Ingabe ingane yakho ibonakala ikhathele ngaso sonke isikhathi? Ingabe ikhala ngomuzwa wokudinwa, umkhuhlane ovamile, kanye nobuhlungu bamalunga? Wake waphawula ukuqubuka okubomvu okufana nokwebhabhathane ezihlathini nasemakhaleni? Njengomzali, kuyinto evamile ukuzizwa wesaba kakhulu futhi ukhathazekile uma ubona into efana nale. Namuhla sizokhuluma ngesimo abazali abaningi abasesabesabayo, kodwa uma siqondwa kahle futhi siphathwa kahle, singasiza ingane yakho iphile impilo evamile. Lokho kuyi-lupus ezinganeni.
Kalula nje, iyini i-Lupus?
Ake sithi kukhona ibutho ngaphakathi emizimbeni yethu elisivikela ezifweni. Sibiza leli butho ngokuthi amasosha omzimba . Lapho izitha zangaphandle, njengama-virus namabhaktheriya, zingena emzimbeni, leli butho liyalwa futhi lisivikele.
I-Lupus yisifo esibangelwa ukuzivikela komzimba . Okwenzeka lapha kuyinto exakile kakhulu. Amandla ethu okuzivikela, isimiso somzimba sokuzivikela, ngephutha acabanga ukuthi amangqamuzana ethu aphilile nezicubu "ziyizitha" bese eqala ukuwahlasela. Kufana namasosha ethu ahlasela izwe lakithi. Lokhu kuhlasela kubangela ukuvuvukala , okungukuvuvukala nokuvuvukala, ezingxenyeni ezahlukene zomzimba, futhi kubangela izimpawu ezahlukahlukene.
Uma izingane zinesifo i-lupus, singaba sibi kakhulu kunasebantwini abadala. Lokhu kusho ukuthi:
- Lesi sifo singase sibe sisebenza kakhulu futhi sibe sibi kakhulu.
- Kukhona ingozi enkulu yokulimala kwezitho ezibalulekile njengezinso, inhliziyo, kanye nobuchopho.
- Ukwelashwa kungadinga imithamo ephezulu yemithi enamandla.
- Eminye imithi yokwelapha (isibonelo, ama-corticosteroids) ingabangela imiphumela emibi uma isetshenziswa isikhathi eside.
Uhlobo oluvame kakhulu lwe-lupus ezinganeni yi -Systemic Lupus Erythematosus (SLE) . Sivame ukubiza lolu hlobo ngokuthi "lupus." Ngezinye izikhathi odokotela balubiza nangokuthi "Childhood-onset SLE" noma "Juvenile-onset SLE." Izimpawu zivame ukuqala cishe eminyakeni eyi-12, kodwa zingaqala kusenesikhathi noma kamuva. Kodwa-ke, akuvamile kakhulu ukuthi izingane ezingaphansi kweminyaka emi-5 zibe nalesi sifo.
Ziyini izimpawu ze-lupus enganeni?
I-Lupus ayithinti ingane ngayinye ngendlela efanayo. Izimpawu zengane ngayinye zihlukile kancane. Yingakho odokotela bebiza lokhu ngokuthi "uphawu lweminwe ye-lupus," ngoba luhlukile kumuntu ngamunye.
Ukuze kube lula ukuqonda, ake sihlukanise lezi zici zibe izingxenye ezimbili.
| Izimpawu (izinto wena nomntwana wakho enizizwayo) | Izimpawu ezivezwe ukuhlolwa kwezokwelapha |
|---|---|
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Khumbula, ukuba nesinye noma ezimbili zalezi zimpawu kuphela akusho ukuthi une-lupus. Isibonelo, kunezinye izimbangela eziningi zomkhuhlane. Odokotela basola i-lupus kuphela uma eziningana zalezi zimpawu zivela ndawonye.
Yiziphi ezinye izinkinga ezingaba khona ngenxa ye-lupus?
Ukwelashwa okufanele kunganciphisa kakhulu ingozi yalezi zimo, kodwa ezinye izingane zisesengozini yokuthola lezi zimo.
- Ukulimala kwezinso: Lokhu kubizwa ngokuthi i-lupus nephritis . Lokhu kungenye yezinkinga ezinkulu kakhulu ze-lupus.
- Ukuvuvukala kwamaphaphu nenhliziyo: Ukuvuvukala kolwelwesi lwamaphaphu (i-pleurisy) noma ukuvuvukala kwesikhwama esizungeze inhliziyo (i-pericarditis) kungenzeka. Kokubili lokhu kungabangela ubuhlungu obukhulu esifubeni .
- Imiphumela yesistimu yezinzwa ephakathi: Ubuchopho kanye nomgogodla kungathinteka. Lokhu kungabangela ikhanda elibuhlungu, izinguquko zokuziphatha, kanye nokuxhuzula .
- Amahlule egazi: Kukhona ingozi yokuqhekeka kwegazi, ikakhulukazi emilenzeni. Lokhu kungabangela izimpawu ezifana nobuhlungu, ukuvuvukala, kanye nokubomvu emlenzeni.
Kungani izingane zithola i-lupus? Iyini imbangela?
Eqinisweni, abacwaningi abakayitholi imbangela eyodwa eqinisekile ye-lupus. Kodwa-ke, banenkolelo abakholelwa kuyo. Ibizwa ngokuthi "inkolelo-mbono yokushaywa okubili." Okusho ukuthi, i-lupus yenzeka lapho izici ezimbili zihlangana.
1. Isici sokuqala - Izakhi zofuzo: Kumelwe kube nokuthambekela kwezakhi zofuzo okudluliselwa kusuka esizukulwaneni kuya kwesinye. Okusho ukuthi, ingane izalwa inesifo sofuzo sokuthuthukisa i-lupus.
2. Isici sesibili - Isifo: Ngisho noma kukhona ukuthambekela kofuzo, kumelwe kube khona okubangela lesi sifo. Isifo esinjalo singaba:
- Ukutheleleka ngegciwane
- Izinguquko emazingeni ama-hormone (ikakhulukazi ngesikhathi sokuthomba)
- Ukuchayeka elangeni elinamandla (imisebe ye-UVA/UVB)
Kodwa-ke, akubona bonke abanalesi simo sofuzo abazoba ne-lupus. Ngezinye izikhathi, noma ngabe unezakhi zofuzo ezikwenza uthambekele kulesi sifo, ungahlala ungenazo izifo impilo yakho yonke.
Udokotela uyixilonga kanjani ngokunembile i-lupus?
Uma usola ukuthi ingane yakho inezimpawu ze-lupus, kufanele nakanjani ubone udokotela. Udokotela uzokwenza ukuxilongwa ngokulandela lezi zinyathelo:
- Ukubuza wena nomntanakho ngezimpawu: Ukumbuza ngezimpawu ingane yakho enazo, ukuthi isinesikhathi esingakanani inazo, nokuthi ngabe kukhona yini emndenini oke waba nezifo ezifanayo.
- Ukuhlolwa okuphelele ngokomzimba: Ingane ihlolwa kusukela ekhanda kuya ozwaneni, inaka kakhulu ukuqubuka kwesikhumba kanye namalunga avuvukele.
- Ukuhlolwa kwegazi nomchamo: Kwenziwa ukuhlolwa okuhlukahlukene ukuhlola izimpawu ezihlobene ne-lupus. Lokhu kufaka phakathi ukuhlolwa kwe-`(ANA)` okukhulunywe ngakho ngenhla kanye nenani lamaseli egazi.
Yiziphi izindlela zokwelapha i-lupus?
Into yokuqala okufanele uyisho ukuthi alikho ikhambi le-lupus okwamanje. Kodwa ungakhathazeki. Kunezindlela zokwelapha eziphumelela kakhulu ezitholakalayo namuhla ezingasiza ekulawuleni lesi sifo, zinciphise izimpawu, futhi zisize ingane yakho iphile impilo evamile.
Imigomo eyinhloko yokwelashwa yile:
- Ukunciphisa izimpawu zengane (njengobuhlungu, ukukhathala).
- Ukuvimbela amasosha omzimba ukuthi angalimazi izitho zomzimba.
- Ukugcina impilo yengane iyonke yomzimba nengqondo ezingeni elihle.
Ngenxa yalokhu, ithimba lodokotela, eliholwa udokotela wamathambo ezingane, lihlangana ndawonye ukuze lenze uhlelo lokwelapha olufanela ingane.
Ngezansi kuneminye yemithi esetshenziswa kakhulu ye-lupus.
| Uhlobo lwesidakamizwa | Kungani kufanele usebenzise? | Izibonelo |
|---|---|---|
| Ama-Corticosteroids | Ukulawula ngokushesha ukuvuvukala emzimbeni. | I-Prednisone |
| Imithi yokulwa nomalaleveva | Ukulawula ukusha kanye nokuqubuka kwesikhumba kanye nobuhlungu bamalunga. | I-Hydroxychloroquine |
| Izithiyo zokucindezela amasosha omzimba | Ukulawula ukusebenza kwesimiso somzimba sokuzivikela esisebenza ngokweqile. | I-Azathioprine, i-Mycophenolate Mofetil, i-Methotrexate |
| Ama-Painkiller | Ukuqeda ubuhlungu obufana nobuhlungu bamalunga. | I-Ibuprofen, i-Naproxen |
| Amavithamini namaminerali | Ukuvimbela i-osteoporosis ebangelwa imithi yama-steroid. | I-Calcium neVithamini D |
Masiqaphele nemiphumela emibi yokwelashwa.
Nakuba le mithi ingasiza ekusindiseni impilo yengane, ingabangela nemiphumela emibi. Kubalulekile ukuqaphela lokhu.
Ukuthatha imithi yama-steroid njenge-'Prednisone' isikhathi eside kungabangela izinto ezifana nalezi:
- Ukwanda kwesisindo
- Amamaki okwelula esikhumbeni
- Umfutho wegazi ophakeme
- Ukuncipha kwamathambo (i-osteoporosis)
- Ukucindezeleka kwengqondo noma ukucindezeleka
- Ukwanda kwamazinga kashukela egazini (isifo sikashukela)
- Ama-cataract noma i-glaucoma
Le miphumela emibi ingathinta ukubukeka kwengane, impilo yengqondo kanye nentuthuko yayo. Ngakho-ke, kubaluleke kakhulu ukuya emitholampilo ngesikhathi ngokwemiyalelo kadokotela.
Umuthi 'i-Hydroxychloroquine' awuvamile ukubangela umonakalo ku-retina yeso. Ngakho-ke, ingane ngayinye ethatha lo muthi kufanele ihlolwe amehlo ayo njalo ngudokotela wamehlo.
Ngingamsiza kanjani ingane yami njengomzali?
Ungase uzizwe ungenamandla uma uthola ukuthi ingane yakho ine-lupus. Kodwa-ke, kunezinto eziningi ongazenza ukusiza ingane yakho kulolu hambo.
- Vikela elangeni: Ukukhanya kwelanga kuyimbangela enkulu yokwanda kwe-lupus. Ngakho-ke, noma nini lapho ingane yakho iphuma ngaphandle , qiniseka ukuthi ugqoka izibuko zelanga, isigqoko, nezingubo ezinemikhono emide. Futhi, sebenzisa isivikelo selanga esine-SPF engama-30 noma ngaphezulu. Lokhu kufanele kwenziwe ngisho nasezinsukwini ezinamafu. Gcina ingane yakho kude nelanga ngangokunokwenzeka phakathi kuka-10 ekuseni no-4 ntambama.
- Ukuphumula nokuzivocavoca: Vumela ingane yakho iphumule uma izizwa ikhathele. Kodwa-ke, ngezinsuku lapho izizwa kahle, yikhuthaze ukuba yenze izivivinyo ezithambile njengokuhamba nokubhukuda. Lokhu kuzosiza ekuqiniseni imisipha yayo.
- Vikela ezifweni: I-Lupus kanye neminye yemithi esetshenziswayo ingenza buthaka amasosha omzimba engane yakho. Lokhu kuyenza ibe sengozini enkulu yokugula. Bafundise ukugeza izandla zabo njalo ngensipho namanzi. Zigcine kude nabantu abagulayo.
- Gcina uhlu lwezimpawu: Gcina irekhodi lezimpawu zengane yakho, izinsuku eziba zimbi ngazo, kanye nanoma yiziphi izimpawu ezintsha ezibonakala. Lokhu kuzoba usizo kakhulu uma uvakashela udokotela.
- Yazisa isikole: Yazisa othisha besikole kanye nothishanhloko ngesimo somntwana. Lokhu kuzobasiza ukuthi bahlinzeke ngezinsiza ezidingekayo zengane.
- Cabanga ngempilo yengqondo: Ukuphila nesifo esingamahlalakhona kungaba nzima ngokomzwelo enganeni. Vumela ingane yakho ikhulume nawe ngokukhululekile. Uma kudingeka, funa usizo lomeluleki.
- Zinakekele: Ngakho konke lokhu, kubaluleke kakhulu ukuzinakekela njengomama nobaba. Zinike isikhathi sokuphumula futhi ucabange ngempilo yakho. Uma uphilile kuphela lapho unganakekela kahle ingane yakho.
Umlayezo Wokuya Nawe Ekhaya
- I-Lupus yisifo esihlasela amasosha omzimba lapho amasosha omzimba ethu ehlasela khona imizimba yethu.
- Kungaba kubi kakhulu uma kuthinta izingane, kodwa kungalawulwa kahle ngokwelashwa okufanele.
- Qaphela izimpawu ezifana nokuqubuka okufana nokwebhabhathane, ukukhathala okukhulu, ubuhlungu bamalunga, kanye nomkhuhlane ovamile.
- Ukuvikela ilanga kubaluleke kakhulu. Izingubo zokuvikela ilanga kanye nezivikelo kuyimpoqo.
- Ungalokothi ukhohlwe ukuthatha imithi kadokotela wakho bese uya emitholampilo.
- Wena noma ingane yakho aniwedwa kulolu hambo. Odokotela, abahlengikazi, nabeluleki bahlala bekulungele ukukusekela.
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