Wake wazizwa sengathi izandla zakho neminwe yakho kuya ngokuya kuncipha amandla? Mhlawumbe ngisho nemisebenzi elula njengokuphatha inkomishi noma ukuchofoza inkinobho isibe nzima? Ingabe nawe uzwa ukuchofoza nokuchofoza kwemisipha? Lezi akuzona nje izinto ezivamile, zingaba izimpawu zesimo esikhethekile sezinzwa esibizwa ngokuthi 'i-multifocal motor neuropathy ' esizokhuluma ngayo namuhla. Ungakhathazeki, sizoxoxa ngakho konke ngamagama alula.
Kuyini i-multifocal motor neuropathy (MMN)?
Kalula nje, i-Multifocal Motor Neuropathy (MMN) iyisimo esingavamile kakhulu. Kwenzeka lapho imizwa elawula ukusebenza kwemisipha emzimbeni wethu (imizwa yemisipha) yonakala. Lokhu kubangela ukuthi imisipha ibe buthaka kancane kancane ngokuhamba kwesikhathi. Lobu buthakathaka buthinta kakhulu izandla, iminwe, kanye nemilenze.
Cabanga ngale ndlela: imisipha emzimbeni wethu ifana namadivayisi kagesi. Imizwa iyizintambo ezihlinzeka ngogesi kuyo. Ku-MMN, amasosha omzimba wethu ahlasela lezi 'zintambo'. Bese, imisipha ayitholi izimpawu zikagesi ezizidingayo, ngakho-ke kancane kancane iba buthaka.
Nakuba lesi kuyisifo esingamahlalakhona, esihlala isikhathi eside esingelapheki, into engcono kakhulu ukuthi kunezindlela zokwelapha ezisebenza kahle kakhulu . Ukwelashwa kuvame ukulawula ukuqhubeka kwesifo futhi kubuyisele amandla emisipha.
Lesi sifo sivame ukutholakala kubantu abaneminyaka ephakathi kuka-40 no-50. Kodwa-ke, singakhula kunoma ubani oneminyaka ephakathi kuka-20 no-80. Lesi simo sivame kakhulu kwabesilisa kunabesifazane.
Iyini imbangela yangempela ye-MMN?
Imbangela yangempela yalokhu ayikatholakali. Kodwa siyazi ukuthi lokhu akuyona into ezuzwa njengefa. Lokho kusho ukuthi akusona isifo esizuzwa njengefa .
Lokhu kubizwa ngokuthi isifo sokuzivikela komzimba . Lokhu kusho ukuthi isimiso somzimba sokuzivikela , okufanele sivikele imizimba yethu, siqala ngephutha ukuhlasela amangqamuzana ethu emizwa aphilile njengokungathi ayizitha. Abacwaningi basazama ukuthola ukuthi kungani lokhu kwenzeka.
Ziyini izimpawu zalesi sifo?
Ungase uqale ukuzwa izimpawu ezandleni zakho naseminweni.
- Ubuthakathaka bemisipha: Amandla ayancipha, ikakhulukazi eminweni nasezingalweni. Izinto ezifana nokuthayipha, ukubhala ngepeni, kanye nokubopha izinkinobho zehembe kungaba nzima.
- Ukugingqa nokudonsa imisipha (Tw)Ukuluma Nokuqaqamba): Ungase uzizwe imisipha inyakaza futhi iqaqamba ngendlela engalawuleki.
- Ubunzima ohlangothini olulodwa: Ngokuvamile lezi zimpawu zizwakala kakhulu ohlangothini olulodwa lomzimba (isb., ingalo yesokudla).
- Ngokuhamba kwesikhathi, lobu buthakathaka bungathinta nemilenze.
Into ebaluleke kakhulu ukuthi akukho ubuhlungu noma ukungakhululeki kulesi sifo. Uzizwa konke kuhamba kahle. Lokhu kungenxa yokuthi lesi sifo sithinta kuphela izinzwa zomzimba ezilawula ukunyakaza. Izinzwa zomzimba azonakaliswa.
Ungasibona kanjani lesi sifo ngokunembile?
Izimpawu zalesi sifo zifana kakhulu neze- ALS (Amyotrophic Lateral Sclerosis) , isifo sezinzwa esibi kakhulu nesingelapheki. Ngakho-ke, ngisho nodokotela ngezinye izikhathi badidanisa lezi zifo ezimbili. Kodwa-ke, njengoba i-MMN iyisimo esingelapheka futhi esingalawuleki , kubaluleke kakhulu ukuxilonga lesi sifo ngendlela efanele .
Uma unalezi zimpawu, kufanele nakanjani ubonane nodokotela wezinzwa. Uzokuhlola futhi akubuze imibuzo mayelana nezimpawu zakho. Ngemuva kwalokho, bazoyala ukuhlolwa ukuze basuse ezinye izimo futhi baqinisekise i-MMN.
| Ukuhlolwa | Kalula nje... |
|---|---|
| Ucwaningo Lokuqhutshwa Kwezinzwa (i-NCS) | Lokhu kulinganisa isivinini lapho izimpawu zikagesi zihamba khona ngemizwa yakho. Kufana nokulinganisa isivinini lapho umsinga ugeleza khona ngentambo. Ku-MMN, leli jubane liyehliswa kweminye imizwa. |
| I-Needle Electromyography (EMG) | Kulokhu, kufakwa ama-electrode amancane anezikhonkwane emisipheni bese kulinganiswa umsebenzi kagesi wemisipha. Lokhu kungasetshenziswa ukubona ukuthi imisipha isabela kahle yini ezimpawini ezivela emithanjeni. |
| Ukuhlolwa Kwegazi (Ukuhlolwa Kwegazi Kwama-antibodies e-GM1) | Ezinye iziguli ze-MMN zinamazinga aphezulu ama-antibodies abizwa ngokuthi i-GM1 egazini lazo. Lokhu kuhlolwa kungaqinisekisa lokhu. Kodwa-ke, kungenzeka ukuthi ube ne-MMN noma ngabe la mazinga ama-antibody ajwayelekile. |
Iphathwa kanjani?
Uma izimpawu zakho zincane kakhulu, ungase ungadingi ukwelashwa. Kodwa-ke, uma ubuthakathaka bakho bukhulu, udokotela wakho cishe uzokunikeza ukwelashwa okuyinhloko.
Ukwelashwa okuyinhloko: IVIG
Ukwelashwa okuyinhloko nokuphumelela kakhulu kwalokhu yi -Intravenous Immunoglobulin (IVIG) . Lona umuthi onikezwa ngemithambo yegazi. Usebenza ngokulawula umsebenzi wama-antibodies ayingozi nokuvimba umonakalo ezinzwa.
- Uzozwa amandla emisipha yakho ebuya zingakapheli amasonto amathathu kuya kwayisithupha ngemuva kokuthola ukwelashwa kwe-IVIG.
- Ngenxa yokuthi imiphumela yalokhu kwelashwa iyancipha ngokuhamba kwesikhathi, kudingeka ukwelashwa okuphindaphindiwe, cishe kanye ngenyanga.
- I-IVIG ayinazo imiphumela emibi eminingi, kodwa iyindlela yokwelapha ebiza kakhulu.
Ezinye izindlela zokwelapha
Uma ukwelashwa nge-IVIG kungaphumeleli noma kungenakunikezwa, odokotela bangase bacabangele eminye imithi efana ne -Cyclophosphamide , kodwa inemiphumela emibi eminingi.
Ngaphezu kwalokhu, ukwelashwa ngokomzimba , ukuvivinya umzimba, kanye nokwelashwa ngokushisa kungasiza ekugcineni amandla emisipha nokusebenza kahle. Khuluma nodokotela wakho ngalokhu bese ukhetha okulungile.
Yini engingayenza ngenkathi ngihlala ne-MMN?
I-MMN akuyona isizathu sokumisa impilo yakho. Ngokuphathwa okufanele, ungaphila impilo enhle.
- Impilo yengqondo: Ukucindezeleka kungenzeka nganoma yisiphi isifo esingamahlalakhona. Ngakho-ke lawula ukucindezeleka kwakho bese ucela usizo kuchwepheshe wezempilo yengqondo uma kudingeka.
- Indlela yokuphila enempilo: Yidla ukudla okunempilo futhi ulale ngokwanele.
- Ukuzivocavoca: Cela udokotela wakho noma uchwepheshe wezokwelapha umzimba ukuthi akunike ukuzivocavoca okuthambile okufanele.
- Cela usizo: Uma unenkinga ngemisebenzi yansuku zonke, ungangabazi ukucela usizo.
- Amaqembu Okusekela: Ukukhuluma nokwabelana ngolwazi nabantu ababhekene nezimo ezifanayo kungaba umthombo omkhulu wamandla kuwe.
Lesi sifo ngeke sifinyeze impilo yakho. Uma lesi sifo sitholakala kusenesikhathi futhi selashwa ngendlela efanele,Ungaba matasa, usebenze, futhi uphile impilo evamile iminyaka eminingi.
Umlayezo Wokuya Nawe Ekhaya
- I-Multifocal Motor Neuropathy (MMN) iyisifo se-autoimmune esingavamile kodwa esingelapheka.
- Uphawu oluyinhloko ubuthakathaka bemisipha kancane kancane ezingalweni nasemilenzeni. Akukho buhlungu noma ukungakhululeki.
- Kubalulekile ukuhlukanisa lokhu kwezinye izifo ezinkulu njenge-ALS. Ukuze lokhu kwenzeke, kufanele kuxoxwe nodokotela wezinzwa.
- I-IVIG iyindlela yokwelapha ephumelela kakhulu engabuyisa amandla emisipha.
- Lesi sifo asifinyezi isikhathi sokuphila, futhi ngokuphathwa kahle, ungaphila impilo esebenzayo.
- Uma unalezi zimpawu, ungachithi isikhathi bese uthintana nodokotela wakho (udokotela) ukuze akunike iseluleko.
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