Banakisɛ suguya joli bɛ yen minnu bɛ balo an fari la k’a sɔrɔ an t’a dɔn? JC banakisɛ ye o dɔ ye. Tiɲɛ na, nin banakisɛ in bɛ balo diɲɛ kɔnɔ mɔgɔkɔrɔbaw tilancɛ ni kɔ farikolo la. Nka min ye kabako ye, o ye ko a tɛ kojugu walima gɛlɛya si lase mɔgɔ fanba ma. O la, bi an bɛna kuma ka ɲɛ nin ye min ye tiɲɛ na, waati min na a bɛ kɛ gɛlɛya ye, ani n’an ka kan ka siran.
JC banakisɛ ye mun ye tigitigi?
N’an y’a fɔ cogo nɔgɔman na, JC banakisɛ ye banakisɛ ye min ka ca kosɛbɛ. A sɔrɔla fɔlɔ san 1971. Dɔgɔtɔrɔ dɔ ye nin banakisɛ in sɔrɔ cɛ dɔ kunkolo la, kansɛri bana dɔ bɛ min na, n’o bɛ wele ko Hodgkin’s lymphoma. Banakisɛ in tɔgɔ dara banabagatɔ tɔgɔ fɔlɔ la (John Cunningham).
Nka hali bi dɔnnikɛlaw dalen tɛ a la cogo min na a bɛ jɛnsɛn ka bɔ mɔgɔ la ka taa mɔgɔ wɛrɛ la. Nka, mɔgɔ caman dalen b’a la ko banakisɛ bɛ don an fari la ni an denmisɛnman, ji walima dumuni nɔgɔlen fɛ. Ni banakisɛ in donna a kɔnɔ, a bɛ se ka to sunɔgɔ la an ka sugunɛ na, kolotugudaw, tonso walima kunsɛmɛ na san caman kɔnɔ, o tɛ gɛlɛya foyi lase mɔgɔ ma. O de kosɔn, mɔgɔ caman yɛrɛ t’a dɔn ko banakisɛ in b’u la.
O la sa, jɔn de bɛ farati la nin ko in na?
Fɛn min nafa ka bon, o filɛ nin ye. Ni aw farikolo tangacogo ka ɲi ani ni a barika ka bon, JC banakisɛ tɛna aw tɔɔrɔ. A bɛ i n'a fɔ sunɔgɔ dɔrɔn.
Nka, ni kun dɔw la, mɔgɔ farikolo tangacogo fanga dɔgɔyara kosɛbɛ , o banakisɛ min bɛ sunɔgɔ la, o bɛ barika sɔrɔ ka kunun ka a daminɛ ka baara kɛ.
Ni banakisɛ in kɛra baara ye o cogo la, a bɛ se ka kɛ sababu ye ka kunsɛmɛnasumaya juguba dɔ lase mɔgɔ ma min bɛ wele ko Progressive Multifocal Leukoencephalopathy , walima PML .
PML ye mun ye?
o bɛ an ka farikoloɲɛnajɛw lamini lakanani datugulan tiɲɛ . A bɛ i n’a fɔ plastiki datugulan min bɛ kuran nɛgɛ kan, o bɛ wuli. O bɛ cikanw cicogo tiɲɛ pewu nɛrɛmuguma fɛ. o bɛ se ka kɛ sababu ye ka nalomanya banbali sɔrɔ ani tuma dɔw la hali saya .
Faratiba min bɛ PML sɔrɔli la, o ye:
- Sidabanabagatɔw kama.
- Hodgkin ka bana), kansɛri bana bɛ mɔgɔ minnu na i n’a fɔ jolidɛsɛ ni jolidɛsɛ.
- Bana bɛ mɔgɔ minnu na i n’a fɔ sklerose multiple (MS) , Rheumatoïde Arthritis , walima minnu bɛ farikolo tangalan fura suguya dɔw ta farikolo yɔrɔw cili kɔfɛ .
PML taamasiɲɛw ye jumɛnw ye?
A ka ca a la, o taamasiɲɛw bɛ daminɛ joona ka juguya waati tɛmɛnen kɔ. A taamasiɲɛw bɛ se ka ɲɔgɔn ta ka kɛɲɛ ni kunsɛmɛ yɔrɔ ye min tiɲɛna. Nka, ninnu de ye bana taamasiɲɛw ye minnu ka teli ka kɛ.
| Taamaʃyɛn | Cogojirali |
|---|---|
| Clumsiness (Clumsiness) ye | Fɛn minnu bɛ i n’a fɔ gɛlɛya ka kow kɛ, ka sennatiɲɛ ni i bɛ taama, ani ka bin ka bɔ bolo la. |
| Barikantanya min bɛ juguya ka taa a fɛ | Bolo, sen walima farikolo fan kelen barika dɔgɔyali bɛ bonya dɔɔni dɔɔni. |
| Yɛlɛma donna mɔgɔya la | Yɛlɛma minnu bɛ kɛ i n’a fɔ dimi barikama, jɔrɔ, ani hakilijagabɔ. |
| Gɛlɛya bɛ kuma la | Kuma bɛ ɲagami, wa ne b’a fɛ ka min fɔ, ne tɛ se k’o fɔ kosɛbɛ. |
| Yeli gɛlɛyaw | Yeli bɛ kɛ fɛn ye min tɛ ye, ani gɛlɛyaw i n’a fɔ ka fɛn fila ye siɲɛ kelen. |
Aw bɛ nin bana in sɛgɛsɛgɛ cogo di tigitigi?
Fɔlɔ, aw bɛ se ka sɛgɛsɛgɛli kɛ walasa ka a dɔn ni JC banakisɛ bɛ aw la. o bɛ kɛ ni joli sɛgɛsɛgɛli ye walima ka farikolo yɔrɔw lajɛ . o nafa ka bon kɛrɛnkɛrɛnnenya la ni aw bɛ furaw ta minnu bɛ aw farikolo tangacogo bali .
Nka, ni dɔgɔtɔrɔ bɛ sigasiga ko PML bɛ aw la, sɛgɛsɛgɛli kɛcogo tɛ kelen ye.
1. MRI sɛgɛsɛgɛli : Aw bɛna sɛgɛsɛgɛli fɔlɔ min kɛ, o ye MRI (Magnetic Resonance Imaging) sɛgɛsɛgɛli ye. O bɛ baara kɛ ni magɛnni barikamaw ye ani arajo-fiɲɛw ye walasa ka ja caman ta i ka hakili la ani ka misaliw ɲini kunkolo yɔrɔw la minnu bɛ PML taamasiɲɛw ta.
2. Kɔkolodimi : O kɔfɛ, dɔgɔtɔrɔ bɛ se k’a latigɛ ka kɔkolo sɔgɔli (kɔkolo sɔgɔli) kɛ . Aw kana aw hakili ɲagami, o ye ka pikirijikɛlan fitinin dɔ ta ka kɔkoloji dɔɔni ta ka bɔ aw kɔ duguma. Nin ji in bɛ sɛgɛsɛgɛ ni JC banakisɛ bɛ a la. Ni JC banakisɛ sɔrɔla o ji in na, o bɛ PML sɔrɔli jira.
3. Sugunɛbilenni : Ni sanfɛla sɛgɛsɛgɛliw ma ɲɛ hali bi, a bɛ se ka kɛ ko a ka kan ka farikolo yɔrɔ fitinin dɔ ta ka bɔ kunsɛmɛ na walasa ka sɛgɛsɛgɛli kɛ (biyɔpisi).
Jɛɲɔgɔnya min bɛ fura minnu bɛ kɛ ka bana dɔw furakɛ, olu ni JC banakisɛ cɛ
Sklerose multiple (MS) ani Crohn ka bana
Fura dɔw bɛ kɛ ka banaw furakɛ i n’a fɔ sklerose multiple (MS) ani Crohn ka bana (misali la, Natalizumab, Dimethyl fumarate, Fingolimod, Ocrelizumab ) olu ni PML bɛ tali kɛ ɲɔgɔn na.
O la, sani aw ka nin fura suguya in daminɛ, aw ka dɔgɔtɔrɔ bɛna aw sɛgɛsɛgɛ sisan walasa ka a dɔn ni JC banakisɛ bɛ aw la. Aw bɛ se ka fura in ta hali ni banakisɛ in bɛ aw la, nka aw ka kan ka baro kɛ a faratiw ni a nafaw kan ni aw ka dɔgɔtɔrɔ ye sani aw ka ko latigɛ.
Sidabanakisɛ
Bi fura dɔw bɛ di sidabanakisɛ bɛ mɔgɔ minnu na, olu bɛ dɛmɛ don ka farikolo tangacogo barika bonya. O kɛra dɛmɛba ye ka PML sɔrɔli bali ka bɔ JC banakisɛ la. O de kosɔn, PML sɔrɔli hakɛ dɔgɔyara kosɛbɛ sidabanabagatɔw la nin san laban ninnu na.
PML furakɛcogo jumɛnw ye?
Sisan, fura kɛrɛnkɛrɛnnen si ma sɔrɔ min dabɔra ka PML furakɛ pewu, wa dɔnnikɛlaw bɛ ka ɲinini kɛ o ko la hali bi.
Furakɛli ɲuman min bɛ sɔrɔ sisan, o ye ka farikolo tangalanw dɛmɛ ka banakisɛ in kɛlɛ a yɛrɛ ma, a kɛtɔ k’a jɔ kokura. Misali la, ni mɔgɔ dɔ bɛ fura dɔ ta min bɛ a farikolo tangacogo bali, a ka dɔgɔtɔrɔ bɛ se k’a latigɛ k’o fura dabila walima k’a Changer.
Take-Home cikan
- JC banakisɛ ye banakisɛ ye min ka ca kosɛbɛ, kojugu tɛ mɔgɔ fanba la. O la sa, kana siran o ɲɛ kun tɛ.
- Farati lakika kelen min bɛ sɔrɔ o la, o ye mɔgɔ minnu farikolo tangacogo barika ka dɔgɔn kosɛbɛ, olu bɛ se ka kunsɛmɛnasumaya jugumanba dɔ sɔrɔ min bɛ wele ko PML.
- Ni aw ye bana taamasiɲɛw ye i n’a fɔ fangadɔgɔya min tɛ deli ka kɛ, taama walima kuma gɛlɛya, walima mɔgɔya jiginni barikama, kɛrɛnkɛrɛnnenya la ni aw bɛ furaw ta minnu bɛ aw farikolo tangacogo bali, aw bɛ taa dɔgɔtɔrɔso la joona.
- Sani aw ka fura dɔw daminɛ banaw la i n’a fɔ MS ni Crohn, aw ye aw jija ka kuma aw ka dɔgɔtɔrɔ fɛ JC banakisɛ ni PML farati kan.
- Ni ɲininkali walima siga bɛ aw la o ko la, a ka fisa ka kuma aw ka dɔgɔtɔrɔ fɛ o ko la ka jɛya ani ka kunnafoni sɔrɔ.
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