Ingabe ingane yakho ikutshela ngokuzumayo ngokubona okufiphele, ukulahlekelwa yibhalansi lapho ihamba, noma ukuqaqamba kwamalungu? Ngezinye izikhathi sicabanga ukuthi lezi yizinto ezivamile, kodwa lezi zingaba izimpawu zesimo esibizwa ngokuthi i-MS , noma i-Multiple Sclerosis . Ungesabi uma uzwa leli gama. Into ebaluleke kakhulu ukuba nolwazi oluphelele ngalo. Namuhla, sizokhuluma nge-MS ezinganeni ngendlela elula, ngendlela ongayiqonda.
Kuyini i-MS kalula?
Kalula nje, i-MS ezinganeni yisimo sokuzivikela komzimba lapho amasosha omzimba azo ehlasela khona imizimba yazo . Ithinta kakhulu uhlelo lwezinzwa oluphakathi lwengane, okuwubuchopho nomgogodla.
Cabanga ngesimiso somzimba wethu sokuzivikela njengebutho elivikela izwe. Umsebenzi waleli butho ukusivikela ngokulwa nezitha ezifana namagciwane namagciwane angena emzimbeni. Kodwa emzimbeni wengane ene-MS, leli butho lenza iphutha elincane. Bacabanga ukuthi ingxenye yomzimba uqobo, isivikelo esizungeze imizwa, iyisitha bese beqala ukuyihlasela.
Lesi simbozo sokuvikela sibizwa ngokuthi i-myelin . Njengesigxobo sepulasitiki esizungeze ucingo lukagesi, lesi sigxobo se-myelin sisiza imiyalezo ukuthi ihambe ngemithambo ngokushesha nangokushelela. Ngakho-ke, lapho amasosha omzimba elimaza lesi sigxobo se-myelin, imiyalezo evela ebuchosheni iya kuwo wonke umzimba ayidluli kahle. Kufana nomjikelezo omfushane lapho isigxobo sepulasitiki esiselucingweni sisuswa. Yilokhu okubangela izimpawu ezifana nobuthakathaka bemisipha, ukukhathala, izinkinga zenkumbulo, ubunzima bokuhamba, kanye nokushintsha kombono.
Into ebalulekile ukuthi nakuba okwamanje kungekho ukwelashwa okuphelele kwe-MS, kunezindlela zokwelapha ezisebenza kahle kakhulu ezingalawula izimpawu futhi zisize ingane iphile kahle.
Ingabe zikhona izinhlobo eziyinhloko ze-MS ezinganeni?
Yebo, kukhona uhlobo oluyinhloko olubonakala ezinganeni.
Cishe ama-98% ezingane anohlobo olubizwa ngokuthi i-relapsing-remitting MS . Lokhu kubonakala ngezikhathi zokuqubuka kwezimpawu, kulandelwe izikhathi zokuyekelela.
Cabanga ngalokhu. Emasontweni athile, ingane ingase ibe nobunzima bokuhamba futhi ingase ikhathale. Kodwa ngokwelashwa, isimo sizothuthuka kancane. Ezinyangeni ezimbalwa, izinkinga zokubona zingase ziphinde zivele. Lena yindlela isimo esiqhubeka ngayo, izimpawu zivele futhi zinyamalale.
I-MS eqhubekayo eyinhloko uhlobo lwe-MS olungavamile kakhulu ezinganeni. Lubonakala ngezimpawu eziya ziba zimbi kancane kancane ngokuhamba kwesikhathi.
Yiziphi izimpawu zokuqala okufanele uziqaphele?
Uma udokotela esola ukuthi une-MS, kunezimpawu ezimbalwa zokuqala azinaka kakhulu. Kubalulekile futhi ukuthi wena, njengomzali, uqaphele lezi.
| Isibonakaliso sokuqala | Kuchazwe kalula |
|---|---|
| I-optic neuritis | Ukubona okufiphele, ngezinye izikhathi ukulahlekelwa, kanye nobuhlungu kwelinye iso noma kuwo womabili. Ingane ingase ingaboni imibala kahle. |
| I-myelitis eguquguqukayo | Ukutheleleka komgogodla (isiqu semizwa esingaphakathi komgogodla) kungabangela ubuthakathaka, ukungazweli, noma ukulahlekelwa umuzwa ezithweni. |
Ezinye izimpawu ezivamile
Ngaphezu kwalezi zimpawu zokuqala, kungase kubonakale ezinye izimpawu eziningana.
- Ukungazweli noma ukuzwa ukucasuka emilenzeni noma emzimbeni (i-Paresthesia)
- Isiyezi
- Ukulahlekelwa ibhalansi ngenkathi uhamba futhi uwela phansi.
- Ukukhathala
- Ubuthakathaka bemisipha
- Ukuthuthumela
- Ubunzima bokugxilisa ingqondo nokukhumbula izinto
- Ukubona kabili noma ukubona okufiphele
Khumbula, akuzona zonke lezi zimpawu ezizoba khona kuyo yonke ingane. Lezi zimpawu zingase zihluke kuye ngengane. Ngezinye izikhathi uphawu olukhona ngolunye usuku lungase lungabi khona ngolunye usuku.
Kungani izingane zithola i-MS? Iyini imbangela?
Njengoba sixoxile ngaphambili, imbangela enkulu yalokhu ukususwa kwe-myelin . Lokhu kwenzeka lapho isimiso somzimba sokuzivikela silimaza ngephutha i-myelin sheath evikelayo ezungeze imizwa. Lo monakalo ubangela 'izibazi' ezincane emithanjeni. Odokotela babiza lezi zilonda noma ama-plaque . Lokhu kungabonakala kuma-MRI scan.
Abacwaningi abakakazi kahle ukuthi kungani amasosha omzimba enza leli phutha, kodwa bathole izici eziningana eziyingozi ezingaba nomthelela kulokhu.
- Ukuntuleka kwevithamini D: Ukwehla kwamazinga evithamini D emzimbeni kamama ngesikhathi sokukhulelwa.
- Ukutheleleka ngegciwane: Ikakhulukazi ukutheleleka ngegciwane le -Epstein-Barr .
- Ukuchayeka ekubhemeni: Ukuchayeka kukamama ekubhemeni intuthu yomuntu obhemayo ngesikhathi sokukhulelwa.
- Ukukhuluphala ngokweqile
Lezi yizinto eziyingozi nje. Akuwona wonke umuntu onazo ozoba ne-MS.
Odokotela basithola kanjani lesi sifo ngokunembile?
Ukuxilonga i-MS kungaba inqubo eyinkimbinkimbi ngoba izimpawu zingafana nezinye izifo eziningi. Ngakho-ke, udokotela uzolandela izinyathelo eziningana ukuze axilonge.
Okokuqala, ingane izohlolwa kahle, bese wena nengane yakho nibuzwa ngezimpawu zayo. Ngemuva kwalokho, kuzokwenziwa izivivinyo eziningana ukuze kutholakale ezinye izifo kanye nokuxilonga i-MS.
| Ukuhlolwa | Kuchazwe kalula |
|---|---|
| Ukuhlolwa kwegazi nomchamo | Hlola ezinye izifo noma izimo ezibangela izimpawu ezifana ne-MS. |
| Ukuskena kwe-MRI | Lolu vivinyo olubaluleke kakhulu. Lungabona ngokucacile ukuthi kukhona yini 'izilonda' noma umonakalo ku-myelin ebuchosheni nasemgogodleni. |
| Ukubhoboza kwe-Lumbar | Kulokhu, indawo yomgogodla iyavaleka futhi inani elincane loketshezi lwe-cerebrospinal lithathwa ngenaliti encane kakhulu bese lihlolwa. Ku-MS, amaprotheni akhethekile angabonakala kulolu ketshezi. |
| Ukuhlolwa okungenzeka (i-EP) okuvuselelwe | Ukuhlolwa okukala isivinini imiyalezo kagesi ehamba ngaso ngemizwa. Lesi sivinini siyancipha uma i-myelin yonakele. |
Le nqubo ingathatha isikhathi. Kungaba yinto ekucindezelayo engqondweni. Kodwa kubalulekile ukuthola ukuxilongwa okunembile kakhulu bese uqala ukwelashwa okufanele kakhulu kwengane yakho.
Yiziphi izindlela zokwelapha i-MS?
Akukho ukwelashwa kwe-MS okwamanje. Kodwa-ke, kunezindlela eziningi zokwelapha ezisebenzayo ezingasiza ekulawuleni lesi sifo, ukunciphisa ukuvama kwezimpawu, futhi zisize ingane iphile impilo evamile.
- Ukwelashwa Okuguqula Izifo (DMT): Le mithi isebenza ngokunciphisa umonakalo wesimiso somzimba sokuzivikela ku-myelin nokulawula ukuqhubeka kwesifo. I-Fingolimod , iphilisi elivunyelwe yi-FDA labantwana abangaphezu kweminyaka eyi-10 ubudala, lisetshenziselwa le njongo.
- Ezinye izindlela zokwelapha: Lezi zindlela zokwelapha ziwusizo kakhulu ekulawuleni izimpawu.
- Ukwelashwa Kwabasebenzi: Kukusiza ukuthi wenze imisebenzi yansuku zonke kalula.
- Ukwelashwa ngokomzimba: Kusiza ukuqinisa imisipha nokunciphisa ubunzima bokuhamba.
- Ukwelashwa ngenkulumo: Uma kunezinkinga zokukhuluma noma zokugwinya, ziyalashwa.
- Ukuhlolwa kwe-neuropsychology kanye nokwelashwa: Kusiza ngezinkinga ezifana nokukhumbula nokunaka.
Ingabe i-MS izothinta umsebenzi wesikole wengane yami?
Ezinye izingane ezine-MS zingase zibe nezinselele ngenkumbulo, ukufunda, kanye nokunaka. Ngakho-ke, kubalulekile ukukhuluma nothisha bengane yakho ngalokhu njalo. Ukuhlolwa kwe-neuropsychological ukuthola amandla nobuthakathaka bengane yakhoKuwusizo kakhulu futhi ukwenza kanjalo. Ngale ndlela, unganikeza ingane ukwesekwa okukhethekile ekudingayo esikoleni.
Kodwa into ebaluleke kakhulu ukuthi iningi lezingane ezine-MS lidlale nabangani bazo, lifunde, futhi liziphathe ngendlela evamile. Zingahlanganyela kuyo yonke imisebenzi eyenziwa ezinye izingane. Ngakho-ke asikho isidingo sokwesaba kakhulu.
Kufanele ngimbone nini udokotela?
Uma ingane yakho ibhekene nanoma yiziphi izimpawu ezingase zihlobane ne-MS, njengokungazweli esithweni noma ukushintsha kombono, ungayithathi njengento encane. Kubaluleke kakhulu ukubona udokotela wengane yakho ngokushesha okukhulu bese uxoxa ngalokhu nayo.
Uma lesi sifo sitholakala ngokushesha, ukwelashwa kungasheshe kuqale futhi amathuba okuvimbela izinkinga zesikhathi eside ayanda.
Ngisho nangemva kokuxilongwa, uma ingane yakho iba nezimpawu ezintsha noma izimpawu zayo ziba zimbi kakhulu, kufanele wazise udokotela wakho ngokushesha.
Umlayezo Wokuya Nawe Ekhaya
- I-MS iyinkinga yesimiso somzimba sokuzivikela, hhayi isifo esithathelwanayo. Ngakho-ke, ayinakudluliselwa kusuka komunye umntwana iye komunye.
- Uhlobo oluvame kakhulu lwe-MS ezinganeni yi-MS ephindaphindayo, lapho izimpawu zifika ziphinde ziphele khona.
- Uma ingane yakho ibika izimpawu ezifana nokushintsha kombono, ubunzima bokuhamba, noma ukuba ndikindiki, ungayinaki futhi funa iseluleko sezokwelapha ngokushesha.
- Nakuba i-MS ingelapheki ngokuphelele, ukwelashwa okuphumelelayo kakhulu kungalawula lesi sifo futhi kusize ingane iphile impilo esebenzayo nejabulisayo njengezinye izingane.
- Ukusekelwa okufanele nokuqonda okuvela kubazali, othisha, nodokotela kuzoqinisa kakhulu ikhono lengane lokuhamba kulolu hambo.
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