Uma umama noma ubaba ebheka umntwana osanda kuzalwa, balindele ukubona ingane enempilo nephelele. Kodwa cabanga, kuthiwani uma ubona isinyi sengane siphuma esikhumbeni esiswini sayo? Kuyisimo esibuhlungu ngempela futhi esesabekayo. Lokhu yilokho esikubiza ngokuthi i-Bladder Exstrophy kwezokwelapha. Kunengqondo ngokuphelele ukwesaba nokukhathazeka uma ubona lokhu. Kodwa into ebaluleke kakhulu ukuthi kukhona ukwelashwa okuphumelelayo kwalokhu. Ngakho ake sixoxe ngakho konke ngokucacile nangokulula.
Kalula nje, kuyini i-Bladder Exstrophy?
Ukuphuma kwesinye kuyisimo esingavamile sokuzalwa. Ngokuvamile, lapho umntwana ekhula esibelethweni, izitho zangaphakathi, okuhlanganisa nesinye, ziyakhula ngaphakathi emzimbeni. Kodwa-ke, kulesi simo, isinye somntwana sikhula ngaphandle komzimba, sichayeke esikhumbeni esiswini esingezansi.
Kulesi simo, nakhu okwenzekayo:
- Isikhumba namathambo esinqeni esingezansi kwesisu awaxhumani kahle.
- Ngakho-ke, isinyi sibonakala ngesikhumba sesisu.
- Isinyi, okufanele sibe njengebhaluni, kulokhu sinesimo esiyisicaba.
- Ngenxa yalokho, isinyi asikwazi ukugcina umchamo noma ukusebenza kahle. Umchamo uyaqhubeka nokuvuza.
Lesi simo sithinta kanjani umzimba womntwana?
Ake sibheke ukuthi uhlelo lomchamo lusebenza kanjani ngokuvamile. Uma isinye sakho sigcwele umchamo, kuthunyelwa isignali evela ohlelweni lwezinzwa iye ebuchosheni ethi, "Isinye sesigcwele manje." Bese imisipha esesinyeni iyafinyela (ifinyela), bese umchamo ukhishwa nge-urethra.
Kodwa le nqubo ayenzeki enganeni ene-Bladder Exstrophy. Ngenxa yokuthi isinye somntwana singaphandle, akukho ndawo lapho umchamo ungaqongelela khona. Ngakho-ke umchamo okhiqizwa yizinso ugeleza ngqo ngale sinye esivulekile esiswini.
Into ebalulekile ukuthi lesi simo asisongeli impilo yengane. Ngemva kokwelashwa okufanele, lezi zingane zingaphila isikhathi esijwayelekile sokuphila.
Ingabe kunezinhlobo ezahlukene ze-Bladder Exstrophy?
Yebo, i-Bladder Exstrophy yisimo esiseqenjini leziphambeko zokuzalwa elibizwa ngokuthi i-Bladder Exstrophy-Epispadias Complex (BEEC). Ezinye izingane zingase zibe nesinye salezi zimo, kanti ezinye zingase zibe neziningana zalezi zimo ndawonye.
| Igama lesimo | Incazelo elula |
|---|---|
| Ama-Epispadia | Lokhu kwenzeka lapho i-urethra ingakhuli kahle. Imbobo okuphuma kuyo umchamo ayiyona indawo okufanele ibe kuyo. |
| I-Cloacal Exstrophy | Lesi yisimo esiyinkimbinkimbi futhi esibucayi. Kulesi simo, akusona isinyi kuphela, kodwa nengxenye yamathumbu amakhulu itholakala ngaphandle komzimba. Siphinde sithinte izitho zokuzala. |
Ingabe lesi simo sivamile?
Cha, i-Bladder Exstrophy yisimo esingavamile kakhulu . Sithinta ingane eyodwa kuphela kwezingu-50,000 ezisanda kuzalwa.
Yiziphi izimpawu eziyinhloko?
Uphawu oluyinhloko nolusobala kakhulu yisinye esiphuma esiswini. Ngaphezu kwalokho, kunezinye izimpawu eziningana ezingabonakala.
- Inkinobho yesisu iphansi kakhulu kunokujwayelekile.
- Amathambo esisu awaxhunyiwe, kodwa kunalokho ahlukaniswe.
- Indunu ingase ibekwe phambili kakhulu kunokujwayelekile.
- Kwabafana , amasende kungenzeka ukuthi awazange ehlele esikhumbeni (amasende angavuki).
- Ezinye izingane zingase zibe nama-hernia , njenge-inguinal hernias noma i-umbilical hernias.
Yiziphi izimbangela kanye nezici eziyingozi zalokhu?
Imbangela eqondile yalesi simo ayaziwa okwamanje , kodwa odokotela bakholelwa ukuthi inhlanganisela yezici zofuzo kanye nezemvelo ingaba nendima. Kubalulekile ukuqonda ukuthi akukho phutha kubazali elibangela lesi simo.
Nazi ezinye zezinto ezibangela ingozi ezitholakele:
- Umlando womndeni: Uma omunye wabazali wayenalesi simo esengumntwana, ingane yakhe inethuba eli-1 kwangu-70 lokuba naso.
- Uhlanga: Lesi simo sitholakale sivame kakhulu kubantu abamhlophe.
- Ubulili: Abafana banamathuba aphindwe kathathu okuthola lesi simo kunamantombazane.
- Ukwelashwa kokuzala: Ezinye izifundo zibonisa ukuthi ukusebenzisa izindlela ezifana ne-Assisted Reproductive Technology (IVF) kungayandisa kancane le ngozi.
Kunjani ukwelashwa kanye nombono onjalo?
Ingane ene-Bladder Exstrophy nakanjani izodinga ukuhlinzwa . Lena ukuphela kwendlela yokwelapha. Kuye ngokuthi isimo sengane sibucayi kangakanani, lesi simo singalungiswa ngokuphelele ngokuhlinzwa okukodwa noma ngaphezulu.
Ngokuvamile kunezindlela ezimbili zokuhlinzwa ezenziwa ngazo:
1. Ukuhlinzwa okukodwa: Kwezinye izimo, isisu siyavalwa futhi i-urethra iyalungiswa ngokuhlinzwa okukodwa okwenziwa ezinyangeni ezimbalwa zokuqala ngemva kokuzalwa komntwana.
2. Ukuhlinzwa kwezigaba ezintathu: Lena yindlela evame ukwenziwa.
- Isigaba sokuqala (ngemuva kokubeletha): Phakathi nezinsuku ezimbalwa zokuzalwa, isinyi somntwana sifakwa emzimbeni bese isisu sivalwa. Ngesikhathi esifanayo, kwenziwa ukuhlinzwa (`osteotomy`) ukuze kuhlanganiswe amathambo esinqe, aqhelelene kakhulu.
- Isigaba sesi-2 (cishe izinyanga eziyi-6): Lokhu kuhlinzwa (ukulungiswa kwe-epispadias) kuvuselela izitho zokuzala kanye ne-urethra.
- Isigaba 3 (cishe eminyakeni engu-4-5): Manje ingane isineminyaka yokuqeqeshwa endlini yangasese. Lokhu kuhlinzwa (`ukwandisa i-cystoplasty`) kwenziwa ukuze kwenziwe isinyi sibe sikhulu ngokwanele ukubamba umchamo.
Ngemva kokuhlinzwa, izingane eziningi zingagijima, zigxume, zidlale, futhi ziphile impilo evamile njengezinye izingane ngaphandle kwezinkinga.
Izinkinga ezingaba khona zesikhathi eside
Ngisho nangemva kokwelashwa, ezinye izingane zingase zibe nezinkinga zesinyi noma zezinso.
- Ukutheleleka kwezinso (i-pyelonephritis)
- Amatshe ezinso
- Ingozi yokuba nomdlavuza wesinyi iphakeme kancane kamuva ekuphileni.
- Izinkinga ezihlobene nokusebenza kocansi.
Abesifazane abanalesi simo babhekwa njengabanokukhulelwa okuyingozi kakhulu , futhi bavame ukudinga ukuhlinzwa ngokuhlinzwa (C-section) ukuze babelethe umntwana. Amadoda angadinga izindlela zokusiza ekuzaleni njengokukhulelwa kwe-in vitro (IVF) ukuze abe nabantwana.
Indlela ozizwa ngayo njengomzali
Ukuthola ukuthi ingane yakho inesifo sokuzalwa kuyinto enzima kunoma yimuphi umzali ukubhekana nayo. Ungase uzizwe wesaba, ukhathazekile futhi unecala. Yonke le mizwa ijwayelekile kakhulu.
Kodwa khumbula, lokhu akulona iphutha lakho . Ngisho nodokotela abakwazi ukusho ngokuqinisekile ukuthi kungani kwenzeka i-Bladder Exstrophy. Zinike isikhathi sokuqonda nokujwayela lesi simo. Ukwelashwa kusebenza kahle kakhulu. Lesi simo ngeke sivimbele ingane yakho ukuba ibe nobuntwana obujwayelekile. Odokotela bayiqonda kahle imizwa yakho. Bakhona ukukusekela nokukweluleka kuzo zonke izinyathelo zendlela. Ngakho-ke ungesabi ukukhuluma nodokotela wakho ngakho konke.
Umlayezo Wokuya Nawe Ekhaya
- Ukuphuma kwe-bladder kuyisimo esingavamile sokuzalwa, hhayi iphutha labazali.
- Lapha, isinyi somntwana sitholakala ngaphandle komzimba, futhi umchamo uphuma ngokungalawuleki.
- Ukwelashwa kwalokhu kuphela ukuhlinzwa, futhi kuphumelele kakhulu.
- Izingane ezithola ukwelashwa okufanele zingaphila impilo egcwele, enempilo, nejabulisayo njengezinye izingane.
- Kubalulekile ukugcina ubuhlobo obuseduze nodokotela wakho kanye nethimba lezokwelapha phakathi nalolu hambo. Ungesabi ukubuza imibuzo nokufuna iseluleko.
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