So wote nka sɛ wo ho yeraw wo kɛse nso bere a wosɔre anɔpa a w’akyi ne w’akyi berɛmo mu yɛ wo yaw na ɛyɛ wo yaw no? So akyi yaw a ɛkɔ so da mũ nyinaa yi ma ɛyɛ den sɛ wobɛyɛ wo da biara da dwumadi ahorow? Sɛ wowɔ sɛnkyerɛnne te sɛ eyinom a, ebia wubenya tebea bi a wɔfrɛ no Ankylosing Spondylitis. Eyi yɛ asetra nyinaa tebea. Nanso mma ɛnhaw wo. Ɛnyɛ wo nkutoo na wowɔ saa akwantu yi mu. Nnuruyɛfo ne nnuruyɛfo atitiriw kuw mũ bi wɔ hɔ a wɔbɛboa wo na wɔahwɛ wo. Ɛnnɛ, momma yɛnka wɔn a wɔwɔ kuw yi mu ne sɛnea wobetumi aboa wo ho asɛm.
Dɛn nti na eyi hwehwɛ sɛ wɔyɛ kuw mũ no nyinaa?
Ankylosing spondylitis, anaa AS tiawa mu no, yɛ ntini mu yare bi a ɛka akyi berɛmo no nkwaa titiriw. Sɛ yɛbɛka no pɛpɛɛpɛ a, ɛyɛ bere a nipadua no mu tumi a ɛko tia nyarewa no tow hyɛ yɛn akyi berɛmo mu nkwaa so no. Eyi de ɔfe ba, na ɛma ɛyɛ yaw na ɛyɛ den. Bere kɔ so no, ɛnyɛ akyi berɛmo nko na ebetumi aka, na mmom nkwaa afoforo te sɛ asen, mmati, nkotodwe, aniwa, ne dwensɔtwaa mpo nso.
Sɛ yɛbɛka no tiawa a, AS nyɛ yare a ɛwɔ nipadua no fã biako pɛ. Ɛno nti na wuhia mmoa a efi animdefo kuw bi a wɔyɛ adwuma ahorow mu hɔ, sen sɛ wubehia oduruyɛfo biako pɛ.
Henanom ne w’akwahosan kuw no mufo?
Okay, enti afei momma yɛnhwɛ wɔn a wɔyɛ abenfo a wɔwɔ saa kuw a wɔwɔ talente yi mu a wɔbɛboa wo ne nea wɔn dwumadi yɛ.
| Ɔbenfo a ɔyɛ ɔbenfo | Mɛyɛ dɛn aboa wo? |
|---|---|
| Oduruyɛfo a Ɔhwɛ Mfitiaseɛ | Oyi ne w’abusua oduruyɛfo. Wobedi kan akɔ ne nkyɛn de wo sɛnkyerɛnne ahorow no akɔ. Obetumi ahu wo tebea no na ɔde wo akɔ oduruyɛfo titiriw nkyɛn sɛ wosusuw sɛ AS wɔ hɔ a. |
| Ntini mu yare ho ɔyaresafo | Eyi ne oduruyɛfo titiriw a ɔhwɛ wo AS no so. Ɔwɔ nkwaa, ntini, ne nnompe mu nyarewa ho nimdeɛ. Ntini mu yare ho oduruyɛfo no bɛkyerɛw nnuru (te sɛ biologics) ama wo de asiw wo yaw, wo ho wosow, ne wo ho a ɛyɛ den so, ayɛ ayaresa nhyehyɛe, na wahwɛ wo tebea no so daa. |
| Apɔw-mu-teɛteɛ Ho Ɔbenfo | Apɔw-mu-teɛteɛ yɛ ade a ɛho hia yiye wɔ AS a wodi ho dwuma mu. Apɔw-mu-teɛteɛ ho ɔyaresafo bɛkyerɛ wo apɔw-mu-teɛteɛ ne ntrɛwmu a ɛfata a ɛbɛma wo nkwaa ayɛ mmerɛw, atew ɛyaw so, asiesie wo ho, na aboa wo ma woatutu wo nipadua no ntɛmntɛm. |
| Adwuma mu Ɔyaresafo | Saa oduruyɛfo titiriw yi boa wo ma wosakra nneɛma a atwa wo ho ahyia sɛnea ɛbɛyɛ a wubetumi ayɛ da biara da dwumadi ahorow a ɛyaw biara nni ho. Sɛ nhwɛso no, wobetumi akyerɛ wo sɛnea wode nkongua bedi dwuma wɔ aguaree anaa sɛnea wode grabber bedi dwuma sɛ ɛyɛ den ma wo sɛ wobɛfa biribi a ahwe fam a. |
Momma yɛnhwɛ saa abenfo yi mu nkɔ akyiri kakra.
Rheumatologist - Wo adamfo paa
AS yɛ yare a ɛma obi nya akisikuru. Enti , akisikuru ho oduruyɛfo ne wo oduruyɛfo titiriw wɔ yare yi a wobedi ho dwuma mu. Mfiase no, wobɛkɔ wo duruyɛfo nkyɛn bɛyɛ adapɛn 2-4 biara ahwɛ sɛnea nnuru a worenom no reyɛ adwuma. Akyiri yi, bere a wo tebea no mu yɛ den no, wubetumi akɔ wo duruyɛfo nkyɛn pɛnkoro ɔsram biara anaa asram kakraa biara. Sɛ wowɔ nsɛmmisa bi fa wo nnuru, sɛnea wode auto-injectors no bedi dwuma, anaa nea efi mu ba ho a, ɛsɛ sɛ wubisa wo ntini ho ɔyaresafo.
Physical Therapist - Ahofadi a wode tu kwan
Apɔw-mu-teɛteɛ te sɛ aduru ma obi a ɔwɔ AS. Ɛnyɛ sɛ nipadua mu ayaresa ho ɔbenfo bɛkyerɛ wo apɔw-mu-teɛteɛ nko, na mmom ɔbɛhyehyɛ apɔw-mu-teɛteɛ nhyehyɛe bi a ɛfa wo tebea no ho pɔtee na wubetumi ayɛ . Ebia nea ɛka eyi ho ne ahomegye a emu dɔ (de trɛw wo koko mu ntini mu), asuguare, ne nsu mu apɔw-mu-teɛteɛ. Eyinom betumi aboa ma w’akyi berɛmo no akɔ so atumi akɔ baabiara.
Ophthalmologist - Hwɛ w'ani nso yiye
Ebia nnipa binom a wɔwɔ AS no benya ɔfe wɔ aniwa no fã a ɛwɔ kɔla, aniwa a ɛyɛ mmerɛw no mu. Yɛfrɛ eyi iritis . Nokwarem no, ɛtɔ mmere bi a w’ani ho ɔyaresafo betumi adi kan asusuw sɛ wowɔ AS. Ɔde afiri a wɔde hwɛ nneɛma nketenkete soronko bi bedi dwuma de ahu nsonsonoe a ɛda aniwa mu nyarewa afoforo ntam.Sɛ wohu ntɛm a, ɛnyɛ den koraa sɛ wɔbɛsa. Enti sɛ wuhu sɛnkyerɛnne ahorow te sɛ aniwa a ɛyɛ kɔkɔɔ, ɛyaw, na ɛyɛ den sɛ wubehu hann a, kɔ aniwa ho oduruyɛfo nkyɛn ntɛm ara.
Yafunu mu yafunu ho ɔyaresafo
Nnansa yi nhwehwɛmu ahu abusuabɔ bi a ɛda ɔfe a ɛwɔ dwensɔtwaa mu ne AS ntam. Nnipa kakraa bi a wɔwɔ AS nso wɔ asiane mu sɛ wobenya dwensɔtwaa mu yare a ɛma ɛyɛ hyew, te sɛ Crohn yare anaasɛ akisikuru . Sɛ wowɔ sɛnkyerɛnne ahorow a ɛkɔ so daa te sɛ yafunu mu yaw ne wo ho a ɛyɛ wo yaw a, wo duruyɛfo betumi de wo akɔ oduruyɛfo bi nkyɛn.
Adwene mu Akwahosan Ho Ɔbenfo
Sɛ wo ne yare biara a enni sabea te a, ɛho hia yiye sɛ wohwɛ nipadua ne adwene mu akwahosan nyinaa so.
Ɛyɛ ade a ɛfata sɛ wobɛte nka sɛ woayɛ basaa, wo ho yeraw wo, na ɛtɔ mmere bi a woayɛ basaa bere a wote ɛyaw ne ahotɔ mu da biara da no. Sɛ wunya obi a wo ne no bɛkasa na wakyekye wo werɛ wɔ mmere a ɛte sɛɛ mu a, ebetumi ayɛ den kɛse. Adwene mu akwahosan ho ɔfotufo betumi ama wo adwene mu ahoɔden a wuhia na ama woatumi agyina saa asɛnnennen yi ano yiye.
Nnuruyɛfo a wɔyɛ oprehyɛn
Mpɛn pii no, eyi ho nhia. Oprehyɛn ho hia wɔ AS a emu yɛ den yiye a ɛntaa nsi, baabi a nkwaa no sɛe kɛse no nkutoo mu . Oduruyɛfo a ɔyɛ nnompe ho oprehyɛn bɛboa wɔ nneɛma te sɛ asen a wɔde besi ananmu mu, na oduruyɛfo a ɔyɛ ntini mu oprehyɛn bɛboa wɔ akyi berɛmo anaa ntini mu haw ahorow ho. Ma ɛntra w’adwenem sɛ eyi yɛ ade a ɛntaa nsi koraa.
Nkrasɛm a Wɔde Kɔ Fie
- Ɛwom sɛ ankylosing spondylitis (AS) yɛ tebea a ɛba wo nkwa nna nyinaa mu de, nanso sɛ wosa yare yiye na wodi ho dwuma yiye a, wubetumi abɔ bra pa.
- Ɛnyɛ wo nko ara na woretu kwan yi. Nnuruyɛfo kuw mũ bi wɔ hɔ a wɔn ho akokwaw wɔ nneɛma ahorow mu a wɔbɛboa wo.
- Oduruyɛfo a ɔhwɛ wo titiriw no bɛyɛ akisikuru ho ɔyaresafo . Ɛho hia paa sɛ yedi n’afotu akyi.
- Nnuru ka ho , apɔw-mu-teɛteɛ ne nipadua mu ayaresa ho hia na ama wɔadi yare yi so.
- Hwɛ w’adwene mu akwahosan ne wo nipadua akwahosan nso. Sɛ ɛho hia a, ntwentwɛn wo nan ase sɛ wobɛhwehwɛ mmoa afi ɔfotufo bi hɔ.
- Sɛ wowɔ nsɛmmisa bi fa yare no anaa ayaresa ho a, nsuro da sɛ wo ne wo duruyɛfo bɛkasa .
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