Ingabe umzimba wakho uzizwa uphelelwe amanzi emzimbeni? Kungaba yi-Sjögren's Syndrome!

Ingabe ngezinye izikhathi uzizwa sengathi amehlo akho omile nomlomo wakho womile? Mhlawumbe kungenxa yokuthi uma ukhathele nje futhi unalezi zinto njalo, akuvamile. Namuhla sizokhuluma ngesimo esibizwa ngokuthi 'i-Sjögren's Syndrome', esinegama elingavamile, kodwa elithinta abanye abantu. Ungase ungalazi leli gama, kodwa izimpawu zalo zingase zijwayele wena.

Iyini i-'Sjögren's Syndrome'?

Kalula nje, i-'Sjogren's Syndrome' yisifo sokuzivikela komzimba esithinta izindlala ezikhiqiza umswakama emzimbeni wethu. Manje ungase uzibuze ukuthi kusho ukuthini lokhu 'ukuzivikela komzimba'. Cabanga nje, umzimba wethu unesimiso esisivikela ezifweni, sibizwa ngokuthi isimiso sokuzivikela komzimba. Kufana nebutho elivikela izwe lethu. Kodwa kulesi sifo 'sokuzivikela komzimba', okwenzekayo ukuthi abavikeli bethu, okungukuthi, isimiso sokuzivikela komzimba, bahlasela ngephutha amangqamuzana ethu amahle, kulokhu izindlala ezikhiqiza umswakama. Lokhu kufana nonogada endlini yethu ocabanga ukuthi siyisela futhi esihlasela.

Ngenxa yalokho, izindlala ezikhiqiza umswakama emzimbeni wakho ziyayeka ukusebenza kahle. Lokhu kuthinta kakhulu:

• Uhlelo lokudabuka: Lokhu kubangela amehlo omile.
• Izindlala zamathe emlonyeni: Lokhu kubangela ukuthi umlomo wome.
• Impumulo: Impumulo ingase yome.
• Umphimbo: Umphimbo ungase wome bese ubangela ukukhwehlela.
• Uhlelo lokugaya ukudla lungase luthinteke ngezinga elithile.
• Kwabesifazane: Isitho sangasese sowesifazane singase some.

Leli gama libizwa ngokuthi "i-Shaw-Granz syndrome." Uma unezimpawu ezintsha zamehlo noma umlomo owomile, ikakhulukazi uma zihambisana nezinye izimpawu (njengobuhlungu), kubaluleke kakhulu ukubona udokotela.

Ingabe zikhona izinhlobo ze-Sjögren's Syndrome?

Yebo, odokotela bahlukanisa lokhu kube izinhlobo ezimbili eziyinhloko:

1. I-Primary Sjögren's syndrome: Lokhu akubangelwa yinoma yisiphi esinye isimo sezokwelapha. Okusho ukuthi, kwenzeka ngokwako.

2. Isifo sesibili se-Sjögren: Lokhu kubangelwa esinye isimo noma inkinga. Okusho ukuthi, esinye isifo siyimbangela eyinhloko.

Sivame kangakanani lesi simo?

Kubikwa ukuthi inani elikhulu labantu emhlabeni wonke linalesi simo esibizwa ngokuthi 'i-Sjögren's Syndrome'. Ezweni elifana neMelika, kuthiwa abantu ababalelwa ezigidini ezimbili bahlushwa yilesi simo. Kungase kube nabantu abanalesi simo ezweni lethu.

Ziyini izimpawu ze-Sjögren's Syndrome?

Uphawu oluyinhloko noluvame kakhulu lwalokhu ukoma okungavamile ezingxenyeni zomzimba.

• Amehlo omile noma alumayo: Kungase kuzwakale sengathi kunesihlabathi emehlweni akho. Ngezinye izikhathi amehlo akho angase abe bomvu.
• Umlomo owomile (xerostomia): Umlomo ungomile kangangokuthi kuba nzima ukukhuluma noma ukugwinya ukudla. Izilonda zomlomo zingavela. Amathe nawo angase aqine.
• Ukoma kwesitho sangasese sowesifazane kwabesifazane: Lokhu kungabangela ubuhlungu ngesikhathi socansi.
• Isikhumba esomile: Isikhumba singase some futhi silume.
• Ikhala elomile kanye nokopha igazi njalo.
• Umphimbo owomile: Ungase ube nokukhwehlela okomile njalo.

Ngaphezu kwalokhu komile, i-Sjögren's syndrome ingabangela ezinye izimpawu:

• Ubuhlungu bamalunga: Njengesifo samathambo.
• Ubuhlungu noma ubuthakathaka bemisipha.
• Ama-lymph node avuvukele.
• Ukukhathala: Umuzwa wokukhathala okuqhubekayo ongapheli kungakhathaliseki ukuthi ulala kangakanani.
• Ubunzima bokugwinya (i-dysphagia) noma ubunzima bokukhuluma.
• Inkungu yobuchopho: Ubunzima bokucabanga kahle nokuzizwa sengathi awukwazi ukugxila.
• Ukulahlekelwa ukunambitheka.
• Ukubola kwamazinyo noma ukulahleka kwamazinyo: Njengoba ukukhiqizwa kwamathe emlonyeni kuncipha, ukuvikelwa kwamazinyo kuyancipha.
• Ukuqubuka kwesikhumba.
• I-Neuropathy: Izinto ezifana nokungazweli kanye nokuthuthumela ezithweni.
• Ukuvuvukala kwesisu noma ezinye izinkinga zokugaya ukudla.
• Ukuzwela kokukhanya: Amehlo abonakala ephenduka aluhlaza okwesibhakabhaka uma uphuma ngaphandle.

Yiziphi izimbangela ze-Sjögren's Syndrome?

Sesishilo kakade ukuthi lesi yisifo 'esihlasela ngokuzenzakalelayo' . Lokho kusho ukuthi amasosha ethu omzimba ahlasela izindlala zethu. Kodwa-ke, odokotela abakakatholi ukuthi kungani lokhu kwenzeka.

• Ayikho imbangela eqondile eyaziwayo ye -primary Sjögren's syndrome .
• I-Secondary Sjögren's syndrome ibangelwa ezinye izimo zempilo, ikakhulukazi ezinye izifo zokuzivikela komzimba kanye nezinye izifo ezibangelwa amagciwane.

Izifo eziningana ezibangelwa amagciwane ezingabangela i-Sjögren's syndrome yesibili zifaka:

• I-Hepatitis C
• `I-Cytomegalovirus (CMV)`
• Igciwane le-Epstein-Barr
• `Igciwane le-T-lymphotropic lomuntu 1 (HTLV)`
• `I-COVID-19`

Ezinye izifo ezibangelwa yi-autoimmune ezihlobene ne-Sjögren's syndrome yilezi:

• Isifo samathambo esibizwa ngokuthi i-rheumatoid arthritis
• I-Psoriatic arthritis
• `I-Lupus`

Okubalulekile:Akuwona wonke umuntu onalezi zimo ozoba ne-Sjögren's syndrome. Futhi akukho siqinisekiso sokuthi umuntu one-Sjögren's syndrome naye uzoba nalezi ezinye izimo. Kodwa-ke, ucwaningo lubonisa ukuthi kukhona ukuxhumana.

Ubani osengozini enkulu yokuthola i-Sjögren's Syndrome?

Nakuba noma ubani engaba nalesi simo, amaqembu athile asengozini enkulu:

• Abesifazane: Abantu abangaphezu kuka-90% abane-Sjögren's syndrome ngabesifazane. Amadoda nawo angaba nayo, kodwa ayivamile.
• Abantu abanezinye izifo zokuzivikela komzimba: Cishe ingxenye yabantu abane-Sjögren's syndrome banesifo esisodwa okungenani sokuzivikela komzimba.
• Abantu abaneminyaka ephakathi kuka-45 no-55: Nakuba kungakhula ezinganeni, entsheni, nakubantu abaneminyaka engaphezu kuka-55, kuvame kakhulu kuleli qembu leminyaka.
• Abantu abanomlando womndeni we-Sjögren's syndrome: Cishe abantu abayi-10% abane-Sjögren's syndrome banezihlobo eziseduze (umzali noma umfowabo) onalesi simo.

Ungazi kanjani ngokuqinisekile ukuthi une-Sjögren's Syndrome? (Ukuxilongwa)

Udokotela uzokwenza ukuhlolwa ngokomzimba futhi enze izivivinyo ezithile ukuze anqume ukuthi unesifo sikaSjögren. Udokotela uzokuxilonga futhi akubuze ngezimpawu zakho. Tshela udokotela ukuthi uqale nini ukuqaphela lezi zinguquko, nokuthi izimpawu zakho ziba zimbi yini ngezikhathi ezithile zosuku noma ngesikhathi semisebenzi ethile.

Ukuxilonga i-Sjögren's syndrome kuvame ukuba yingxenye yenqubo ebizwa ngokuthi i-differential diagnosis . Lokhu kusho ukuthi ngaphambi kokuba udokotela wakho aqinisekise ukuthi une-Sjögren's syndrome, uzokwenza izivivinyo eziningana ukuze anqume ezinye izimo ezingase zibangele izimpawu zakho. Ezinye zezivivinyo ongase ube nazo yilezi:

• Ukuhlolwa kwegazi: Ngokukhethekile, ukuhlola izinhlobo ezithile zama-antibodies.
• Ukuhlolwa kwamehlo: Kunezivivinyo ezikhethekile zokuhlola izinga lomswakama emehlweni.
• Ukuhlolwa kwamazinyo: Umsebenzi wezindlala zamathe emlonyeni ungabonakala.
• Ukuhlolwa komchamo.
• Ukuhlolwa kwezicubu: Ngezinye izikhathi kuthathwa ingcezu encane yezicubu, njengangaphakathi kodebe, bese kuhlolwa ukuze kubhekwe izinguquko ezindlaleni zamathe.
• Ama-X-ray: Ungase ucelwe ukuthi uthathe i-X-ray yesifuba ukuze ubone ukuthi kukhona yini umonakalo emaphashini.

Kungase kudingeke futhi ukuthi ubonane nochwepheshe abaningana:

• Isazi sezifo zamalunga: Udokotela ogxile ezifweni zamalunga kanye nezifo ezihlasela amasosha omzimba.
• Ochwepheshe bokunakekelwa kwamehlo.
• Udokotela wamazinyo.
• Udokotela we-Otolaryngologist (uchwepheshe we-ENT) ungudokotela ogxile ezindlebeni, ekhaleni, nasemphinjeni.

Yiziphi izinkinga ezingaba khona ze-Sjögren's Syndrome?

I-Sjögren's syndrome ingabangela ezinye izinkinga. Kodwa ungakhathazeki , abantu abaningi ababi nezinkinga ezinkulu.

• Ingozi eyengeziwe yokutheleleka ngomlomo namehlo: Ngenxa yomswakama ophansi, amagciwane angabangela kalula ukutheleleka.
• Ukungasebenzi kahle kwesibindi noma izinso.
• Ama-Lymphoma: Uhlobo lomdlavuza oluvela kuma-lymph node. Ingozi yokuthi lokhu kwenzeke iphansi kakhulu, kodwa akuyona into okufanele ungayinaki.
• Izinkinga zamaphaphu: Ngezinye izikhathi kungaphambaniswa ne-pneumonia.
• Izinkinga ze-neurological: Izinto ezifana nobuthakathaka, ukungakhululeki.

Iningi labantu abane-Sjögren's syndrome liphila ngaphandle kwezinkinga ezinkulu. Uma une-Sjögren's syndrome yesibili, isimo esiyisisekelo singase sandise ingozi yakho yezinkinga. Khuluma nodokotela wakho ngalokhu.

Iphathwa kanjani i-Sjögren's Syndrome?

Udokotela wakho uzoncoma ukwelashwa okuzokusiza ukulawula izimpawu zakho. Okwamanje akukho ukwelashwa kwe-Sjögren's syndrome. Kodwa-ke, udokotela wakho angakusiza ukuthola uhlelo lokwelashwa oluzonciphisa umthelela olunawo empilweni yakho yansuku zonke kanye nekhwalithi yempilo.

Ukwelashwa okudingayo kuzoncika ekutheni yiziphi izingxenye zomzimba wakho ezithintekile yi-Sjögren's syndrome.

Ezinye izindlela zokwelapha ezivamile zamehlo omile, umlomo, noma isitho sangasese sowesifazane zifaka:

• Izinyembezi zokwenziwa: Udokotela wakho wamehlo angase ancome amaconsi amehlo athengiswa ngaphandle kwemithi kadokotela (OTC), amaconsi kadokotela, noma amafutha okugcoba amehlo.
• Ukuhlinzwa kwamehlo omile (ama-punctal plugs): Udokotela ohlinza amehlo (udokotela wamehlo) angavala eminye noma yonke imigudu yakho yokudonsa izinyembezi. Lokhu kusiza ukugcina izinyembezi zakho zemvelo emehlweni akho isikhathi eside.
• Abakhiqizi bamathe: Udokotela wakho wamazinyo angase akuncomele izithasiselo zamathe ezitholakala ngaphandle kwemithi kadokotela noma imithi esiza umzimba wakho ukuthi ukhiqize amathe amaningi. Ukuhlafuna itshungama, ukuphuza amanzi, kanye nokumunca ama-ice cubes usuku lonke kungasiza ukugcina umlomo wakho umanzi.
• Imikhiqizo ekhethekile yokuhlanza umlomo noma yokunakekelwa kwamazinyo: Abantu abane-Sjögren's syndrome basengozini enkulu yokuba nezinkinga zamazinyo. Ngakho-ke, kungadingeka ukuhlanzwa kwamazinyo njalo, ukwelashwa okukhethekile kwe-fluoride, noma ukuxubha amazinyo ngodokotela kanye nokuhlanza umlomo.
• Izinto zokugcoba noma zokugcoba zesitho sangasese sowesifazane:Udokotela angase ancome amafutha okugcoba atholakala ngaphandle kwemithi kadokotela noma atholakala ngodokotela angasetshenziswa nsuku zonke noma ngesikhathi socansi.
• Ukwelashwa ngama-hormone: Abanye abantu bangadinga ukwelashwa ngama-hormone, njenge-estrogen, ukuze baphathe ukoma kwesitho sangasese sowesifazane okubangelwa ukungalingani kwama-hormone.

Ukwelashwa kobuhlungu nezinye izimpawu:

• Imithi yokuqeda ubuhlungu etholakala ngaphandle kwemithi kadokotela: Imithi efana ne-'NSAIDs (imithi yokulwa nokuvuvukala engeyona eye-steroidal)' (isib. i-ibuprofen) noma i-'acetaminophen' (isib. i-Panadol) ingasiza ekunciphiseni ubuhlungu nokuvuvukala. Ungayithathi le mithi izinsuku ezingaphezu kweziyi-10 ngesikhathi ngaphandle kweseluleko sikadokotela.
• Ama-Corticosteroids: Lena imithi enciphisa ukuvuvukala futhi inikezwa njengamaphilisi noma imijovo enqunywe udokotela.
• Ama-immunosuppressants: Le mithi ithulisa amasosha omzimba wakho futhi inciphise ukusebenza kwawo. Udokotela wakho angase akuphakamisele imithi efana ne-DMARD (imithi yokuguqula izifo elwa namathambo).

Hlobo luni lolwazi umuntu one-Sjögren's Syndrome angalulindela?

Kuzodingeka uphathe izimpawu zakho isikhathi eside, mhlawumbe impilo yakho yonke. Kodwa-ke, uma usuthole ukwelashwa okufanele, ubukhali bezimpawu zakho kufanele bunciphe. Abantu abane-Sjögren's syndrome bavame ukufunda ukuphatha izimpawu zabo, ngakho-ke ubukhali bezimpawu zabo buzoncipha ngokuhamba kwesikhathi.

Ingabe i-Sjögren's Syndrome ingavinjelwa?

Ngenxa yokuthi imbangela eqondile ayaziwa, ayikho indlela yokuvimbela i-Sjögren's syndrome. Akunakwenzeka futhi ukubikezela ukuthi ubani ozoyithola noma nini.

Kufanele ubonane nini nodokotela?

Bona udokotela uma uthola izimpawu ezintsha, noma uma izimpawu zakho ziba zimbi kakhulu. Landelela izimpawu zakho futhi uqaphele noma yiziphi izinguquko.

Udokotela wakho uzokutshela ukuthi kufanele uze kangaki ukuze uthole ama-aphoyintimenti okulandelela, izivivinyo, noma ezinye izivivinyo. Uma uzizwa sengathi ukwelashwa akusebenzanga noma akusebenzi kahle njengakuqala, ungalibali ukubona udokotela wakho. Izimpawu ze-Sjögren's syndrome ngezinye izikhathi zingaba zicashile. Nguwe wedwa owaziyo ukuthi kukhona okungahambi kahle.

Isimo Esiphuthumayo: Uma uzizwa sengathi unenkinga yokuphefumula noma yokugwinya, iya esibhedlela ngokushesha noma ushayele ku-1990 (isevisi ye-ambulensi ephuthumayo).

Yimiphi imibuzo okufanele uyibuze udokotela wakho?

Ungakhohlwa ukubuza le mibuzo uma ubona udokotela:

• Uhlobo luni lwe-Sjögren's syndrome enginalo? (Eyokuqala noma eyesibili?)
• Yiziphi izivivinyo okudingeka ngizenze?
• Ingabe kuzodingeka ngibone abanye ochwepheshe?
• Ngidinga ukwelashwa okunjani?
• Yiziphi izinguquko noma izimpawu okufanele ngiziqaphele?

Ukuphatha i-Sjögren's syndrome kungaba yinto ekhungathekisayo ngezinye izikhathi. Kungaba yinto ekhungathekisayo ukuba namehlo omile, umlomo owomile, noma ngisho nokoma kwesitho sangasese sowesifazane okwenza ucansi lube buhlungu. Kodwa izindaba ezinhle ukuthi abantu abaningi abane-Sjögren's syndrome bangakwazi ukulawula izimpawu zabo kahle uma sebethole inhlanganisela yezindlela zokwelapha ezibasebenzelayo.

Okokugcina, izinto okufanele uzikhumbule (Umyalezo Wokuya Ekhaya)

I-Sjögren's syndrome yisimo esingaba sibi kancane, kodwa singalawulwa ngokuphathwa ngendlela efanele .

• Awuwedwa: ​​kukhona abanye abantu abaphila nalezi zimo.
• Ukwelashwa okufanele kubalulekile: Khuluma nodokotela wakho ukuze uthole uhlelo lokwelashwa olufanele. Kungase kudingeke uzame ukwelashwa okuhlukile.
• Tshela udokotela wakho uma izimpawu zakho zishintsha: Uma izimpawu zakho zishintsha, ziba zimbi kakhulu, noma zibonakala zithinta kakhulu imisebenzi yakho yansuku zonke, tshela udokotela wakho.
• Ukuhlolwa njalo: Buza udokotela wakho ukuthi kufanele uhlolwe amehlo kangaki futhi uhlolwe amazinyo. Ukuhlolwa njalo okufana nalokhu kungasiza ekuvimbeleni izinkinga.

Ngiyethemba ukuthi lolu lwazi luzokusiza. Uma unemibuzo, ungangabazi ukubuza udokotela.

I- Sjögren's Syndrome, amehlo omile, umlomo owomile, ukuzivikela komzimba, isimiso somzimba sokuzivikela, ubuhlungu bamalunga