Ingabe izandla nezinyawo zakho nazo ziyasha futhi zibomvu? Lokhu kungaba yi-(Erythromelalgia)!

Wake wabona, noma wabhekana nomuzwa wokushisa ongazelelwe, ongabekezeleleki engalweni noma emlenzeni wakho? Kanye nalokho, indawo iba bomvu futhi ngezinye izikhathi iba buhlungu kakhulu. Lokhu kungase kungabi yinto elula. Namuhla, sizokhuluma ngesimo esingavamile esingase senzeke, kodwa abantu abaningi abazi ngaso.

Kuyini lokhu (i-Erythromelalgia)?

Kalula nje, (i-Erythromelalgia) yisimo esingavamile kakhulu. Okwenzekayo kulokhu ukuthi kukhona ukwanda okungazelelwe kokugeleza kwegazi ezingxenyeni ezithile zomzimba wethu, ikakhulukazi izitho zomzimba. Yingakho izimpawu okukhulunywe ngazo ekuqaleni zenzeka. Lesi yisimo esingamahlalakhona , okusho ukuthi singahlala impilo yonke. Ngokuhamba kwesikhathi, lezi zimpawu, ikakhulukazi ubuhlungu obuvuthayo, zinganda kancane kancane. Ngakho-ke, kubaluleke kakhulu ukuqaphela lokhu.

Lokhu kuthinta kuphi kakhulu?

Ngokuvamile, lesi simo (i-Erythromelalgia) sithinta imilenze yakho, ikakhulukazi izinyawo zakho . Kodwa-ke, akupheleli lapho. Kunezinye izindawo ezingathinteka:

• Izandla zakho
• Ubuso
• Izintende zezandla nezinyawo
• Akuvamile ukuthi ama-earlobes nawo athinteke.

Ingabe kunezinhlobo ezahlukene ze-(Erythromelalgia)?

Yebo, kunezinhlobo eziningana zalokhu futhi. Ake sibone ukuthi ziyini.

1. Okuyinhloko (i-Erythromelalgia Eyinhloko)

Lokhu kwenzeka lapho kungekho esinye isifo esiyisisekelo, futhi lesi simo (i-Erythromelalgia) senzeka sodwa. Lokhu futhi kunezingxenye ezimbili:

• I-Idiopathic Erythromelalgia: Lolu uhlobo oluvame kakhulu. Akukho sizathu esicacile esitholakele okwamanje.
• I-Erythromelalgia Ezuzwe Njengefa: Lokhu kubangelwa izinguquko ezakhiweni zethu zofuzo . Lezi zinguquko zingathinta indlela izimpawu zethu zobuhlungu ezihamba ngayo. Lesi simo singase siqhubeke nasemindenini, okusho ukuthi singadluliselwa ezizukulwaneni ngezizukulwane.

2. I-Secondary (i-Erythromelalgia Yesibili)

Lolu hlobo lwe-erythromelalgia lubangelwa esinye isimo sezokwelapha . Okusho ukuthi, lungenzeka njengomphumela wesinye isimo sezokwelapha osuvele unaso. Nazi izibonelo ezimbalwa:

• Izifo ezihlasela amasosha omzimba: Izibonelo zifaka phakathi i-lupus kanye ne-multiple sclerosis.
• I-Essential thrombocythemia: Lokhu kuyisifo segazi. Kalula nje, umzimba ukhiqiza ama-platelet amaningi kakhulu, uhlobo lweseli.
• `(I-Polycythemia vera)`: Lesi futhi yisifo lapho inani lamaseli abomvu egazi likhula khona.
• `(Isimo sikaRaynaud)`: Kulokhu, iminwe nezinzwane ziyazwela emakhazeni nasekucindezelekeni kwengqondo bese ziphenduka zibe luhlaza okwesibhakabhaka noma zibe bomvu.
• `(Thrombocytopenia)`: Lokhu ukwehla kwenani lama-platelet egazini.
• I-Neuropathy: Izimo ezibangelwa ukulimala kwemizwa.

Ziyini izimpawu zalokhu? Ake sithole ukuthi kuyini ngempela!

Kunezimpawu ezintathu eziyinhloko ze-Erythromelalgia. Lezi yizi:

1. Ukushisa kwesikhumba okwenyukayo: Indawo ethintekile izwakala ifudumele uma uyithinta kunezinye izindawo.

2. Ubuhlungu: Lena yinkinga enkulu kubantu abaningi. Nakuba abanye abantu bengase bezwe umuzwa wokucasuka okuncane, abanye bangase babe nobuhlungu obukhulu obuhambisana nomuzwa wokusha . Abanye bachaza ubuhlungu njengokusha noma ukugwazwa.

3. Ukubomvu kwesikhumba: Indawo ethintekile ingase ihluke ngombala kusukela kopinki kuya kobomvu obumnyama.

Ngaphezu kwalezi zici eziyinhloko, ezinye izici zingabonakala:

• Ukuluma: Abanye abantu bazwa ukuluma kanye nomuzwa wokusha.
• Isikhumba esibandayo uma kungekho zimpawu: Uma ukuvuvukala nokubomvu sekuphelile, indawo ingase izwakale ibanda kakhulu uma uyithinta kunezinye izindawo.
• Ukujuluka: Indawo ethintekile ingase ijuluke kakhulu kunokujwayelekile.
• Ukuvuvukala: Ngezinye izikhathi indawo ingase ivuvuke kancane.
• Ukuzwela kwesikhumba, amabala: Isikhumba singase sibe buhlungu uma sithinteka, futhi ngezinye izikhathi singase sibonakale njengamabala.
• Ukuba ndikindiki: Izandla nezinyawo zakho zingase zizwe zindikindiki.

Lezi zimpawu zingavela ohlangothini olulodwa lomzimba noma kuzo zombili izinhlangothi . Futhi, nakuba zincane kwabanye abantu, zingase zingabekezeleleki kwabanye. Kwabanye abantu, lezi zimpawu ziqala ebuntwaneni , kanti kwabanye, zibathinta kuphela lapho sebekhulile .

Kungani lezi zimpawu zanda ngokuzumayo (ukusha)?

Abantu abane-Erythromelalgia banezikhathi zokwanda kwezimpawu ngokuzumayo. Sizibiza ngokuthi "ama-flares." Lokhu kuvame ukwenzeka lapho izinga lokushisa lomzimba wakho likhuphuka ngokuzumayo . Cabanga ngalezi zikhathi:

• Ukuphuza iziphuzo eziqukethe i-caffeine: Ukuphuza izinto ezifana netiye nekhofi.
• Ukuphelelwa amanzi emzimbeni: Lapho umzimba ungatholi amanzi anele.
• Ukuphuza utshwala: Ukusetshenziswa kotshwala.
• Ukudla ukudla okunongwe: Ukudla i-chili, ukudla okunongwe.
• Ukuzivocavoca: Uma wenza ukuzivocavoca okunzima.
• Ukuzizwa ucindezelekile: Uma uzizwa ucindezelekile noma ukhathazekile.
• Ukuba sendaweni eshisayo: ekamelweni elishisayo, noma endaweni eshisayo ngaphandle.

"Ngikhumbula ngolunye usuku ngaya ephathini ngadla i-biryani ebabayo, ngabe sengidansa nabangani bami kwathi lapho ngibuya, imilenze yami yomibili yayizwakala sengathi iyasha. Yayibomvu. Ngangicabanga ukuthi izicathulo zami zinamathele. Kwaba kamuva lapho udokotela engitshela khona ukuthi lokhu kungaba yi-(Erythromelalgia)." - Kunabantu abaye baba nokuhlangenwe nakho okufanayo.

Odokotela bakuthola kanjani lokhu?

Akukho ukuhlolwa okuqondile kokuxilonga i-erythromelalgia. Udokotela wakho uzolalela izimpawu zakho, akuhlole uma unezimpawu, futhi abheke izithombe ozithathe ngaleso sikhathi. Ngezinye izikhathi , kudingeka ukuhlolwa ukuze kunqunywe ezinye izimo nokuphenya kabanzi izimpawu zakho. Ezinye zalezi zivivinyo zifaka:

• Ukuhlolwa kwegazi: Hlola ezinye izifo eziyisisekelo.
• Ukuhlolwa kwezakhi zofuzo: Uma kukhona ukungabaza ngohlobo lwezakhi zofuzo, hlola izinguquko ezihlobene.
• I-Thermography: Lolu uhlobo lokuhlola olusebenzisa ikhamera ekhethekile ukukala ngokunembile izinguquko zokushisa ezingxenyeni ezahlukene zesikhumba.
• Ama-X-ray noma ezinye izifundo zezithombe: Lokhu kungenziwa futhi uma kudingeka.

Kulungile yini ukufaka iqhwa emanzini? Lokhu akulungile!

Uma kuvela ukuvuvukala, ungase uzizwe sengathi ufake ingalo noma umlenze othintekile esitsheni samanzi eqhwa . Nakuba kungase kunikeze impumuzo ngokushesha, lokhu akuwona umqondo omuhle nhlobo . Eqinisweni, ukusebenzisa amanzi eqhwa kungenza izimpawu ze-erythromelalgia zibe zimbi kakhulu . Akukhona lokho kuphela, kunengozi enkulu yokuthi amanxeba esikhumba angapholi, futhi ngezinye izikhathi ngisho nezimo zokufa kwamaseli (necrosis) . Lokhu kunzima kakhulu ukukwelapha. Ngakho-ke, kungakhathaliseki ukuthi kukhona ukuvuvukala okungakanani, ungasebenzisi amanzi eqhwa.

Ngakho-ke ikuphi ukwelashwa kwalokhu?

Ukwelashwa okufanele kuzoncika embangela ye-erythromelalgia yakho.

• Uma kuyisifo sesibili (i-erythromelalgia yesibili) , okusho ukuthi ibangelwa esinye isifo, izimpawu zakho zingase zithuthuke uma isifo esiyisisekelo seselashwa .
• Uma kwenzeka i-erythromelalgia eyinhloko , kusetshenziswa imithi kakhulu.

Yimiphi imithi esetshenziswayo?

Imithi yomlomo iyindlela yokwelapha evame kakhulu (i-Erythromelalgia). Eminingi yale mithi empeleni isetshenziselwa ezinye izimo. Kodwa-ke, iyasebenza kakhulu ekulawuleni izimpawu ze-(Erythromelalgia).

Ezinye izibonelo:

• Imithi yokubulala izinzwa: njenge-gabapentin noma i-carbamazepine.
• Imithi yokucindezeleka: njenge-amitriptyline noma i-venlafaxine.
• Ama-antihistamine: njenge-cetirizine noma i-diphenhydramine.
• I-aspirin: Yabantu abadala kuphelaLokhu kuyanikezwa. Akukuhle ukukunika izingane ezincane.
• Imithi yokucindezela kwegazi: Kungaba ukwandisa noma ukunciphisa ukugeleza kwegazi.
• Amaphilisi okudambisa izinhlungu kadokotela.

Yiziphi ezinye izindlela zokwelapha ezingenziwa?

Ngaphezu kwemithi yomlomo, kunezinye izindlela zokwelapha:

• Ukufuthwa kwe-Lidocaine: Lokhu kuyisidakamizwa sokuqeda izinhlungu. Kufakwa emthanjeni osengalweni.
• Izithako zokudla okunempilo: Izibonelo zifaka phakathi i-magnesium ne-alpha-lipoic acid.
• Izindlela zokwelapha zokulawula ubuhlungu: Lokhu kufaka phakathi izinto ezifana nokuvimba izinzwa.
• Imithi yokwelapha: Okhilimu abasetshenziswa esikhumbeni.

Ingabe zikhona izindlela zokuthola impumuzo ngaphandle kwemithi?

Yebo, ngaphezu kwemithi, kunezinto ezithile ongazenza wena ukuze unciphise lokhu kuvuvukala nobuhlungu:

• Phakamisa indawo ethintekile: Uma kungumlenze, beka umcamelo phezu kwawo.
• Phumula endaweni ebandayo: Isibonelo, ulele endaweni ebandayo njengephansi lethayela.
• Sebenzisa ifeni.
• Beka amaphakethe ejeli yosizo lokuqala apholile asongwe ngethawula elincane esikhumbeni. (Ungafaki iqhwa ngqo!)

Ingabe lokhu kungavinjelwa ukuthi kwenzeke? (Ukuvimbela)

Akukho okuningi esingakwenza ukuvimbela i-Erythromelalgia. Kodwa-ke, uma othile emndenini wakho enalesi simo, ungathola ukuhlolwa kofuzo ukuze ubone ukuthi kungenzeka kangakanani ukuthi nengane yakho nayo ibe naso.

Liyini ikusasa lomuntu onalesi sifo? (Isibikezelo)

Ama-flares angathinta ikhwalithi yempilo yakho. Kodwa-ke, awavamile ukuba yingozi . Iningi labantu liphila impilo evamile. Bayasebenza, bayahamba, futhi bayakujabulela ukwenza izinto abazithandayo. Kodwa-ke, ngezinye izikhathi, uma ukwelashwa kungaphumeleli, kungaba nzima ukwenza imisebenzi yansuku zonke.

Impilo yansuku zonke injani nge-(Erythromelalgia)?

Ngokusho kwabantu abanalesi sifo, kunemizwa eminingana ehambisana nalezi zimpawu:

• Isikhumba sizwakala siqinile: sengathi izingubo ozigqokile ziyakucindezela.
• Njengokungathi kusemlilweni, noma sengathi amanzi ashisayo awele phezu kwawo: umuzwa wokusha ongabekezeleleki.
• Njengokunqunywa ngezinsingo: ubuhlungu obubukhali.
• Njengokushiswa yilanga okukhulu: Njengobuhlungu obuzwayo lapho isikhumba sakho sishiswa ukushiswa yilanga okukhulu.

Akulula ukuphila nezinto ezinje, kodwa kunezindlela zokubhekana nazo.

Yini ongayenza ukuze uvimbele ukugqamuka komlilo futhi uhlale ukhululekile?

Ungenza izinguquko ezimbalwa ezincane endleleni yakho yokuphila ukuze unciphise ukuvama kwalezi ziqhumane futhi uzizwe ukhululekile uma zenzeka.

• Gwema ukudla neziphuzo ezandisa izimpawu: Qaphela ukuthi udlani futhi uphuzani. Gwema izinto ezandisa izinga lokushisa komzimba, njenge-caffeine nokudla okunongwe kakhulu.
• Qaphela lapho ukhetha izivivinyo: Khetha izivivinyo ezithambile ezingakhuphuli izinga lokushisa lomzimba wakho kakhulu ngesikhathi esisodwa. Isibonelo, izinto ezifana nokubhukuda, i-yoga, kanye ne-Tai Chi zinhle.
• Zama ukuhlala endaweni epholile: Uma uphuma, hamba lapho ukushisa kunciphile, njengasekuseni.
• Qaphela lapho ugeza: Shaya eshaweni kunokucwilisa ebhavini lamanzi. Sebenzisa amanzi afudumele ukuze ugweme ukulimaza isikhumba sakho. Kungcono nakakhulu uma ungagcina ifasitela livulekile endlini yokugezela.
• Hlela kusenesikhathi: Njengoba izimpawu zivame ukwenzeka ebusuku, hlela imisebenzi yakho ebalulekile emini.
• Lungisa ngaphambi kokulala: Gcina ifeni noma i-AC encane (iyunithi yokupholisa umoya ephathekayo) eduze kombhede wakho. Sebenzisa ishidi lombhede elincane ngangokunokwenzeka, noma ulale ngaphandle kwengubo yokulala phezulu.

Ingabe udinga futhi ukucabanga ngempilo yengqondo?

Yebo, kunjalo. Ukuphila nesifo esingavamile njengalesi kungenza abanye abantu bazizwe benesizungu futhi bengenalusizo . Bangase babe nomuzwa wokuthi umndeni, abangane, ngisho nodokotela abasiqondi lesi sifo. Ngezikhathi ezinjengalezi, kungaba yinto edumazayo .

Kodwa, awuwedwa. Kukhona amaqembu okusekelana ku-inthanethi abantu abane-Erythromelalgia. Ngokujoyina nabo, ungakhuluma nabanye abadlula kokuhlangenwe nakho okufanayo nawe futhi ufunde kokuhlangenwe nakho kwabo. Lokho kuzokunikeza umuzwa omkhulu wamandla nempumuzo.

Ngakho-ke, izinto zokugcina okufanele uzikhumbule (Umyalezo Wokuya Ekhaya)

I-Erythromelalgia yisimo esingavamile kodwa esingaba yinkinga enkulu esibonakala ngokusha okungabekezeleleki kanye nokubomvu kwezandla nezinyawo.

Ungakhathazeki! Kunezindlela eziningi zokwelapha lokhu. Nakuba ngezinye izikhathi kunzima ukulawula izimpawu ngokuphelele ngokwelashwa, abantu abaningi baphila impilo ephumelelayo nejabulisayo benalesi simo.

Into ebaluleke kakhulu ukukhuluma nodokotela ngezimpawu zakho, uthole ukuxilongwa okunembile, bese uqala ukwelashwa okufanele wena. Kubalulekile futhi ukwenza izinguquko ezincane endleleni yakho yokuphila ukuze uzame ukuvimbela izimpawu ukuthi zingabi zimbi kakhulu. Hlala uqinile!

I- Erythromelalgia, ukuvuvukala kwesikhumba, ukubomvu kwesikhumba, izifo ezingamahlalakhona, ukwanda kwezimpawu, ubuhlungu emilenzeni, ubuhlungu ezandleni