So wo ba ketewa no wɔ nsensanee kɔkɔɔ/kɔla kɔkɔɔ wɔ ne honam ani? Ebetumi ayɛ Port Wine Stain!

So woahyɛ nsensanee anaa nkekae bi a ɛyɛ pink, kɔkɔɔ, anaa kɔkɔɔ wɔ wo ba a wɔawo no foforo anaa nea ɔretu mmirika honam ani pɛn? Ɛtɔ da bi a, eyinom pue wɔ anim ne kɔn mu. Ɛyɛ ade a ɛfata sɛ awofo pii bɛhaw kakra bere a wohu biribi a ɛte sɛɛ no. Enti, ɛnnɛ yɛrebɛka saa awoɔ agyiraeɛhyɛdeɛ yi ho asɛm. Wɔ aduruyɛ mu no, wɔsan frɛ eyi `(Port Wine Stain)` anaa `(Nevus Flammeus)`. Ebia edin no bɛyɛ te sɛ nea ɛyɛ nwonwa kakra, nanso momma yɛnkyerɛkyerɛ mu tiawa.

Dɛn ne saa `(Port Wine Stain)` yi? So yɛbɛkyerɛkyerɛ mu pɛpɛɛpɛ?

Sɛ yɛbɛka no tiawa a, ``Port Wine Stain'' yɛ awo agyiraehyɛde a ɛtra hɔ daa . Eyi kyerɛ sɛ ɛnsɛe wɔ n’ankasa ho. Edi kan da adi sɛ baabi a ɛyɛ tratraa, ɛyɛ mmerɛw, ɛyɛ pink, kɔkɔɔ, anaa kɔkɔɔ wɔ abofra a wɔawo no foforo honam ani. Nanso bere kɔ so no, ɛtɔ mmere bi a saa beae yi betumi ayɛ tuntum na akɔ soro kakra na ayɛ abon .

Wonyaa saa din yi fi nokwasɛm a ɛyɛ sɛ ɛte sɛ nea wɔahwie bobesa kɔkɔɔ kakra agu honam ani. Fa no sɛ, ɛtɔ mmere bi a, saa nsensanee yi betumi ayɛ kɛse wɔ anim no fã biako. Ebetumi aba nso wɔ abasa, nan, anaa baabi foforo biara a ɛwɔ nipadua no so. Nanso, wɔtaa hu no wɔ anim, kɔn, ne ti nhwi so.

Saa tebea yi taa yɛ dɛn na wɔfrɛ no ``Port Wine Stain''?

Eyi nyɛ ade a ɛtaa ba. Sɛ wɔkyekyem pɛpɛɛpɛ a, ebia mmofra a wɔawo wɔn foforo 1,000 biara mu bɛyɛ 3 benya saa ``Port Wine Stain'' yi. Ebetumi aba nkokoaa a wofi mmusuakuw nyinaa mu, a ɔbarima anaa ɔbea mfa ho. Enti, sɛ wo ba no wɔ saa nsensanee yi a, mma ɛnhaw wo na nsusuw sɛ, "Dɛn nti na me ba nkutoo?" Ɛnyɛ wo nko ara.

So awo agyiraehyɛde ahorow yi ankasa kɔ?

Eyi yɛ ɔhaw a awofo pii wɔ. Sɛnea yɛadi kan aka no, ``Port Wine Stain`` yɛ awo agyiraehyɛde a ɛtra hɔ daa. Wei kyerɛ sɛ ɛrenkɔ n’ankasa a wɔmfa ayaresa biara nka ho. Bere a awo agyiraehyɛde nketenkete bi betumi ayɛ hare kakra bere a bere kɔ so no, ``Port Wine Stain`` ntaa nyɛ saa.

So saa beae yi mu yɛ den bere a worenyin no?

Yiw, ɛtɔ mmere bi a ebetumi aba saa. Bere kɔ so no, `(Port Wine Stain)` nsensanee pii yɛ tuntum na ɛyɛ den, na ɛkɔ soro sen honam ani. Ɛwom sɛ mfiase no ebia wɔbɛyɛ tratraa na wɔayɛ mmerɛw de, nanso bere kɔ so no, honam ani baabi a nsensanee no wɔ no betumi ayɛ te sɛ abotan na ayɛ abon. Afei nso, ɛtɔ mmere bi a, sɛ opira ketewaa bi ba saa mmeae no a, mogya betumi atu wɔn asen sɛnea ɛte daa na ebetumi ayɛ den kakra sɛ wobedi so.

Dɛn na ɛma akokoaa nya saa ``Port Wine Stain'' yi?

Wonnim nea ɛde eyi ba ankasa. Nanso, nyansahufo gye di sɛ nea ɛde ba titiriw ne capillaries , mogya ntini nketenkete a ɛwɔ yɛn honam ani ase no nyin wɔ ɔkwan a ɛnteɛ so.Saa ntini ahorow yi atrɛw ankasa, a ɛkyerɛ sɛ ɛsõ sen sɛnea ɛte daa na ɛte sɛ nea atrɛw. Eyi nti na honam ani nya saa kɔla no.

Nhwehwɛmu da so ara kɔ so wɔ nea enti a saa ntini nketenkete yi yɛ wɔn ade wɔ ɔkwan a ɛnteɛ yi so no ho. Ɛtɔ da bi a, abusua bi mufo pii betumi anya saa tebea yi. Nanso, ɛnyɛ bere nyinaa na yebetumi aka sɛ ɛne awosu mu abusuabɔ bi wɔ abusuabɔ. Ɛtɔ da bi a, ebetumi aba a awosu mu sintɔ biara nni mu (awosu mu nsakrae).

Saa ``Port Wine Stain'' awo agyiraehyɛde yi te dɛn?

Sɛnea yɛadi kan aka ho asɛm no, ``Port Wine Stain'' yɛ pink, kɔkɔɔ, anaa kɔkɔɔ a ɛwɔ honam ani. Ɛwɔ ahye a emu da hɔ. Ɛne sɛ, yebetumi ahu baabi a beae no fi ase na ɛba awiei pefee.

Ɛwom sɛ saa awo agyiraehyɛde ahorow yi tumi pue wɔ nipadua no so baabiara de, nanso wɔtaa hu wɔ:

• Wɔ anim
• Wɔ kɔn no so
• Ti nhwi (wɔ ti nhwi so) .

Wɔ mmofra nkumaa mu no, saa `(Port Wine Stain)` nsensanee yi taa yɛ torotoro. Bere a abofra no nyin no, saa awo agyiraehyɛde yi nso nyin kɛse. Nanso, enyin sɛnea nipadua no kɛse te. Sɛnea yɛadi kan aka no, bere kɔ so no, saa nsensanee yi tumi yɛ tuntum na ɛyɛ den, na ɛte sɛ abotan nketenkete wɔ honam ani. Afei nso, sɛ apirakuru ketewaa bi mpo a, ɛda adi sɛ mogya bɛtɔ mmeae yi.

So Port Wine Nkekae no Pira?

Mpɛn pii no, `(Port Wine Stain)` nsensanee no nsɛe akwahosan. Ɛne sɛ, wɔmfa ɛyaw pɔtee biara anaa nyarewa afoforo a emu yɛ den mma. Nanso, wɔ mmofra binom fam no, titiriw bere a saa nsensanee yi wɔ wɔn anim, titiriw bere a ɛyɛ kɛse na ne kɔla yɛ tuntum no, ebetumi ayɛ adwennwen kɛse. Sɛ wosusuw wɔn honam ani hwɛbea ho a, ebetumi ama wɔn ani awu na wɔasuro, na ɛno betumi ama wɔabu wɔn ho ahe na ɔpɛ a wɔwɔ sɛ wɔne afoforo bɛbɔ no so atew.

Ɛntaa mma sɛ, saa ``Port Wine Stain'' nsensanee yi betumi ne aduruyɛ mu tebea horow a ɛyɛ den te sɛ ``Klippel-Trenaunay syndrome'' anaa ``Sturge-Weber syndrome.'' Nnipa a wɔwo wɔn a wɔwɔ saa tebea horow yi nso wɔ mogya ntini a ɛwɔ wɔn nipadua afã afoforo no mu nneɛma a ɛnteɛ. Enti, ɛsɛ sɛ oduruyɛfo hwehwɛ wɔn mu hwɛ sɛ ebia nsɛnnennen a emu yɛ den bi wɔ hɔ anaa .

Afei nso, sɛ hyɛn gyinabea bobesa nkekae bi yɛ kɛse na ɛda adi kɛse akyiri yi wɔ asetra mu a, ebetumi ayɛ akwahosan ho haw foforo ho sɛnkyerɛnne anaasɛ ɛde ɔhaw afoforo aba. Sɛ nhwɛso no, sɛ akisikuru no apira a, mogya betumi atu no ntɛm asen honam ani hwɛbea a ɛteɛ. Afei nso, nnipa a port wine nkekae wɔ wɔn aniwa ho no wɔ asiane kɛse mu sɛ wobenya aniwa mu yare bi a wɔfrɛ no glaucoma.

Wobɛyɛ dɛn ahu sɛ wowɔ ``Port Wine Stain''?

Mpɛn pii no oduruyɛfo betumi ahu sɛ akokoaa bi wɔ ``Port Wine Stain'' denam akokoaa no honam ani hwɛbea a ɔbɛhwehwɛ so. Mpɛn pii no, wohu eyinom bere a wɔawo wɔn.Oduruyɛfo no nso bebisa wo w’abusua aduruyɛ ho abakɔsɛm.

Mpɛn pii no, hyɛn gyinabea bobesa a ɛyɛ fĩ yɛ ahosiesie ho haw ara kwa a ɛka honam ani. Nanso, wo ba no duruyɛfo bɛyɛ nhwehwɛmu de ahu sɛ ɛyɛ tebea bi a emu yɛ den kɛse te sɛ Sturge-Weber syndrome ho sɛnkyerɛnne anaa.

Sɛ oduruyɛfo no adwenem yɛ no naa, anaasɛ ɔpɛ sɛ ɔpow aduruyɛ mu tebea foforo bi a, obetumi akamfo akyerɛ sɛ wɔnyɛ nhwehwɛmu foforo. Nhwɛsoɔ:

• Aniwa mu nhwehwɛmu a ɛkyerɛ aniwa mu nhyɛso
• Mfoninitwa nhwehwɛmu te sɛ X-ray, CT scan, anaa MRI
• Sɔhwɛ a ɛfa honam ani fã ketewaa bi a wɔfa ho (Skin biopsy) .

Dɛn ne ayaresa a wɔde yɛ `(Port Wine Stain)`?

Port wine stains a ɛne akwahosan ho haw pɔtee biara nni abusuabɔ no nhia ayaresa. Nanso, nnipa binom paw sɛ wɔbɛhwehwɛ ayaresa. Nneɛma pii nti na ɛte saa:

• Asiane a ɛwɔ mogya a ɛbɛtɔ dodo ne ɔyare mmoawa a ɛbata ho bere a obi apira no.
• Akyiri yi, honam ani betumi ayɛ den, ayɛ kurukuruwa, na ne kɔla asesa.
• Nkɛntɛnso a enya wɔ obu a obi wɔ ma ne ho ne asetra mu abusuabɔ so .

Ayaresa a wɔtaa yɛ na etu mpɔn sen biara ne laser ayaresa. Eyi yɛ adwuma denam mogya ntini a ayɛ kɛse wɔ ɔkwan a ɛnteɛ so a ɛtew so, na ɛtew awo agyiraehyɛde no kɔla so. Sɛ wofi ase wɔ mmofraase, bere a mogya ntini no da so ara yɛ nketewa a, saa ayaresa yi tu mpɔn kɛse.

Mpɛn pii no, laser ayaresa bere tiaa, na egye simma kakraa bi pɛ. Ɛsɛ sɛ nnipa pii san yɛ ayaresa no wɔ asram kakraa biara mu. Sɛ wɔde laser sa yare no wie a, honam ani betumi ayɛ kɔkɔɔ na ayɛ te sɛ nea owia ahyew no. Sɛ ayaresa no nyɛ wo dɛ dodo a, wubetumi aka akyerɛ wo duruyɛfo sɛ ɔmma wo aduru a wɔde petepete wo so anaasɛ aduru a wɔde hyɛ wo ho. Ɛtɔ mmere bi a wɔma mmofra nkumaa paa aduru a wɔde kum nipadua no, enti wotumi da bere a wɔreyɛ ayaresa no.

So wobetumi asiw Port Wine Stain ano?

Esiane sɛ nyansahufo da so ara nnim nea ɛde ``Port Wine Stains'' ba ankasa nti, ɔkwan biara nni hɔ a wɔbɛfa so asiw ano. Ɛnyɛ biribiara a ɛkɔ so wɔ nyinsɛn mu na ɛde saa awo agyiraehyɛde ahorow yi ba. Enti mma ɛnhaw wo, na woresusuw ho sɛ, "So eyi fi biribi a meyɛe?"

Sɛ mewɔ `(Nevus Flammeus)` a, dɛn na ɛsɛ sɛ mehwɛ kwan?

Port Wine Stains no ankasa nkɔ. Sɛ wɔansa a , bere kɔ so no, wobetumi ayɛ akɛse, ayɛ tuntum, ayɛ den, na wɔayɛ kurukuruwa.

Wɔ nnipa dodow no ara fam no, saa awo agyiraehyɛde ahorow yi yɛ ahosiesie ara kwa na ɛmfa akwahosan ho haw kɛse biara mma. Nanso, sɛ wo anaa wo ba wɔ ``Port Wine Stain'' a, ɛyɛ papa sɛ wobɛma oduruyɛfo ahwɛ mu bere ne bere mu.

Ɛwom sɛ laser ayaresa betumi atew awo agyiraehyɛde ahorow yi kɔla so de, nanso nea efi mu ba no betumi ayɛ soronko wɔ onipa biara ho. Wɔ ayaresa a edi mu mpo akyi no, ɛtɔ mmere bi a mfe bi akyi no, saa `(Nevus Flammeus)` nsensanee yi betumi asan apue anaasɛ ɛbɛyɛ tuntum.

Mɛyɛ dɛn aboa me ba ma watra ase ne ``Port Wine Stain''?

``Port Wine Stain'', titiriw wɔ anim, betumi ama abofra ate aniwu nka na wabu ne ho a ɛba fam. Ebia nnipa binom bɛhwɛ no anwonwakwan so na wɔaka nsɛm a ɛyɛ yaw. Sɔ nneɛma yi hwɛ na aboa wo ba ma wagyina tebea yi ano:

• Wo ne wo ba nkasa pefee wɔ awo agyiraehyɛde yi ho wɔ nsɛm a ɛnyɛ den mu.
• Ma ɔnnte ase sɛ saa ``Port Wine Stain'' yi yɛ ne nipadua fã, biribi soronko, soronko, na ɛwɔ kɔla .
• Sɛ wo ba no pɛ a, boa no ma wɔmfa aduru bi a wɔde kata so nni dwuma na amma baabi a ɛwɔ hɔ no anhu kɛse.
• Wo ne nnipa a wo ba ne wɔn di nkitaho (e.g. akyerɛkyerɛfo, nnamfo) nkasa fa awo agyiraehyɛde no ho. Hwɛ hu sɛ sukuu no bɛma wo ba no anya tebea a ɛbɛboa wo a obetumi asua ade na ɔne afoforo adi nkitaho a wɔrenhaw no anaasɛ wɔrenyi no mfi mu biara .
• Fa yɛ wo ho sɛ wubebua nsɛmmisa bere a obi bisa ho asɛm no. Sɛ nhwɛso no, fa yɛ wo ho sɛ wobɛka biribi a ɛnyɛ den te sɛ, “Eyi ne m’awo agyiraehyɛde.”
• Kyerɛkyerɛ wo ba no ma ɔmfa awo agyiraehyɛde yi nni dwuma sɛ ne nipadua mu ade foforo a ɛtaa ba ara kwa , te sɛ aniwa kɔla ara pɛ.

So `(Port Wine Stain)` hwehwɛ sɛ wɔhwɛ honam ani hwɛbea soronko?

Ɛtɔ da bi a, honam ani tumi yɛ nwunu wɔ baabi a ``Port Wine Stain'' wɔ hɔ. Enti, ɛho hia sɛ wode nsu gu baabi a ɛhɔ yɛ nwini yiye.

Sɛ honam ani apira (sɛ nhwɛso no, wɔabɔ honam ani, wɔatwitwa) a, ebetumi atu mogya asen honam ani a ɛteɛ. Enti, ma beae no ho ntew denam samina ne nsu a wode bɛhohoro ho yiye no so. Afei, fa aduru a ɛho tew a wɔde kyekyere baabi no nhyɛso.

Bere bɛn na ɛsɛ sɛ wohwehwɛ aduruyɛ mu afotu ma `(Nevus Flammeus)`?

Sɛ wo anaa wo ba wɔ saa ``Port Wine Stain'' ho sɛnkyerɛnne yi bi a, kɔ oduruyɛfo nkyɛn ntɛm ara:

• Sɛ mogya retu wo, titiriw sɛ wontumi nsiw mogya a ɛretu no ano a.
• Sɛ ɛte sɛ nea ɔyare mmoawa wɔ mu (e.g. kɔkɔɔ, ahonhon, pus- ahyɛ mu ma).
• Sɛ ɛyaw wɔ hɔ a.
• Sɛ wo twetwe a.
• Sɛ biribi te sɛ nsuo resen a.

Nea etwa to no, nneɛma a ɛsɛ sɛ wokae (Take-Home Message) .

`(Port Wine Stain)` anaa `(Nevus Flammeus)` yɛ awo agyiraehyɛde a ɛtra hɔ daa a ɛtaa pue wɔ anim. Ɛda adi sɛ baabi a ɛyɛ tratraa, pink, kɔkɔɔ anaa kɔkɔɔ wɔ akokoaa a wɔawo no foforo honam ani, nanso bere kɔ so no, ebetumi ayɛ kɛse, ayɛ den, na ayɛ tuntum. Ɛwom sɛ mpɛn pii no asiane biara nni ho de, nanso ɛntaa mma sɛ wɔde bɛbata aduruyɛ mu tebea afoforo ho. Enti, sɛ wo anaa wo ba no wɔ awo agyiraehyɛde te sɛ eyi a, ɛbɛyɛ papa sɛ wobɛkɔ oduruyɛfo nkyɛn akɔhwehwɛ afotu. Laser ayaresa betumi atew wɔn honam ani hwɛbea so. Ɛho hia paa nso sɛ wobɛboa abofra no ma wagyina tebea yi ano wɔ nkate fam.