Uzizwa ukhathele usuku lonke? Ngisho nangemva kokulala kahle ebusuku, uma uvuka ekuseni, umzimba wakho uzizwa sengathi awunawo amandla? Ingabe umzimba wakho uzwa ubuhlungu kangangokuthi awukwazi ngisho nokwenza imisebenzi yakho yansuku zonke? Lokhu kungase kungabi ukukhathala okuvamile. Namuhla sikhuluma nge-Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), isimo esithinta abantu abaningi futhi esingalimaza ngisho nokuphila kwabo.
Kalula nje, lesi yisimo esiyinkimbinkimbi kakhulu. Izimpawu zingahluka kumuntu nomuntu. Nakuba ungase uzwe ukukhathala okukhulu kanye nobuhlungu bemisipha, inkinga enkulu yomunye umuntu ingaba ukulahlekelwa yinkumbulo kanye nokukhathala kungakhathaliseki ukuthi ulala kangakanani. Ngakho-ke lapho welapha lokhu, wena nodokotela wakho kufanele niqale nigxile ekutheni yiziphi izimpawu ezithinta kakhulu impilo yenu.
Ingabe ikhona ikhambi eliqondile lalesi simo?
Uma ngikhuluma iqiniso, ayikho ikhambi elilodwa le-Chronic Fatigue Syndrome (CFS). Ayikho futhi imithi ethile evunyelwe ngqo lesi simo. Kodwa ungakhathazeki. Kukhona imithi kanye nezinye izindlela zokwelapha ezingasiza ekulawuleni izimpawu zakho. Ezinye zalezi zingase zinqunywe udokotela, kanti ezinye zingase zibe imithi yokunciphisa ubuhlungu ngaphandle kwemithi kadokotela.
Into ebaluleke kakhulu ukukhuluma nodokotela wakho bese uqhamuka nohlelo lokwelashwa oluzokusebenzela. Ungamane nje uyofuna imithi ngokusekelwe kulokho okushiwo abantu abakuzungezile.
Imithi esiza ngezimpawu ezahlukahlukene
Ake sibone ukuthi hlobo luni lokwelashwa udokotela angalusikisela ngokusekelwe ezimpawini zakho eziyinhloko.
Yini oyenzayo ngezinkinga zokulala?
Abantu abaningi abane-ME/CFS banenkinga ethile yokulala. Ngakho-ke, ukulala kahle ebusuku (noma okungenani ukulala kangcono kunangaphambili) kungasiza kakhulu ekunciphiseni ukukhathala emini.
Okokuqala, udokotela wakho uzokuhlola ukuthi unemikhuba emihle yokulala. Lokho kusho ukulala ngesikhathi esifanayo, uvuke ngesikhathi esifanayo, bese ugcina ikamelo lakho lokulala lithule, limnyama, futhi lipholile.
Uma lezi zinto zingakusizi ulale, udokotela wakho angase asikisele usizo lokulala olutholakala ngaphandle kwemithi kadokotela, njenge-antihistamine. Okubi ukuthi imiphumela yomuthi ngezinye izikhathi ingahlala isikhathi esingaphezu kwamahora angu-8. Ungase uzizwe ulele ngosuku olulandelayo. Lokho kuyinto esizama ukuyigwema. Kodwa akuyona yonke imithi esebenza ngendlela efanayo kuwo wonke umuntu. Ngakho buza udokotela wakho ukuthi yiluphi uhlobo olufanele wena nokuthi ulusebenzisa kanjani.
Uma lokho kungasebenzi, udokotela angakunikeza iphilisi lokulala. Umgomo walokhu ukulungisa iphethini yakho yokulala ngesilinganiso esiphansi kakhulu ngesikhathi esifushane kakhulu. Akunconywa ukuthi isetshenziswe isikhathi eside.
| Uhlobo/isigaba semithi | Kuyasiza kakhulu |
|---|---|
| Imithi efana ne-Eszopiclone (Lunesta), i-Zolpidem (Ambien) | Kukusiza ukuthi ulale ngokushesha. |
| Imithi yokucindezeleka efana ne-Amitriptyline, i-Doxepin, ne-Trazodone | Kukusiza ukuthi ulale futhi uhlale ulele. |
| Ama-Benzodiazepine | Kuyasiza ekulaleni nasekukhathazekeni, kodwa kunengozi yokuba umlutha. |
Yonke le mithi inemiphumela emibi. Ukulala emini, isiyezi, kanye nokulahlekelwa yinkumbulo nakho kuyizimpawu ze-ME/CFS. Ngakho-ke kufanele ukhulume nodokotela wakho ngezinzuzo kanye nokungalungi kokuthatha imithi noma cha.
Ukwelashwa kobuhlungu bomzimba
Ubuhlungu buvamile kubantu abaningi abane-ME/CFS. Ubuhlungu bekhanda, ubuhlungu bemisipha kanye namalunga yibo obuvame kakhulu. Udokotela wakho angase akunike imithi yobuhlungu ethengiswa ngaphandle kwemithi kadokotela (isib. iPanadol, i-Aspirin, i-Ibuprofen) noma imithi enamandla. Ngezinye izikhathi, imithi efana ne-tricyclic antidepressants nayo isetshenziselwa ukusiza ngobuhlungu obungapheli. Uma ubuhlungu bakho kunzima ukubulawula, udokotela wakho angase akuthumele kuchwepheshe wezinhlungu.
Ukungabekezelelani Kwamathambo
Lena enye inkinga eza ne-ME/CFS. Izimpawu zifaka phakathi ukuzizwa unesizungu lapho umi, umbono ofiphele, ukuquleka, kanye nokushaya kwenhliziyo okusheshayo. Uma unezinye zalezi zimpawu, qiniseka ukuthi utshela udokotela wakho. Imithi efana ne-Fludrocortisone, i-Midodrine, ne-Propranolol ingasiza ekulawuleni lesi simo.
Ake sifunde ngezinto ezikhuthazayo kanye nemithi yokucindezeleka.
Ingabe kulungele ukusebenzisa izinto ezivuselelayo?
Odokotela ngezinye izikhathi banikeza izikhuthazi, ezisetshenziselwa ukwelapha izimo ezifana ne-ADHD, ukusiza ngezinkinga zokukhathala kanye nenkumbulo ezingase zenzeke nge-ME/CFS. Kodwa kunezingozi ezinkulu zokuzisebenzisa.
Cabanga nje, uma uthatha lo muthi, ngokuzumayo uthola amandla amaningi. Ngakho uzama ukwenza umsebenzi omningi ngosuku olulodwa. Kodwa ngosuku olulandelayo, ukhathele kakhulu kunangaphambili, sengathi 'uzophahlazeka'. Lokhu kwenza isimo sakho sibe sibi kakhulu. Futhi, eminye yale mithi ingaba umlutha. Ngakho-ke, le mithi inconywa ngemithamo ephansi kakhulu futhi ngudokotela onolwazi oluhle ngale mithi kuphela.
Imithi yokucindezeleka kanye nempilo yengqondo
Cishe ingxenye yabantu abane-ME/CFS babhekana nokucindezeleka esikhathini esithile empilweni yabo. Lokhu akumangazi. Kuvamile ukuzizwa ucindezelekile uma ukhathele njalo futhi usezinhlungwini.
Uma unesifo esifanayo, ungakhuluma nodokotela wakho ukuze unqume ukuthi ukusebenzisa umuthi wokucindezeleka kukulungele yini. Kunezinhlobo ezahlukene, njenge-SSRIs, i-SNRIs, kanye ne-TCAs. Udokotela wakho uzokhetha umuthi okulungele wena futhi onemiphumela emibi embalwa kakhulu.
Ngaphezu kwemithi, ukwelashwa ngenkulumo/ngokwengqondo kuwusizo olukhulu ngalesi sikhathi. Uma ungakhuluma ngemizwa nemicabango yakho, kungaba impumuzo enkulu.
Kulezi zinsuku, izidakamizwa ezisesigabeni socwaningo
Odokotela nososayensi bayaqhubeka nokucwaninga ngemithi emisha ukusiza ngalesi simo. Imithi efana ne-Ampligen, i-naltrexone (LDN) ephansi, kanye ne-rituximab isivele ifundwe. Futhi, ama-antiviral kanye nama-neuromodulators ayaphenywa ukuze kubonakale ukuthi angasiza yini ekunciphiseni lezi zimpawu.
Umlayezo Wokuya Nawe Ekhaya
- Akukabikho ikhambi elilodwa eliqinisekile le-Chronic Fatigue Syndrome (ME/CFS).
- Umgomo oyinhloko wokwelashwa ukulawula izimpawu ezikukhathaza kakhulu (ukungalali, ubuhlungu, ukukhathala).
- Ngaphambi kokuqala noma yimuphi umuthi, qiniseka ukuthi ukhuluma nodokotela wakho ngezinzuzo kanye nokungalungi kwawo.
- Ukwelashwa kuvame ukuqala ngomthamo ophansi kakhulu ngoba abantu abane-ME/CFS bangaba nomuzwa wokuzwela kakhulu emithini.
- Ngaphezu kwemithi, imikhuba emihle yokulala, ukwelulekwa, kanye nesivinini kuzokusiza kakhulu kulolu hambo.
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