So wo ba no wɔ akisikuru a ɛyɛ nwonwa te sɛ eyi? Momma yensua Rasmussen Encephalitis ho ade!

So woate yare bi a ɛyɛ nwonwa a ɛka amemene no fã biako pɛ na bere kɔ so no, ɛyɛ kɛse ho asɛm pɛn? Ebia wo ba ketewa no taa yɛ no yaw, ne nipadua no fã biako yɛ mmerɛw, na ɛyɛ den sɛ ɔbɛkasa? Ntease wom sɛ wobɛbɔ hu bere a wote biribi a ɛte saa ho asɛm no. Ɛnnɛ yɛbɛka tebea bi a ɛntaa nsi nanso ɛho hia ho asɛm. Wɔfrɛ no Rasmussen Encephalitis.

Dɛn ne Rasmussen Amemene mu Yare?

Sɛ yɛbɛka no tiawa a, Rasmussen Encephalitis yɛ yɛn amemene no fã abien no biako a ɛkɔ so bere tenten, kyerɛ sɛ, amemene no fã biako . Sɛ yɛbɛka no pɛpɛɛpɛ a, amemene no mu nkwammoaa hohoro na ɛyɛ kɔkɔɔ. Wɔsan frɛ eyi Rasmussen yare.

Sɛ amemene no fã biako ho yɛ hyew wɔ saa kwan yi so a, efi ase ma ɛtaa yɛ akisikuru. Wɔ aduruyɛ mu no, yɛfrɛ eyi nso sɛ akisikuru. Eyi nyɛ akisikuru kɛkɛ, efi ase sɛe amemene no nkakrankakra, na ɛyɛ den sɛ wobesiesie saa asɛe no. Bere kɔ so no, nipadua no fã biako dwumadi so tew bere a wɔde toto amemene no fã a asɛe no ho no. Wo de susuw ho hwɛ, eyi aka amemene no nifa, afei nipadua no benkum betumi ahwere n’ahoɔden, ayɛ den sɛ ɔbɛkasa, na watumi akae ade.

Oduruyɛfo bi a wɔfrɛ no Theodore Rasmussen na odii kan huu saa yare yi wɔ afe 1958. Enti, wɔtoo din Rasmussen encephalitis de hyɛ no anuonyam.

Tebea yi ho yɛ na dɛn?

Eyi yɛ yare a ɛntaa nsi koraa ankasa . Sɛnea nhwehwɛmufo kyerɛ no, nnipa mpem ɔha du biara mu baanu pɛ na ɛda adi sɛ wobenya saa yare yi. Ɛno kyerɛ sɛ ɛntaa nsi koraa.

Saa yare yi ka mmofra nkumaa a wɔadi fi mfe 2 kosi 10. Nanso, ɛtɔ mmere bi a mmabun ne mpanyimfo nso betumi anya saa tebea yi.

Dɛn ne Rasmussen Encephalitis ho sɛnkyerɛnne ahorow?

Saa yare yi ho sɛnkyerɛnne a edi kan taa yɛ akisikuru. Saa fit yi betumi aba wɔ akwan horow pii so.

Nsɛnkyerɛnne a edi kan

• Tonic-clonic akisikuru a emu yɛ den a ɛkɔ so wɔ ɔkwan a ɛkɔ akyiri so: Wɔ eyi mu no, ntini a ɛwɔ nipadua no afã abien no nyinaa twetwe denneennen, na ebia obi bɛyera.
• Focal aware seizure: Wɔ eyi mu no, wunim nea ɛrekɔ so. Ebia wobɛte nka sɛ wo nsa anaa wo nan biako reyɛ ayɛ wo yaw, anaasɛ wobɛte nka sɛ wo ho ayɛ wo yaw wɔ baabi biako.
• Focal impaired awareness seizure: Eyi yɛ akisikuru a efi ase wɔ amemene no fã biako, na ɛma n’adwene mu yɛ no naa kakra, anaasɛ mpo n’adwene mu yɛ no naa koraa.

Nea ɛho hia ne sɛ, sɛ wo anaa wo ba no wɔ akisikuru te sɛ eyi a, .Ɛsɛ sɛ wokɔ oduruyɛfo nkyɛn ntɛm ara sɛnea wubetumi. Ɛno yɛ biribi a ɛsɛ sɛ woyɛ koraa.

Ade foforo nso ne sɛ, sɛ abofra nsa anaa ne nan yɛ mmerɛw kakra a , ebetumi nso ayɛ yare yi ho sɛnkyerɛnne ntɛm.

Nsɛnkyerɛnne a ɛda adi bere a bere kɔ so no

Akisikuru a edi kan no kɔ soro nkakrankakra mpɛn pii. Nnipa a wɔwɔ Rasmussen amemene mu yare no mu bɛyɛ fã nya tebea bi a wɔfrɛ no `(Epilepsia Partialis Continua - EPC)`. Eyi kyerɛ sɛ akisikuru no kɔ so sikɔne kakraa bi anaa simma kakraa bi. Ɛyɛ den yiye sɛ wɔde nnuru a ɛnyɛ den (a wontumi nsa) bedi saa akisikuru yi so.

Nsɛnkyerɛnne a edidi so yi fi ase da adi wɔ asram kakraa bi, anaa afe biako anaa abien mpo mu wɔ bere a edi kan a ɛyɛ den no akyi:

• Adwene mu tumi a ɛso tew nkakrankakra : Eyi kyerɛ sɛ nneɛma te sɛ nsusuwii, ntease, ne nkae betumi atew.
• Nifa no fã biako a ɛyera nkakrankakra (hemiparesis): Sɛ nhwɛso no, nsa nifa ne nan nifa betumi ayɛ mmerɛw. Bere kɔ so no, eyi betumi akɔ so akodu obubuafo koraa (hemiplegia).
• Aphasia : Eyi ba bere a yare no ka amemene no fã a ɛma ɔkasa (mpɛn pii no, benkum so) no.
• Anisoadehu a ɛyera koraa wɔ ɔfã biako (hemianopsia): Ɛte sɛ aniwa no fã biako pɛ a ɛyera.

Wɔ nnipa dodow no ara fam no, asram 8 kosi 12 a edi kan wɔ Rasmussen amemene mu yare afi ase akyi no ne nea enye koraa . Ɛno akyi no, ebia ɛbɛyɛ te sɛ nea yare no brɛ ase anaasɛ egyae mpo. Nanso, nneɛma a asɛe amemene no yɛ nea ɛtra hɔ daa na wontumi nsan n’akyi.

Dɛn nti na ɛte saa?

Sɛ yɛbɛka nokware a, nyansahufo da so ara nnim nea ɛde Rasmussen amemene mu yare ba ankasa . Nanso wɔwɔ nsusuwii atitiriw abien:

1. Autoimmune disease : Eyi ne bere a yɛn nipadua mu tumi a ɛko tia nyarewa, nhyehyɛe a ɛbɔ yɛn ho ban fi nyarewa ho no di mfomso tow hyɛ yɛn ankasa nkwammoaa pa so. Enti, wosusuw sɛ Rasmussen amemene mu yare yɛ yare a ɛte saa ara a nipadua no tumi ko tia nyarewa a ɛtow hyɛ amemene no fã biako pɛ so.

2. Ɔyare mmoawa : Ebetumi aba sɛ mmoawa bi a wonnim no hyɛn amemene no mu na ɛde tebea yi ba. Nanso, nhwehwɛmufo ahwehwɛ nnipa a wɔanya yare no amemene mu, nanso wonnya nhuu mmoawa pɔtee bi.

Ɔkwan bɛn so na wohu yare yi? (Nyare a Wɔahu) .

Nnuruyɛfo gyina wo ba no sɛnkyerɛnne ne nea efi nhwehwɛmu titiriw pii mu ba so hu Rasmussen amemene mu yare.

• MRI scan (Magnetic Resonance Imaging - MRI): Eyi betumi akyerɛ sɛ amemene mu ntini a ɛwɔ abofra no amemene no fã biako no asɛe anaasɛ atew. Sɛ amemene no fã biako sɛe nkakrankakra wɔ asram anaa mfe pii mu a, ɛyɛ yare no ho sɛnkyerɛnne titiriw.
• EEG sɔhwɛElectroencephalography (EEG): Eyi nso betumi aboa ma wɔahu tebea no. EEG sɔhwɛ bi kyerɛw anyinam ahoɔden dwumadi a ɛwɔ amemene no mu. Eyi betumi aboa ma wɔahu sɛnea akisikuru no reyɛ ne sɛ ebia amemene no reyɛ adwuma wɔ ɔkwan a ɛnteɛ so anaa.

Enti, nnuruyɛfo si Rasmussen amemene mu yare no so dua denam sɛnkyerɛnne ahorow ne nea wɔahu wɔ scan mu te sɛ amemene no fã biako a ɛyɛ mmerɛw a wɔde ka bom so .

Dɛn ne ayaresa ahorow a wɔde sa Rasmussen’s Encephalitis?

Nea ɛyɛ awerɛhow no, wonnyaa Rasmussen amemene mu yare ano aduru biara , enti ayaresa no botae titiriw ne sɛ wobedi yare no ho sɛnkyerɛnne ahorow so na wɔatew ɔfe a ɛwɔ amemene no mu no so.

Wobetumi ayɛ nea edidi so yi sɛ ayaresa:

Nnuru a wɔde ko tia akisikuru

Ebia nnuru yi rentumi nsiw akisikuru a Rasmussen amemene mu yare de ba no ano koraa. Nanso, wobetumi aboa ma akisikuru a ɛtaa ba ne sɛnea emu yɛ den no so atew .

Nnuru a ɛko tia nyarewa

Nnuru a ɛsakra nipadua no mu tumi a ɛko tia nyarewa a ɛma nipadua no tumi ko tia nyarewa no betumi aboa ma wɔadi ntua no so na ama amemene no sɛe a efi nipadua no mu tumi a ɛko tia nyarewa no mu ba wɔ yare no mfiase no so.

Amemene mu oprehyɛn

Ɔkwan a etu mpɔn sen biara a wɔfa so siw Rasmussen amemene mu yare a ɛyɛ den ano ne amemene mu oprehyɛn . Wɔfrɛ eyi sɛ hemispherectomy. Nea ɛka oprehyɛn yi ho ne sɛ wɔbɛtetew abofra no amemene no fã a aka no, kyerɛ sɛ, wɔtetew saa amemene no fã no fi ɔfã foforo no mu, anaasɛ woyi fi hɔ koraa.

Mpɛn pii no, mmofra a wɔyɛ wɔn oprehyɛn yi no ntumi nyɛ adwuma kɛse dedaw wɔ amemene no fã a ɛka wɔn no. Enti, asiane a ɛwɔ hɔ sɛ obi bɛhwere ne dwumadi bio wɔ oprehyɛn akyi no sua. Sɛ mfaso a ɛwɔ so boro asiane a ɛwɔ so koraa nkutoo a nnuruyɛfo susuw oprehyɛn ho .

Dɛn ne yare yi daakye? (Nkɔmhyɛ) .

Rasmussen amemene mu yare ho nkɔmhyɛ betumi ayɛ soronko wɔ onipa biara ho . Wɔ nnipa binom fam no, yare no betumi agyae trɛw wɔ oprehyɛn akyi na mpɛn dodow a akisikuru no taa yɛ no betumi ayɛ nea ɛyɛ den.

Nanso, ebia wobegyaw nnipa pii ma wɔabubu akodu baabi, wɔn adwene ne wɔn nkae a wɔbɛkae, na ayɛ den sɛ wɔbɛkasa. Ɛntaa mma koraa sɛ yare no betumi atrɛw akɔ amemene no afã afoforo.

So wobetumi asiw Rasmussen Encephalitis ano?

Esiane sɛ Rasmussen amemene mu yare yɛ yare a ɛntaa nsi koraa na wonnim nea ɛde ba ankasa nti, biribiara nni hɔ a yebetumi ayɛ de asiw ano .

Esiane sɛ ɛyɛ tebea a ɛntaa nsi nti, ɛyɛ den ma nyansahufo sɛ wobesua ho ade. Nanso asɛmpa no ne sɛ ayaresa ahorow bi wɔ hɔ a ebetumi aboa ma wɔadi akisikuru ne sɛnkyerɛnne afoforo so. Ebia nnuruyɛ mu sɔhwɛ ahorow mpo wɔ hɔ a wo ba betumi de ne ho ahyɛ mu Ɛyɛ ade a ɛfata sɛ wobɛte nka sɛ woayɛ basaa bere a wɔahu sɛ wowɔ yare no te sɛ eyi no. Nanso kae sɛ wo ba no aduruyɛ kuw no wɔ ha sɛ wɔbɛboa wo ne wo ba no wɔ ɔkwan biara so .

Momma yɛnkae (Take-Home Message) .

Rasmussen’s Encephalitis yɛ amemene mu yare a ɛntaa nsi koraa, nanso ebetumi ayɛ nea emu yɛ den.

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* Wɔ eyi mu no, ɔfe ba amemene no fã biako, na ɛma ɛtaa yɛ akisikuru, nipadua no fã biako bubu, na ɛyɛ den sɛ ɔbɛkasa.

* Mmofra nkumaa na ɛka wɔn kɛse.

* Sɛ wuhu sɛnkyerɛnne ahorow a, kɔ oduruyɛfo nkyɛn ntɛm ara.

* Ayaresa betumi adi yare no ho sɛnkyerɛnne ahorow so.

* Ɛnyɛ wo nkutoo na wowɔ bere a ɛte sɛɛ mu, hwehwɛ mmoa fi nnuruyɛfo ne wɔn a wɔbɛn wo paa no hɔ.

Mewɔ anidaso sɛ saa nsɛm yi bɛboa wo. Sɛ wowɔ nsɛmmisa bi a, ntwentwɛn wo nan ase sɛ wo ne oduruyɛfo bɛkasa.

` Rasmussen amemene mu yare, amemene mu yare, akisikuru, fit, mmofra ayaresa, amemene mu ɔfe, ntini mu nyarewa