Ingabe uke uzwe izinhlungu noma ukuvuvukala okungajwayelekile ezingxenyeni ezahlukene zomzimba wakho, ikakhulukazi ezindaweni ezifana nezindlebe noma ikhala lakho? Lokhu kungase kungabi yizinto ezenzeka ngokungahleliwe. Namuhla, sixoxa ngesimo okungakhulunywa ngaso kakhulu kodwa okubalulekile ukuqaphela: I-Relapsing Polychondritis . Nakuba igama lingase lizwakale liyinkimbinkimbi, ake silihlukanise ngamagama alula.
Iyini le nkinga?
Kalula nje, i-Relapsing Polychondritis yisimo sezokwelapha esingavamile esithinta i- cartilage emzimbeni wakho. Sihilela ukuvuvukala (ukuvuvukala, ukubomvu, nobuhlungu) ku-cartilage, okungaholela ekuwohlokeni kancane kancane noma ebuthakathakeni balezi zicubu ngokuhamba kwesikhathi.
Ungase uzibuze, iyini ngempela i-cartilage ? I-cartilage iyizicubu ezikhethekile ezixhumanisayo ezitholakala kuwo wonke umzimba wakho. Cabanga ngezingxenye eziguquguqukayo kodwa eziqinile zezindlebe zakho noma isihloko sekhala lakho—lokho kuyi-cartilage. Itholakala futhi emalungeni akho, emphinjeni wakho, kanye nasemoyeni wakho (trachea).
I-Relapsing Polychondritis ithinta kakhulu:
- I-cartilage esezindlebeni zakho.
- I-cartilage ekhaleni lakho.
- I- larynx (ibhokisi lakho lezwi).
- Umphimbo wakho (umphimbo womoya).
Nakuba lesi simo sinamagama athile obuchwepheshe njenge- Chronic atrophic polychondritis , i-Generalized noma i-systemic chondromalacia , i-Meyenburg-Altherr-Uehlinger syndrome , i-Relapsing perichondritis , noma isifo se-Von Meyenburg , sivame ukubizwa ngokuthi i-Relapsing Polychondritis .
Ubani ongakuthuthukisa lokhu, futhi kuvame kangakanani?
Lesi simo singathinta noma ubani, kodwa sivame ukuqala kubantu abaneminyaka ephakathi kuka-40 no-60 .
Ngokuphathelene nokusabalala kwayo, kuyisimo esingavamile kakhulu . Ucwaningo lubonisa ukuthi ithinta cishe umuntu oyedwa kwabangu-285,000. Ngenxa yokuthi ithinta ingxenye encane kangaka yabantu, ayixoxwa njalo emphakathini jikelele.
Kungani lokhu kwenzeka?
Umbuzo ovamile uthi, "Kungani lokhu kwenzeka?" Uma ngikhuluma iqiniso, ososayensi abakayitholi imbangela eqondile ye-Relapsing Polychondritis.
Kodwa-ke, ochwepheshe abaningi bayibeka njengesifo sokuzivikela komzimba . Ungase uzibuze ukuthi siyini isifo sokuzivikela komzimba. Kalula nje, umzimba wakho unesimiso sokuzivikela somzimba esisebenza njengebutho, silwa namagciwane ukuze uhlale uphilile. Esimweni sokuzivikela komzimba, leli "butho" liqala ngephutha ukuhlasela amangqamuzana akho aphilile nezicubu . Endabeni ye-Relapsing Polychondritis, isimiso sokuzivikela komzimba sihlasela i-cartilage yakho, yize imbangela yale mpendulo ingacaci.
Ziyini izimpawu?
I-Polychondritis ephinde ivele ayihlali njalo; ibonakala ngeziqephu noma ngokuqubuka . Uma izimpawu sezivele, zingase zihlale izinsuku ezimbalwa noma amasonto ngaphambi kokuba ziphele, kodwa zibuye ngezikhathi ezithile eminyakeni edlule.
Izimpawu zokuqala:
Kwabaningi, lesi simo siqala ngobuhlungu , ukuthamba, ukuvuvukala, kanye nokubomvu endlebeni eyodwa noma zombili. Okubaluleke kakhulu, nakuba lezi zimpawu zithinta i-cartilage yangaphakathi neyangaphandle yendlebe, i -earlobe ivame ukusinda. Kwezinye izimo, izindlebe zingase zithambile futhi zijiye, okubizwa ngokuthi "izindlebe ezigobile." Isibonelo, uma ngokuzumayo uzwa ubuhlungu kanye nokubomvu endlebeni eyodwa okunyamalala ngemva kwezinsuku ezimbalwa, kodwa enye indlebe ilandele izinyanga kamuva, kuyisibonakaliso esihlukile salesi simo.
Ezinye izimpawu:
- Ukuwa kwe-cartilage yekhala: Lokhu kungaholela "ekukhubazekeni kwekhala lesihlalo," lapho ibhuloho lekhala liba yisicaba, lifane nesihlalo sehhashi.
- Ubuhlungu bamalunga : Ungase ube nobuhlungu obufana nobuhlungu bamalunga .
- Ukuminyana kwamakhala .
- Ubuhlungu besifuba eduze kwethambo lesifuba.
- Ubuhlungu bamehlo kanye nokubomvu .
- Ukubandakanyeka kwendlebe yangaphakathi: Lokhu kungabangela ukulahlekelwa ukuzwa , i-tinnitus (ukukhala ezindlebeni), noma i-vertigo (isiyezi).
- Ubunzima bokuphefumula: Lokhu kwenzeka uma isimo sithinta umphimbo. Ubunzima bokukhuluma bungase buvele uma umphimbo uhilelekile.
Okubalulekile: Uma ubhekene nobunzima bokuphefumula, lesi yisimo esiphuthumayo sezokwelapha esibucayi. Sicela uxhumane nezinsizakalo eziphuthumayo noma uye esibhedlela esiseduze ngokushesha.
Izimpawu ezingavamile:
Nakuba kungavamile, abanye abantu bangase babe nalokhu okulandelayo:
- Izinkinga ze-valve yenhliziyo.
- Ukububula kwenhliziyo.
- Ukulahlekelwa umbono.
- Isifo sezinso.
Kutholakala kanjani?
Uma unalezi zimpawu, kufanele uthintane nochwepheshe wezempilo. Akukho ukuhlolwa okukodwa, okuqinisekile kwe-Relapsing Polychondritis; akukho ukuhlolwa kwegazi noma ukuskena okungakuqinisekisa ngokushesha ngokuqiniseka okungu-100%.
Odokotela bavame ukusola lesi simo uma ubonisa okungenani izimpawu ezintathu ezihambisana naso ngokuhamba kwesikhathi, njengokuvuvukala kwe-cartilage yendlebe, ukuvuvukala kwe-cartilage yamakhala, kanye nobuhlungu bamalunga obuvela ngasikhathi sinye.
Ukuze akusize ekuxilongweni, udokotela wakho angase asikisele:
- Ukuhlolwa kwe-cartilage yendlebe.
- Ukuhlolwa kwegazi ukuze kunqunywe ezinye izimo nokuqapha izimpawu zokuvuvukala.
Yiziphi izindlela zokwelapha?
Ngeshwa, ayikho ikhambi elihlala njalo le-Relapsing Polychondritis. Okwamanje akukho ukwelashwa okuqeda lesi simo ngokuphelele.
Nokho, lokhu akusho ukuthi akukho lutho olungenziwa. Imigomo eyinhloko yokwelashwa yile:
- Lawula izimpawu (ukunciphisa ubuhlungu nokuvuvukala).
- Nciphisa ingozi yezinkinga.
Ukwelashwa ngokuvamile kuqala ngemithi efana nalokhu:
- I-Colchicine: Ivame ukusetshenziswa ekuphatheni i-gout.
- Ama-Corticosteroids: Isibonelo, i-Prednisone , okuyimithi enamandla esetshenziselwa ukunciphisa ukuvuvukala.
- I-Dapsone: Umuthi ngezinye izikhathi osetshenziswa ukulwa nokuvuvukala.
- Imithi engeyona i-steroidal elwa nokuvuvukala (ama-NSAID): Le mithi isiza ukulawula ubuhlungu nokunciphisa ukuvuvukala.
Uma isimo sakho sibi kakhulu, udokotela wakho angase akunike lokhu okulandelayo:
- Imithi yokucindezela amasosha omzimba: Njenge -Cyclophosphamide noma i-Azathioprine . Le mithi isebenza ngokucindezela isimiso somzimba sokuzivikela esisebenza ngokweqile.
- I-Methotrexate: Umuthi olawula amasosha omzimba ovame ukusetshenziswa ezimweni ezifana ne-arthritis.
Ezimweni ezinzima kakhulu, ukungenelela kokuhlinzwa kungadingeka:
- Ukuhlinzwa kwevalvu yenhliziyo: Uma amavalvu enhliziyo onakele.
- I-Tracheostomy: Uma indlela yakho yokuphefumula ivimbekile kakhulu, kungadingeka ukuthi kube nomgodi oqondile entanyeni ukuze kusizwe ukuphefumula.
- Amasu okuphatha imigwaqo yomoya:
- Ukubekwa kwe-stent: Kufakwa ithubhu elincane (i-laryngeal noma i-tracheal stent) ukuze kugcinwe indlela yokuphefumula ivulekile.
- Ukwanda komoya: Ukusebenzisa idivayisi efana nebhaluni ukwandisa imigudu yomoya evalekile.
- Ukuhlinzwa ukuze kwakhiwe kabusha i-trachea noma i-larynx.
Ingabe lesi simo singavinjelwa?
Ngenxa yokuthi imbangela eqondile ye-Relapsing Polychondritis ayaziwa , kunzima ukusikisela amasu athile okuvimbela. Okwamanje, azikho izindlela eziqondile zokuvimbela ukuqala kwalesi simo.
Ingabe lesi simo siyabulala, futhi sinjani isimo?
Nakuba lokhu kutholakala kwesifo kungase kuzwakale kungaphezu kwamandla, sicela wazi ukuthi isikhathi sokuphila kwabantu abane-Relapsing Polychondritis ngokuvamile singcono. Ucwaningo lubonisa ukuthi cishe ama-95% eziguli asaphila eminyakeni eyisishiyagalombili ngemva kokuxilongwa.
Kodwa-ke, kungaholela ezinkingeni ezisongela ukuphila, ikakhulukazi mayelana nokucindezeleka kokuphefumula. Kukhona futhi nengozi yokulahlekelwa ukuzwa noma ukubona unomphela. Ngakho-ke, ukuhlala uqaphile ngezimpawu nokunamathela ngokuqinile ohlelweni lwakho lokwelashwa kubalulekile.
Ingabe lesi yisimo sokuphila konke?
I-Relapsing Polychondritis yisimo esingamahlalakhona. Lokhu kusho ukuthi asipheli nje unomphela; kuyinqubo yokuphatha impilo yonke.
Kodwa-ke, ngokwelashwa okufanele, unganciphisa kakhulu ukuvama kanye nobukhali bokuqubuka kwesifo. Kubalulekile ukusebenzisana eduze nethimba lakho lezokwelapha ukuze wakhe uhlelo lokunakekelwa oluqondene nawe.
Yini okufanele ngiyibuze udokotela wami?
Uma uke watholakala une-Relapsing Polychondritis, nansi eminye imibuzo ongase ufune ukuyibuza udokotela wakho:
- "Isimo sami samanje sibi kangakanani?"
- "Yimiphi imithi efaneleka kakhulu esimweni sami esithile?"
- "Ingabe ngidinga ukuhlolwa okukhethekile kwamehlo ami, izindlebe, uhlelo lokuphefumula, inhliziyo, noma izinso?"
- "Ingabe kufanele ngixhumane nabanye ochwepheshe (isib. odokotela abahlinzayo be-ENT, odokotela bamathambo)?"
- "Ingabe kukhona izinguquko zendlela yokuphila engingayenza ukuze ngisekele impilo yami ye-cartilage?"
- "Ingabe kukhona izivivinyo zemitholampilo eziqhubekayo noma ucwaningo olusha oluhlobene nalesi simo?"
Ukubuza le mibuzo kuzokusiza ukuthi uthole ukuqonda okungcono futhi ube ngumhlanganyeli okhuthele ekunakekelweni kwakho.
Kufanele ngifune nini usizo lwezokwelapha ngokushesha?
Uma une-Relapsing Polychondritis, kubalulekile ukugcina ama-aphoyintimenti njalo nomhlinzeki wakho wezempilo.
Ngaphezu kwalokho, uma ubhekene nobunzima bokuphefumula ngokuzumayo, izinguquko embonweni, noma izinkinga zokuzwa, ungalindi isikhathi sakho esilandelayo sokubonana nodokotela. Funa usizo oluphuthumayo ngokushesha, njengoba lokhu kungase kubonise izinkinga ezinkulu ezidinga ukwelashwa okuphuthumayo.
Isifinyezo samaphuzu abalulekile
Sithemba ukuthi lokhu kubuyekezwa kwe-Relapsing Polychondritis kuzokusiza ukuthi uqonde kangcono uhambo lwakho lwezempilo. Nazi izinto ezibaluleke kakhulu okufanele uzicabangele:
- I-Relapsing Polychondritis yisimo esingavamile esibonakala ngokuvuvukala nokuwohloka kwe-cartilage.
- Ngokuvamile kuthinta izindlebe nekhala, kodwa kungathinta nomphimbo, umphimbo kanye namalunga.
- Nakuba imbangela eqondile ingaziwa, kubhekwa njengenqubo yokuzivikela komzimba.
- Nakuba kungekho ikhambi eliqinisekile, kunezindlela zokwelapha ezisebenzayo zokulawula izimpawu nokunciphisa izinkinga.
- Ngenxa yokuthi izinkinga zomoya zingaba yingozi, hlala uqaphile futhi ufune iseluleko sezokwelapha ngokushesha nganoma yiziphi izimpawu ezintsha noma eziya ziba zimbi kakhulu.
Uma wena noma othile omaziyo ebhekene nalezi zimpawu, xhumana nodokotela ngokushesha. Ukuhlala unolwazi futhi uthatha isinyathelo kuqala kuyisihluthulelo sempilo enempilo neNirogi Lanka.
I-Polychondritis Ebuyela Emuva, I-Cartilage, Ubuhlungu Bendlebe, Ukuvuvukala Kwekhala, Ubunzima Bokuphefumula, Ubuhlungu Bamalunga, Isifo Sokuzivikela Emzimbeni, Ukuvuvukala, Isifo Esingavamile
