Kuyini i-Choroid Plexus Carcinoma? Ake sixoxe ngalo mdlavuza wobuchopho oyingozi kodwa ongavamile!

Ngezinye izikhathi, uma sicabanga ngezifo ezihlushwa abathandekayo bethu, ikakhulukazi izingane zethu ezincane, sizizwa sinomthwalo omkhulu nokwesaba, akunjalo? Namuhla sizokhuluma ngohlobo lomdlavuza wobuchopho olungathi sína, kodwa olungavamile kakhulu . Ungesabi ngokushesha uma uzwa igama lalo. Ngoba, ukuqaphela noma yisiphi isifo kungamandla amakhulu okubhekana naso. Ngakho-ke, ake sixoxe ngokuningiliziwe ngalesi "Choroid Plexus Carcinoma".

Kuyini i-Choroid Plexus Carcinoma?

Kalula nje, le `Choroid Plexus Carcinoma` ingumdlavuza okhula esicutshini esikhethekile esibizwa ngokuthi ``choroid plexus`` ngaphakathi kobuchopho bethu. Cabanga nje, kunezingxenye ezahlukene nezinhlobo ezahlukene zezicubu ngaphakathi kobuchopho bethu. Le ``choroid plexus``` itholakala ezimbotsheni (``ventricles``) ngaphakathi kobuchopho. Njengebhaluni lamanzi, yile ``choroid plexus``` izicubu ezisiza kakhulu ekwenzeni ``cerebrospinal fluid`` (``CSF``) evikela futhi yondle ubuchopho bethu kanye nomgogodla ogeleza emgogodleni.

Lesi isimila esibi . Lokhu kusho ukuthi amangqamuzana akuso akhula ngokungalawuleki, ngokushesha okukhulu, futhi angasakazeka kwezinye izindawo. Odokotela babiza lesi sifo ngokuthi "isimila se-choroid plexus sebanga lesi-3." Lesi simila sikhula ngokushesha kakhulu futhi sizama ukusabalala kulo lonke "isimiso sezinzwa esiyinhloko" ("CNS") ngoketshezi lwe-"CSF". Yingakho ukuselapha ngezinye izikhathi kungaba nzima kancane.

Sivame kangakanani lesi sifo?

Ungase umangale ukuzwa lokhu, kodwa lesi sifo esibizwa ngokuthi i-'choroid plexus carcinoma' empeleni siyisifo esingavamile kakhulu . Cabanga nje, kuzo zonke izinhlobo eziyi-100 zezimila zobuchopho, ngaphansi kuka-1% yi-'choroid plexus tumors'. Kunezinhlobo ezintathu zezimila ze-'choroid plexus'. Phakathi kwazo, le 'choroid plexus carcinoma' uhlobo lomdlavuza olungavamile noluwukuphela kwalo, okungukuthi, uhlobo 'olubi' . Ngokudabukisayo, lesi simo sithinta kakhulu izingane nezingane ezincane .

Ziyini izimpawu zalesi sifo? Sizibona kanjani?

Ngakho-ke, yiziphi izimpawu zalesi simo? Lokhu kungahluka kuye ngobukhulu besimila, indawo yaso ebuchosheni, kanye nobudala bengane. Kodwa, ngokuvamile, kunezimpawu ezimbalwa okufanele uziqaphele:

• Ukuzizwa njalo ukhathele kakhulu futhi ukhathele: Kunjengokungathi ingane ayisaphili, ayigijimi futhi ayidlali njengoba yayivame ukwenza. Kubonakala sengathi ilala njalo.
• Ubuhlungu bekhanda: Ingane encane ingase ingakwazi ukukuchaza lokhu, kodwa singakubona ngezinto ezinjengazo ezibamba amakhanda, ezikhala njalo, futhi zenqaba ukudla.
• Ukucasuka noma ukucasuka: Ingane encane ingaba nomsindo futhi kube nzima ukuyiduduza. Ingase ibe nenkani kakhulu kunangaphambili.
• Isicanucanu nokuhlanza: Lokhu kungaba kubi kakhulu, ikakhulukazi ekuseni.
• Ukuba ndikindiki noma ubuthakathaka kwezinye izingxenye zomzimba: Ingalo noma umlenze kungase kuzwakale sengathi indikindiki ngokuphelele.
• Ukuquleka: Ukuquleka okungazelelwe kanye nokulahlekelwa ukwazi.
• Izinkinga zokubona: Ungase ubone umbono ofiphele noma ubone izithombe ezimbili ngesikhathi esisodwa (i-diplopia). Ingane encane ingase ihlikihle amehlo ayo njalo noma ibe nobunzima bokugxila.
• Usayizi wekhanda okhulisiwe: Ezinganeni ezincane, ikhanda lingase libe likhulu njengoba ingcindezi ngaphakathi kobuchopho ikhula ngoba amathambo ekhanda awahlanganisiwe ngokuphelele.

Ungesabi ukuba nalesi sifo ngoba nje unesinye noma ezimbili zalezi zimpawu. Kodwa-ke, uma lezi zimpawu ziqhubeka, kuwukuhlakanipha ukubona udokotela .

Kungani lolu hlobo lwesifo luvela? Iyini imbangela?

Eqinisweni, kunzima kodokotela ukusho ngqo ukuthi kungani abanye abantu beba ne-choroid plexus carcinoma. Ngokuvamile, noma yimuphi umdlavuza uvela lapho kuba noshintsho kwenye yezakhi zofuzo emzimbeni wethu, esikubiza ngokuthi ukuguqulwa kwezakhi zofuzo. Lokhu kuguqulwa kwezakhi zofuzo kubangela amangqamuzana aphilile ukuba abe amangqamuzana omdlavuza futhi ande ngokungalawuleki, akhule abe isimila, futhi ngezinye izikhathi asakazeke emzimbeni wonke.

Ingabe zikhona izinto eziyingozi ezithinta lokhu?

Noma ubani angaba nalesi simo esibizwa ngokuthi i-'choroid plexus carcinoma'. Kodwa-ke, kutholakale ukuthi izinto ezithile (esizibiza ngokuthi 'izici eziyingozi') zingandisa amathuba okuba naso. Ake sibone ukuthi ziyini:

• I-Aicardi syndrome: Lesi yisimo esingavamile kakhulu sofuzo. Izingane ezizalwa nalesi simo zinezinkinga ezithile ekukhuleni kobuchopho, okwenza zibe namathuba amaningi okuthola izimila ze-choroid plexus. Lokhu akuvamile ukutholwa njengefa.
• I-Li-Fraumeni syndrome: Lesi futhi yisimo esingavamile sofuzo. Abantu abanalesi sifo banamathuba amaningi okuthola izinhlobo ezahlukene zomdlavuza. Lokhu kuvame ukubangelwa ushintsho lwezakhi zofuzo oludluliselwa kusuka kumzali oyedwa kuya enganeni.
• Ubulili bemvelo: Nakuba isizathu esiqondile singacacile, izibalo zibonisa ukuthi abesifazane banamathuba amancane okuthola lesi sifo.

Odokotela basithola kanjani lesi sifo? (Ukuxilongwa)

Ngakho-ke, odokotela baqinisekisa kanjani ukuthi une-choroid plexus carcinoma? Bakwenza lokhu ngokulalela ngokucophelela izimpawu zakho, benze ukuhlolwa ngokomzimba, bese benza izivivinyo ezahlukene. Lezi zivivinyo zingahluka kuye ngeminyaka yakho, noma iminyaka yengane yakho:

• Ukuhlolwa kokuqonda: Lokhu kuhlola ukuthi usebenza kahle kangakanani, njengenkumbulo, ukunaka, kanye nekhono lokufunda.
• Ukuhlolwa okuphelele kwezinzwa: Lokhu kuzohlola ukubona, ukuzwa, izinkinga zokulinganisela, ukusabela komzimba, kanye nokuxhumana kwezingxenye ezahlukene zomzimba.
• Ukuskena kobuchopho nge-MRI (Magnetic Resonance Imaging) noma ezinye izivivinyo zezithombe (njenge-CT scan): Lokhu kuvame ukuba ukuhlolwa okubaluleke kakhulu. Kungabonisa ukuthi kukhona yini izimila ebuchosheni, ukuthi zikhulu kangakanani, ukuthi zikuphi, nokuthi ngabe kukhona yini isimo esibizwa ngokuthi i-hydrocephalus (ukunqwabelana koketshezi lomgogodla (CSF) ezimbotsheni zobuchopho, okubangela ukucindezeleka okukhulu).
• Ukuhlolwa kwe-DNA (ukuhlolwa kwezakhi zofuzo): Lokhu kuhlolwa kungenziwa ukuze kubonwe ukuthi kukhona yini izinguquko zezakhi zofuzo ezihlobene nezimo ezifana ne-Li-Fraumeni syndrome noma i-Aicardi syndrome okukhulunywe ngayo ngaphambilini.
• Ukubhoboza umgogodla (ukubhoboza i-lumbar): Lokhu kuhilela ukufaka inalithi encane emhlane ongezansi bese kuthathwa isampula encane ye-CSF. Bese ithunyelwa elabhorethri ukuze ihlolwe amangqamuzana omdlavuza.

Yiziphi izindlela zokwelapha lokhu?

Uma kuqinisekiswa ukuthi unesimila esifana nalesi, yini oyenzayo ngokulandelayo? Kunezindlela eziningana zokwelapha. Eyokuqala ukuhlinzwa .

• Ukuhlinzwa: Odokotela abahlinza izinzwa benza ukuhlinzwa kobuchopho ukuze basuse isimila ngokuphelele ngangokunokwenzeka. Lokhu kuyindlela eyinkimbinkimbi kakhulu yokuhlinzwa. Ingxenye encane yesimila esisusiwe (i-biopsy) iyathathwa bese ithunyelwa elabhorethri ukuqinisekisa ukuthi iyi-choroid plexus carcinoma noma olunye uhlobo.

Uma lokhu kuhlolwa kwegazi kuqinisekisa i-choroid plexus carcinoma, futhi isimila singakwazi ukususwa ngokuphelele, noma uma umdlavuza ususakazeke, wena noma ingane yakho ningadinga ukwelashwa okwengeziwe. Lokhu kufaka phakathi:

• Ukwelashwa ngamakhemikhali: Lokhu kuhilela ukunikeza umzimba izinhlobo ezahlukene zemithi yokubulala amangqamuzana omdlavuza. Le mithi ibulala amangqamuzana omdlavuza ahlukana ngokushesha.
• Ukwelashwa ngemisebe: Lokhu kusebenzisa imisebe enamandla aphezulu (isib. imisebe ye-X) ukuhlasela nokubhubhisa amangqamuzana omdlavuza.

Ukwelashwa okukodwa noma ngaphezulu kungasetshenziswa ndawonye. Lokhu kunqunywa yithimba lodokotela abangochwepheshe, kucatshangelwa izici eziningi ezifana nesimo sesiguli kanye nohlobo lwesimila.

Yiziphi izinkinga ezingaba khona ngemva kokuhlinzwa?

Njenganoma yikuphi ukuhlinzwa, kunethuba elincane lezinkinga ngemva kokuhlinzwa kobuchopho. Nakuba kungavamile, ezinye zezinto ezingabonakala ngezinye izikhathi zifaka:

• Ukopha noma ukuvuvukala ebuchosheni.
• Ubunzima bokucabanga, ukudideka noma ukuphazamiseka kwengqondo.
• Ikhanda elibuhlungu eliqhubekayo.
• Ukutheleleka endaweni yokuhlinzwa.
• Ukulahlekelwa inkumbulo noma ubunzima bokukhuluma.

Odokotela bazokwazisa ngalezi zinto kusenesikhathi.

Ingabe izindlela ezintsha zokwelapha lesi sifo ziyathuthukiswa?

Yebo! Isayensi yezokwelapha iyaqhubeka usuku nosuku. Ngakho-ke, ucwaningo luyaqhubeka nokuthola izindlela zokwelapha ezintsha nezisebenza kahle kakhulu zalesi sifo, i-"choroid plexus carcinoma." Ezinye zalezi zingase zisesigabeni socwaningo ("isivivinyo sezokwelapha"). Nazi izibonelo ezimbalwa:

• Ukwelashwa nge-immunotherapy: Lena indlela ethakazelisa kakhulu. Ihilela ukuvuselela amasosha omzimba ethu (uhlelo olusivikela ezifweni) nokusinika imithi esiza ekutholeni nasekubhubhiseni amangqamuzana omdlavuza.
• Ukwelashwa okuqondiwe: Lokhu kuhilela ukunikeza imithi eqondisa izinguquko ezithile zofuzo ezibangela umdlavuza futhi ethinta kuphela lezo zinguquko. Lokhu kuholela ekulimaleni okuncane kwamangqamuzana anempilo.

Ungafunda kabanzi ngalezi zindlela zokwelapha ezintsha ngokukhuluma nodokotela wakho.

Kunjani ukululama ngemva kokwelashwa?

Isikhathi esithathayo ukuze ululame ngemva kokwelashwa, okuhlanganisa nokuthi ungabuyela nini emsebenzini noma esikoleni, kuncike ezintweni eziningana. Nazi ezinye zazo:

• Ubudala bakho kanye nempilo yakho iyonke.
• Indawo lapho kukhona khona isimila, ubukhulu baso, nokuthi zingaki izimila ezikhona.
• Uma uthole ukwelashwa okwengeziwe njengokwelashwa ngamakhemikhali noma ngemisebe, imiphumela yako.

Ngakho-ke, kubalulekile ukulandela imiyalelo kadokotela wakho ngqo . Ukuze kuqashwe ukuthi inqubo yokuphulukiswa ihamba kahle yini, odokotela bavame ukukucela ukuthi wenze izivivinyo ze-"brain imaging" (isb. `MRI scans`). Ukwenza konke ngendlela efanele kubaluleke kakhulu ukuze ululame ngokushesha.

Iyini i-prognosis ngalesi sifo?

Lo mbuzo uwumthwalo omkhulu ezingqondweni zabantu abaningi. Umbono we-choroid plexus carcinoma, okungukuthi, amathuba okululama kanye nobude besikhathi sokuphila, uyahlukahluka kakhulu kumuntu nomuntu. Kunezici eziningana ezibalulekile eziwuthintayo:

• Ubudala besiguli (imiphumela ingahluka ezinganeni ezincane).
• Isimo sempilo sesiguli sisonke.
• Kungakhathaliseki ukuthi isimila sonke sisusiwe ngesikhathi sokuhlinzwa, noma ingxenye yaso kuphela. (Uma isimila singasuswa ngokuphelele, umbono muhle kakhulu.)

Futhi, lezi zinto zithinta nombono:

• Uma isimila sibuya ngemva kokuhlinzwa noma ezinye izindlela zokwelapha (`ukuphinda`).
• Uma umdlavuza usakazeka (ukhula ube yi-metastases) usuka endaweni yawo yokuqala uye kwezinye izingxenye zomzimba, isibonelo, umgogodla.

Akuwona wonke umuntu ofanayo, ngakho-ke kungcono futhi kunembile ukubuza ithimba lakho lezokwelapha ukuthi yini ongayilindela ngokusekelwe esimweni sakho.

Ngokwezibalo, izinga lokusinda kweminyaka emihlanu ngenxa ye-choroid plexus carcinoma liphakathi kuka-40% no-60%. Lokhu kusho ukuthi kubantu abayi-10 abatholakale benalesi sifo, abane kuya kwabayisithupha bazophila iminyaka emihlanu noma ngaphezulu. Kodwa-ke, kumuntu onesifo sofuzo esishiwo ngaphambilini i-Li-Fraumeni syndrome, leli phesenti kuthiwa liphansi njengo-30 %.

Ungakhathazeki ngalezi zibalo. Lezi zimane ziyizilinganiso. Isimo sawo wonke umuntu, impendulo yokwelashwa, kanye nempi kuhlukile. Ngokuthuthuka kwesayensi yezokwelapha, lezi zimo ziya ziba ngcono usuku nosuku.

Kunini lapho kufanele nakanjani sibone khona udokotela?

Uma wena noma ingane yakho niqhubeka nokuba nesinye noma ngaphezulu sezimpawu ezishiwo ngenhla, ikakhulukazi uma nibona noma yikuphi kwalokhu okulandelayo, kufanele nakanjani nibone udokotela ofanelekayo ngaphandle kokuchitha isikhathi :

• Izinguquko ezisobala ekuziphatheni. Isibonelo, ukudideka okungazelelwe, ukucasuka okukhulu, ukucasuka.
• Ubunzima bokuphefumula.
• Ubunzima bokuhamba, ukulahlekelwa yibhalansi.
• Ukuxhuzula okungazelelwe (`Ukuxhuzula`).
• Ikhanda elibuhlungu kakhulu, elingabekezeleleki.
• Izinguquko ezisheshayo embonweni noma enkulumweni.

Yimiphi imibuzo ebalulekile okufanele uyibuze udokotela?

Uma ubona udokotela wakho, ungabuza imibuzo efana nale ukuze uthole ukuqonda okucacile ngesimo sakho. Ungesabi ukubuza konke okusengqondweni yakho:

• "Dokotela, hlobo luni lwesifo sobuchopho enginaso/ingane yami?"
• "Yiziphi izindlela zokwelapha ezingcono kakhulu zalokhu? Yikuphi kuzo okungcono kakhulu kimi/enganeni yami?"
• "Yimiphi imiphumela emibi engaba khona ngemva kokwelashwa?"
• "Kukangaki mina/ingane yami kuzodingeka ngenze izivivinyo ezifana nokuskena kwe-`imaging`?"
• "Uyini umbono wengane yami/yami ngalesi simo?"

Izwi elibhekiswe emndenini, ikakhulukazi kubazali...

Uma ingane yakho itholakala ine-choroid plexus carcinoma, kuvamile ukuzizwa sengathi umhlaba wakho wonke uwile. Konke kuqala ukwenzeka ngokushesha okukhulu. Uzohlangana nethimba elikhulu lodokotela, okuhlanganisa odokotela bezifo zengqondo abasha kanye nodokotela bezifo zomdlavuza. Ikhalenda lakho lizogcwala ukuhlolwa, ama-aphoyintimenti kadokotela, kanye nokuhlinzwa. Ngemva kwenjabulo yokuqala, kuzodingeka ulinde isikhathi eside ukuze imiphumela ibuye, ukuze uthole izinyathelo ezilandelayo. Lesi sikhathi sokulinda singaba nzima kakhulu futhi sibe nzima.

Kodwa, yonke imizuzu emincane ongayichitha nomntanakho phakathi naleso sikhathi iyigugu. Funda i-lullaby entsha yokumthoba ukuze alale, bukelani amakhathuni noma ama-movie awathandayo ndawonye, ​​zama ukuthola into entsha eningayenza ndawonye enikulethela injabulo.

Kunzima ukuphila esikhathini samanje, ukhathazeka nge-scan elandelayo, umbiko wokuhlolwa olandelayo. Kodwa kungakhathaliseki ukuthi lokho kuskena noma umbiko wembulani, ungahlala ubeke eceleni ukukhathazeka nokwesaba kwakho futhi ujabule ngesikhathi esiyigugu osichithe nomntanakho. Awuwedwa. Baningi abantu abangakusiza futhi bakulalele.

Okokugcina, izinto ezibaluleke kakhulu okufanele uzikhumbule (Umyalezo Wokuya Ekhaya)

Kulungile, ake sifingqe izinto ezibaluleke kakhulu okudingeka uzikhumbule ngale ``Choroid Plexus Carcinoma'' okuxoxwe ngayo isikhathi eside?

• I-Choroid Plexus I-Carcinoma uhlobo lomdlavuza olungavamile kodwa olukhula ngokushesha oluvela ezicutshini zobuchopho ezibizwa ngokuthi i-choroid plexus. Ithinta ikakhulukazi izingane ezincane nezinsana .
• Uma unesinye noma ngaphezulu sezimpawu ezifana nokulala ngokweqile, ikhanda elibuhlungu elingapheli, ukuhlanza njalo, ukuxhuzula, noma izinkinga zokubona ngenxa yezimbangela ezingakatholakali, ungachithi isikhathi futhi funa iseluleko sezokwelapha ngokushesha .
• Izindlela zokwelapha eziyinhloko ezisetshenziswayo ukuhlinzwa, ukwelashwa ngamakhemikhali, kanye nokwelashwa ngemisebe . Ngezinye izikhathi kungasetshenziswa izindlela zokwelapha ezingaphezu kweyodwa.
• Nakuba lolu uhambo oluyinselele nolunzima, uma wena noma othile emndenini wakho ebhekene nalesi simo, khumbula ukuthi awuwedwa . Qhubeka nalokhu ngokusekelwa yithimba lakho lezokwelapha, umndeni, nabangani. Ukuhlala unethemba futhi uqinile kubaluleke kakhulu kule mpi.

Sithemba ukuthi lolu lwazi luwusizo kuwe. Impilo enhle kubo bonke!

I- Choroid Plexus Carcinoma, umdlavuza wobuchopho, umdlavuza wobuntwana, uketshezi lomgogodla, izimpawu zomdlavuza, ukwelashwa komdlavuza, isimila sobuchopho, umdlavuza wobuntwana