo yokwabelana ngolwazi nemibono. Yiba yilungu lomphakathi elibizwa ngokuthi `r/ankylosingspondylitis` lapho ungabuza khona imibuzo futhi ufunde ngokuhlangenwe nakho kwabanye abantu. |
| I-Instagram / i-Twitter | Ungathola okuthunyelwe okufanele usebenzisa ama-hashtag afana ne-`#ankylosingspondylitis`, `#arthritis`, `#chronicpain`. Kodwa-ke, kufanele uqaphele kakhulu ngokunemba kolwazi olukulezi. |
Uhlola kanjani ukuthi i-akhawunti eku-inthanethi ithembekile?
- Lalela isifuba sakho: Uma kukhona okuzwakala kungalungile noma kuyinkohliso uma ubheka i-akhawunti, kungenzeka ukuthi kuyikho.
- Funa Ama-Akhawunti Aqinisekisiwe: Ama-akhawunti avela ezinhlanganweni ezinkulu nezinedumela elihle anophawu oluluhlaza okwesibhakabhaka eduze kwawo, okusho ukuthi i-akhawunti ingokoqobo futhi ayiyona eyamanga.
- Buza ikhwalithi yolwazi: Njengoba kushiwo ngaphambili, cabanga njalo ngokuthi ubani owenza lokhu, ingabe kuyathengiswa, nokuthi ingabe kungokwesayensi.
Uhambo nalesi sifo lungaba nesizungu futhi lube nzima ngezinye izikhathi. Kodwa ngolwazi olufanele kanye nokusekelwa okufanele, ungasiphatha kahle lesi simo futhi uphile impilo ejabulisayo.
Umlayezo Wokuya Nawe Ekhaya
- Awuwedwa ohambweni lwakho lokuphila ne-Ankylosing Spondylitis (AS). Izinkulungwane zabanye, njengawe, ziphila nalesi simo.
- Udokotela wakho okwelaphayo ungumthombo wakho wolwazi ongcono kakhulu. Khuluma naye kuqala nganoma yini.
- Nakuba i-inthanethi, ikakhulukazi imithombo yezokuxhumana, iyindawo enhle yokuthola ulwazi, ungakholwa yikho konke okufundayo. Ungacabangi ukuthi ulwazi lomuntu siqu luzosebenza kuwe.
- Ngaphambi kokuzama noma yikuphi ukuvivinya umzimba okusha, ukudla okunempilo, noma yini enye, qiniseka ukuthi ubuza udokotela wakho ukuthi kulungile yini kuwe.
- Ngisho noma amawebhusayithi ezinhlangano zamazwe ngamazwe ebhalwe ngesiNgisi, ulwazi olunembile nolwesayensi abalunikezayo luzoba usizo olukhulu ekwandiseni ulwazi lwakho.
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