Wake waphawula indawo emzimbeni wengane yakho, mhlawumbe emlenzeni noma esiswini sayo, eshintshe umbala ngokuzumayo futhi yaba nzima ukuyithinta? Njengomzali, kungenzeka ukuthi uzizwe wesaba futhi ukhathazekile kancane lapho uyibona. "Kuyini lokhu? Kungani lokhu kwenzeke?" Kungenzeka ukuthi uke wacabanga. Ungesabi. Ezimweni eziningi, lesi simo singabangelwa yisifo esikhuluma ngaso namuhla, i-`Juvenile Localized Scleroderma`. Nakuba igama liyinkimbinkimbi kancane, ake sixoxe ngalo kalula, ngendlela ongayiqonda.
Kalula nje, iyini i-Juvenile Localized Scleroderma?
Ake siqale ngegama. Igama elithi `Scleroderma` lakhiwe ngamagama amabili esiGreki: elithi "sclera" lisho 'ukuqina', kanti elithi "derma" lisho 'isikhumba'. Lisho nje ukuthi "isikhumba esiqinile" . Igama elithi "Youvenile" lisho ukuthi kwenzeka ezinganeni nakubantu abasha. Igama elithi "localized" lisho ukuthi likhawulelwe ezindaweni ezithile zomzimba, okungukuthi isikhumba, izicubu ezingaphansi kwesikhumba, futhi ngezinye izikhathi imisipha namathambo. Elinye igama lalokhu yi-`Morphea`.
Lesi yisimo sokuzivikela komzimba . Kalula nje, uhlelo lokuzivikela lomzimba wethu, uhlelo lokuzivikela komzimba, luyahlanya kancane bese luqala ukuhlasela isikhumba salo esinempilo. Ngenxa yalokhu kuhlasela, isikhumba sengane siqala ukuvuvukala, noma sivuvuke.
Lokhu kuvuvukala kubangela amangqamuzana ezicubu ezixhumene esikhumbeni ukuthi akhiqize iphrotheni eningi kakhulu ebizwa ngokuthi 'i-collagen' . I-'Collagen' yinto enikeza amandla nokuqina kwezicubu eziningi emzimbeni, okuhlanganisa nesikhumba sethu. Kodwa uma ikhula kakhulu, njengesibazi ngemva kokulimala, isikhumba siyaqina futhi sibe lukhuni. Siphinde sikubize ngokuthi 'i-fibrosis' . Ungakubona lokhu emzimbeni wengane yakho njengendawo eqinile, enombala oshintshile njengale.
Yiziphi izinhlobo eziyinhloko zalesi simo?
Kunezinhlobo eziningana eziyinhloko ze-Localized Scleroderma. Uhlobo ngalunye lunezimpawu ezihlukile kancane. Ake sibheke ukuthi ziyini.
| Uhlobo lwe-Scleroderma | Kwenzekani kulokho? |
|---|---|
| I-Circumscribed noma i-Plaque Morphea | Lolu uhlobo oluvame kakhulu. I-plaque eyodwa noma ngaphezulu eyindilinga noma efana ne-oval, ivele engxenyeni eyodwa noma ezimbili zomzimba. Lokhu kuthinta kakhulu isikhumba kanye nezicubu ezingaphansi. |
| I-Linear Morphea | Kubonakala sengathi kudwetshwe umugqa ngenduku. Lokhu kuvame ukuvela njengemigqa ezingalweni, emilenzeni, noma emzimbeni wengane. Lolu hlobo lungajula kancane futhi luthinte imisipha namathambo angaphansi. Lokhu kungabangela izinkinga ngokunyakaza kwamalunga kanye nokukhula kwengane. |
| I-Morphea Ejwayelekile | Kuvela amabala aqinile amane noma ngaphezulu ezingxenyeni eziningana zomzimba (ngokuvamile esiqwini nasemilenzeni). Ngezinye izikhathi lawa mabala angahlangana abe makhulu. |
| I-Deep Morphea | Lolu uhlobo olubi kakhulu nolungavamile. Luthinta isikhumba, lujule kakhulu emisipheni nasemathanjeni. Lungaba buhlungu futhi. |
Uhlobo olukhethekile: "En coup de sabre"
Lolu uhlobo lwe-'Linear Morphea'. Uma ingane ithola la mabala afana nemicu ebusweni bayo noma ekhanda, sibiza lesi simo ngokuthi "en coup de sabre." Leli igama lesiFulentshi elisho ukuthi "njengokungathi inqunywe ngenkemba." Ngoba ibukeka njengomugqa oshintshile umbala, ngezinye izikhathi ogobile ebunzini.
Yiziphi izimpawu eziboniswa yingane?
Lezi zimpawu zingashintsha ngokuhamba kwesikhathi. Zingaqala ngebala elincane elibukeka njengokulimala.
- Isigaba sokuqala: Kuvela ibala elibomvu noma elinsomi noma i-plaque esikhumbeni sengane. Kulesi sigaba, isikhumba asiqinile futhi sizwakala sijwayelekile.
- Isigaba esiphakathi: Ngokuhamba kwesikhathi, ibala liyaqina, livuvuke, futhi libe likhulu kancane. Isikhungo sebala siba mhlophe noma siphuzi, sibe njengenhlaka, futhi sicwebezele. Kungase kube khona umbala opinki noma onsomi nxazonke.
- Kamuva: Ngokuhamba kwesikhathi, ngemva kokuphela kokuvuvukala, isikhumba esithintekile singaba nsundu (sinombala ogqamile) noma sibe mhlophe (sinombala ogqamile). Ngezinye izikhathi isikhumba singase sibe sincane.
Ezimweni ezimbi kakhulu, la mabala angathinta izicubu ezijulile, okubangela izimpawu ezifana nalezi:
- Ubuhlungu nokungakhululeki.
- Ukungakwazi ukunyakazisa izitho nemisipha kahle.
- Uma kwenzeka ebusweni, kungabangela izinkinga ngamazinyo noma ukubona.
Into ebalulekile ukuthi la mabala angaphela ngokwelashwa. Kodwa-ke, ngezinye izikhathi angaphela bese ephinde avele ('aqhume').
Kungani izingane zikhula lokhu?
Uma ngikhuluma iqiniso, imbangela eqondile yalokhu ayikatholakali , kodwa odokotela bakholelwa ukuthi kungenzeka ukuthi ibangelwa yinhlanganisela yezici.
Into eyinhloko, njengoba sishilo ngaphambili, ukusebenza kwesimiso somzimba sokuzivikela . Ngaphezu kwalokho, ezinye izici zemvelo, isibonelo, ukutheleleka, ukulimala kwesikhumba, njll. kusolwa ukuthi ziyimbangela yalesi simo. Kodwa lesi akusona isifo esithathelwanayo.
Udokotela uhlonza kanjani lokhu?
Uma uyisa ingane yakho kudokotela, into yokuqala ezoyenza ukuhlola ingane ngokucophelela bese ikubuza ngezimpawu zayo. Ungavame ukuqagela ukuthi ngabe lokhu kuyi-'Localized Scleroderma' ngokubheka uhlobo lwamabala esikhumbeni.
Ukuze uqinisekise ukuxilongwa, kungadingeka futhi wenze izivivinyo ezinjengalezi:
- Ukuhlolwa Kwesikhumba: Lokhu kuhilela ukuthatha ingxenye encane kakhulu yesikhumba esithintekile bese uyihlola ngaphansi kwesibonakhulu. Lokhu kusenza sibone ukuthi yiziphi izinguquko ezenzekile emangqamuzaneni esikhumba.
- Ukuskena kwe-MRI (I-Magnetic Resonance Imaging): Lokhu kungabona ukuthi isilonda sesikhumba sesijule kangakanani nokuthi imisipha noma amathambo angaphansi athintekile yini.
Yiziphi izindlela zokwelapha lokhu?
Imigomo eyinhloko yokwelashwa ukulawula ukuvuvukala (ukuvuvukala) esikhumbeni, ukuvimba lesi sifo ukuthi singasabalali, nokunciphisa izibazi (i-fibrosis) esikhumbeni. Ukwelashwa kuncike ohlotsheni kanye nobunzima besifo enganeni.
Kunezinketho eziningana zokwelapha:
- Ama-Corticosteroids: Lawa anganikezwa njengokhilimu wangaphandle, amaphilisi omlomo, noma imijovo yemithambo yegazi.
- Ezinye izinhlobo zokhilimu zesikhumba: Okhilimu abaqukethe imithi efana ne-`Calcipotriene`, `tacrolimus`, `pimecrolimus`.
- Ama-immunomodulating agents: Uma lesi sifo sibi kakhulu, kunikezwa imithi efana ne-`Methotrexate` noma i-`Mycophenolate Mofetil` ukulawula ukusebenza ngokweqile kwesimiso somzimba sokuzivikela.
- Ukwelashwa ngokomzimba kanye nokubhucungwa: Lokhu kubaluleke kakhulu ekuqiniseni imisipha nokugcina ukuhamba kahle kwamalunga, ikakhulukazi ezimweni ezifana ne-'Linear Morphea'.
- Ukwelashwa okulula (i-Phototherapy):Lokhu kwelashwa kusebenzisa imisebe ye-ultraviolet ukuthambisa amabala amnyama esikhumbeni. Kodwa-ke, lokhu kungabangela ukuguga kwesikhumba noma umdlavuza wesikhumba, ngakho udokotela uzochaza lokhu ngokucophelela.
- Ukuhlinzwa kwepulasitiki: Uma isifo singasasebenzi nhlobo, ukuhlinzwa kungenziwa ukuze kubuyiselwe ukubukeka kwesikhumba.
Khumbula, uma lesi sifo sisheshe sitholakale futhi ukwelashwa kuqala, imiphumela iba mihle. Ngemva kokuyeka ukwelashwa, umzimba ungaphinde umunce ezinye zezicubu eziqinile ezine-fiber futhi uthambise isikhumba.
Njengomzali ungamsiza kanjani ingane yakho?
Ngaphezu kokwelashwa kwezokwelapha, kunezinto eziningana ongazenza ekhaya ukuze uvikele isikhumba somntwana wakho.
- Gwema ukusebenzisa insipho eqinile kanye nezinsipho zokuhlanza: Imikhiqizo equkethe amakha aqinile ingenza isikhumba somntwana wakho some futhi silume nakakhulu.
- Sebenzisa i-moisturizer elungele isikhumba: Faka i-moisturizer enhle efanelekile esikhumbeni esibucayi izikhathi eziningana ngosuku.
- Geza ngamanzi afudumele: Gwema amanzi ashisayo kakhulu noma abandayo.
- Zivikele elangeni: Qiniseka ukuthi ugcoba i-sunscreen enhle uma uphuma ngaphandle.
- Gcina umswakama ekhaya lakho: Uma umoya womile, ukusebenzisa i-humidifier kungasiza ekuvimbeleni isikhumba esomile.
Lesi simo siyithinta kanjani impilo yengane?
Ngisho noma lokhu kungase kukwethuse, iqiniso liwukuthi izingane ezine-Juvenile Localized Scleroderma zingaphila impilo evamile ngokuphelele .
Lesi simo sithinta kakhulu isikhumba. Asizilimazi izitho zangaphakathi zomzimba (njengenhliziyo, amaphaphu nezinso). Futhi, asithinti isikhathi sokuphila kwengane.
Akukho sithiyo enganeni sokuya esikoleni, ukudlala nabangani, ukudlala ezemidlalo, nokuhlanganyela emisebenzini yomndeni njengenjwayelo. Eqinisweni, ukuzivocavoca kuyinto enhle ngoba kuqinisa imisipha. Asikho isidingo sokudla okukhethekile neziphuzo, ukumane nje unikeze ukudla okuhle nokulinganiselayo kwanele.
Ngezinye izikhathi, amabala esikhumbeni angenza ingane izizwe ingakhululekile futhi inamahloni emphakathini. Ezimweni ezinjalo, umsebenzi wakho njengomzali ukukhuluma nengane ngothando, umenze aqonde ukuthi lokhu akulona iphutha lakhe, futhi wakhe ukuzethemba kwayo.
Umlayezo Wokuya Nawe Ekhaya
- I-Juvenile Localized Scleroderma iyinkinga ngesimiso somzimba sokuzivikela, hhayi isifo esithathelwanayo noma iphutha lengane.
- Lesi simo sithinta kakhulu isikhumba nezicubu ezingaphansi kwaso, futhi umonakalo ezithweni zangaphakathi awuvamile.
- Imiphumela emihle kakhulu ingatholakala ngokubona udokotela ngokushesha nje lapho ubona izimpawu bese uqala ukwelashwa ngokushesha.
- Izingane ezinalesi simo zingaphila impilo evamile nesebenzayo. Azikho izithiyo kulokho.
- Uma amabala esikhumba sengane yakho ekhula, ebangela ubuhlungu, noma ephazamisa ukunyakaza kwezitho zomzimba, khuluma nodokotela wakho ngokushesha.
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