Ingabe ngezinye izikhathi uvuka ekuseni uzizwa ubuhlungu, uqinile, futhi ubuhlungu emhlane wakho nasezinqeni? Ingabe uzizwa ukhathele kakhulu ekuseni, kungakhathaliseki ukuthi ulala kangakanani ebusuku? Uma lezi zimpawu zingezona nje eyodwa noma ezimbili, kodwa bezikukhathaza isikhathi eside, kufanelekile ukuzinakekela kancane. Namuhla sikhuluma ngomuntu ophila nobunzima obunjalo kanye nesifo esibangela lokhu, i-Ankylosing Spondylitis (AS).
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Iyini ngempela i-Ankylosing Spondylitis (AS)?
Kalula nje, lokhu futhi uhlobo lwesifo samathambo. Kodwa lokhu kuthinta kakhulu umgogodla wakho kanye namalunga ahlobene nawo . Ngenxa yephutha elithile ohlelweni lokuzivikela lomzimba wethu, luqala ukuhlasela amalunga ethu, ikakhulukazi amalunga aphakathi kwamathambo omgogodla kanye namalunga axhumanisa ithambo lesinqe. Lokhu kubangela ukuvuvukala , okusho ukuvuvukala, ukubomvu, kanye nobuhlungu obukhulu.
Ngokuhamba kwesikhathi, lokhu kuvuvukala kubangela ukuthi amalunga aqine noma ahlangane. Igama elithi "ankylosing" lisho "ukuhlangana ndawonye." Lena imbangela eyinhloko yokuqina nobuhlungu ekuseni. Lesi simo sivame kakhulu kwabesilisa futhi sivame ukuqala besebancane, phakathi kweminyaka engama-20 nengama-40.
Manje ake sibone ukuthi okuhlangenwe nakho komuntu ophila nalesi simo kunjani. Le ndaba izokusiza ukuthi uqonde lesi simo kangcono.
Ukuqala usuku nge-AS kuyinselele nsuku zonke.
Umuntu olandisa le ndaba waqala ukuzwa lezi zimpawu eneminyaka engamashumi amabili. Waqala ukuzwa ukungakhululeki, ubuhlungu, nokukhathala okungabekezeleleki. Kwaze kwaba cishe ngemva konyaka lapho atholakala khona ukuthi unalesi sifo.
Nginomuntu osheshayo kakhulu nohlelayo engqondweni yami, kodwa umzimba wami awungivumeli. Kufana nobuntu bohlobo A obubanjwe emzimbeni wohlobo Z.
Uthi njalo ekuseni kuyisiqalo esinzima. Kungakhathaliseki ukuthi ulala kangakanani ngobusuku obandulele, uvuka enomzimba obuhlungu nokukhathala okukhulu. "Kuzwakala sengathi ugijime i-marathon kanti othile ukukushaya ngezinduku," usho kanje.
Into yokuqala engiyenzayo uma ngivuka ukuphuza umuthi wami. Bese ngiphuza ikhofi. Kuphela lapho, uma nginamandla asele, ngibhale, ngiphume ngiyokwenza umsebenzi othile, noma ngipheke.
"Ukuba ne-AS kufana nokuba nesilawuli kude emzimbeni wakho. Bangangicisha ngenkinobho yokukhathala noma nini lapho befuna. Bangaphakamisa inkinobho yobuhlungu ibe yivolumu ephezulu. Bangathulisa izinto engifuna ukuzenza."
Uhlelo lwakho konke - indlela yokwenza impilo ibe lula
Uma uphila nenselele efana nale, ikhambi kuphela ukuhlela yonke into. Kusukela ekuthengeni, ekuphekeni, ekuxhumaneni nabantu, ekusebenzeni, nasekulale, udinga ukuba nohlelo. Futhi, udinga ukuqinisekisa ukuthi ubeka eceleni isikhathi sokuphumula ngemva kokwenza okuthile.
Isibonelo, ake sicabange ngokupheka. Akunakwenzeka ukwenza konke lokhu ngosuku olulodwa, ukusebenza amahora angu-8, ukupheka ebusuku, ukuwasha izingubo, nokuya esitolo. Ngakho-ke akwenzayo ukulungisa imifino nama-sauce awadingayo ekudleni kusasele izinsuku ezimbili noma ezintathu. "Upheka ngobuningi" kanye noma kabili ngenyanga. Lokho kusho ukuthi upheka into efana nenkukhu, enze irayisi, futhi ayigcine efrijini. Ngaleyo ndlela, angalungisa kalula ukudla ngosuku azizwa edangele.
Konke kuncike ekulungiseleleni. Ngaphambi kokwenza noma yini, udinga ukuyihlela. Bese-ke nakanjani udinga ukuphumula.
Impi nokulala - inselele 'ye-Painsomnia'
Ngokuvamile kuba ntambama kakhulu lapho uzizwa ungcono khona. Ngisho noma ungasebenza phakathi naleso sikhathi, kunzima ukunquma ukuthi uzoyeka nini futhi uphumule nini. Futhi, ukulala ne-AS akulula.
Lokhu ukubiza ngokuthi 'i-Painsomnia' . Kusho ukungakwazi ukulala okubangelwa ubuhlungu. Uma umzimba wakho ubuhlungu, ukuthola indawo efanele yokulala kungaba yinselele. Ngezinye izikhathi, ngenxa yokucindezeleka noma ukungakhululeki ngokomzimba, kufanele uhlale uphapheme kuze kuse.
Ngezinye izikhathi ebusuku ngiphinde ngibe 'nobuhlungu obukhulu' . "Kufana nobuhlungu obukhulu obuhlaba amathambo. Ngisho noma sengibe nalesi sifo iminyaka engu-18, kusangimangaza uma sifika, ngoba sibi kakhulu."
Ngakho-ke, njengakho konke okunye, unecebo lokulala.
| Isenzo | Incazelo |
|---|---|
| Ukulungiselela ukulala | Cishe ihora ngaphambi kokulala, yenza inkomishi yetiye elingenayo i-caffeine bese uyiphuza. Iphunga layo lizogcwala egumbini, libonise umzimba wakho ukuthi ulungele ukulala. |
| Ukuqeda ubuhlungu | Okulandelayo, ngibheka ukuthi ubuhlungu bukuphi kakhulu emzimbeni wami bese ngifaka ukhilimu oqeda ubuhlungu noma i-heating pad kulezo zindawo. Ngezinye izikhathi ngenza izivivinyo zokuzelula. |
| Ukuzenza ukhululeke | Ngabe sengigqoka izingubo ezikhululekile, ngizisonga ngezingubo eziningi zokulala, bese ngilala. |
| Uma uvuka ebusuku | Uma uvuka phakathi nobusuku, welula kancane noma ugcobe ukhilimu bese uzama ukubuyela ebuthongweni. Uma ungalali kahle, ngaphezu kokukhathala ngakusasa, uzoba nobuhlungu obukhulu kunokuvamile. |
Awuwedwa - ukwesekwa komphakathi
Uma uphila nesifo esingamahlalakhona njenge-AS, kuyisibusiso esikhulu ukwazi ukuthi awuwedwa. Kulezi zinsuku, imiphakathi enamandla yabagulayo yakheke ku-inthanethi. Akudingeki ngisho nokuphuma endlini yakho ukuze ubathole.
Umuntu oxoxa ngale ndaba uhlala exhumana nodokotela, abacwaningi, kanye nabantu abanesimo esifanayo ku-inthanethi. Ukholelwa ukuthi kwenza umehluko omkhulu. Abanye abantu baze bamtshela nokuthi, "Usindise impilo yami."
Ngakho-ke, uma unalezi zimpawu, noma utholakale unalesi simo, into engcono kakhulu ongayenza ukubona udokotela onolwazi (ikakhulukazi i-Rheumatologist) ukuze uthole iseluleko nokwelashwa okufanele . Futhi, ukujoyina amaqembu okusekelana lapho ungabelana khona ngolwazi olufana nalolu kuzoba yisikhuthazo esikhulu emandleni akho engqondo.
Umlayezo Wokuya Nawe Ekhaya
- I-Ankylosing Spondylitis (AS) yisimo sokuvuvukala esingamahlalakhona esithinta umgogodla kanye namalunga. Ukuqina kwasekuseni kanye nobuhlungu yizimpawu eziyinhloko.
- Uma uphila nalesi simo, kubaluleke kakhulu ukuhlela imisebenzi yakho yansuku zonke kusenesikhathi futhi ubeke eceleni isikhathi sokuphumula.
- Ukungalali kahle okuhlobene nobuhlungu (i-painsomnia) kuvamile. Lesi simo singalawulwa ngokusungula isimiso sokulala.
- Uma unezimpawu ezinjengalezi noma utholakale unesifo, qiniseka ukuthi ubona udokotela wakho futhi uthole ukwelashwa okufanele kanye neseluleko.
- Awuwedwa. Ukuthola amaqembu okusekelana lapho ungaxhumana khona nabanye abake badlula kokuhlangenwe nakho okufanayo kungaba umthombo omkhulu wamandla engqondo.
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