Tasimelteon: Nna ho haw a Smith-Magenis Syndrome de ba no ano aduru

Wɔ nnipa binom fam, titiriw wɔn a wɔte tebea horow te sɛ Smith-Magenis Syndrome mu no, nna betumi ayɛ asɛnnennen kɛse. Ebetumi ayɛ ɔbrɛ sɛ worentumi nna yiye anadwo na woada awia. Enti, wɔ nsɛm a ɛte sɛɛ mu no, Tasimelteon yɛ aduru titiriw bi a nnuruyɛfo kamfo kyerɛ sɛ ɛboa ma nipadua no da a efi awosu mu no yɛ yiye. Ɛnnɛ, yɛbɛka aduru yi ho asɛm wɔ nsɛm a ɛnyɛ den mu, sɛnea wɔde di dwuma, ne nea ɛsɛ sɛ yɛhwɛ yiye wɔ ho.

Dɛn na ɛba wɔ aduru yi ho ankasa?

Sɛ yɛbɛka no tiawa a, Tasimelteon yɛ aduru a ɛboa ma wo nipadua no da ne sɛnea wosɔre no yɛ adwuma yiye. Yɛn amemene no wɔ nhyehyɛe bi a ɛyɛ adwuma te sɛ abɔde mu dɔn. Wɔ tebea horow te sɛ Smith-Magnesium syndrome mu no, wobetumi asɛe dɔn yi, na ama obi ntumi nna anadwo na wada dodo awiabere. Saa aduru yi yɛ adwuma denam saa nna a asɛe no a ɛsan de ba na ɛboa wo ma woda bere a ɛfata mu no so. Wɔtaa de di dwuma sɛ suspension, na ɛwɔ brand din HETLIOZ LQ nso ase.

Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woafi aduru no ase

Ansa na wɔbɛma wo Tasimelteon no, ɛho hia yiye sɛ wo duruyɛfo hu w’akwahosan tebea no yiye. Hwɛ hu sɛ wobɛka akyerɛ wo duruyɛfo sɛ wowɔ nea edidi so yi mu biara a:

• Sɛ wowɔ mmerɛbo mu yare biara a .
• Sɛ woyɛ obi a ɔnom sigaret a .
• Sɛ woanya Tasimelteon anaa aduru foforo biara, aduan, anaa ade a wɔde yɛ ade a.
• Sɛ woanyinsɛn anaasɛ wowɔ anidaso sɛ wobɛnyinsɛn daakye a enni akyiri a .
• Sɛ woyɛ ɛna a ɔma nufu a .

Oduruyɛfo no begyina saa nsɛm yi so asi gyinae sɛ ebia aduru yi fata wo anaasɛ ɛnfata ne dodow a wɔde bɛma wo.

Ɔkwan bɛn so ankasa na mede saa aduru yi di dwuma?

Sɛnea ɛbɛyɛ na woanya aduru yi so mfaso kɛse no, ɛho hia yiye sɛ wode di dwuma yiye.

• Nnuru a wɔnom: Eyi yɛ aduru a wɔnom a ɛba sɛ nsu (suspension).
• Bere a ɛfata mu: Ɛsɛ sɛ wonom eyi bere koro mu anadwo biara ansa na woada .
• Wosow no yiye: Ɛsɛ sɛ wowosow aduru toa no yiye ansa na wode adi dwuma.
• Susuw a ɛteɛ: Fa syringe a wɔde ano anom, nsenia, anaa dropper a ɛka aduru no ho a wɔahyɛ no agyirae titiriw no di dwuma fa susuw. Mfa teaspoon anaa tablespoons a wowɔ wɔ fie nsusuw, efisɛ eyinom nyɛ nokware.
• Wɔ yafunu a hwee nni mu: Wɔnom saa aduru yi bere a yafunu da mpan.Ɛyɛ papa sɛ wobɛnom. Ɛno kyerɛ sɛ anyɛ yiye koraa no, ɛsɛ sɛ wonom dɔnhwerew fã ansa na woadi, anaasɛ nnɔnhwerew abien wɔ adidi akyi.
• Kɔ so de di dwuma: Kɔ so fa aduru no di dwuma sɛnea wɔakyerɛ wo no kosi sɛ wo duruyɛfo bɛka akyerɛ wo sɛ gyae.

Sɛ wopa nnuru dodow bi a, dɛn na ɛsɛ sɛ woyɛ?

Sɛ wo werɛ fi sɛ wobɛnom w’aduru no da bi a, twa saa dodow no so. Nha wo ho. Fa wo dodow a wode di dwuma daa no ara da a edi hɔ no wɔ bere a wotaa de di dwuma no mu. Mfa nnuru abien prɛko pɛ da mfa nsiesie dodow a wo werɛ afi no.

Nkitahodi a ɛda nnuru ahorow ntam

Tasimelteon tumi ne nnuru ne nnuan afoforo bi di nkitaho. Enti, ka nnuru a worenom nyinaa (a nnuruyɛfo afoforo akyerɛw ama wo, nnuru a wɔtɔn, nnuru a wɔde nhabannuru yɛ, vitamin ahorow) kyerɛ wo duruyɛfo.

Nneɛma a ɛsɛ sɛ ɛtra w’adwenem bere a worenom nnuru no

• Dae ne adwenemhaw: Ebia wobɛte nka sɛ woda anaasɛ wo ho bɛtɔ wo bere a woanom aduru yi awie no. Enti, mfa wo ho nhyɛ dwumadi biara mu gye sɛ wubesiesie wo ho ama nna bere a woanom aduru no awie no. Mfa kar anaa mfa mfiri nni dwuma kosi sɛ wubehu sɛnea aduru yi ka wo.
• Nsɔre mpofirim: Kwati sɛ wobɛsɔre afi baabi a wobɛtena anaa wobɛsɔre afi mpa so mpofirim, titiriw sɛ woanyin a. Eyi ma asiane a ɛwɔ hɔ sɛ obi bɛtɔ ne ho atɔ fam no so tew.
• Kwati nsa: Kwati nsa koraa bere a worenom aduru yi. Nsã betumi asiw aduru no a etu mpɔn no kwan.
• Sigaretnom: Sɛ wonom sigaret a, ka kyerɛ wo duruyɛfo. Saa aduru yi betumi aka w’akwahosan wɔ ɔkwan soronko so wɔ wɔn a wɔnom sigaret mu. Afei nso, sɛ wusi gyinae sɛ wubegyae sigaretnom a, ka kyerɛ wo duruyɛfo.
• Nnuru a wɔnom boro so: Sɛ wususuw sɛ woanom nnuru pii sen sɛnea wususuw a, frɛ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea no ntɛm ara, anaa kɔ ayaresabea a ɛbɛn wo no Ayaresa a Ɛho Hia Ntɛmntɛm (ETU).

Nsunsuanso bɔne a ebetumi aba esiane nnuru nti

Te sɛ aduru biara no, Tasimelteon betumi de ɔhaw ahorow aba nnipa binom so. Ɛwom sɛ eyinom mu dodow no ara yɛ nketenkete de, nanso nneɛma bi wɔ hɔ a ɛsɛ sɛ yɛma yɛn ani da hɔ.

Ɔkwan bɛn so na wɔde nnuru sie na wɔtow gu dwoodwoo?

• Adekorabea: Fa nnuru toa no sie frigye mu . Mfa sie frigye mu , efisɛ eyi betumi ama aduru no asɛe. Fa sie baabi a mmofra ne afieboa ntumi nkɔ hɔ.
• Bere a ɛtwam: Sɛ wobue toa no wie a, bere a wɔde sie no gu ahorow gyina toa no kɛse so (e.g. adapɛn 5 ma toa a emu duru yɛ 48 ml, adapɛn 8 ma toa a emu duru yɛ ml 158). Sɛ saa bere yi anaa da a ɛwɔ toa no so no atwam a, tow aduru a aka no gu.
• Nnuru a Wɔtow gu: Ɔkwan a eye sen biara a wobɛfa so atow nnuru a wɔmfa nni dwuma anaasɛ ne bere atwam agu ne sɛ wode bɛma wɔ nhyehyɛe bi a aban di so a wɔde bɛsan de nnuru agu. Bisa wo duruyɛfo no eyi ho asɛm. Sɛ ɛno ntumi nyɛ yiye a, fa aduru no fra biribi te sɛ mpataa nwura, dɔte, anaa kɔfe a wɔayam mu, fa gu kotoku a wɔatoto mu denneennen mu, na tow gu nwura mu.