Yala i sɛgɛnnen don ani i sɛgɛnnen don fo i tɛ se k’i ka don o don baara kɛ, walima ka wuli yɛrɛ ka bɔ i ka dilan kan wa? Yala ka ji ta ani ka dumuni labɛn, o bɛ iko baara belebeleba wa? Ni i ye nin ko fɔ mɔgɔ dɔ ye, yala u tɛ i janto i la, k’a fɔ ko: “I ka sɛgɛn dɔrɔn de don,” “I ka sunɔgɔ dɔɔnin,” walima “Hakilila dɔrɔn de don wa?” O kɔ, siga t’a la, i ka kan ka nin barokun kalan. Sabula bi an bɛ kuma bana dɔ kan min bɛ nin taamasiɲɛ suguw lase mɔgɔ ma, nka mɔgɔ caman, jamana kɔnɔ ani furakɛli siratigɛ la, olu t’a dɔn tigitigi.
Kunsɛmɛnasumaya/Sɛgɛn basigilen (ME/CFS) ye mun ye tigitigi?
N’an y’a fɔ cogo nɔgɔman na, ME/CFS ye bana ye min bɛ mɛn sen na, a ka gɛlɛn, wa a ka jugu, a bɛ se ka i ka don o don baaraw tiɲɛ pewu. A taamasiɲɛ fɔlɔ ye sɛgɛnba ye min tɛ se ka muɲu, wa a tɛ se ka ɲɛfɔ sababu si fɛ. O tɛ i n’a fɔ sɛgɛn min bɛ kɛ cogo la. O sɛgɛn tɛ ban hali lɛrɛ caman sunɔgɔ kɔfɛ.
Miiri k’a filɛ i bɛ segin ka bɔ taama surun dɔ la, walima ka so baara dɔw kɛ. O kɔ, tile caman kɔnɔ, i sɛgɛnnen don fo i tɛ se ka bɔ i ka dilan kan. An b'o Weele ko "Post-Exertional Malaise". O kɔrɔ ye ko bana taamasiɲɛw bɛ juguya farikolo walima hakili la sɛgɛn dɔɔni kɔfɛ.
Mɔgɔ caman minnu bɛ balo ni nin bana in ye, olu bɛ gɛlɛya caman wɛrɛw sɔrɔ.
- Sunɔgɔ min tɛ mɔgɔ lafiya
- Farikolo dimi
- Sebaliya ka i hakili to a la, ka ɲinɛ fɛn bɛɛ kɔ, cogoya min bɛ i n’a fɔ hakili la
- Dimi bɛ kɛ ni i jɔlen don walima ni i sigilen don
O taamasiɲɛw b’a kɛ sugo ye u bolo ka baara kɛ, ka u sen don sigida baaraw la, ani ka don o don baara yɛrɛ kɛ.
Yala nin ye bana yɛrɛ de ye wa? Walima i bɛ i janto an na wa?
Nin ye gɛlɛyaba ye min bɛ ME/CFS bɛ mɔgɔ minnu na. U somɔgɔw, u teriw ani u kuntigiw dɔrɔn tɛ, nka tuma dɔw la hali dɔgɔtɔrɔw tɛ o taamasiɲɛw ta kosɛbɛ. Sɛgɛsɛgɛli min kɛra kɔsa in na CDC ni WebMD fɛ Ameriki jamana na, o y’a jira ko bana in dɔnni ka dɔgɔ kosɛbɛ.
Sɛgɛsɛgɛli kɛra mɔgɔ minnu kan, olu 90% y’a fɔ ko o taamasiɲɛw de y’u wajibiya ka sigida, ɲɛnajɛ ani baarakɛyɔrɔw dabila. Nka, u tilan sabanan dɔrɔn de tun ye kuma fɔ dɔgɔtɔrɔ dɔ fɛ o ko la. O sababuba tun ye siran ye ko "dɔgɔtɔrɔ tɛna da an na."
Miiri k’a filɛ o ye dusukasiko ye cogo min na. Bana dɔ b’i tɔɔrɔ, nka mɔgɔ si tɛ yen k’o fɔ, hali n’i y’o fɔ, mɔgɔ si tɛ da i la. Sɛgɛsɛgɛli dɔ y’a jira ko mɔgɔ 10 o 10 minnu taara dɔgɔtɔrɔso la, mɔgɔ 6 b’a miiri ko u ma u ta kosɛbɛ.
- 64% y'a fɔ u ka dɔgɔtɔrɔ ye ko u ka "lafiɲɛ dɔɔni."
- 62% ko "Nin ye hakili gɛlɛya ye."
O bɛ bana sɛgɛsɛgɛli bila kɔfɛ san caman kɔnɔ. Mɔgɔ dɔw bɛ san 5 ni kɔ ta walasa ka bana sɛgɛsɛgɛli ɲuman sɔrɔ.
Mun na bana sɛgɛsɛgɛli ka gɛlɛn kosɛbɛ?
Kunba caman bɛ yen minnu b’a to ME/CFS sɛgɛsɛgɛli bɛ se ka kɛ gɛlɛya ye.
1. Sɛgɛsɛgɛli kɛrɛnkɛrɛnnen tɛ yen: I n’a fɔ joli sukaro lajɛ cogo min na walasa ka sukarodunbana dɔn, hali bi joli sɛgɛsɛgɛli walima sɛgɛsɛgɛli kɛrɛnkɛrɛnnen tɛ yen min bɛ se ka ME/CFS sɛgɛsɛgɛ.
2. Taamasiɲɛw tɛ kelen ye: Taamasiɲɛw jiracogo bɛ se ka ɲɔgɔn ta mɔgɔ ni mɔgɔ cɛ. Ka fara o kan, o taamasiɲɛw bɛ ye bana caman wɛrɛw la.
3. Dɔgɔtɔrɔw ka dɔnbaliya : Diɲɛ kɔnɔ, furakɛli kalanso caman tɛ ME/CFS don u ka kalan bolodalenw na, o de bɛ dɔgɔtɔrɔ dɔw bila k’a miiri ko hakili ta fan fɛ ko don.
O la, walasa ka nin bana in sɛgɛsɛgɛ, aw mago bɛ dɔgɔtɔrɔ ŋana dɔ la min bɛ banabagatɔ lamɛn ni muɲuli ye kosɛbɛ ani ka a taamasiɲɛw sɛgɛsɛgɛ ka ɲɛ . Dɔgɔtɔrɔ bɛna se o dantigɛli ma, a kɛlen kɔ ka aw ka bana taamasiɲɛw lamɛn kosɛbɛ ani ka furakɛlicogo wɛrɛw bɔ kɛnɛ kan.
| Sariya jɔnjɔn minnu bɛ ME/CFS sɛgɛsɛgɛli la | |
|---|---|
| Taamasiɲɛ kunbabaw (u saba bɛɛ ka kan ka kɛ yen) . | |
| 1. Sɛgɛn kojugu | Sɛgɛn jugumanba min bɛ mɛn kalo 6 walima ka tɛmɛ o kan, wa a bɛ kɛ sababu ye ka don o don baaraw kɛ. |
| 2. Farikoloɲɛnajɛ kɔfɛ | A taamasiɲɛw bɛ juguya kosɛbɛ hali ni farikolo, hakili walima dusukunnata ta fan fɛ cɛsiri misɛnniw kɛra. |
| 3. Sunɔgɔ min tɛ mɔgɔ lafiya | Hali ni i sunɔgɔra lɛrɛ caman kɔnɔ, i bɛ sɛgɛn hali bi n’i kununna. |
| Taamasiɲɛ wɛrɛw (a dɔgɔyalenba la kelen ka kan ka kɛ a la) . | |
| 1. Hakilila-jɔ-ko-dɛsɛ | A bɛ fɔ a ma ko "Brain Fog", hakili toli gɛlɛya, sebaliya ka i hakili to a la, ani ka waati jan ta ka kunnafoniw baara. |
| 2. Orthostatic Intolerance (Muɲunibaliya min bɛ kɛ ni orthostatique) ye | A taamasiɲɛw i n’a fɔ ɲɛnamini, fangadɔgɔya, walima yelikɛbaliya, olu bɛ sɔrɔ ni aw sigilen don walima ni aw jɔlen don, wa u bɛ lafiya ni aw dalen don. |
Brain Fog ye mun ye?
Nin ye taamasiɲɛ ye min bɛ mɔgɔ tɔɔrɔ kosɛbɛ. Banabagatɔw ka fɔ la, tuma dɔw la, u bɛ bataki sɛbɛn k’a ci u ka baarakɛyɔrɔ la, nka o kɔfɛ, u hakili tɛ o bataki cilen na walima ni min tun bɛ a kɔnɔ. A bɛ waati jan ta ka miiri fɛn nɔgɔmanw na ani ka desizɔnw ta. O bɛ nɔba bila u ka baara la ani u yɛrɛ ka ɲɛnamaya la.
Gɛlɛya minnu bɛ ɲɛnamaya ni nin cogoya in na
O mɔgɔw bɛ hakili degun sɔrɔ min ka jugu ni farikolo dimi ye min bɛ sɔrɔ ME/CFS fɛ. U bɛ dusukasi ni kelennasigi min sɔrɔ n’u yɛrɛ ka denbaya b’a miiri ko: “I bɛ wale kɛ,” ani n’u teriw b’u jalaki ko: “I bɛ an yɛrɛ tanga an ma sisan,” o muɲuli ka gɛlɛn kosɛbɛ.
Fɛn dɔw bɛ yen i b’a fɛ ka minnu kɛ, fɛn dɔw bɛ yen i b’a fɛ ka minnu kɛ. Nka i farikolo tɛna sɔn i ma. Wa o kɔfɛ, mɔgɔ dɔ b’a fɔ i ye ko: “I ka kan ka lafiɲɛ.” Nin ko suguw kosɔn, ME/CFS bɛ mɔgɔ minnu na, olu ka teli ka hakili kɛnɛya gɛlɛyaw sɔrɔ i n’a fɔ degun ni jɔrɔnanko .**
O la, a nafa ka bon kosɛbɛ an bɛɛ ka an janto nin bana in na. Ni nin taamasiɲɛ ninnu bɛ aw la, walima ni aw dɔnbaga dɔ bɛ nin bana in na, aw bɛ se ka dɛmɛba min kɛ, o ye ka u dɛmɛ ani k’u faamu.
Take-Home cikan
- Ɲɛgɛnɛsiraw ka ɲɛgɛnɛsiralabanaw/Sɛgɛnbana basigilen (ME/CFS) ye bana ye min ka jugu kosɛbɛ . O tɛ sɛgɛn ye walima miirili ye.
- A taamasiɲɛw kunbabaw ye sɛgɛn ye min tɛ se ka muɲu, a taamasiɲɛw bɛ juguya hali ni aw ye sɛgɛn dɔɔni kɛ, ani sunɔgɔ min tɛ mɔgɔ lafiya.
- Sɛgɛsɛgɛli bɛ se ka gɛlɛya, o la a nafa ka bon ka taa dɔgɔtɔrɔso la min bɛna aw ka bana taamasiɲɛw lamɛn ni muɲuli ye .
- Sani aw ka taa dɔgɔtɔrɔso la, ka aw ka bana taamasiɲɛw sɛbɛn (misali la, ni u juguyara, sunɔgɔcogo, hakilijagabɔ gɛlɛyaw) o bɛna aw dɛmɛ ka se ka bana sɛgɛsɛgɛli tigitigi sɔrɔ.
- A ka gɛlɛn ka tɛmɛ nin taama in fɛ i kelen na. Nka, kana i jigi tigɛ. Ni faamuyali ni dɛmɛ ɲuman kɛra, o ko bɛ se ka ɲɛnabɔ.
💬 Comments (0)
No comments yet. Be the first to share your thoughts here.
Add Your Comment